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Simponi aria infusion
I’ve had two infusions and my RA is much better. The draw backs are my mouth mucosal is raw and dry. Eating only soft foods and lidocaine mouthwash to help. My eye dryness is good on some days. Still using prescription drops. I’m still loosing hair. All this with no pain is a Catch 22. Still fatigue
I’ve had two infusions and my RA is much better. The draw backs are my mouth mucosal is raw and dry. Eating only soft foods and lidocaine mouthwash to help. My eye dryness is good on some days. Still using prescription drops. I’m still loosing hair. All this with no pain is a Catch 22. Still fatigue
Nana-8
in
NRAS
26 days ago
DVLA field tests
I have had glaucoma for over 30 years and my licence has had to be renewed every 3 year when I have to have a DVLA field test to renew my licence. I had my latest field test 16 months ago which I failed due to having 4 dots missing on the chart. My acuity is better than 20/20 vision and my pressures
I have had glaucoma for over 30 years and my licence has had to be renewed every 3 year when I have to have a DVLA field test to renew my licence. I had my latest field test 16 months ago which I failed due to having 4 dots missing on the chart. My acuity is better than 20/20 vision and my pressures
Ninja124
in
Glaucoma UK
28 days ago
worsening vision left eye
I posted earlier a few weeks ago about problems with my left eye, the vision getting worse. Far distance looked like my vision did before cataract surgery- not distinct. I also posted about an ER visit that happened two weeks ago because of severe vomiting, diarrhea, rapid heartbeat and dehydration
I posted earlier a few weeks ago about problems with my left eye, the vision getting worse. Far distance looked like my vision did before cataract surgery- not distinct. I also posted about an ER visit that happened two weeks ago because of severe vomiting, diarrhea, rapid heartbeat and dehydration
Mstiles
in
PMRGCAuk
28 days ago
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beta alanine dose/timings
this has been suggested by the clinic nurse as not finding anti histamines to be helpful. My husband (Jak 2 pos, pv) has been tolerating Pegasys 45 mcg really well. Feels better than he had in ages. However after three weeks, he has become quite itchy (manageable during day) but it is waking him at night
this has been suggested by the clinic nurse as not finding anti histamines to be helpful. My husband (Jak 2 pos, pv) has been tolerating Pegasys 45 mcg really well. Feels better than he had in ages. However after three weeks, he has become quite itchy (manageable during day) but it is waking him at night
Scaredalone
in
MPN Voice
1 month ago
Possible AMD ?
So im a healthy 49 year old, 2 years ago i went for a regular eye exam, had a basic eye scan etc, and the woman seemed to see something on it and asked me to look at a amsler grid and asked if everything looked ok. It did and she said fine. I had an operation on my left eye when i was a teenager as
So im a healthy 49 year old, 2 years ago i went for a regular eye exam, had a basic eye scan etc, and the woman seemed to see something on it and asked me to look at a amsler grid and asked if everything looked ok. It did and she said fine. I had an operation on my left eye when i was a teenager as
chrisnewton35
in
Macular Society
1 month ago
Cataract Surgery
Hi all, Im going for cataract surgery next week on my right eye. I’ve been advised to do very little for the first 4 days. Also that I’m not to bend over or lift anything , not to strain or cough to hard for about 4 weeks. My concern is that although I take daily laxatives, linzess and Movical there
Hi all, Im going for cataract surgery next week on my right eye. I’ve been advised to do very little for the first 4 days. Also that I’m not to bend over or lift anything , not to strain or cough to hard for about 4 weeks. My concern is that although I take daily laxatives, linzess and Movical there
Angie11
in
IBS Network
1 month ago
Psychiatric Somatisation disorder suggested before thyroid dysfunction diagnosis?
