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IBD and RA
Hi, I’m going through some investigations for IBD atm - the gastroenterologist is being very thorough and linked the inflammatory markers to my RA quite quickly. Does anyone else have any experience of living with both conditions? What sort of things should I be asking and looking for? Thank you in advance
Hi, I’m going through some investigations for IBD atm - the gastroenterologist is being very thorough and linked the inflammatory markers to my RA quite quickly. Does anyone else have any experience of living with both conditions? What sort of things should I be asking and looking for? Thank you in advance
FlaringFascinator
in
NRAS
6 months ago
Gas in CT Simulation
Did anyone have trouble getting good imagery in CT simulation or have advice? Went on a low residue diet to prepare for CT simulation. Both times too much gas for imaging despite cutting out so much fiber and plants from diet. I read that about a practice in Austin, TX suggesting Gas-X (simethicone)
Did anyone have trouble getting good imagery in CT simulation or have advice? Went on a low residue diet to prepare for CT simulation. Both times too much gas for imaging despite cutting out so much fiber and plants from diet. I read that about a practice in Austin, TX suggesting Gas-X (simethicone)
Hope49823
in
Advanced Prostate Cancer
6 months ago
Stressing.
hi everyone I hope your all keeping as well as possible. I’ll start with ,I do have IBS,but to the end of last year I was told I also have Diverticulum/ Diverticulitis. I’m trying to understand it,but I’m not doing to good. Since December I’ve had 3 courses of antibiotics,until then I haven’t had any
hi everyone I hope your all keeping as well as possible. I’ll start with ,I do have IBS,but to the end of last year I was told I also have Diverticulum/ Diverticulitis. I’m trying to understand it,but I’m not doing to good. Since December I’ve had 3 courses of antibiotics,until then I haven’t had any
Breathless1943
in
IBS Network
6 months ago
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Ascites drain
Good morning. My husband was taken in for an ascetic drain in November and was found to have Peritonitis which was treated before the drain. He is now on a daily oral antibiotic. His tummy swelled again and we booked a further drain in December but when we got there his tummy was too soft to get the
Good morning. My husband was taken in for an ascetic drain in November and was found to have Peritonitis which was treated before the drain. He is now on a daily oral antibiotic. His tummy swelled again and we booked a further drain in December but when we got there his tummy was too soft to get the
Breakfastbabe
in
British Liver Trust
6 months ago
more bleeding and pain after Colonoscopy 2 weeks ago
Hi all, Wondering whether anyone else has experienced worse symptoms (particularly more bleeding) following colonoscopy? it’s nearly 3 weeks later and bleeding worse than before the procedure. Gastro refuses to acknowledge this - she says I’m just in a bad flare. I can’t understand why it is worse
Hi all, Wondering whether anyone else has experienced worse symptoms (particularly more bleeding) following colonoscopy? it’s nearly 3 weeks later and bleeding worse than before the procedure. Gastro refuses to acknowledge this - she says I’m just in a bad flare. I can’t understand why it is worse
Bunnygirl1
in
Crohn's and Colitis Support
6 months ago
The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
6 months ago
Normal Pressure Glaucoma
I have suspected Normal Pressure Glaucoma and have been prescribed single use Monopost eye drops. I have been putting them in for about three weeks and since then I have been having mild headaches. The pressure in my left eye is 9 and in my right eye 10. Because I am a type 1 Diabetic I have an eye
I have suspected Normal Pressure Glaucoma and have been prescribed single use Monopost eye drops. I have been putting them in for about three weeks and since then I have been having mild headaches. The pressure in my left eye is 9 and in my right eye 10. Because I am a type 1 Diabetic I have an eye
AnnieJo41
in
Glaucoma UK
10 months ago
Theme Parks & Continuing Life
hi all, creeping up to 1 year since my TBI. I stayed in hosp for 4 days before being discharged but despite this my TBI was classed as ‘severe’. I am lucky in the sense of I seem to have recovered really well. I don’t have any symptoms anymore apart from the odd BPPV spell which I fix with the epley.
hi all, creeping up to 1 year since my TBI. I stayed in hosp for 4 days before being discharged but despite this my TBI was classed as ‘severe’. I am lucky in the sense of I seem to have recovered really well. I don’t have any symptoms anymore apart from the odd BPPV spell which I fix with the epley.
