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Kairos - "Gods special time or in the fullness of time." I am not a Parkinsons patient, my husband is and his Dad was.
I am here to learn as much as I can. My husband, David, was diagnosed in March of 2015 after I insisted he go. His neurologist has him on 3 medications but he is not very proactive about his condition. He does a few exercises in the morning, some he learned when attending his first round of PT w the
I am here to learn as much as I can. My husband, David, was diagnosed in March of 2015 after I insisted he go. His neurologist has him on 3 medications but he is not very proactive about his condition. He does a few exercises in the morning, some he learned when attending his first round of PT w the
Kairos
in
Cure Parkinson's
8 years ago
One step two step
One step two step Those of you who watch Star Trek will understand when I say Parkinson's Disease is like the Borg, it adapts to change so it continues to outwit you. In the early years you can stay a few steps ahead but there comes a time when it takes all your tenacity to stay afloat. My walking has
One step two step Those of you who watch Star Trek will understand when I say Parkinson's Disease is like the Borg, it adapts to change so it continues to outwit you. In the early years you can stay a few steps ahead but there comes a time when it takes all your tenacity to stay afloat. My walking has
Hidden
in
Cure Parkinson's
8 years ago
Mrs Lorraine Morris
I was diagnose with Parkinson's in 2008. I tried divert tablets and combination of them Hoping to discover the best. I find that morning, when I get out of bedi is my worse time when I have difficulty walking to the toilet and descending the stairs.
I was diagnose with Parkinson's in 2008. I tried divert tablets and combination of them Hoping to discover the best. I find that morning, when I get out of bedi is my worse time when I have difficulty walking to the toilet and descending the stairs.
DeriAled
in
PSP Association
8 years ago
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Have you ever suffered a dopamine agonist trigger persistent OH? (orthostatic hypotension: low blood pressure / dizzyness upon standing)
After 2 weeks of a low dosage of a dopamine agonist, I got OH - I suddenly became unable to stand for more than a few seconds without fainting. When this first occurred I actually did pass out as a result of attempting to remain standing. Needless to say, I immediately quit the dopamine agonist, but
After 2 weeks of a low dosage of a dopamine agonist, I got OH - I suddenly became unable to stand for more than a few seconds without fainting. When this first occurred I actually did pass out as a result of attempting to remain standing. Needless to say, I immediately quit the dopamine agonist, but
park_bear
in
Cure Parkinson's
8 years ago
after five years of disease, w/ no non-motor features of disease, you might be wrong in your diagnosis of Parkinson's
Other diseases with
parkinsonism
(MSA, PSP) also have abnormal DaTscan, so DaTscan is not useful in the differential diagnosis of true
parkinsonism
. https://www.michaeljfox.org/foundation/news-detail.php?
Other diseases with
parkinsonism
(MSA, PSP) also have abnormal DaTscan, so DaTscan is not useful in the differential diagnosis of true
parkinsonism
. https://www.michaeljfox.org/foundation/news-detail.php?
Hidden
in
Cure Parkinson's
8 years ago
Nausea and Parkinsons
I was diagnosed with Parkinson's around three years ago and my medication is Ropinerole. Over the past few months I am experiencing nausea on a fairly regular basis. Is this fairly common?
I was diagnosed with Parkinson's around three years ago and my medication is Ropinerole. Over the past few months I am experiencing nausea on a fairly regular basis. Is this fairly common?
cliftonville
in
Cure Parkinson's
8 years ago
key ingredient in aspirin blocks cell death from Parkinson's disease
The researchers discovered that when neurons in the brain experience oxidative stress - when the balance between the production of reactive oxygen species (free radicals) and antioxidant defences is thrown out of whack - GAPDH moves into the nucleus to increase protein turnover, and this then leads to
The researchers discovered that when neurons in the brain experience oxidative stress - when the balance between the production of reactive oxygen species (free radicals) and antioxidant defences is thrown out of whack - GAPDH moves into the nucleus to increase protein turnover, and this then leads to
Hidden
in
Cure Parkinson's
8 years ago
Parkinson’s and Alzheimer’s Multifactorial Causes- add fiber in your diet
There are many possible causes of Alzheimer’s and Parkinson’s disease including use of medications, lack of sunshine, lack of sleep and stress. 20% of aging adults over 80 might exhibit
Parkinsonism
and Dementia.
