Help with diagnosis : Advice urgently... - Endometriosis UK

Endometriosis UK

70,537 members52,082 posts

Help with diagnosis

Vamp45 profile image
0 Replies

Advice urgently please: I have all the symptoms of endometriosis & am seeing gyno on Tuesday. Have been in pain for years as had extensive abdominal surgery which left adhesions that cause severe pain so thought it was that. But pain has been getting worse and is now unbearable. I take a lot of morphine and morphine based painkillers but the pain is so bad they don't touch it anymore. Been to gastro surgeon &nothings changed but periods are stupidly heavy and have pelvic and back pain that never had before. Because of all the surgery, all my organs are stuck down or together and am now inoperable as it's too dangerous as they wouldn't be able to see what they were cutting into. In 40's now but had tests for infertility about 10 years ago and my Fallopian tubes were badly damaged. My gp thinks I may have endometriosis but from what I've read the only way to confirm and treat it is with a laparoscopy. Everything I've read said this could lead to a stoma which I had before for 6 months and couldn't cope with. I doubt they'd be able to get in to my abdomen but even if they tried, the possibility of having another bag is absolutely terrifying. I know many people cope really well which I've got tremendous respect for because I couldn't manage. Please can someone tell me if there's any non invasive way of getting a diagnosis and treatment. The pain is excruciating and as I said, even the ton of morphine doesn't touch it and my back is so bad I can only stand for couple of minutes. I don't know what to do as I don't know how they'd diagnose and treat me if I couldn't/wouldn't have laparoscopy. Please can someone give me some advice as I can't be in this mess for much longer and need to know what to expect. Thank you so much for any help at all you can give me

Written by
Vamp45 profile image
Vamp45
To view profiles and participate in discussions please or .
Read more about...

You may also like...

No diagnosis - help!!!

hi all I am writing on behalf of my daughter who has been suffering for years but no one can tell...

HELP: Delays on Diagnosis

negative results. Surely I have a right to know? What can I do? I've waited two years already for...

Help with endo diagnosis

Have had very painful periods with sciatica pain since my first child 20yrs ago.7 yrs ago it was...

Endo diagnosis 1st lap can anyone help?!

even told what endometrosis is..I've done a little reading on the internet but unsure what this...

Recent diagnosis please help

Hi I had my first laparoscopy 7 weeks ago due to extreme abdominal pain and pains in my hips and...