Just out of interest, how many people have been fobbed off with a suggestion or diagnosis of a psychiatric/psychological disorder whilst trying to get a diagnosis of thyroid dysfunction? I think it must be quite common. When it happened to me I was shocked. (Can you believe it?!) At the time I found
Just out of interest, how many people have been fobbed off with a suggestion or diagnosis of a psychiatric/psychological disorder whilst trying to get a diagnosis of thyroid dysfunction? I think it must be quite common. When it happened to me I was shocked. (Can you believe it?!) At the time I found
Agitator23
in
Thyroid UK
1 month ago
Antihistamine protocol
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Norregirl
in
Fertility Network UK
1 month ago
Flare dosage after tapering to zero
Hello everyone, hoping to tap your wisdom. I'm experiencing my first flare (aching neck, shoulders, temples; thankfullyno visual symptoms) since getting off pred in early March 2024. Rheumy on call wants me to take 40mg now as protection against vision loss. I was diagnosed with cranial GCA and PMR
Hello everyone, hoping to tap your wisdom. I'm experiencing my first flare (aching neck, shoulders, temples; thankfullyno visual symptoms) since getting off pred in early March 2024. Rheumy on call wants me to take 40mg now as protection against vision loss. I was diagnosed with cranial GCA and PMR
Optim11
in
PMRGCAuk
1 month ago
Shirt sighted
Can anybody tell me if you are long sighted and have cataracts surgery for long distance you then become short sighted
Can anybody tell me if you are long sighted and have cataracts surgery for long distance you then become short sighted
Janebirch1
in
Glaucoma UK
1 month ago
Just confused
I have spent 8 months or so trying to figure out what on Earth is going on with my periods. I’ve had three scans and a couple of consultations. Friends of mine tell me they just take two paracetamol and sometimes use a hot water bottle and they’re ok. Where I generally can’t walk, take extremely hot
I have spent 8 months or so trying to figure out what on Earth is going on with my periods. I’ve had three scans and a couple of consultations. Friends of mine tell me they just take two paracetamol and sometimes use a hot water bottle and they’re ok. Where I generally can’t walk, take extremely hot
jennire
in
Endometriosis UK
8 months ago
adalimumab side effects
Have been on adalimumab 2 weekly injections for nearly 3 months. Have noticed that I am losing an excessive amount of hair each time that I comb my hair. Also, I have been suffering from swollen legs /ankles over the past month without doing very much at all. Have previously needed to stop methotrexate
Have been on adalimumab 2 weekly injections for nearly 3 months. Have noticed that I am losing an excessive amount of hair each time that I comb my hair. Also, I have been suffering from swollen legs /ankles over the past month without doing very much at all. Have previously needed to stop methotrexate
Nannalyn
in
NRAS
1 month ago
Surgery
Hi I'm still on Monopost drops eye pressures 21 and 18. Got dry eyes and meiboman gland dysfunction. I have shallow angles but laser still open.I have primary angle closure but no optic nerve damage. Does any one have blurred vision with dry eyes. I'm having 2 operations soon and I'm so worried I will
Hi I'm still on Monopost drops eye pressures 21 and 18. Got dry eyes and meiboman gland dysfunction. I have shallow angles but laser still open.I have primary angle closure but no optic nerve damage. Does any one have blurred vision with dry eyes. I'm having 2 operations soon and I'm so worried I will
Paula1710
in
Glaucoma UK
1 month ago
augustafolia
I am looking for advice/help in accepting the status quo, ie my sight journey. I lost sight in one eye due to an eye stroke in December 2022. I am scared and concerned incase my other eye is vulnerable. My optitician I went to first time said I had Gluacoma , and because I attend the eye clinic for observation
I am looking for advice/help in accepting the status quo, ie my sight journey. I lost sight in one eye due to an eye stroke in December 2022. I am scared and concerned incase my other eye is vulnerable. My optitician I went to first time said I had Gluacoma , and because I attend the eye clinic for observation
augustafolia
in
Glaucoma UK
1 month ago
pain in knee
pain in knee and body the answer is green lipped mussel extract works for me better than new knee helps fm pain to
pain in knee and body the answer is green lipped mussel extract works for me better than new knee helps fm pain to
Eastwood1
in
Pain Concern
10 months ago
Sad unexpected passing of my beloved Brother.
It is with great sadness that i have to write that my Brother passed away, suddenly and unexpected after being admitted to hospital with yet another breathing infection. He was placed into an induced coma 6th October 2019. His history I have written previously. From hospital
It is with great sadness that i have to write that my Brother passed away, suddenly and unexpected after being admitted to hospital with yet another breathing infection. He was placed into an induced coma 6th October 2019. His history I have written previously. From hospital
Twoblu
in
ICUsteps
1 month ago
Interesting info
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
wilsond
in
AF Association
8 months ago
Total knee replacement - 6 weeks on
Hi Today is my 6 week anniversary of having my TKR on my right knee. I'm keen to start driving again and wondered if I need to get the go ahead from the physio first or what is the protocol? My understanding was that if you can do an emergency stop you can drive. I have an automatic car so I'll be
Hi Today is my 6 week anniversary of having my TKR on my right knee. I'm keen to start driving again and wondered if I need to get the go ahead from the physio first or what is the protocol? My understanding was that if you can do an emergency stop you can drive. I have an automatic car so I'll be
Divasong
in
Arthritis Action
8 months ago
Questran for Bile Acid Malabsorption
Does anyone know an alternative medication for Questran as there is now unavailability due to supply problems? I am having a bad attack of Bile Acid Malabsorption at the moment and am virtually housebound by it! Any help would be much appreciated 🙏
Does anyone know an alternative medication for Questran as there is now unavailability due to supply problems? I am having a bad attack of Bile Acid Malabsorption at the moment and am virtually housebound by it! Any help would be much appreciated 🙏
laurajn087
in
IBS Network
1 month ago
Sjogrens
Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited capabilities in both arms...Sleeping is a very painful/frightening challenge. From inflamed/painful armpits (more so on the left) which ascerbates
Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited capabilities in both arms...Sleeping is a very painful/frightening challenge. From inflamed/painful armpits (more so on the left) which ascerbates
Heritage1961
in
The Australian Sjögren's Syndrome Association
1 month ago
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