sunnygiraffe
in
Headway
10 months ago
Repeat Lutetium/ Pluvicto treatment
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Eugmn
in
Advanced Prostate Cancer
6 months ago
Knowledge is Power
Becoming informed is so important. The more you know the more confidence you have to advocate for yourself. When we come up against arrogant or prejudiced professionals it gives us confidence to stand our ground. However, no matter how much we read as lay people we have to recognise that we don't have
Becoming informed is so important. The more you know the more confidence you have to advocate for yourself. When we come up against arrogant or prejudiced professionals it gives us confidence to stand our ground. However, no matter how much we read as lay people we have to recognise that we don't have
cycli
in
PMRGCAuk
6 months ago
positive fit test
Hi all I’ve got to have a colonoscopy in a couple of weeks my symptoms were all of a sudden I had really bad diarrhea for one night and then just loose stools for about five days no visible blood. I went to the doctors and told me to do a fit test which came back positive. The stool sample I used was
Hi all I’ve got to have a colonoscopy in a couple of weeks my symptoms were all of a sudden I had really bad diarrhea for one night and then just loose stools for about five days no visible blood. I went to the doctors and told me to do a fit test which came back positive. The stool sample I used was
Liv56
in
Colon Cancer Connected
6 months ago
will it cause anything during this few months
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
Mondlee
in
Colon Cancer Connected
6 months ago
Dry skin
Does anyone feel that Hydroxyurea causes your skin to dry out and wrinkle faster?
Does anyone feel that Hydroxyurea causes your skin to dry out and wrinkle faster?
Winchie
in
MPN Voice
10 months ago
bladder stones
When my urologist did my biopsy he also removed bladder stones by breaking them in pieces and retrieving them thru my supra pubic catheter portal. Unfortunately all of them could not be be retrieved and they moved down my urethra to the point where the enlarged prostate pinched off urine flow. They
When my urologist did my biopsy he also removed bladder stones by breaking them in pieces and retrieving them thru my supra pubic catheter portal. Unfortunately all of them could not be be retrieved and they moved down my urethra to the point where the enlarged prostate pinched off urine flow. They
agnut
in
Fight Prostate Cancer
10 months ago
Altered sensation after Dilator exercises
Hi all,I would really appreciate some support and guidance as I have a hypertonic pelvic floor muscle (for about 8-9 years). I have tried many approaches over the years but recently return to focus on physiotherapy and dilator stretches - on an intensive approach this time- completing a passive stretch
Hi all,I would really appreciate some support and guidance as I have a hypertonic pelvic floor muscle (for about 8-9 years). I have tried many approaches over the years but recently return to focus on physiotherapy and dilator stretches - on an intensive approach this time- completing a passive stretch
HopefulOphelia
in
Pelvic Pain Support Network
10 months ago
Dry eyes
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Groda
in
PMRGCAuk
10 months ago
Vertigo
Iv been taking betahistine for 6weeks,for vertigo,been ok till last tues,now i keep getting up with vertigo,its not going away,the tablets are suppose to stop it, before i only had it every so often ,i take the tablets you put on your gum to melt for attacks they help but give me me bit of a headache
Iv been taking betahistine for 6weeks,for vertigo,been ok till last tues,now i keep getting up with vertigo,its not going away,the tablets are suppose to stop it, before i only had it every so often ,i take the tablets you put on your gum to melt for attacks they help but give me me bit of a headache
Puggles2
in
AF Association
10 months ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
8 months ago
That was a busy week!
last week I did run Kent 5k I was meant to have done the 10k but due to my ongoing injury problem did the 5k instead! Since the dark nights have descended I have been struggling with my fear of falling and causing more damage to my shoulder! I broke my shoulder in January and it has been classified
last week I did run Kent 5k I was meant to have done the 10k but due to my ongoing injury problem did the 5k instead! Since the dark nights have descended I have been struggling with my fear of falling and causing more damage to my shoulder! I broke my shoulder in January and it has been classified
BGood
in
Couch to 5K
11 months ago
double up
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
Poppyseed8
in
IBS Network
6 months ago
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