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Research and Trials
www.ataxia.org.uk Over the last week there have been some great articles about research and trials from all around the world, which we have shared on our Twitter page. If you don't follow us on Twitter already, here are the links to some of these: 📚Revolutionary DNA test: http://bit.ly/30hX3j0 📚Investigation
www.ataxia.org.uk Over the last week there have been some great articles about research and trials from all around the world, which we have shared on our Twitter page. If you don't follow us on Twitter already, here are the links to some of these: 📚Revolutionary DNA test: http://bit.ly/30hX3j0 📚Investigation
wobblybee
in
Ataxia UK
5 years ago
Contact Lenses
New year, new account, new haircut, new head. Last new year I felt great, really healthy and happy and I get fitter and lost weight, then I moved house and something caused me to feel pretty rubbish and fatigued and put on lots of weight and stop exercising. But then the new year came around again and
New year, new account, new haircut, new head. Last new year I felt great, really healthy and happy and I get fitter and lost weight, then I moved house and something caused me to feel pretty rubbish and fatigued and put on lots of weight and stop exercising. But then the new year came around again and
escocia
in
Headway
5 years ago
Thinking
Thinking not taking any meds at all As no improvement micro chemotherapy drug to Kill What’s in your body that isn’t good Just don’t know ether dose the medical professionals Yes I’m little droopy feeling today I could do this ms thing with out the tremors so I think it could be worse
Thinking not taking any meds at all As no improvement micro chemotherapy drug to Kill What’s in your body that isn’t good Just don’t know ether dose the medical professionals Yes I’m little droopy feeling today I could do this ms thing with out the tremors so I think it could be worse
Tracelr
in
My MSAA Community
5 years ago
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Anyone ever try EMDR therapy?
My psychologist wants me to try EMDR therapy. Has anyone done it and if so, was it successful?
My psychologist wants me to try EMDR therapy. Has anyone done it and if so, was it successful?
Hidden
in
Heal My PTSD
4 years ago
Body temperature
Hi all, I am gratefully 63 now an still suffering with different things with my body I can be sitting home watching tv then my body get real hot for abt 40 seconds. I have to turn fan on to cool off. Once i get over that spell my body will be normal then I get so cold an cover up. It's a awful feeling
Hi all, I am gratefully 63 now an still suffering with different things with my body I can be sitting home watching tv then my body get real hot for abt 40 seconds. I have to turn fan on to cool off. Once i get over that spell my body will be normal then I get so cold an cover up. It's a awful feeling
Quee
in
NRAS
5 years ago
Flutter help request
After being diagnosed 6 years ago with Lone PAF & put on 200mgs of Flecainide, all has been satisfactory to date. However, yesterday after an unusual early supper of 2 Black pudding sausage rolls (may not be relevant but the only different fact), I got what I think was my first case of Flutter just before
After being diagnosed 6 years ago with Lone PAF & put on 200mgs of Flecainide, all has been satisfactory to date. However, yesterday after an unusual early supper of 2 Black pudding sausage rolls (may not be relevant but the only different fact), I got what I think was my first case of Flutter just before
secondtry
in
AF Association
5 years ago
Advice. Share your story. Beat cnv. Myopia. Idiopathic. MD
Idiopathic cnv at age 24. Now age 26 almost 27. Eyes originally 20/20 with 2.25 and 3.00 right and left eye respectively. Right eye had peripapillary cnv around one to two disc spaces temporally. 5 shots of avastin in total over 6 months. Have had checks up since with no bleeds and I am going every 3
Idiopathic cnv at age 24. Now age 26 almost 27. Eyes originally 20/20 with 2.25 and 3.00 right and left eye respectively. Right eye had peripapillary cnv around one to two disc spaces temporally. 5 shots of avastin in total over 6 months. Have had checks up since with no bleeds and I am going every 3
Macsoccer422
in
Macular Society
5 years ago
Thealoz duo eye drops
Anyone used these with any success? I have terribly dry eyes which is affecting my vision. I’ve been using carbomer eye gel and hycosan extra with little relief. Also using heated eye mask at night. Really hoping these drops give me a little relief, my eyes are bone dry
Anyone used these with any success? I have terribly dry eyes which is affecting my vision. I’ve been using carbomer eye gel and hycosan extra with little relief. Also using heated eye mask at night. Really hoping these drops give me a little relief, my eyes are bone dry
GlasgowHen
in
LUPUS UK
5 years ago
Anyone with CNV still got pregnant?
