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Is there something we can do?
I feel that this forum mostly consists of people acknowledging each other’s struggles but more often than not without any real answers or solutions (because we just don’t have them) and in a similar way to how reddit got together to change Wall Street with investments, or BLM protested and got the worlds
I feel that this forum mostly consists of people acknowledging each other’s struggles but more often than not without any real answers or solutions (because we just don’t have them) and in a similar way to how reddit got together to change Wall Street with investments, or BLM protested and got the worlds
Beech33
in
Endometriosis UK
3 years ago
Covid jab with Azithromycin.
As well asPMR I suffer from bronchiectasis and take Azithromycin 3 times a week to prevent infection. I know antibiotics would not normally interfere with a virus jab but have read that this particular one was once considered as a cure for Covid. I’m now worrying I’ve stopped my jab from working. Can
As well asPMR I suffer from bronchiectasis and take Azithromycin 3 times a week to prevent infection. I know antibiotics would not normally interfere with a virus jab but have read that this particular one was once considered as a cure for Covid. I’m now worrying I’ve stopped my jab from working. Can
Tiramisu76
in
PMRGCAuk
3 years ago
Things that have helped my ringing
Hi there,, I've just joined this community in hopes of connecting and helping others who also have tinnitus! I'd like to share some things that have helped me: 1) Acupuncture by far as been the best for managing my symptoms, I have been diagnosed with TMD which is directly correlated with tinnitus and
Hi there,, I've just joined this community in hopes of connecting and helping others who also have tinnitus! I'd like to share some things that have helped me: 1) Acupuncture by far as been the best for managing my symptoms, I have been diagnosed with TMD which is directly correlated with tinnitus and
springlullaby
in
British Tinnitus Association
3 years ago
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Tinnitus and hyperthyroidism connection
Dear members, Does anybody suffer with tinnitus as well as hyper thyroid? These two problems appeared for me simultaneously so I wonder if there's any connection. Has Anybody had the same experience and what helped? Any advice as what direction to go to look for answers will be appreciated. GP ignored
Dear members, Does anybody suffer with tinnitus as well as hyper thyroid? These two problems appeared for me simultaneously so I wonder if there's any connection. Has Anybody had the same experience and what helped? Any advice as what direction to go to look for answers will be appreciated. GP ignored
tromashka
in
Thyroid UK
3 years ago
Parenting & Tinnitus
Hello, Would love to hear from anyone who suffers from tinnitus while having to care for young children. Do you feel it has had an effect on your ability as a parent? Or the responsibility helped with habituation/managing? I’m approx 7/8 weeks in now, having up’s and down’s. But I’m really pushing
Hello, Would love to hear from anyone who suffers from tinnitus while having to care for young children. Do you feel it has had an effect on your ability as a parent? Or the responsibility helped with habituation/managing? I’m approx 7/8 weeks in now, having up’s and down’s. But I’m really pushing
Hla20
in
British Tinnitus Association
3 years ago
Anyone experience with ear tubes / grommets?
Hi you all. My boy Thom (now almost 3 yrs old) was diagnosed with PCD when he was 6 months (he was born with a lung infection and was admitted to the NICU). His hearing has always been bad due to mucous behind his eardrums. Because of that he has behind-the- ear hearing aides. He is doing fairly well
Hi you all. My boy Thom (now almost 3 yrs old) was diagnosed with PCD when he was 6 months (he was born with a lung infection and was admitted to the NICU). His hearing has always been bad due to mucous behind his eardrums. Because of that he has behind-the- ear hearing aides. He is doing fairly well
LesleyAmsterdam
in
PCD Family Support Group (UK)
3 years ago
Tinnitus and Sulfasalazine
Hello all. I'm new in this group and would like to know if anyone has experienced an increase in their tinnitus after taking Sulfasalazine, and also does it subside again after stopping this medication? I have had mild tinnitus for a few years after being a lifelong drummer in rock bands but was given
Hello all. I'm new in this group and would like to know if anyone has experienced an increase in their tinnitus after taking Sulfasalazine, and also does it subside again after stopping this medication? I have had mild tinnitus for a few years after being a lifelong drummer in rock bands but was given
Amstel
in
Tinnitus UK
3 years ago
Icy Hot Sensation in body???
