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Overactive bladder
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Day before halfway with 6 cycle Taxotere Chemo
What's up fellow travellers, So just know going into this update I've been on this trip since 2009, gleason 9. No mets until late 2019(Lymph nodes). On Androgen blockers since 2012. My labs continue to excel. In 6 weeks the PSA has dropped by 52 points, and all the Immune system, kidney, and liver
What's up fellow travellers, So just know going into this update I've been on this trip since 2009, gleason 9. No mets until late 2019(Lymph nodes). On Androgen blockers since 2012. My labs continue to excel. In 6 weeks the PSA has dropped by 52 points, and all the Immune system, kidney, and liver
zenbee13
in
Advanced Prostate Cancer
4 years ago
Increasing Pain in abdomen
Had 7 incisional hernias repaired 18 months ago...now weird feeling in abdomen, feel not faint but disorientated, and pain upper right abdomen..also facial flushing...Dr put it down to nerve secured to mesh...Mesenteric panniculitis ...anyone else suffer something similar ? reckons pain management will
Had 7 incisional hernias repaired 18 months ago...now weird feeling in abdomen, feel not faint but disorientated, and pain upper right abdomen..also facial flushing...Dr put it down to nerve secured to mesh...Mesenteric panniculitis ...anyone else suffer something similar ? reckons pain management will
Arnhem
in
Pain Concern
4 years ago
16-ish Month Update
In two days it will be 16 months since my original diagnosis. October 19, 2018 was when I was diagnosed with metastatic prostate cancer. A week or so later a bladder cancer diagnosis was added. I started 2020 with a PSA of <0.01 and ended up in the ER because cancer had choked off my kidney. That
In two days it will be 16 months since my original diagnosis. October 19, 2018 was when I was diagnosed with metastatic prostate cancer. A week or so later a bladder cancer diagnosis was added. I started 2020 with a PSA of <0.01 and ended up in the ER because cancer had choked off my kidney. That
tom67inMA
in
Advanced Prostate Cancer
4 years ago
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Urologist appointment
I’m off to see the urologist on Wednesday to see if my endometriosis is on my bladder too. I’ve also got to have a cystoscopy after. Has anyone had this before so I know what to expect? Also the bladder pain and seeing blood I’ve been getting is beginning to get some much worse. I’ve being seeing out
I’m off to see the urologist on Wednesday to see if my endometriosis is on my bladder too. I’ve also got to have a cystoscopy after. Has anyone had this before so I know what to expect? Also the bladder pain and seeing blood I’ve been getting is beginning to get some much worse. I’ve being seeing out
elwykes
in
Endometriosis UK
4 years ago
Young adult bed wetting
Please can anyone give advice regarding bed wetting of a young adult .my daughter use to wet the bed up until about 16 unfortunately recently this has began again at 18 . We just don’t know how to deal with this we have asked GP to refer to urology . But has anyone advice , reassurance, tips on how
Please can anyone give advice regarding bed wetting of a young adult .my daughter use to wet the bed up until about 16 unfortunately recently this has began again at 18 . We just don’t know how to deal with this we have asked GP to refer to urology . But has anyone advice , reassurance, tips on how
slp1963
in
ERIC
4 years ago
Advice on taking Nefopam please
Hi, I have fibromyalgia- diagnosed last year. I also have depression and anxiety. The fibro pain has been getting worse daily for at least a year now. I’ve been taking 30mg/500mg cocodomol which didn’t help so have weaned off of that on dr’s advice, tried naproxen..helped for around a week and then
Hi, I have fibromyalgia- diagnosed last year. I also have depression and anxiety. The fibro pain has been getting worse daily for at least a year now. I’ve been taking 30mg/500mg cocodomol which didn’t help so have weaned off of that on dr’s advice, tried naproxen..helped for around a week and then
Hidden
in
Pain Concern
4 years ago
Fenbendazole probably not working for me
In my case I think it is pretty clear that Fenbendazole has not been effective. Old History PSA 5.3, RP March 2009, Gleason 3+4, focal PNI PSA undetectable until Oct. 2011 PSA 0.658, Salvage Radiation Sept/Oct 2012 No impact on PSA, RO clueless July 2014, Nano-MRI at Radboud
In my case I think it is pretty clear that Fenbendazole has not been effective. Old History PSA 5.3, RP March 2009, Gleason 3+4, focal PNI PSA undetectable until Oct. 2011 PSA 0.658, Salvage Radiation Sept/Oct 2012 No impact on PSA, RO clueless July 2014, Nano-MRI at Radboud
cigafred
in
Advanced Prostate Cancer
4 years ago
Botox for alien hand
Has anyone ever tried botox for alien hand..my mums hand is now a claw and very painful to try to even touch her hand to wash it
Has anyone ever tried botox for alien hand..my mums hand is now a claw and very painful to try to even touch her hand to wash it
Cianodude
in
PSP Association
4 years ago
Penis pump - no effect :-( Any experience/advice?
