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Colitis or chrones?
Currently being tested to see if I have colitis or chrones because they aren’t sure if it’s IBS. I’m really worried because I have read it could lead to having a stoma bag, wondering the likeliness of this outcome?
Currently being tested to see if I have colitis or chrones because they aren’t sure if it’s IBS. I’m really worried because I have read it could lead to having a stoma bag, wondering the likeliness of this outcome?
h_elen1wolf
in
IBS Network
5 years ago
Colon Cancer Warning
Hi everyone. I wanted to give a quick reminder on the importance of getting your scheduled check ups and colonoscopies after your bowel diseases go into remission. My 65 year old father had a deadly bout with ulcerative colitis 30 years ago. He beat it and has been the picture of health for the most
Hi everyone. I wanted to give a quick reminder on the importance of getting your scheduled check ups and colonoscopies after your bowel diseases go into remission. My 65 year old father had a deadly bout with ulcerative colitis 30 years ago. He beat it and has been the picture of health for the most
Marathoner
in
IBS Network
5 years ago
New to new way of life
Hi there came across your site and was very keen to read peoples experiences and just see how much courage people really have .I have been in the care sector for over 30yrs and have always been the one who looked after people now people are looking after me as I am a lady who is 5wks after having bladder
Hi there came across your site and was very keen to read peoples experiences and just see how much courage people really have .I have been in the care sector for over 30yrs and have always been the one who looked after people now people are looking after me as I am a lady who is 5wks after having bladder
munkieone
in
Fight Bladder Cancer
5 years ago
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Post op intimacy struggles
Hi all, sorry for an awkward post, any advice would be helpful... don’t feel I can ask anyone else as they don’t really understand. So 6 months ago I had invasive endo surgery.. and a second op 10 weeks ago to reverse my temp stoma affectionately called Stella. Needless to say during the last 6 months
Hi all, sorry for an awkward post, any advice would be helpful... don’t feel I can ask anyone else as they don’t really understand. So 6 months ago I had invasive endo surgery.. and a second op 10 weeks ago to reverse my temp stoma affectionately called Stella. Needless to say during the last 6 months
RainbowBeth
in
Endometriosis UK
5 years ago
Signing a form to agree that the chemo only palliates the disease
Hello Lovely ladies Thanks to those of you that gave me advise on stoma, cyst surgery and pacitaxel. It has been incredibly helpful.. A pity I didn't know about you sooner.. Now related to that when I saw the registrar last Wednesday and when he told me that they would put me on pacitaxel I had to sign
Hello Lovely ladies Thanks to those of you that gave me advise on stoma, cyst surgery and pacitaxel. It has been incredibly helpful.. A pity I didn't know about you sooner.. Now related to that when I saw the registrar last Wednesday and when he told me that they would put me on pacitaxel I had to sign
dieneke
in
My Ovacome
5 years ago
Anyone has been on Paclitaxel on its own and cyst
Hello lovely ladies It is still quite a bumpy ride,diagnosed last February, Had paclitaxel/carboplatyn last year. CT showed stable, but no surgery and by February 2019 cancer seems to get back - with a cyst developed in the ovaries where the tumor is as well. so on carboplatyn and caelix. Just had my
Hello lovely ladies It is still quite a bumpy ride,diagnosed last February, Had paclitaxel/carboplatyn last year. CT showed stable, but no surgery and by February 2019 cancer seems to get back - with a cyst developed in the ovaries where the tumor is as well. so on carboplatyn and caelix. Just had my
dieneke
in
My Ovacome
5 years ago
He’s doing great!
