That does seem to be an obvious statement, but I will say it again. Take your time. "YOU" have just been diagnosed (Dx'd) with Relapsing-Remitting ms (RRms), "YOU" have tears to shed brick walls to kick and the sky to yell at. Give it everything that "YOU" can muster. Let the scientist on the space station hear your roar. Why not do it again it is sort of fun. This is normal, for somebody recently Dx'd with a chronic, incurable illness this is to be expected. If I remember when I was Dx'd long ago I cried for weeks. At a drop of a hat I could make the waterworks flow, I seemed to have permanently red eyes. I must have looked like a bleary-eyed drug-crazed loony. It took a while but eventually, I stopped to take a breath and pul my pieces back together.
I was not told of my condition, given to aspirins and sent on my way and everything was settled. No like "YOU" I had to make decisions about medicine, what and where I was going to be. It does seem that a reasonably well-disorganized life was completely turned around and put in a mix master. I like "YOU" had it easy in the sense that there was only one medicine available to me, so taking it was easy no decision, just like it is for "YOU" For me back then, Interferon Beta 1B. For you today, Ocrevus. Do not worry about the rest, it is the strongest, and that is what "YOU" want. Start it, give it some time to work. Do not think "YOU" will be cured, nothing will cure "YOU" and take your RRms away. IF I am wrong, please feel free to correct me, it is okay I do make mistakes, but I am pretty certain I am correct on this one. Give everything a little time. I switched from Beta once to Rebif. fewer needles and we all know how much I dislike needles. Within two injections, I knew something was wrong, but I still followed through for a month, I think. I gave it time, I let my body adapt. These are powerful medicines, and I was not designed to need them. I need them now, my body has adapted and uses them to keep me on my feet as best it can. Do not expect miracles with your DMT because "YOU" will be disappointed.Having sid that She who must be obeyed has not had any sort of attack in years, and try as I might. With all the incredibly stupid things I do I can not recall any attacks beyond my Trigeminal Neuralgia episodes. I would say that over time, perhaps the medicine worked a little better than advertised.
DMT is not the be-all and end-all of life with RRms. It is merely a part. There are other parts of my body to look after. I have never been told to only concentrate on your Central Nervous System (CNS), and there is more to "YOU" to think about. A strict diet of chocolate doughnuts is not the way to a long healthy life. Of course "YOU" know this already. You have those posters of the body on your wall. The ones "YOU" bought from Amazon.com. "YOU" have an idea that there is more to think about. "YOU" are not losing that extra five pounds for bikini season, "YOU" are eating exercising to maintain your broken system in the best order that "YOU" can and there is something working against "YOU". It is not simple or easy, if it was anybody could do it. It is not, only the strong ones can cope, and that my sister and broth is "YOU'. Yes "YOU" the strong one. Give yourself time to come to terms with your new life. Adapt, all that "YOU" need to and be prepared to do this again and again over the many years. We ar standing on ankle-deep quicksand now and it keeps movie. Adjust and adapt toi t and live the absolute, totally, utterly best life that "YOU" possibly can.
Royce (the ms writer)
You can do this just give yourself a little time
