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MGUS and PMR/GCA
If true, this is a little unsettling... MGUS can be a precursor to Multiple Myeloma. Quote from article: "A study of United States veterans suggested that subjects with autoimmune conditions where autoantibodies are detectable are at increased risk of developing MGUS [46]. Furthermore, a recent
If true, this is a little unsettling... MGUS can be a precursor to Multiple Myeloma. Quote from article: "A study of United States veterans suggested that subjects with autoimmune conditions where autoantibodies are detectable are at increased risk of developing MGUS [46]. Furthermore, a recent
kp60
in
PMRGCAuk
6 months ago
imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
NormaB
in
PMRGCAuk
6 months ago
Total knee replacement
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasn’t great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR it’s possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasn’t great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR it’s possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
Toffeeboyblue
in
PMRGCAuk
6 months ago
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Easy squeeze eye drops
Happy and healthy new year to you lovely people. I have recently had a hand op and my other hand is giving up the ghost. I have Sjögren’s syndrome as well as ra and have to put eye drops in regularly. I was wondering if any of you use eye drops that are easy to squeeze or if any of you use a bottle applicator
Happy and healthy new year to you lovely people. I have recently had a hand op and my other hand is giving up the ghost. I have Sjögren’s syndrome as well as ra and have to put eye drops in regularly. I was wondering if any of you use eye drops that are easy to squeeze or if any of you use a bottle applicator
debjw
in
NRAS
6 months ago
Accident
They got me up and walking soon and after physio and the delivery of equipment by
occupational
therapy
.,I was home Thank goodness for my husband who is going to be a full time carer for some time ,I'm afraid .
They got me up and walking soon and after physio and the delivery of equipment by
occupational
therapy
.,I was home Thank goodness for my husband who is going to be a full time carer for some time ,I'm afraid .
KathleenMary
in
NRAS
1 year ago
ct abdominal scan with contrast
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
Pycat123
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
7 months ago
colonoscope
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
soul-123
in
Lung Conditions Community Forum
7 months ago
Asbestos
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
wimbledon
in
Lung Conditions Community Forum
7 months ago
OxyContin and low dose suboxone.
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
shaughnna
in
National Migraine Centre
7 months ago
New Clinical Trial Starting: A Study of AAV2-GDNF in Adults With Moderate Parkinson's Disease (REGENERATE-PD) (REGENERATE-PD)
Here is a link to the trial on clinicaltrials.gov https://clinicaltrials.gov/study/NCT06285643?term=REGENERATE-PD&rank=1 Below is an excerpt from a news article about the trial: A new Phase II trial, REGENERATE-PD, will study AB-1005, an adeno-associated virus 2 (AAV2) glial cell line-derived neurotrophic
Here is a link to the trial on clinicaltrials.gov https://clinicaltrials.gov/study/NCT06285643?term=REGENERATE-PD&rank=1 Below is an excerpt from a news article about the trial: A new Phase II trial, REGENERATE-PD, will study AB-1005, an adeno-associated virus 2 (AAV2) glial cell line-derived neurotrophic
Canddy
in
Cure Parkinson's
4 days ago
Update on FIL -Venetoclax as a Monotherapy, Pancytopenia and Myelodysplasia
Hi everyone I have been meaning to post an update for months but things have been changing so rapidly, every day would have been a different story. So we did get to see a specialist who did a BM biopsy and recommended Venetoclax as a Monotherapy as his BM was 50% CLL. We were told it wasn't chemo
Hi everyone I have been meaning to post an update for months but things have been changing so rapidly, every day would have been a different story. So we did get to see a specialist who did a BM biopsy and recommended Venetoclax as a Monotherapy as his BM was 50% CLL. We were told it wasn't chemo
JoeMcDote
in
CLL Support
5 days ago
Newly diagnosed with HCC
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
Dachshund45
in
Blue Faery Liver Cancer
7 days ago
Advice
Hi All, I have hearing loss in both ears and have tinnitus all the time. This is a difficult challenge for us all. The doctors just put you on betahistine or amitriptyline or alprazolam or any anti depressants they say it helps reduce tinnitus or improve blood flow to inner ear. This is the same
Hi All, I have hearing loss in both ears and have tinnitus all the time. This is a difficult challenge for us all. The doctors just put you on betahistine or amitriptyline or alprazolam or any anti depressants they say it helps reduce tinnitus or improve blood flow to inner ear. This is the same
CMRN11
in
Tinnitus UK
8 days ago
More about Cu-67 PSMA : it seems better than Pluvicto (Lutetium) and it looks like experts are pushing it toward first line treatment!
I have already talked about this but it continues to look promising, so here is an update: https://www.urotoday.com/video-lectures/asco-2024/video-2/mediaitem/4152-secure-trial-copper-67-psma-therapy-for-prostate-cancer-geoffrey-johnson.html in a nutshell, improved Pluvicto: "the SECuRE trial for
I have already talked about this but it continues to look promising, so here is an update: https://www.urotoday.com/video-lectures/asco-2024/video-2/mediaitem/4152-secure-trial-copper-67-psma-therapy-for-prostate-cancer-geoffrey-johnson.html in a nutshell, improved Pluvicto: "the SECuRE trial for
Maxone73
in
Advanced Prostate Cancer
8 days ago
My PBC is getting worse. ascites causing me SOB, confusion, falls. skin is so itchy despite phototherapy. My symptoms are of late stages.
Can anyone help to elevate some symptoms. It's so effecting my life.
Can anyone help to elevate some symptoms. It's so effecting my life.
Oakleypup
in
British Liver Trust
9 days ago
First gene therapy for prevalent pathologies in neurology receives FDA IND clearance - EG 427 initiating first-in-human clinical study
https://uk.finance.yahoo.com/news/first-gene-therapy-prevalent-pathologies-060000901.html
https://uk.finance.yahoo.com/news/first-gene-therapy-prevalent-pathologies-060000901.html
Farooqji
in
Cure Parkinson's
9 days ago
Suppressed TSH on combined therapy
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
redhead41
in
Thyroid UK
10 days ago
Debate on T3 between Prof Bianco & Prof Pearce
These 2 well-known endos had a formal 'debate' recently at the Endo 2024 conference in Boston. Prof Bianco was 'for' the use of T3 in combination therapy, and Prof Pearce was 'against' it. We know that these are their personal stances anyway, even when not in a formal debate setting. Prof Bianco '
These 2 well-known endos had a formal 'debate' recently at the Endo 2024 conference in Boston. Prof Bianco was 'for' the use of T3 in combination therapy, and Prof Pearce was 'against' it. We know that these are their personal stances anyway, even when not in a formal debate setting. Prof Bianco '
TaraJR
in
Thyroid UK
12 days ago
PSP/CBD Symposium - Saturday, June 29, 10am-3pm Pacific (US time)
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
rriddle
in
PSP Association
12 days ago
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