For those who have been following Matthew’s story, here’s a little update. He had his stoma reversal surgery last month and it all went swimmingly. Never did I think I’d be so thrilled at changing a dirty nappy now that things are all working normally 😊 He’s now 11.5lbs and is piling on weight since
For those who have been following Matthew’s story, here’s a little update. He had his stoma reversal surgery last month and it all went swimmingly. Never did I think I’d be so thrilled at changing a dirty nappy now that things are all working normally 😊 He’s now 11.5lbs and is piling on weight since
Kathy_t
in
Fertility Network UK
5 years ago
Ace procedur3
My son has had constipation issues since birth . He has seen several drs hes now under the royal london hospital. We have been using peristeen since october and his soiling has been so much better. He also has 4 movical a day plus 10mls of dulcolax and daily peristeen. In febuary this year he was vommiting
My son has had constipation issues since birth . He has seen several drs hes now under the royal london hospital. We have been using peristeen since october and his soiling has been so much better. He also has 4 movical a day plus 10mls of dulcolax and daily peristeen. In febuary this year he was vommiting
Mummygoz
in
ERIC
5 years ago
Unexpected advice about PD
Exercise, intermittent fasting, tai chi, and use your "bad"side as much as possible. Says a top UK neurologist. I was back in the UK last week because my Dad's condition in hospital had deteriorated badly. When I got there he couldn't speak,stay awake for more than half an hour, and I had to try to
Exercise, intermittent fasting, tai chi, and use your "bad"side as much as possible. Says a top UK neurologist. I was back in the UK last week because my Dad's condition in hospital had deteriorated badly. When I got there he couldn't speak,stay awake for more than half an hour, and I had to try to
WinnieThePoo
in
Cure Parkinson's
5 years ago
Recently diagnosed. Confused and concerned.
I was diagnosed with late onset Raynaud and Scleroderma in November 2018. This was as a result of a blood test taken by my GP in June when I was unwell and she couldn’t find the cause so literally ticked every box and the results came back that I had slightly raised levels of Centromere antibody. I
I was diagnosed with late onset Raynaud and Scleroderma in November 2018. This was as a result of a blood test taken by my GP in June when I was unwell and she couldn’t find the cause so literally ticked every box and the results came back that I had slightly raised levels of Centromere antibody. I
Supermum54
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Scared ......
I was diagnosed in june 2017 with PPC/Ovarian cancer. Had the standard treatment/debulking and a stoma due to a bowel perforation. I’ve been in remission since November 2017 - it’s been a bumpy ride though - possible lung lesions and stoma blockages. I recently had what I thought was a UTI and went to
I was diagnosed in june 2017 with PPC/Ovarian cancer. Had the standard treatment/debulking and a stoma due to a bowel perforation. I’ve been in remission since November 2017 - it’s been a bumpy ride though - possible lung lesions and stoma blockages. I recently had what I thought was a UTI and went to
Eriksendi
in
My Ovacome
5 years ago
Finding the way forward
Hi all you lovely ladies, I just wanted you to know how much I appreciate all your comments. I really do think the way forward is the way that resonates with us, the way that feels true and not the one we think might be right? I have been very fortunate in that I have been shown in a blinding moment
Hi all you lovely ladies, I just wanted you to know how much I appreciate all your comments. I really do think the way forward is the way that resonates with us, the way that feels true and not the one we think might be right? I have been very fortunate in that I have been shown in a blinding moment
Lymetree
in
My Ovacome
5 years ago
Bladder in retention after dual lap - any advice?
