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update
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
Harriet-sarah
in
British Liver Trust
11 months ago
Doctor wants me to start Hydrea
I am 44 years old. I was diagnosed with ET 3 years ago. My platelet count had been pretty steady at around 700, sometimes it would spike to mid 700s or up to as high as 800. My last visit was 846 and the Doctor began to panic a little bit. She wanted me to start Hydrea 500mg 3 times a week to get things
I am 44 years old. I was diagnosed with ET 3 years ago. My platelet count had been pretty steady at around 700, sometimes it would spike to mid 700s or up to as high as 800. My last visit was 846 and the Doctor began to panic a little bit. She wanted me to start Hydrea 500mg 3 times a week to get things
JT1622
in
MPN Voice
11 months ago
New to this world
I was diagnosed with GCA in August of 2023 after suspecting that I was experiencing some level of gluten intolerance, rashes, digestive irregularities, anemia, etc. I cut out the gluten and the obvious signs faded but there was an underlying problem that manifested in high temps, malaise, and further
I was diagnosed with GCA in August of 2023 after suspecting that I was experiencing some level of gluten intolerance, rashes, digestive irregularities, anemia, etc. I cut out the gluten and the obvious signs faded but there was an underlying problem that manifested in high temps, malaise, and further
BartsDad
in
PMRGCAuk
7 months ago
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Gastritis Symptoms
I have been diagnosed with Gastritis, not sure which kind yet as I have not been tested. I am experiencing my second gastritis flare up and it is by far, worse than the first. I am going to my primary physician this week to see about testing for reasons for my symptoms. I am wondering if anyone on
I have been diagnosed with Gastritis, not sure which kind yet as I have not been tested. I am experiencing my second gastritis flare up and it is by far, worse than the first. I am going to my primary physician this week to see about testing for reasons for my symptoms. I am wondering if anyone on
flowerplanter
in
IBS Network
7 months ago
Endo supplements
Hi all, Just wondered if anyone take any supplements/vitamins or something that they find helps keep their periods regular. I was on the combined pill for 8 years and decided to come off it as I wanted my body back. When on the pill I was taking breaks to have my period, but now I've been off for
Hi all, Just wondered if anyone take any supplements/vitamins or something that they find helps keep their periods regular. I was on the combined pill for 8 years and decided to come off it as I wanted my body back. When on the pill I was taking breaks to have my period, but now I've been off for
Endo_hub
in
Endometriosis UK
11 months ago
Positive FIT test
Hi, as some of you may have seen in my previous posts, I have been suffering with slow transit colon the last 4 years. I had a hysterectomy back In April 23 for numerous fibrioids that they thought could be a culprit, when they did the surgery they found my uterus and bowel stuck together with endo and
Hi, as some of you may have seen in my previous posts, I have been suffering with slow transit colon the last 4 years. I had a hysterectomy back In April 23 for numerous fibrioids that they thought could be a culprit, when they did the surgery they found my uterus and bowel stuck together with endo and
Orchid99
in
IBS Network
7 months ago
Son soiling
My son has struggled with bowel movement since potty training.. at pre school we had accidents daily with him saying he's too busy to go to the toilet. Wees no problem. Since starting reception this improved with no accidents at school however it is creeping back again and he had an accident on Friday
My son has struggled with bowel movement since potty training.. at pre school we had accidents daily with him saying he's too busy to go to the toilet. Wees no problem. Since starting reception this improved with no accidents at school however it is creeping back again and he had an accident on Friday
Glittershoes
in
ERIC
7 months ago
Colonoscopy worries
I have Diverticular disease and had a Colonoscopy in 2018 when polyps were found but I was not told!! Having another Colonoscopy tomorrow due to recurrent Diverticulitis after waiting months. I have had a really bad chesty cough for 3 weeks which is almost gone but when I do cough it triggers my asthma
I have Diverticular disease and had a Colonoscopy in 2018 when polyps were found but I was not told!! Having another Colonoscopy tomorrow due to recurrent Diverticulitis after waiting months. I have had a really bad chesty cough for 3 weeks which is almost gone but when I do cough it triggers my asthma
CockeyMoor
in
IBS Network
7 months ago
Macrogol (Dulcoease)
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Gardener
in
IBS Network
7 months ago
Labyrinthitis & tinnitus
Had mild tinnitus for a while which I could cope with, but since the onset of labyrinthitis back in March the tinnitus has got much worse, particularly recently..anyone had similar?..Currently in bed after another labyrinthitis 'episode'.
Had mild tinnitus for a while which I could cope with, but since the onset of labyrinthitis back in March the tinnitus has got much worse, particularly recently..anyone had similar?..Currently in bed after another labyrinthitis 'episode'.
Cityfan1
in
Tinnitus UK
11 months ago
Is Cold Water Therapy (cold plunge) for metastasis to bones or lymph nodes beneficial or harmful?? Slow progression?
Any insight would be greatly appreciated. TA??
Any insight would be greatly appreciated. TA??
