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Phantom smell
Hello all, My sense of smell is present, but for the last 6 weeks I have been smelling a foul scent that is not really there. It is almost like a pungent soap. Originally I thought it was coming from the clothes that were washed and may have had too much soap or something, but after this long it is
Hello all, My sense of smell is present, but for the last 6 weeks I have been smelling a foul scent that is not really there. It is almost like a pungent soap. Originally I thought it was coming from the clothes that were washed and may have had too much soap or something, but after this long it is
Missy0202
in
Cure Parkinson's
3 years ago
Fibro and Sjogrens
Hi everyone, has anyone been diagnosed with sjogrens as well as fibromyalgia? I am struggling at the minute and wondering if I should ask my GP to be feferred back to a rhumatologist as the only treatment is eyedrops I buy myself. Any info would be appreciated. Thanks
Hi everyone, has anyone been diagnosed with sjogrens as well as fibromyalgia? I am struggling at the minute and wondering if I should ask my GP to be feferred back to a rhumatologist as the only treatment is eyedrops I buy myself. Any info would be appreciated. Thanks
Daisy4444
in
Fibromyalgia Action UK
3 years ago
First Appointment after Diagnosis
Hi went for first appointment after diagnosis yesterday. So stressed. Lovely doctor though. Obviously asked would I go blind didn’t get yes or no answer he just said we have to keep pressures under control. Pressures were 20 and 24 so I wasn’t happy. He’s gave me a combination drop of Lantanprost and
Hi went for first appointment after diagnosis yesterday. So stressed. Lovely doctor though. Obviously asked would I go blind didn’t get yes or no answer he just said we have to keep pressures under control. Pressures were 20 and 24 so I wasn’t happy. He’s gave me a combination drop of Lantanprost and
Hidden
in
Glaucoma UK
3 years ago
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EMDR
Hi everyone New here but I just wanted to share my experience of treatment with EMDR for anyone considering it or potentially struggling with it. I have been having EMDR since October and I won't lie, it is draining and it takes a lot of work. But I really have started to see a difference in myself
Hi everyone New here but I just wanted to share my experience of treatment with EMDR for anyone considering it or potentially struggling with it. I have been having EMDR since October and I won't lie, it is draining and it takes a lot of work. But I really have started to see a difference in myself
BunnyBean
in
Heal My PTSD
3 years ago
Is this a flare?
Sorry this is so late, I just wondered if any of you might be around to give me a word or two of your wisdom at short notice... GCA since last August, at which time I had a 6th nerve palsy and double vision, but luckily I kept the sight. 7 months later, Prednisolone down from 60 mg to 12.5 as advised
Sorry this is so late, I just wondered if any of you might be around to give me a word or two of your wisdom at short notice... GCA since last August, at which time I had a 6th nerve palsy and double vision, but luckily I kept the sight. 7 months later, Prednisolone down from 60 mg to 12.5 as advised
Frewen1
in
PMRGCAuk
3 years ago
The glaucoma treatment that only takes seconds
Belkin Laser’s Eagle device delivers healing laser beams quickly and without touching the patient; any ophthalmologist can use it. By Brian Blum MARCH 10, 2021 One hundred and forty million people suffer from glaucoma, a degenerative eye disease that can lead to blindness. It is most prevalent among
Belkin Laser’s Eagle device delivers healing laser beams quickly and without touching the patient; any ophthalmologist can use it. By Brian Blum MARCH 10, 2021 One hundred and forty million people suffer from glaucoma, a degenerative eye disease that can lead to blindness. It is most prevalent among
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Severe headache and pain after lucentis injections?
Can anyone advice please. My husband has macular degeneration and has been receiving injections for the past 4 years with no problems. He had his injections in both eyes today as usual and was fine when we returned home but after 3 hours has been unable to open his eyes due to pain and very sensitive
Can anyone advice please. My husband has macular degeneration and has been receiving injections for the past 4 years with no problems. He had his injections in both eyes today as usual and was fine when we returned home but after 3 hours has been unable to open his eyes due to pain and very sensitive
welshkaren
in
Macular Society
3 years ago
Has anyone noticed cloudy vision after injection of eylea in eye, this has got gradually worse
Have had three eylea injections in eye which has had a cnv, the destortion experience is better but have noticed a darkening cloudy vision in this eye. Has anyone else experienced any thing similar. I have bought some yellow anti glear glasses but an still aware of cloudy vision.
Have had three eylea injections in eye which has had a cnv, the destortion experience is better but have noticed a darkening cloudy vision in this eye. Has anyone else experienced any thing similar. I have bought some yellow anti glear glasses but an still aware of cloudy vision.
PHILhr
in
Macular Society
3 years ago
Lupus and episcleritis or scleritis?
Hi everyone I hope you are ok. Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis which is inflammation of eye? If so did they resolve ok? What treatments did you get in addition to what you have already? Many thanks
Hi everyone I hope you are ok. Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis which is inflammation of eye? If so did they resolve ok? What treatments did you get in addition to what you have already? Many thanks
Andfiona
in
LUPUS UK
3 years ago
Jaw pain with PSP?
