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Questran for Bile Acid Malabsorption
Does anyone know an alternative medication for Questran as there is now unavailability due to supply problems? I am having a bad attack of Bile Acid Malabsorption at the moment and am virtually housebound by it! Any help would be much appreciated 🙏
Does anyone know an alternative medication for Questran as there is now unavailability due to supply problems? I am having a bad attack of Bile Acid Malabsorption at the moment and am virtually housebound by it! Any help would be much appreciated 🙏
laurajn087
in
IBS Network
15 days ago
Sjogrens
Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited capabilities in both arms...Sleeping is a very painful/frightening challenge. From inflamed/painful armpits (more so on the left) which ascerbates
Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited capabilities in both arms...Sleeping is a very painful/frightening challenge. From inflamed/painful armpits (more so on the left) which ascerbates
Heritage1961
in
The Australian Sjögren's Syndrome Association
16 days ago
is yoga ok?
I’ve very recently been diagnosed with glaucoma after losing sight in the top half of my right eye, which has been a real shock. I’ve been going to Yoga and Pilates classes for a number of years, both of which I feel have helped with a back issue and have kept me fit and very active at 67, I’m loath
I’ve very recently been diagnosed with glaucoma after losing sight in the top half of my right eye, which has been a real shock. I’ve been going to Yoga and Pilates classes for a number of years, both of which I feel have helped with a back issue and have kept me fit and very active at 67, I’m loath
Sodalover
in
Glaucoma UK
16 days ago
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scleritis and rheumatoid arthritis
hi I have had rheumatoid arthritis for five years and scleritis for 1.5 years. I recently started imraldi(bio similar to humira), in feb 2024, after building antibodies to cimzia. since then I have noted small improvements in my joints but my eyes continue to be in a constant flare. Any suggestions
hi I have had rheumatoid arthritis for five years and scleritis for 1.5 years. I recently started imraldi(bio similar to humira), in feb 2024, after building antibodies to cimzia. since then I have noted small improvements in my joints but my eyes continue to be in a constant flare. Any suggestions
Jjj24
in
NRAS
17 days ago
Eugenol
I just happened to come across some information relating to cirrhosis. It is called eugenol and it comes from cloves. The NIH as recently as 2021 has done studies and as far as I can tell it is helping the liver to heal. I am not a scientist so the big scientific words are beyond me so I am not sure
I just happened to come across some information relating to cirrhosis. It is called eugenol and it comes from cloves. The NIH as recently as 2021 has done studies and as far as I can tell it is helping the liver to heal. I am not a scientist so the big scientific words are beyond me so I am not sure
leanne5000
in
British Liver Trust
10 months ago
Airing Pain 140: Out now!
[i]
Airing Pain
[/i] edition 140: Childhood Pain - Adverse Experiences and Parental Relationships is now available to listen to here: https://painconcern.org.uk/airing-pain-140-childhood-experiences/ Full transcript is available online and to download, as well as a captioned video on YouTube.
[i]
Airing Pain
[/i] edition 140: Childhood Pain - Adverse Experiences and Parental Relationships is now available to listen to here: https://painconcern.org.uk/airing-pain-140-childhood-experiences/ Full transcript is available online and to download, as well as a captioned video on YouTube.