I’ve just been diagnosed with Myopic CNV. And I’ve just had my first shot of Eylea. Looking around this forum, so far I’ve seen posts where people get monthly shots for years. Just before being diagnosed, my husband and I have been trying to get pregnant. But because of my CNV, now I’m wondering: does
I’ve just been diagnosed with Myopic CNV. And I’ve just had my first shot of Eylea. Looking around this forum, so far I’ve seen posts where people get monthly shots for years. Just before being diagnosed, my husband and I have been trying to get pregnant. But because of my CNV, now I’m wondering: does
BePost
in
Macular Society
5 years ago
Do I have macular degeneration
Hi everyone I’m 24, my symptoms include: Straight lines appear wavy Static in vision Light sensitivity After images Bad night vision Also works jump around on a page White flashing light in central vision in the day and at night I have a black central shadow which pulsates and looks like a squiggly
Hi everyone I’m 24, my symptoms include: Straight lines appear wavy Static in vision Light sensitivity After images Bad night vision Also works jump around on a page White flashing light in central vision in the day and at night I have a black central shadow which pulsates and looks like a squiggly
Kitcat95
in
Macular Society
5 years ago
Post 585 Take your time 8 Jan 2020
That does seem to be an obvious statement, but I will say it again. Take your time. "YOU" have just been diagnosed (Dx'd) with Relapsing-Remitting ms (RRms), "YOU" have tears to shed brick walls to kick and the sky to yell at. Give it everything that "YOU" can muster. Let the scientist on the space station
That does seem to be an obvious statement, but I will say it again. Take your time. "YOU" have just been diagnosed (Dx'd) with Relapsing-Remitting ms (RRms), "YOU" have tears to shed brick walls to kick and the sky to yell at. Give it everything that "YOU" can muster. Let the scientist on the space station
RoyceNewton
in
My MSAA Community
5 years ago
Dry and and AREDS2
I have dry AMD so no injections for me..I have been taking eye supplements for 6 weeks and the last 2 weeks I've been taking AREDS2 I now have some small floaters in my eyes and wondered if the AREDS2 have anything to do with it. As anyone else had this happen?
I have dry AMD so no injections for me..I have been taking eye supplements for 6 weeks and the last 2 weeks I've been taking AREDS2 I now have some small floaters in my eyes and wondered if the AREDS2 have anything to do with it. As anyone else had this happen?
horseaddict
in
Macular Society
5 years ago
Diagnosis
My hubby saw the Neurologist for the 1st time on Monday. He is of the opinion he has Parkinsonism and not PSP. He wants him to do a trial of Co-beneldopa (Madopar) for 6 weeks to see what effect that has. Here's hoping it helps. Marcia
My hubby saw the Neurologist for the 1st time on Monday. He is of the opinion he has Parkinsonism and not PSP. He wants him to do a trial of Co-beneldopa (Madopar) for 6 weeks to see what effect that has. Here's hoping it helps. Marcia
Marcy47
in
PSP Association
5 years ago
My father of 86 years has been diagnosed with duodenal cancer estimated only 6 months. Any advice would be appreciated
He has kidney disease stage 3 and heart weakness
He has kidney disease stage 3 and heart weakness
merlin1234567
in
Lung Conditions Community Forum
5 years ago
Bar-Ilan, Stanford, Researchers Find Treatment for Macular Degeneration Blindness
By David Israel - December 27, 2019 Macular degeneration (AMD) causes blindness in millions of people in the Western world. It is the most common cause of severe vision loss in the Western world among those aged 50 and over, and its prevalence increases with age. Though there is no cure for AMD, significant
By David Israel - December 27, 2019 Macular degeneration (AMD) causes blindness in millions of people in the Western world. It is the most common cause of severe vision loss in the Western world among those aged 50 and over, and its prevalence increases with age. Though there is no cure for AMD, significant
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Anyone else heard of Hyaluronic Acid.
I have had PMR for 8 months and in June was started on 15 mgs Prednisone. My doctor reduce me down to 12 in August and i was perfectly fine, so in September he dropped me down to 10 and again fine. October down to 9, November down to 8, December down to 7. He told me to reduce to 6 mgs. January
I have had PMR for 8 months and in June was started on 15 mgs Prednisone. My doctor reduce me down to 12 in August and i was perfectly fine, so in September he dropped me down to 10 and again fine. October down to 9, November down to 8, December down to 7. He told me to reduce to 6 mgs. January
Hidden
in
PMRGCAuk
5 years ago
Moving back to UK (On Peginterferon)
Hi all, I am currently on bi-weekly Pegasys Peginterferon injections here in HK. I am planning on moving back to the UK this summer. Does anyone know or have experience about how to go about continuing my injections through the NHS when I return?
Hi all, I am currently on bi-weekly Pegasys Peginterferon injections here in HK. I am planning on moving back to the UK this summer. Does anyone know or have experience about how to go about continuing my injections through the NHS when I return?
dengor
in
MPN Voice
5 years ago
How often do you and partner have sex, honestly? Help
Hi guys How often do you and partner have sex in a month ? How long have you been together? My partner seems to hound me permanently, makes me feel guilty and he’s moody until he gets it. He doesn’t actually even try to initiate it but will openly huff and puff in bed, tap his fingers and feet to
Hi guys How often do you and partner have sex in a month ? How long have you been together? My partner seems to hound me permanently, makes me feel guilty and he’s moody until he gets it. He doesn’t actually even try to initiate it but will openly huff and puff in bed, tap his fingers and feet to
JojoWash
in
Pregnancy and Parenting Support
5 years ago
Truxima (Rituximab) Advice please?
Hello and Happy New Year! I had two Rituximab infusions in December, these were my 5th cycles. I’ve been feeling a bit more blurgh than usual after these infusions and just put it down to the Christmas rush prep etc, I’ve just pulled out my alert card and it says I was treated with Truxima (Rituximab
Hello and Happy New Year! I had two Rituximab infusions in December, these were my 5th cycles. I’ve been feeling a bit more blurgh than usual after these infusions and just put it down to the Christmas rush prep etc, I’ve just pulled out my alert card and it says I was treated with Truxima (Rituximab
3LittleBirds2
in
NRAS
5 years ago
Macular Degeneration - what results?
Having macular degeneration -- anyone reporting good results from shots? Complications because of CLL?... am 80...on infusions but no chemo... worrying...
Having macular degeneration -- anyone reporting good results from shots? Complications because of CLL?... am 80...on infusions but no chemo... worrying...
Butitisme
in
CLL Support
5 years ago
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