My husband was only diagnosed with PSP two weeks ago and is already on hospice care. He was in hospital and rehab and just came home yesterday. Now his jaw is hurting very badly. I thought it was a toothache, but happened to notice a passing comment about jaw pain on a PSP page. Is this common? It
My husband was only diagnosed with PSP two weeks ago and is already on hospice care. He was in hospital and rehab and just came home yesterday. Now his jaw is hurting very badly. I thought it was a toothache, but happened to notice a passing comment about jaw pain on a PSP page. Is this common? It
WindyGirl
in
PSP Association
3 years ago
Disc Haemorrhage and Eye/Head Pains
I have a family history of Glaucoma and have been monitored by a hospital since since 2017. Last November, my local optician found a haemorrhage in right eye rim of optic disk. Things were OK at the time but since then there has been an increase in head aches, in particular around the right eye. My
I have a family history of Glaucoma and have been monitored by a hospital since since 2017. Last November, my local optician found a haemorrhage in right eye rim of optic disk. Things were OK at the time but since then there has been an increase in head aches, in particular around the right eye. My
RoyBen
in
Glaucoma UK
3 years ago
Emdr success stories .... what is the best thing it has done for you?
Hi...for anyone who has successfully done Emdr or who is doing it now, what would you say the best thing that has done for you is? I know it does not erase memories but how has it helped you move on and live life with them? I am still in the process. UThanks.
Hi...for anyone who has successfully done Emdr or who is doing it now, what would you say the best thing that has done for you is? I know it does not erase memories but how has it helped you move on and live life with them? I am still in the process. UThanks.
Hidden
in
Heal My PTSD
3 years ago
Eylea experiences please
I was very frightened to have a sudden extreme distortion in vision in one eye just before Christmas- my optician immediately referred me to a consultant in January and l have a macular oedema (think that’s correct) probably due to extreme short sight -12dioptre in that eye. I was told the only treatment
I was very frightened to have a sudden extreme distortion in vision in one eye just before Christmas- my optician immediately referred me to a consultant in January and l have a macular oedema (think that’s correct) probably due to extreme short sight -12dioptre in that eye. I was told the only treatment
Hidden
in
Macular Society
3 years ago
What is the saddest part of depression for you?
The saddest part of depression for me is having everything in the world....adoring husband, wonderful adult children, a gorgeous grandchild who is a joy, more money than I will ever need, etc.....yet feeling absolutely no joy at all, not enjoying the things you used to, never laughing, wanting to live
The saddest part of depression for me is having everything in the world....adoring husband, wonderful adult children, a gorgeous grandchild who is a joy, more money than I will ever need, etc.....yet feeling absolutely no joy at all, not enjoying the things you used to, never laughing, wanting to live
Hidden
in
Anxiety and Depression Support
3 years ago
Positive outcome
Had a telephone consultation with my rumy on Monday inflammation markers down enough to start reducing steroids 5mg per week looks like the Tocilìzumab is going to work for me next treatment Monday 15th March. I am a little concerned about the light sensitivity in my left eye the 1 I lost the sight
Had a telephone consultation with my rumy on Monday inflammation markers down enough to start reducing steroids 5mg per week looks like the Tocilìzumab is going to work for me next treatment Monday 15th March. I am a little concerned about the light sensitivity in my left eye the 1 I lost the sight
Rosh99
in
PMRGCAuk
3 years ago
Ceptava Mycophenolic acid
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Willow1414
in
LUPUS UK
3 years ago
White bump on retina
Hello. I keep joining this site, posting and then leaving it as I’m too scared to see the responses. So I’ve been having a few issues with my eyesight. I’m very myopic and had retinal detachments nearly 30 years ago. All going great until about 4 years ago when my vision began to deteriorate. Cataracts
Hello. I keep joining this site, posting and then leaving it as I’m too scared to see the responses. So I’ve been having a few issues with my eyesight. I’m very myopic and had retinal detachments nearly 30 years ago. All going great until about 4 years ago when my vision began to deteriorate. Cataracts
SueDev
in
Macular Society
3 years ago
About two weeks ago I had Botox shots around my eyes. Two week later-I am not able to see clearly, blurred vision dry eyes. Is this PSP?
Since my last visit with my Neurologist, two weeks ago, I have not been able to see clearly. At that visit he injected Botox shots around my eyes to prevent them from closing. I have never had a side effect from the injections My vision is blurred, my eyes feel dry, they water, are swollen and I have
Since my last visit with my Neurologist, two weeks ago, I have not been able to see clearly. At that visit he injected Botox shots around my eyes to prevent them from closing. I have never had a side effect from the injections My vision is blurred, my eyes feel dry, they water, are swollen and I have
JaydeeGee
in
PSP Association
3 years ago
Inflammation reducing diets
I’m wondering whether there is actually any published peer reviewed scientific evidence rather than anecdotal to show that ANY diet affects PMR and inflammation? I can see than eating less of fatty and sugary foods would lead to weight loss itself . However both my GP and Rheumatologist says leaving
I’m wondering whether there is actually any published peer reviewed scientific evidence rather than anecdotal to show that ANY diet affects PMR and inflammation? I can see than eating less of fatty and sugary foods would lead to weight loss itself . However both my GP and Rheumatologist says leaving
Breconblue
in
PMRGCAuk
3 years ago
Bloodshot eye
I had an Eylea injection to my left eye on Monday and it became very bloodshot straight away. The white of my eye is a very dark red. It’s now Saturday and it is not getting any better. The nurse who did the injection said it would take a few days to clear. Could anyone advise me how long it will take
I had an Eylea injection to my left eye on Monday and it became very bloodshot straight away. The white of my eye is a very dark red. It’s now Saturday and it is not getting any better. The nurse who did the injection said it would take a few days to clear. Could anyone advise me how long it will take
photomon9
in
Macular Society
3 years ago
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