Diagnosed December 1st 2019 with advanced PCa, PSA 90, gleason 7 (4+3) in all 12 biopsies (up to 75%), metastases in 3 bones in pelvis, 1 rib and 4-5 (or more) lymph nodes.. I got on Eligard and Zytiga+pred. right away and currently I am undergoing radiation to prostate (AND the 3 pelvic bone metastases
Diagnosed December 1st 2019 with advanced PCa, PSA 90, gleason 7 (4+3) in all 12 biopsies (up to 75%), metastases in 3 bones in pelvis, 1 rib and 4-5 (or more) lymph nodes.. I got on Eligard and Zytiga+pred. right away and currently I am undergoing radiation to prostate (AND the 3 pelvic bone metastases
45yrsDenmark
in
Advanced Prostate Cancer
4 years ago
What do most recommend for bone Mets treatment
Hello my dad has been doing as well as one can with prostate he was diagnosed in Dec 2014. It was only to his femur and humerus bone. Fast forward March 2020 he had a pet scan done yesterday and it looks like he has multiple multiple areas of bone Mets it’s not just his humerus and not his femur anymore
Hello my dad has been doing as well as one can with prostate he was diagnosed in Dec 2014. It was only to his femur and humerus bone. Fast forward March 2020 he had a pet scan done yesterday and it looks like he has multiple multiple areas of bone Mets it’s not just his humerus and not his femur anymore
Olivia007
in
Advanced Prostate Cancer
4 years ago
Lut-177 Pioneer update
My husbands local oncologist called him a Pioneer in his treatments, to go down paths unknown and help those that will follow in the future. Knowing this will help someone else in the future is encouraging. Update - my husband had 6 Lut-177 treatments beginning January 2019 in the vision trial and
My husbands local oncologist called him a Pioneer in his treatments, to go down paths unknown and help those that will follow in the future. Knowing this will help someone else in the future is encouraging. Update - my husband had 6 Lut-177 treatments beginning January 2019 in the vision trial and
CJ4J
in
Advanced Prostate Cancer
4 years ago
Could I Have a Gall Stone Without a Gallbladder?
