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Fight Bladder Cancer
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All clear after EMDA with Mitomycin
Hi everyone Just wanted to share some good news. I’ve been having EMDA with Mitomycin treatment for the past few months ( initially once a week x 6 then 3...
Hi everyone Just wanted to share some good news. I’ve been having EMDA with Mit...
PaMul
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3 Replies
Hopefully end of BCG Treatment
I had Bladder Cancer 5 years ago which is in remission but started again so started with two 6 week courses and 3 week course of BCG. Then Cyctoscopy and all...
I had Bladder Cancer 5 years ago which is in remission but started again so st...
phil3
•
Be the first to reply
Treatment plan after Bladder tumours removal
Hello All I am writing for my Dad as he is residing in another country. He has had bladder tumours(2) removed by TURBT and histopath report suggesting:...
Hello All I am writing for my Dad as he is residing in another country. He has ...
morsh
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2 Replies
urine infection following cytoscopy
Hi all ,had a turbt op 12 months ago with successful tumor removal outcome .I have had 3 cytoscopy follow ups since showing no return .Unable to have BCG due...
Hi all ,had a turbt op 12 months ago with successful tumor removal outcome .I ha...
cazy-g
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2 Replies
Share your story
The Guardian newspaper is calling for other bladder cancer stories after Tracy Emin has revealed hers. Read the article and take part with the link below....
The Guardian newspaper is calling for other bladder cancer stories after Tracy E...
PaMul
•
Be the first to reply
EMDA with Mitomycin
Hi all After my turbt in July I’ve been recommended EMDA with Mitomycin. There was one small tumour TaG1. But it’s my 5th low grade recurrence. EMDA is like an...
Hi all After my turbt in July I’ve been recommended EMDA with Mitomycin. There w...
PaMul
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3 Replies
After a long wait
I am half way through my BCG after a 10 month wait all going well so far not having anything I wasn't expecting hope it works, after first having bladder...
I am half way through my BCG after a 10 month wait all going well so far not hav...
Fishyman67
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1 Reply
7 years with this bladder cancer
After having bladder cancer for 7years numerous turbt operations each time having chemo this last bout consultants going to put me on bcg treatment
After having bladder cancer for 7years numerous turbt operations each time havin...
64Andy
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7 Replies
Cancer remission - self isolsting?
My husband had stage 3 bladder cancer nearly 5 years ago, bladder and prostate removed . Verbally the public health have said he should be self isolating due...
My husband had stage 3 bladder cancer nearly 5 years ago, bladder and prostate r...
carol789
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5 Replies
Unable to have Cystoscopy and BCG treatment
I’m due for a Cystoscopy and BCG Treatment for my Bladder Cancer but I received a phone call from the Hospital who told me “Sorry Phil, type 2 operations due...
I’m due for a Cystoscopy and BCG Treatment for my Bladder Cancer but I received ...
phil3
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5 Replies
Agent Orange exposure. ??
Diagnosed with BC in 06. Vietnam vet with exposure to Agent Orange. Waiting on VA to add it to the list of presumptive diseases from exposure to AgentOrange....
Diagnosed with BC in 06. Vietnam vet with exposure to Agent Orange. Waiting on V...
poppadew
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2 Replies
Fight Bladder Cancer
Hi all .. if you are on Facebook Fight Bladder Cancer support is an amazing group to join
Hi all .. if you are on Facebook Fight Bladder Cancer support is an amazing grou...
Rossi68
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4 Replies
B12
Low vitamin B12 after radiotherapy for terminal bladder cancer. Anyone have experience of these injections and did it work for you? Thanks
Low vitamin B12 after radiotherapy for terminal bladder cancer. Anyone have exp...
Bobbie915
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8 Replies
Mitomycin maintenance longer than 3 years?
Hi everyone I’ve been having Mitomycin for almost 3 years now and despite a couple of small low grade recurrences have been recommended to stay on it. My 3...
Hi everyone I’ve been having Mitomycin for almost 3 years now and despite a cou...
PaMul
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2 Replies
Another long wait
I have had my second biopsy last Thursday the 23rd I have received my follow up appointment for the 16/3 that makes it 8 weeks to wait.
I have had my second biopsy last Thursday the 23rd I have received my follow up ...