Has anyone ever experienced icy hot sensations in the body and leg weekness..hard to walk. Doctors are testing for MS but they came saying the brain, neck and spinal MRI are normal...not sure what is going on....if someone has experienced this I would appreciate your thoughts...
Has anyone ever experienced icy hot sensations in the body and leg weekness..hard to walk. Doctors are testing for MS but they came saying the brain, neck and spinal MRI are normal...not sure what is going on....if someone has experienced this I would appreciate your thoughts...
Newbie77
in
My MSAA Community
3 years ago
Pulsate tinnitus
Hi all :) Just a quick question, I wondered if anyone else suffers with pulsate tinnitus from time to time? My ears keep thumping, left ear also keeps going into a spasm, feels like my inner ear is fluttering/shaking it’s hard to describe! Then after my head feels sensitive and dizzy, so not sure
Hi all :) Just a quick question, I wondered if anyone else suffers with pulsate tinnitus from time to time? My ears keep thumping, left ear also keeps going into a spasm, feels like my inner ear is fluttering/shaking it’s hard to describe! Then after my head feels sensitive and dizzy, so not sure
Ellesbells12
in
Pernicious Anaemia Society
3 years ago
Lymph node removal
Hi,does anybody know what determines how many lymph nodes are removed during esophagectomy..I had 76 removed and 7 were cancerous,yet I know people who had 47 removed and 4 were cancerous,and another who had 52,and 5 were..I don’t really understand the connection between the 2 numbers..as the 7s the
Hi,does anybody know what determines how many lymph nodes are removed during esophagectomy..I had 76 removed and 7 were cancerous,yet I know people who had 47 removed and 4 were cancerous,and another who had 52,and 5 were..I don’t really understand the connection between the 2 numbers..as the 7s the
telford-hiker
in
Oesophageal & Gastric Cancer
3 years ago
tinnitus with no hearing loss at 17years old
I've been experiencing tinnitus for at least 6 months now this constant hissing sound joined with a high pitched ring. when im talking to someone say i cant hear it but if its quite i can so its pretty mild but very annoying . i did a hearing test it came back 20% higher than average at my age very good
I've been experiencing tinnitus for at least 6 months now this constant hissing sound joined with a high pitched ring. when im talking to someone say i cant hear it but if its quite i can so its pretty mild but very annoying . i did a hearing test it came back 20% higher than average at my age very good
ge7521
in
British Tinnitus Association
3 years ago
Need help please - Newbie with left facial palsy
Hi guys, Thanks in advance for reading my post and if you reply I really appreciate it 💗 I'm just wondering if anyone can give me some advice please? I have had my facial palsy since 2012 but over the last couple of months I keep getting alot of facial, neck and ear pain and headache on the affected
Hi guys, Thanks in advance for reading my post and if you reply I really appreciate it 💗 I'm just wondering if anyone can give me some advice please? I have had my facial palsy since 2012 but over the last couple of months I keep getting alot of facial, neck and ear pain and headache on the affected
QueenC3060
in
Facial Palsy UK
3 years ago
Biologic anxiety
Hi folks, I hope you're all well. I've been on triple therapy now (methotrexate + sulfasalazine + hydroxychloroquine: max dose of all three) for the best part of a year now, and whilst trying to slowly reduce my prednisolone down 0.5mg a week (as I'd been recommended) experienced a big flare-up of symptoms
Hi folks, I hope you're all well. I've been on triple therapy now (methotrexate + sulfasalazine + hydroxychloroquine: max dose of all three) for the best part of a year now, and whilst trying to slowly reduce my prednisolone down 0.5mg a week (as I'd been recommended) experienced a big flare-up of symptoms
Smelliott
in
NRAS
3 years ago
NADH Side Effects
I started taking NADH about a week ago. Instead of feeling better, I notice extreme fatigue, nausea and sleepiness but at the same time I have trouble sleeping. Has anyone else experienced these side effects?