There are many possible causes of Alzheimer’s and Parkinson’s disease including use of medications, lack of sunshine, lack of sleep and stress. 20% of aging adults over 80 might exhibit
Parkinsonism
and Dementia.
Hidden
in
Cure Parkinson's
8 years ago
Taking Parkinson's meds with food
Hi all. I'd imagine not everyone is fully aware that taking Parkinson's medications, such as Sinemet or Madopar, ought NOT to be taken, according to the information given in the following link, at the same time as eating a meal with protein in it. The information seems compelling and, to me, even quite
Hi all. I'd imagine not everyone is fully aware that taking Parkinson's medications, such as Sinemet or Madopar, ought NOT to be taken, according to the information given in the following link, at the same time as eating a meal with protein in it. The information seems compelling and, to me, even quite
frankaspergilus
in
Cure Parkinson's
8 years ago
Toe/calf cramps
Does anybody have any info on whether there is a link between toe cramps and being hypo? I have been suffering more & more over recent months ... not had bloods done since Thyroxine reduced 6 - 7 months ago. Taking mag citrate daily & 5000iu Vit d3. Many thanks for any help.
Does anybody have any info on whether there is a link between toe cramps and being hypo? I have been suffering more & more over recent months ... not had bloods done since Thyroxine reduced 6 - 7 months ago. Taking mag citrate daily & 5000iu Vit d3. Many thanks for any help.
AMH1953
in
Thyroid UK
8 years ago
dopamine transporter deficiency syndrome known as dystonia
As the condition worsens, affected individuals develop
parkinsonism
, which is a group of movement abnormalities . http://ghr.nlm.nih.gov/condition/dopamine-transporter-deficiency-syndrome
As the condition worsens, affected individuals develop
parkinsonism
, which is a group of movement abnormalities . http://ghr.nlm.nih.gov/condition/dopamine-transporter-deficiency-syndrome
Hidden
in
Cure Parkinson's
9 years ago
The 10/9mg barrier!
I seem to be having more problems at the 10/9mg mark than I had on the larger doses of pred when I was first diagnosed last December. I tapered down from 30mg to 10mg in 5 and a half months by the middle of June, but have just in the last week moved to 9mg, so it has taken another 5 months or so to reduce
I seem to be having more problems at the 10/9mg mark than I had on the larger doses of pred when I was first diagnosed last December. I tapered down from 30mg to 10mg in 5 and a half months by the middle of June, but have just in the last week moved to 9mg, so it has taken another 5 months or so to reduce
Charlie1boy
in
PMRGCAuk
8 years ago
Ordering a-Syn blockers in bulk. Master list of nutrients for PD.
