Is low b12 cause head tremors and for... - Pernicious Anaemi...

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Is low b12 cause head tremors and forehead twitching?

Shel7 profile image
20 Replies

My b12 level is 94 I have tremors in my head continuously it is ting tong.Also have forehead twitching under my skin.I can not concentrate on anything.I am not able to understand is this from low b12 or something else?

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Shel7 profile image
Shel7
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20 Replies
Sleepybunny profile image
Sleepybunny

Hi,

Some links to info that may be useful.

Symptoms of B12 Deficiency

pernicious-anaemia-society....

b12deficiency.info/signs-an...

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

B12 Deficiency Info website

b12deficiency.info/

B12 Awareness (US website)

b12awareness.org/

Stichting B12 Tekort (Dutch website with English articles)

stichtingb12tekort.nl/weten...

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society).

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (US authors)

Very comprehensive with lots of case studies.

I am not medically trained.

Nackapan profile image
Nackapan

Hope you have started b12 injections. It may get worses before better.

My central nervous system, head pains, tremors ect were very bad at the beginning.

Make sure all bloods are done.

Intriscuc factor antibody test done.

All the links you havd been sent will help you.

T c

Shel7 profile image
Shel7 in reply to Nackapan

Yes I have started injections already

Shel7 profile image
Shel7 in reply to Nackapan

Should I start every other day injections as I have neurological symptoms?

Nackapan profile image
Nackapan in reply to Shel7

Thay is what is recommended .if you look up the guidelines . You should be given them at your doctors.

wedgewood profile image
wedgewood

Your B12 level is so very low . You don't mention any treatment . You need B12 injections ASAP . im surprised that you haven't got many more symptoms .

Shel7 profile image
Shel7 in reply to wedgewood

I have taken 4 injections till now.1 more has to take today

Hi Shel7 I see you are in India. Are you vegetarian by any chance? Your level is very low. I was diagnosed with B12 deficiency whilst living in India at a level of 129, I couldn't get out of bed but found much more understanding of it within the medical profession there due to the high prevalence of vegetarianism. Are you able to visit a doctor in Apollo Hospitals. I used to get my B12 injections every two weeks in the Emergency Room, total cost RS 150. If you're vegetarian, tablets might work too. Please don't delay with treatment as your levels are very low 🙏❤️

Shel7 profile image
Shel7 in reply to

I have taken 4 injections till now. I have to take 1 more today. Is it due to low b12

in reply to Shel7

Can you have an appointment with your Doctor to discuss your treatment plan going forward? It's good you're having injections but you need to know why you have B12 deficiency and what treatment you will be given to keep your levels up. Good luck

Shel7 profile image
Shel7 in reply to

I have celiac disease may be that is the problem I have and I am not typically vegan. I drink milk daily I don't know why my body is not absorbing it.I am on gluten free diet past 2-3 yrs.Could you please suggest me good doctor here in India.Doctors are not good here I have done my test privately and ask for injections.They only care for making money and doing unecessary tests.My thyroid is normal.Blood report is normal they say but red blood cells are somewhat large also MCV and MCH is somewhat low.

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Nackapan profile image
Nackapan in reply to Shel7

Coeliac is a known risk factor for b12 deficiency

Shel7 profile image
Shel7 in reply to Nackapan

Should I take everyday injection or I take high dose sublingual?

Cakebake profile image
Cakebake in reply to Shel7

The UK guidance states where there are neuro issues present that recommended treatment is B12 injections every other day until no further improvement.

Nackapan profile image
Nackapan in reply to Shel7

I would try tabketscor sub lingual first . Might be enough . If not injections

Shel7 profile image
Shel7 in reply to Nackapan

Could you suggest me some good quality sublingual which is gluten free

Gambit62 profile image
Gambit62Administrator in reply to Shel7

Shel7 please note that I have removed the request for phone number to be sent from your response. The nature of this platform means that we do not encourage members to share personal contact details.

in reply to Shel7

Hi, where in India are you? I was an expat in Chennai. We were all advised to use Apollo Hospitals. Do you have one near you?

Nackapan profile image
Nackapan

Sorry I cant as they didnt work for me .I did try.Trh 1000mg b12 tablet or sublinguals

Thars what was recommended for those when b12 injections had been stopped.

Some on here have had success so perhaps stat a newa post .

Shel7 profile image
Shel7 in reply to Nackapan

Ok thanks for writing your experience

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