16-ish Month Update: In two days it... - Advanced Prostate...

Advanced Prostate Cancer

22,373 members28,135 posts

16-ish Month Update

tom67inMA profile image
16 Replies

In two days it will be 16 months since my original diagnosis. October 19, 2018 was when I was diagnosed with metastatic prostate cancer. A week or so later a bladder cancer diagnosis was added. I started 2020 with a PSA of <0.01 and ended up in the ER because cancer had choked off my kidney. That was followed by a neuroendocrine prostate cancer diagnosis, which my oncologist claims developed separately from the original prostate cancer. A little over a month ago I started chemotherapy, and just yesterday had a new scan which showed significant improvement. Happy dance time!

To summarize using terms my doctors have used, the bladder cancer has not recurred and is presumed cured, the original prostate cancer is in complete biochemical remission, and the NEPCa is responding to treatment. Happy St. Patrick's day indeed!

As always, the much wordier version of the story with pictures is in my blog:

tominmotion.blogspot.com/20...

Written by
tom67inMA profile image
tom67inMA
To view profiles and participate in discussions please or .
Read more about...
16 Replies
LearnAll profile image
LearnAll

Keep moving warrior ! Wish you excellent luck !

DarkEnergy profile image
DarkEnergy

I'm in track with you, diagnosed 09/11/18, PSA 1000+, significant lymph nodes, pelvic and vertebrae metastasis. Just PCa for me and still hormone sensitive as of 01/21/20: PSA <0.02, my last Taxotere infusion was 11/01/19.

Looks like you got a great doc in Natick. Was this your first chemo infusion?

I'm in the Medford, MA area, can't find any toilet paper, but milk, bread, eggs and beer are plentiful.

Think, you're still coding right? I'm split between some coding and technical lead stuff.

Great to hear when the odd are stacked against you - you break out winning!!!

tom67inMA profile image
tom67inMA in reply toDarkEnergy

I've had 2 infusions so far, not counting 6 docetaxel infusions last year.

I am still coding though right now I'm on disability leave. We switched over to scrum, so ideally there's no specific technical leads. Of course, our scrum master is also our manager which is a big no-no.

I do like my doc. He used to be at Dana Farber, and my guess is he set up his own practice to get out of the city. It seems he still had lots of contacts there, and I know my case had been before a tumor board, so for all I know some of the best minds in the area (and I would include his) have provided input to my treatment, and I don't need to go into the city at all.

Are you still working? If so, do you find it strange to deal with scanxiety while working? When we would have a planning meeting near a follow-up appointment, I really wanted to put an asterisk on any commitments I might make.

DarkEnergy profile image
DarkEnergy in reply totom67inMA

"We switched over to scrum"

I'm old school, do not stand up and blabber...

So, "Technical Lead", is really an HR term to get higher salary than just a "software developer"... 😉

I work for a very large healthcare company, patient integration stuff with everything.

I'm an DFCI specimen, a bit brash so get attention, I'm happy with my care at the moment. Natick is nice, you are lucky having your doc connected, all the best!

I'm employed as implied above, my team is all remote, but I'm local to the office, so sometimes show up. I like getting grief from the in house developers.

My co-workers do not know I have PCa...

pjoshea13 profile image
pjoshea13

Hi Tom, Good news in these grim times. Keep well! -Patrick

Lyubov profile image
Lyubov

Great news!

dockam profile image
dockam

Yay! Great news Brother, you saw on FB my news, I'll post on HU later

Fight on

Randy

MateoBeach profile image
MateoBeach

What is the "social distancing" equivalent of a scrum? A connection of teammates pushing together for a common goal. Tough ruggers they.

tom67inMA profile image
tom67inMA in reply toMateoBeach

When we first switched to scrum and didn't know what we were doing, a big blizzard hit so we ended up doing a 6 hour meeting with everybody video conferencing in from home. We also have scrum teams across wide geographic regions working together. It's always fun trying to find a meeting time that works for San Diego, Natck (MA), and Budapest. Is that distant enough? :-)

GreenStreet profile image
GreenStreet

Good news. Keep going and best wishes

RayF profile image
RayF

Great news Tom! Nov 2018 for me, continuous ADT, fortunately PSA is undetectable. Best to you.

j-o-h-n profile image
j-o-h-n

Super Dave........ was that real?

Terrific Tom........................ KungFlu

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 03/18/2020 6:41 PM DST

tom67inMA profile image
tom67inMA in reply toj-o-h-n

You must have watched "Bizarre" when it was on, no?

j-o-h-n profile image
j-o-h-n in reply totom67inMA

Yes.........

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 03/18/2020 7:36 PM DST

GoBucks profile image
GoBucks

Excellent read. Sounds like you will have time to watch a long series like Curb.

tom67inMA profile image
tom67inMA in reply toGoBucks

I just started watching "Extras" on Netflix and "Horrible Histories" on Hulu. Also really enjoying "Comedy Bang Bang" on Netflix.

Not what you're looking for?

You may also like...

Very quick update - NEPC

Had my PET scan and met with the MO today, and the diagnosis is ... neuroendocrine prostate...
tom67inMA profile image

My cancer has morphed to treatment-emergent small-cell neuroendocrine prostate cancer.

Hi Guys, I had a TURP in July and the pathology report came back that my prostate cancer cells...
paulofaus profile image

Now also diagnosed with bladder cancer!!

My husband with stage 4 metastatic prostate cancer who endured chemo and 2 rounds of SBRT was...

Update and question

History 72 y/o. Diagnosed with prostate cancer Dec, 2018. 11 of 12 cores on biopsy. Gleason 8/9....
Altamonttt profile image

UPDATE AFTER IMRT

Haven't posted in a while, but here's a quick update (My Bio has the full details from diagnosis to...
GMan-62 profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.