I started taking NADH about a week ago. Instead of feeling better, I notice extreme fatigue, nausea and sleepiness but at the same time I have trouble sleeping. Has anyone else experienced these side effects?
Hidden
in
Cure Parkinson's
3 years ago
Antipsychotic drugs and thyroid
My GP, fully aware that I’m hypothyroid, has prescribed Prochlorperazine Maleate 5mg tablets for dizziness and nausea. The prescription is x3 a day but I’ve found that just taking one when I actually feel dizzy and sick works very well - so I would probably take on average about 1x5mg a week. But should
My GP, fully aware that I’m hypothyroid, has prescribed Prochlorperazine Maleate 5mg tablets for dizziness and nausea. The prescription is x3 a day but I’ve found that just taking one when I actually feel dizzy and sick works very well - so I would probably take on average about 1x5mg a week. But should
Bearo
in
Thyroid UK
3 years ago
Ever passed a decidual cast?? Because I did
Really was unsure whether to post this but here we go. I am currently waiting to see a consultant to discuss my endometriosis (recently diagnosed) and i have been put on provera while I wait. Initially it was great I felt amazing and had so much energy. Everything then started to go back to the normal
Really was unsure whether to post this but here we go. I am currently waiting to see a consultant to discuss my endometriosis (recently diagnosed) and i have been put on provera while I wait. Initially it was great I felt amazing and had so much energy. Everything then started to go back to the normal
Jellybean20
in
Endometriosis UK
3 years ago
Another Vaccine Question
I’m taking Prednisolone for PMR diagnosed 12 months ago, currently transitioning from 10 to 9mg using the DSNS plan. Three weeks ago I had a fairly minor chest infection (minor, that is, for individuals not taking steroids) and was prescribed antibiotics. With the infection came a cytokine storm and
I’m taking Prednisolone for PMR diagnosed 12 months ago, currently transitioning from 10 to 9mg using the DSNS plan. Three weeks ago I had a fairly minor chest infection (minor, that is, for individuals not taking steroids) and was prescribed antibiotics. With the infection came a cytokine storm and
Exflex
in
PMRGCAuk
3 years ago
Is low b12 cause head tremors and forehead twitching?
My b12 level is 94 I have tremors in my head continuously it is ting tong.Also have forehead twitching under my skin.I can not concentrate on anything.I am not able to understand is this from low b12 or something else?
My b12 level is 94 I have tremors in my head continuously it is ting tong.Also have forehead twitching under my skin.I can not concentrate on anything.I am not able to understand is this from low b12 or something else?
Shel7
in
Pernicious Anaemia Society
3 years ago
What causes this? Sleep disorder or parasite?
I experience a half awake, half asleep thing that is quite scary. I wake up, not fully awake, can sometimes feel my neck tingling or blood coursing through my neck or head. Sometimes I think my legs or arms or body is jerking around. Just woke up from one and I felt a vibrating sensation in my back near
I experience a half awake, half asleep thing that is quite scary. I wake up, not fully awake, can sometimes feel my neck tingling or blood coursing through my neck or head. Sometimes I think my legs or arms or body is jerking around. Just woke up from one and I felt a vibrating sensation in my back near
sgernzie
in
Headway
3 years ago
Dizziness, anxiety or something else..
Hi, I am looking for some answers regarding my dizziness. I have had it on and off for years. I have done all possible tests (MRI, ENT, bloodwork, seen neurologist) and everything is normal. I do have a bit of tmj on the right side but no issues with it, it doesnt bother me. Everything points to this
Hi, I am looking for some answers regarding my dizziness. I have had it on and off for years. I have done all possible tests (MRI, ENT, bloodwork, seen neurologist) and everything is normal. I do have a bit of tmj on the right side but no issues with it, it doesnt bother me. Everything points to this
Flower55
in
Anxiety Support
3 years ago
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