Hi all - I’m new to this forum so go easy on me! 😉 Last night I was suffering from, what felt like, a trapped gall stone. I have had one before where my gall bladder was removed and a stone removed from duct prior to that. Is this possible? Nauseous then throwing up yellow bile; Diarrhea; slight fever
Hi all - I’m new to this forum so go easy on me! 😉 Last night I was suffering from, what felt like, a trapped gall stone. I have had one before where my gall bladder was removed and a stone removed from duct prior to that. Is this possible? Nauseous then throwing up yellow bile; Diarrhea; slight fever
Froggy
in
British Liver Trust
4 years ago
Year 1 finished
I was supposed to of had a meeting with the mavenclad nurse on Monday but she couldn't make it so that is going to be rescheduled. Saw my neurologist today and got my blood work done. I had a problem with my vision over the weekend and my neurologist feels that it is from when I had the flare up a year
I was supposed to of had a meeting with the mavenclad nurse on Monday but she couldn't make it so that is going to be rescheduled. Saw my neurologist today and got my blood work done. I had a problem with my vision over the weekend and my neurologist feels that it is from when I had the flare up a year
Turtlepie
in
My MSAA Community
4 years ago
Elocon 0.1%
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Montysmum1
in
LUPUS UK
4 years ago
My 4 year old daughter keeps soiling herself at school but not at home 🥺
My daughter went to school in September 2019 without being fully toilet trained. She had so many soiling accidents that school couldn’t cope and had to put her into pull ups, which didn’t help at all! Over the Christmas break we had her in underwear all the time (except for bedtime) and she had no accidents
My daughter went to school in September 2019 without being fully toilet trained. She had so many soiling accidents that school couldn’t cope and had to put her into pull ups, which didn’t help at all! Over the Christmas break we had her in underwear all the time (except for bedtime) and she had no accidents
Mama1909
in
ERIC
4 years ago
Como bajo el PSA
Hola. Estoy con PSA de 220 ahora en inicio de marzo d 2020. Agosto pasado estaba en 120. Que hago que no sea rayos ni hormonas. Ya hago dieta. Remedios off label?
Hola. Estoy con PSA de 220 ahora en inicio de marzo d 2020. Agosto pasado estaba en 120. Que hago que no sea rayos ni hormonas. Ya hago dieta. Remedios off label?
Purasalud
in
Advanced Prostate Cancer
4 years ago
Non supportive partner after surgery advice
So I had my Laparoscopy, hysteroscopy and cystoscopy done on Friday and my boyfriend has hardly been in any contact with me, even leading up to the surgery he had the day off and didn’t answer my calls and is being really blunt with me hardly talking, told me for the 2 weeks recovery not too see him
So I had my Laparoscopy, hysteroscopy and cystoscopy done on Friday and my boyfriend has hardly been in any contact with me, even leading up to the surgery he had the day off and didn’t answer my calls and is being really blunt with me hardly talking, told me for the 2 weeks recovery not too see him
Endostruggles
in
Endometriosis UK
4 years ago
Possible pregnancy
I’m freaking out right now! I had a mmc in nov at 15 weeks and had an awful time. My period (according to app) is 2 days late so I have taken a test and looks positive. I have just been diagnosed with ptsd because of last loss and have been started on sertaline( is this safe? Should I stop?) I dunno
I’m freaking out right now! I had a mmc in nov at 15 weeks and had an awful time. My period (according to app) is 2 days late so I have taken a test and looks positive. I have just been diagnosed with ptsd because of last loss and have been started on sertaline( is this safe? Should I stop?) I dunno
Smcd123
in
Pregnancy and Parenting Support
4 years ago
SpaceOAR Hydrogel for use during radiotherapy of prostate
This is new to me! Although it seems to have been around a while. I've just read about it in a local magazine. It's to late for me, I had RP. Suggest anybody having radiotherapy to prostate or prostate bed checks that it is being used. "SpaceOAR Hydrogel is an absorbable hydrogel that temporarily creates
This is new to me! Although it seems to have been around a while. I've just read about it in a local magazine. It's to late for me, I had RP. Suggest anybody having radiotherapy to prostate or prostate bed checks that it is being used. "SpaceOAR Hydrogel is an absorbable hydrogel that temporarily creates
Graham49
in
Advanced Prostate Cancer
4 years ago
4 Year Old small bladder capacity, how to help him, always urgently needing to go.
Not sure where to start. I just sit here crying because I feel it will never get better. Firstly, I appreciate he is only 4 and a lot of children still struggle, I've been a preschool teacher for 10 years so I've really seen it all, but my own child has left me stumped. Aged 22 months, his friend began
Not sure where to start. I just sit here crying because I feel it will never get better. Firstly, I appreciate he is only 4 and a lot of children still struggle, I've been a preschool teacher for 10 years so I've really seen it all, but my own child has left me stumped. Aged 22 months, his friend began
Onestressedmama
in
ERIC
4 years ago
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