I'm going to order the following plant extracts in bulk from China as powders and mix them for storage and later mixing in drinks. I'll dump the powders in a 5 gallon bucket, shake, bottle, and label according to FDA. I'm already taking about 2/3 of them. Let me know if I'm missing anything. I
I'm going to order the following plant extracts in bulk from China as powders and mix them for storage and later mixing in drinks. I'll dump the powders in a 5 gallon bucket, shake, bottle, and label according to FDA. I'm already taking about 2/3 of them. Let me know if I'm missing anything. I
zawy
in
Cure Parkinson's
8 years ago
Compounds that prevent a-syn misfolding
This is a list of the best compounds with the ability to reach the human brain and have been shown in test tube or animal research to slow or stop the accumulation of misfolding a-Syn. The first 4 have the added evidence that they work in humans by epidemiological studies. Most of the other compounds
This is a list of the best compounds with the ability to reach the human brain and have been shown in test tube or animal research to slow or stop the accumulation of misfolding a-Syn. The first 4 have the added evidence that they work in humans by epidemiological studies. Most of the other compounds
zawy
in
Cure Parkinson's
8 years ago
scottish wild life in danger :D
For centuries Scotland has prided itself on the abundant numbers of Haggis or Haggi. but sadly these numbers are in decline.The seasonal bans on Wild haggis hunting has come almost too late, but with the introduction of Haggis farms to provide farmed haggis to companies such as Macsween, this has cut
For centuries Scotland has prided itself on the abundant numbers of Haggis or Haggi. but sadly these numbers are in decline.The seasonal bans on Wild haggis hunting has come almost too late, but with the introduction of Haggis farms to provide farmed haggis to companies such as Macsween, this has cut
jimmyw123
in
Lung Conditions Community Forum
9 years ago
5-HTP / serotonin and symptom reduction
Update: See comment below with a link to another thread that discusses a serious danger with 5HTP that includes a research paper: https://healthunlocked.com/redirect?url=https%3A%2F%2Fwww.drugs.com%2Fdrug-interactions%2F5-htp-with-carbidopa-1-10727-513-0.html%3Fprofessional%3D1 Has anyone noticed
Update: See comment below with a link to another thread that discusses a serious danger with 5HTP that includes a research paper: https://healthunlocked.com/redirect?url=https%3A%2F%2Fwww.drugs.com%2Fdrug-interactions%2F5-htp-with-carbidopa-1-10727-513-0.html%3Fprofessional%3D1 Has anyone noticed
zawy
in
Cure Parkinson's
9 years ago
Any ideas please guys.
Decisions decisions. ...come on just look at those mushrooms pick by my hands a few minutes ago and two of those eggs are still warm. Cut mushrooms into half inch strips. Fry gently in olive oil with two crashed cloves of garlic and season. Fresh mushrooms need only to be soften for a few minutes.
Decisions decisions. ...come on just look at those mushrooms pick by my hands a few minutes ago and two of those eggs are still warm. Cut mushrooms into half inch strips. Fry gently in olive oil with two crashed cloves of garlic and season. Fresh mushrooms need only to be soften for a few minutes.
Hidden
in
Lung Conditions Community Forum
9 years ago
Knee Replacement
I am going in for knee replacement surgery this Friday the 23rd. I'm not looking forward to the pain of rehab but so looking forward to walking my dogs, riding my stationary bike,losing weight etc.
I am going in for knee replacement surgery this Friday the 23rd. I'm not looking forward to the pain of rehab but so looking forward to walking my dogs, riding my stationary bike,losing weight etc.
mktbob55
in
Cure Parkinson's
9 years ago
Novartis' nilotinib (AMN107, trade name Tasigna)
The drug, already approved by the FDA for cancer treatment, improved cognition, motor skills and non-motor function in patients with Parkinson's disease, the university researchers reported. Note: earlier/sooner FDA approval as it is existing drug "To my knowledge, this study represents the first time
The drug, already approved by the FDA for cancer treatment, improved cognition, motor skills and non-motor function in patients with Parkinson's disease, the university researchers reported. Note: earlier/sooner FDA approval as it is existing drug "To my knowledge, this study represents the first time
Hidden
in
Cure Parkinson's
9 years ago
Don't Much like People Anymore...
There was a time when I liked people...all sorts of different people...from the aloof Indian Psychologists to the Hungarian who had OCD and counted his tea bags when you came on duty and then again when you went off...to make certain you hadn't used any I suppose...don't think anyone ever asked him
There was a time when I liked people...all sorts of different people...from the aloof Indian Psychologists to the Hungarian who had OCD and counted his tea bags when you came on duty and then again when you went off...to make certain you hadn't used any I suppose...don't think anyone ever asked him
Hidden
in
Lung Conditions Community Forum
9 years ago
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