Fishyman67
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4 Replies
Keep fighting.
Merry Christmas to you all, keep up the good fight. Iv been for my flexi scope today, good news I dont have to go back for 18 months I'm so pleased, it's been...
Merry Christmas to you all, keep up the good fight. Iv been for my flexi scope t...
672530
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2 Replies
Another biopsy
The never ending saga of my diagnosis have been told I need another biopsy and I can't seem to get an answer why!
The never ending saga of my diagnosis have been told I need another biopsy and I...
Fishyman67
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1 Reply
Good news
Just to let you know some good news. Had my cystoscopy and NED! So happy to end a turbulent year with good news ( two recurrences operated one 2019). Onwards...
Just to let you know some good news. Had my cystoscopy and NED! So happy to end ...
PaMul
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4 Replies
Recurring Bladder cancer.
Did a cystoscope in March of 16, They found 4 tumors one as big as a golf ball. Did the removal and lucky it was not through the wall yet. I did the BCG...
Did a cystoscope in March of 16, They found 4 tumors one as big as a golf ball. ...
Dragonslayer
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4 Replies
9 years clear but back again
After my 6 monthly cystoscopy they found a lesion had a biopsy in July. Had to wait 9 weeks for the results not good news I am waiting to go back on BCG...
After my 6 monthly cystoscopy they found a lesion had a biopsy in July. Had to w...
Fishyman67
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9 Replies
BCG and Gemcitabine Treatments
What would you DO and what is the right thing to DO with my Bladder Cancer, wait until the BCG treatment becomes available and that’s due to shortage or just...
What would you DO and what is the right thing to DO with my Bladder Cancer, wait...
phil3
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2 Replies
Has anyone had success with Keytruda and then stopped treatment?
I was first diagnosed with bladder cancer in 2016. During the first year, I had a nephrectomy, cystectomy and prostatectomy along with other treatments....
I was first diagnosed with bladder cancer in 2016. During the first year, I ha...
Jim47
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9 Replies
Biopsy results soon
Hi, I am new here. I had a tumour removed by TURBT a few days ago and am waiting for meeting with Consultant to give me the verdict. The tumour was in the...
Hi, I am new here. I had a tumour removed by TURBT a few days ago and am waitin...
Brummie1
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7 Replies
Low grade
Hi everyone The results of my turbt on Tuesday were low grade. So there’s no change to my current treatment of Mitomycin. They said the tumour was small and...
Hi everyone The results of my turbt on Tuesday were low grade. So there’s no ch...
PaMul
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2 Replies
New here Newly diagnosed
Hi all ,I am a female just commencing treatment for bladder C. The outcome of first procedure was that I had a grade 3 tumor which at present is non invasive...
Hi all ,I am a female just commencing treatment for bladder C. The outcome of fi...
cazy-g
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17 Replies
6 years on still fighting .
6 years on this April after a12 month check up two Tumors spotted went in hospital had Tumors removed on 20th May 2019 had to stop in hospital on the 21st May...
6 years on this April after a12 month check up two Tumors spotted went in hospit...
64Andy
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6 Replies
New Member Introduction
Hi All, I finally got around to looking up the bladder cancer forum here on HealthUnlocked and thought I'd introduce myself and tell my story. I'm Tom, and I...
Hi All, I finally got around to looking up the bladder cancer forum here on Heal...
tom67inMA
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7 Replies
Another tumour 😩
Sadly the cystoscopy showed another tumour today. The fourth return since 2016 looks like the Mitomycin isn’t working for me. I’m thinking BCG is the next step...
Sadly the cystoscopy showed another tumour today. The fourth return since 2016 l...
PaMul
•
4 Replies
4 years on...Still standing!
Hello again, Well, here we are, final planned cystoscopy yesterday and thankfully still no tumours to see. The care shown to me by the Urollogy team at...
Hello again, Well, here we are, final planned cystoscopy yesterday and thankfull...
meghwyn
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6 Replies
bladder prostrate removed
hi all keep going and think positive its nearly 5 years since my husband had his bladder and prostate removed goes every year now for scans and check up
hi all keep going and think positive its nearly 5 years since my husband had his...
brimas
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3 Replies
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