PainConcernHelpline
Pain Concern
in
Pain Concern
7 months ago
cataract
Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one for years, possibly from a childhood eye injury. It’s now becoming a problem , affecting my sight. It’s Encapsulated, not as straightforward. My main concern is healing. It took a year for my leg to heal. Do you advise
Hi all, I realise cataracts are commonplace from Steroid use . I’ve had one for years, possibly from a childhood eye injury. It’s now becoming a problem , affecting my sight. It’s Encapsulated, not as straightforward. My main concern is healing. It took a year for my leg to heal. Do you advise
Greensleeves
in
PMRGCAuk
21 days ago
Floundering
Good morning everybody, I am floundering again I had my first appointment with an NHS rheumatologist after waiting a year. I have previously seen a private one. I have been taking Hydroxy for 10 months but the new Rheumy said my RF had increased so I needed another DMARD as I am unable to take MTX due
Good morning everybody, I am floundering again I had my first appointment with an NHS rheumatologist after waiting a year. I have previously seen a private one. I have been taking Hydroxy for 10 months but the new Rheumy said my RF had increased so I needed another DMARD as I am unable to take MTX due
Wonderfullifeandmore
in
NRAS
21 days ago
Blood in syringe
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was blood inside it even though I didn't pull back the syringe in any way while injecting. I did get a bit of blood collecting on my skin after removing
Skyehope
in
MPN Voice
21 days ago
Sjrogens discomfort
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use everything made by biotene; drink water all day( small sips), suck sugar free candies. Anything works well for anyone?. I stopped coffee and my
Love2fish2
in
The Australian Sjögren's Syndrome Association
22 days ago
GCA and Elevation
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
Mooreby
in
PMRGCAuk
22 days ago
b 1 Therapy
Hello fellow readers. My name is Sakina. I am soo confused about the b1 therapy. I have been taking b1 sublingual 100 mg three times in a week under the tongue for quite a while l, but have noticed no difference. So now I am taking 100mgs of Thiamine Mononitrate. Which is better Thiamine Hydrochloride
Hello fellow readers. My name is Sakina. I am soo confused about the b1 therapy. I have been taking b1 sublingual 100 mg three times in a week under the tongue for quite a while l, but have noticed no difference. So now I am taking 100mgs of Thiamine Mononitrate. Which is better Thiamine Hydrochloride
Springbreak
in
Cure Parkinson's
22 days ago
Safe eye makeup
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
Marocean
in
Glaucoma UK
22 days ago
Eye Supplement Concern
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Mishie14
in
MPN Voice
23 days ago
Mixed messages
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Lancashirelass07
in
Glaucoma UK
23 days ago
constipation from panadeine, or vertebra nerves, or both?
so docs have said constipation can be caused by pain medication and by the nerves of the vertebra, what's your experience, thanks any pain medication comments welcomed, i think. a dr friend of mine has used patches.
so docs have said constipation can be caused by pain medication and by the nerves of the vertebra, what's your experience, thanks any pain medication comments welcomed, i think. a dr friend of mine has used patches.
MayGodBlessYou
in
Bone Health and Osteoporosis UK
7 months ago
cataract surgery
hi - I am healthy & 65. Very myopic (-10 & -9) with glaucoma in left eye). I have just dropped below DVLA driving limit so consultant is recommending cataract surgery in both eyes (NHS). My question is would it be worth it in terms of quality of vision improvement to go private as I understand that various
hi - I am healthy & 65. Very myopic (-10 & -9) with glaucoma in left eye). I have just dropped below DVLA driving limit so consultant is recommending cataract surgery in both eyes (NHS). My question is would it be worth it in terms of quality of vision improvement to go private as I understand that various
t55ddy
in
Glaucoma UK
25 days ago
Dark shadows from glaucoma eye drops
Hi I was diagnosed almost 3 yrs ago and simply handed a leaflet and a prescription. I now have to use them 3 times a day as the pressure has worsened.The dark shadows in my eye sockets now look so bad, although I did read about this I have never been told if there is an alternative. The nurse at the
Hi I was diagnosed almost 3 yrs ago and simply handed a leaflet and a prescription. I now have to use them 3 times a day as the pressure has worsened.The dark shadows in my eye sockets now look so bad, although I did read about this I have never been told if there is an alternative. The nurse at the
doileyqueen
in
Glaucoma UK
26 days ago
Pelvic Pain Worse at Night
Hi all. Currently undiagnosed/suspected endo. Trying to document when I get flare ups of pelvic pain/cramping and notice any links/triggers. I don’t have periods due to having the coil (used to have incredibly painful periods/heavy periods) but still suffering from pelvic pain. If I get any spotting
Hi all. Currently undiagnosed/suspected endo. Trying to document when I get flare ups of pelvic pain/cramping and notice any links/triggers. I don’t have periods due to having the coil (used to have incredibly painful periods/heavy periods) but still suffering from pelvic pain. If I get any spotting
PBGV24
in
Endometriosis UK
7 months ago
Rituximab and Denosumab
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Jacko37
in
NRAS
26 days ago
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