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B-12 Def in Mexico (no health insurance)
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
GracePV
in
Pernicious Anaemia Society
5 months ago
People with hypothyroidism and ME
Those who suffer with both hypothyroidism and ME, do you find that your exhaustion is somewhat abated if your vitamins and minerals are optimal? I have posted previously about a friend who has had hypothyroidism for many years. But after contracting Covid she started to feel exhausted and eventually
Those who suffer with both hypothyroidism and ME, do you find that your exhaustion is somewhat abated if your vitamins and minerals are optimal? I have posted previously about a friend who has had hypothyroidism for many years. But after contracting Covid she started to feel exhausted and eventually
AnneEvo
in
Thyroid UK
5 months ago
Spring Covid booster
Have had text from my surgery offering me a Spring Booster for Covid. Have been on 4.5mg Prednisolone for a couple of months now. Would my immune system still be classed as compromised on such a low dose?
Have had text from my surgery offering me a Spring Booster for Covid. Have been on 4.5mg Prednisolone for a couple of months now. Would my immune system still be classed as compromised on such a low dose?
jaycee444
in
PMRGCAuk
5 months ago
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I’m Back
it has been quite a while since I have been on this message board, life just happens as we all know with Lupus. Many changes have occurred from multifocal, pneumonia, aspergillus in my lung and tumor in my lung upper right lobe… however, it is benign right now and they’re just going to watch it. I
it has been quite a while since I have been on this message board, life just happens as we all know with Lupus. Many changes have occurred from multifocal, pneumonia, aspergillus in my lung and tumor in my lung upper right lobe… however, it is benign right now and they’re just going to watch it. I
SunflowerYiayia
in
LUPUS UK
7 months ago
Had doctors appointment this morning sigh
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Elisse3
in
Restless Legs Syndrome
4 months ago
Struggling with antibiotics on chemo
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Lyndy
in
My Ovacome
7 months ago
When on a weekly dose of Pegasys is it ok to occasionally alter the day you inject?
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Na56
in
MPN Voice
7 months ago
Spring COVID Vaccine 2024 booster eligibility
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Suzi70
Administrator
in
Vasculitis UK
6 months ago
Covid booster
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you can’t book through that line and hangs up. Both
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you can’t book through that line and hangs up. Both
grumpygirl
in
NRAS
6 months ago
Mirapexin Oxycodone
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
keiralee
in
Restless Legs Syndrome
4 months ago
Breastfeeding, skin on skin and contractions (c-section)
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Tryinglate
in
Pregnancy and Parenting Support
6 months ago
From Buprenorphine Patch to Tablet: A Memoir
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
RiversW
in
Restless Legs Syndrome
4 months ago
Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Divinesoul
in
Fibromyalgia Action UK
6 months ago
Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
7 months ago
Covid
hi all forum people hope your all as well as you can be. I have lupus and got covid and now as result been off work since mid December now advised I have fibromyalgia and long covid and can’t walk as far even with walking aids. I only have min daily living and wondered if I should update pip but will
hi all forum people hope your all as well as you can be. I have lupus and got covid and now as result been off work since mid December now advised I have fibromyalgia and long covid and can’t walk as far even with walking aids. I only have min daily living and wondered if I should update pip but will
Geeforce99
in
LUPUS UK
6 months ago
Covid booster vaccines
hi Does anyone know if partners / carers of clinically extremely vulnerable people are eligible for the Covid boosters in April. I am under 75 years of age. I am “happy” to have it done privately at a cost of £100 approx but would need to travel some distance at the moment. Thanks for any advice
hi Does anyone know if partners / carers of clinically extremely vulnerable people are eligible for the Covid boosters in April. I am under 75 years of age. I am “happy” to have it done privately at a cost of £100 approx but would need to travel some distance at the moment. Thanks for any advice
Main1234
in
Vasculitis UK
6 months ago
Spring 2024 Covid Vaccine invitation.
Good evening everyone. I’m enquiring if anyone has been contacted with an invitation to have a Spring Covid vaccination booster and if so, how many are or have taken this up? My G.P’s Surgery messaged me recently and I have an appointment for this on 1st May. I have since heard of three people who have
Good evening everyone. I’m enquiring if anyone has been contacted with an invitation to have a Spring Covid vaccination booster and if so, how many are or have taken this up? My G.P’s Surgery messaged me recently and I have an appointment for this on 1st May. I have since heard of three people who have
azaelea
in
MPN Voice
6 months ago
Feel like giving up.
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
3LittleBirds2
in
NRAS
6 months ago
Should I ask to go up on my levothyroxine dosage?
Hi everyone! As suggested, I followed everyone's advice regarding the blood test, and also I've been taking the levothyroxine earlier (leaving more of a gap before eating or taking other medications) for a month, and my latest results are: Serum free T4 level 12.0 pmol/L [7.9 - 14.4] Normal 05 Apr
Hi everyone! As suggested, I followed everyone's advice regarding the blood test, and also I've been taking the levothyroxine earlier (leaving more of a gap before eating or taking other medications) for a month, and my latest results are: Serum free T4 level 12.0 pmol/L [7.9 - 14.4] Normal 05 Apr
melissa-b
in
Thyroid UK
6 months ago
horizant awful
Today was my first day taking horizant and probably my last. I cant lay down for more than a secon d. I am in such agony. tomorrow i will go back on mirapex if my legs dont get better. since it is a long weekend o dr. is not available I am walking and crying all night long. I think I need a new
Today was my first day taking horizant and probably my last. I cant lay down for more than a secon d. I am in such agony. tomorrow i will go back on mirapex if my legs dont get better. since it is a long weekend o dr. is not available I am walking and crying all night long. I think I need a new
lorri214
in
Restless Legs Syndrome
4 months ago
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