I am 6 and 7 weeks post surgery, stage 4+ endo, nodules on bowel, bladder and kidney all successfully removed (although bowel was pretty mangled up and the rectum removed, unfortunately the join leaked internally and am now with a temp stoma bag - but that's another story!). My bladder will not work
I am 6 and 7 weeks post surgery, stage 4+ endo, nodules on bowel, bladder and kidney all successfully removed (although bowel was pretty mangled up and the rectum removed, unfortunately the join leaked internally and am now with a temp stoma bag - but that's another story!). My bladder will not work
Joclynwithnoe
in
Endometriosis UK
5 years ago
my hospital experience
this is my first time on any site,it started about 6 years ago,my daughter found me on floor and phoned the ambulance and taken to hospital later found out it was ulcerative colitis.which I was in a semi coma for a while and when I woke up,I had a stoma and aa bag attached to my stomach and found out
this is my first time on any site,it started about 6 years ago,my daughter found me on floor and phoned the ambulance and taken to hospital later found out it was ulcerative colitis.which I was in a semi coma for a while and when I woke up,I had a stoma and aa bag attached to my stomach and found out
levellers9
in
Lung Conditions Community Forum
5 years ago
Just joined, diagnosed last March OC Stage 4
Hello lovely ladies, I recently joined, glad to have found you all. Ovarian cancer is a strange cancer that seems to make many feel very stressed and lonely so definitely to give each other mutual support is so important. I was diagnosed with stage 4 high grade serous ovarian cancer last March 2018,
Hello lovely ladies, I recently joined, glad to have found you all. Ovarian cancer is a strange cancer that seems to make many feel very stressed and lonely so definitely to give each other mutual support is so important. I was diagnosed with stage 4 high grade serous ovarian cancer last March 2018,
dieneke
in
My Ovacome
5 years ago
Laproscopy incision and advice
Hi there, I have a diagnoses of endo had a lap in 2008 and 2010. I got a phone call yesterday and I've been ask to come for pre assessment this Thurs in London (I live in Kent) then surgery next Tues. So I'm having a laproscopy and coil fitted plus excision if needed and reduce adhesions if needed and
Hi there, I have a diagnoses of endo had a lap in 2008 and 2010. I got a phone call yesterday and I've been ask to come for pre assessment this Thurs in London (I live in Kent) then surgery next Tues. So I'm having a laproscopy and coil fitted plus excision if needed and reduce adhesions if needed and
Kelsa
in
Endometriosis UK
5 years ago
WOCN Week in the US
This is the week in the US when we take time to say thank you to a very special group of nurses, called WOCNs (Wound, Ostomy, Continence Nurses). These nurses have special training and certifications to treat people with hard -to-heal wounds, ostomies, and both urinary and bowel incontinence. They
This is the week in the US when we take time to say thank you to a very special group of nurses, called WOCNs (Wound, Ostomy, Continence Nurses). These nurses have special training and certifications to treat people with hard -to-heal wounds, ostomies, and both urinary and bowel incontinence. They
incon1982
Administrator
in
The Simon Foundation for Continence
5 years ago
active endo after hysterectomy and ovary removal
So abdominal hysterectomy and ovary removal 9 months ago and just been told that I still have high oestrogen levels with active disease and bowel stuck down. Again. Waiting to be injected into menopause, in the hope of stopping the disease. If it doesnt work, bowel surgery and stoma bag await. Has
So abdominal hysterectomy and ovary removal 9 months ago and just been told that I still have high oestrogen levels with active disease and bowel stuck down. Again. Waiting to be injected into menopause, in the hope of stopping the disease. If it doesnt work, bowel surgery and stoma bag await. Has
Flydragon9
in
Endometriosis UK
5 years ago
My PIP Assessment
Hi, I have a nightmare in three weeks for an assessment for PIP and I am very worried as last time the doctor was aggressive and very rude and I have mental health problems and had a fit and he had to leave. I was on DLA and lost it. However, a very good person helped me get it back but then two years
Hi, I have a nightmare in three weeks for an assessment for PIP and I am very worried as last time the doctor was aggressive and very rude and I have mental health problems and had a fit and he had to leave. I was on DLA and lost it. However, a very good person helped me get it back but then two years
Banditqueen
in
Fibromyalgia Action UK
5 years ago
Stoma
Have any of you got gastrointestinal issues and had it suggested that you would find it easier with a colostomy bag. If you have or have done the op I would really appreciate your thoughts and experience. Thanks in advance
Have any of you got gastrointestinal issues and had it suggested that you would find it easier with a colostomy bag. If you have or have done the op I would really appreciate your thoughts and experience. Thanks in advance
hab29
in
Ataxia UK
5 years ago
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