Longterm101
in
Advanced Prostate Cancer
7 months ago
Lyrica can it just mask inflammation
Hi. I'm still waiting for the rhumatologist and for the moment my gp want my to try lyrica to remove the pain. Does it work for inflammatory pain? If i stop feeling the pain but the inflammation is still there can i rupture something by moving to much again? I have achille inflammation, pain in my rib
Hi. I'm still waiting for the rhumatologist and for the moment my gp want my to try lyrica to remove the pain. Does it work for inflammatory pain? If i stop feeling the pain but the inflammation is still there can i rupture something by moving to much again? I have achille inflammation, pain in my rib
Shadow35
in
NRAS
11 months ago
Interstitial Cystitis with negative biopsy?
Hi everyone, I had a cystoscopy done during a surgery for endometriosis under general and the report says 'petichiae seen on double fill' and a question of Interstitial Cystitis. They took a biopsy and that shows 'a few scattered mast cells' but reports 'negative for significant inflammation'. One Urogynae
Hi everyone, I had a cystoscopy done during a surgery for endometriosis under general and the report says 'petichiae seen on double fill' and a question of Interstitial Cystitis. They took a biopsy and that shows 'a few scattered mast cells' but reports 'negative for significant inflammation'. One Urogynae
G3miniStar
in
Bladder Health UK
11 months ago
Tenesmus etc
Hello. I have had chronic consipation for for over 30 years and rely on suppositories to get my bowels working. More recently I have had loose & fragmented stool with bouts of diarrhea. Difficult for others to understand but even when I feel a neeed to "go", I usually need suppositories to get started
Hello. I have had chronic consipation for for over 30 years and rely on suppositories to get my bowels working. More recently I have had loose & fragmented stool with bouts of diarrhea. Difficult for others to understand but even when I feel a neeed to "go", I usually need suppositories to get started
gussmithy
in
NRAS
7 months ago
Tenesmus etc
Hello. I have had chronic consipation for for over 30 years and rely on suppositories to get my bowels working. More recently I have had loose & fragmented stool with bouts of diarrhea. Difficult for others to understand but even when I feel a neeed to "go", I usually need suppositories to get started
Hello. I have had chronic consipation for for over 30 years and rely on suppositories to get my bowels working. More recently I have had loose & fragmented stool with bouts of diarrhea. Difficult for others to understand but even when I feel a neeed to "go", I usually need suppositories to get started
gussmithy
in
IBS Network
7 months ago
follow up sigmoidoscopy
I go for my follow up sigmoidoscopy on Tuesday to check for regrowth of my precancerous polyp that was removed 6 months ago. What are the chances that these regrow in the same spot and if so, could they already have turned to cancer if they grow back within 6 months? The closer I get to the test, the
I go for my follow up sigmoidoscopy on Tuesday to check for regrowth of my precancerous polyp that was removed 6 months ago. What are the chances that these regrow in the same spot and if so, could they already have turned to cancer if they grow back within 6 months? The closer I get to the test, the
EmmyCG
in
Colon Cancer Connected
7 months ago
Symptoms of Carbidopa levodopa overdose?
What are the symptoms of c/l overdose? I may have accidentally taken my morning dose twice!
What are the symptoms of c/l overdose? I may have accidentally taken my morning dose twice!
Gallowglass
in
Cure Parkinson's
7 months ago
colonoscopy
can understand your concern but try not to worry. For me the worst thing is the bowel prep. Ensure you’re near a loo! During the procedure I was shown how to use gas and air effectively and it really worked well for me. I also had sedation- don’t be brave! I was given Buscopan at the end of the
can understand your concern but try not to worry. For me the worst thing is the bowel prep. Ensure you’re near a loo! During the procedure I was shown how to use gas and air effectively and it really worked well for me. I also had sedation- don’t be brave! I was given Buscopan at the end of the
Talulahjuanetta
in
IBS Network
7 months ago
13 year old boy, pain around/just above belly button, struggling to get any diagnosis or find anything that helps.
My son has had pain around, or just above his belly button since end Nov. It went away for 2 weeks, and has since been bad again for another 3, preventing him attending school. Eating doesn't seem to affect it, and he is going to the toilet normally. We have tried
buscopan
(didn't seem to make
My son has had pain around, or just above his belly button since end Nov. It went away for 2 weeks, and has since been bad again for another 3, preventing him attending school. Eating doesn't seem to affect it, and he is going to the toilet normally. We have tried
buscopan
(didn't seem to make
Kaz5167
in
IBS Network
7 months ago
colitis and Psoriasis
Hello, I’ve recently been diagnosed with colitis and also experienced some Psoriasis. Some people seem to think this all leads back to the liver. I just wondered if anyone had a similar experience and if there are tests available to see what I can possibly do?
Hello, I’ve recently been diagnosed with colitis and also experienced some Psoriasis. Some people seem to think this all leads back to the liver. I just wondered if anyone had a similar experience and if there are tests available to see what I can possibly do?
Nick1954
in
British Liver Trust
7 months ago
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