Icy Hot Sensation in body???

[Newbie77]

Has anyone ever experienced icy hot sensations in the body and leg weekness..hard to walk. Doctors are testing for MS but they came saying the brain, neck and spinal MRI are normal...not sure what is going on....if someone has experienced this I would appreciate your thoughts...

[Jesmcd2 CommunityAmbassador]

Mine is more of a prickly/annoying sensation in my upper thigh Newbie77 I push thru it, but that's me.. You.. You tell your neuro about it!! 🤔 Are you seeing an MS Neurologist?

Although MS can mimic so many things... Let us know how it goes!🤗💕🌠

[Newbie77 in reply to Jesmcd2]

Thank you!

[twooldcrows]

sorry don't remember ever having the combo of them ...sorry hopefully someone has and explain what is going on..have a great day ...love and happiness...

[Newbie77 in reply to twooldcrows]

Thank you anyways!

[BumbleBeeBumble]

Yes I get a sensation of cold water on my thigh and have also felt like I stepped in water even though my foot was dry. I would say it's like the icy hot sensation.

[Newbie77 in reply to BumbleBeeBumble]

Yes I get something like that but they say it's not MS there are no lesions according to doctors...its been frustrating!

[BumbleBeeBumble in reply to Newbie77]

Do they offer to look into anything else that could be cause it like CIPD?

[Newbie77 in reply to BumbleBeeBumble]

I will ask the doctors about CIPD, I just saw that is very similar to MS.....Thank you for your suggestion!

[kdali]

I get the ice burn also. I don’t know much to say about it, but the worst is the back of my head and I wear a hat to bed most nights...then wake at midnight too hot but it’s gone. It’s creeping in right now, and it starts with cold tingles, my feet also.

[Newbie77 in reply to kdali]

Yes that is how I feel....does it get better when you are exposed to something warm?

[BumbleBeeBumble in reply to Newbie77]

No it just feels weirder.

[kdali in reply to Newbie77]

Most of the time the head and feet feel better with warmth, but I have had a few times where a heating pad or warm shower made my back feel like fire.

[Newbie77 in reply to kdali]

yes I get that sometimes, its ugly.

[mrsmike9]

My toes are freezing when I go to bed, but when I touch them they feel fine. It's some kind of internal thing. They hurt as if they have frostbite and it's all year.

[kdali in reply to mrsmike9]

I call it cold socks!

[mrsmike9 in reply to kdali]

Part of me wonders if it's MS or poor circulation.

[Newbie77]

yes I just started feeling that!

[greaterexp]

Have you been checked for peripheral neuropathy? Vitamin levels checked? Spinal fluid analysis? I hope your doctors are being very thorough. It's frustrating to not have answers.