Search
Search
About
Log in
Join
Experiences with
Occupational therapy
Posts
Communities
17,523 public posts
Filter results
Seeking to connect, share, support and heal this anxiety
Howdy all: I am TS—my nickname, so it's all good. I have experienced depression for 34 years, when I was first diagnosed. About 5 months ago, I was also diagnosed with general anxiety disorder, Since that time, I have experienced a combination of anxiety, fear and deep loneliness. I am currently on
Howdy all: I am TS—my nickname, so it's all good. I have experienced depression for 34 years, when I was first diagnosed. About 5 months ago, I was also diagnosed with general anxiety disorder, Since that time, I have experienced a combination of anxiety, fear and deep loneliness. I am currently on
LittleShik
in
Anxiety and Depression Support
10 months ago
Salvage options?
Hello again, I have a few more questions, to help my husband decide between surgery and brachyboost. For context, he is localized Gleason 9. (1) Is the course of salvage radiation after RP typically the same as it would have been if the initial treatment had been radiation therapy? Or would it require
Hello again, I have a few more questions, to help my husband decide between surgery and brachyboost. For context, he is localized Gleason 9. (1) Is the course of salvage radiation after RP typically the same as it would have been if the initial treatment had been radiation therapy? Or would it require
EvFC
in
Advanced Prostate Cancer
5 months ago
If you are thinking of Travel - Go For It.
Hello everyone, We're midway through our 10-week holiday adventure, and it's been quite a journey so far! From Japan to Finland, Turkey, and now Italy, we've covered quite a bit of ground. Traveling alongside another couple, our time in Turkey stands out, where I took on the role of designated driver
Hello everyone, We're midway through our 10-week holiday adventure, and it's been quite a journey so far! From Japan to Finland, Turkey, and now Italy, we've covered quite a bit of ground. Traveling alongside another couple, our time in Turkey stands out, where I took on the role of designated driver
Mike58
in
Prostate Cancer Network
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Update after GP call
Had my call with the GP that I mentioned in my last posts. That was a bit of a disaster, although not as bad as it could have been. She did not read my notes or blood test results before the call. She asked me about symptoms, but was only concerned about weight gain and dry skin. I had already gone
Had my call with the GP that I mentioned in my last posts. That was a bit of a disaster, although not as bad as it could have been. She did not read my notes or blood test results before the call. She asked me about symptoms, but was only concerned about weight gain and dry skin. I had already gone
Heappestre
in
Thyroid UK
5 months ago
Guess what? Your body has changed and will never be the same.
I recently read a post from a guy that stated he had muscle and stamina loss. The post and responses then went on in a very hand wringing way to ask and discuss things like, “should I eat whey”, “what about protein and in what form”, “I never eat or drink dairy products”. It then went on to lament all
I recently read a post from a guy that stated he had muscle and stamina loss. The post and responses then went on in a very hand wringing way to ask and discuss things like, “should I eat whey”, “what about protein and in what form”, “I never eat or drink dairy products”. It then went on to lament all
OldGuysRule
in
Advanced Prostate Cancer
5 months ago
Gym Circuits - good idea?
I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do AquaFit. I have recently also tried to include pilates or yoga for stretching as well. However these classes have been cancelled and there is now a gym circuits class which I have done twice. It has caused me so much pain
I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do AquaFit. I have recently also tried to include pilates or yoga for stretching as well. However these classes have been cancelled and there is now a gym circuits class which I have done twice. It has caused me so much pain
Ninapod
in
Fibromyalgia Action UK
1 year ago
Long complicated paper on gut microbiome and PCa, human and mouse studies.
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
Graham49
in
Advanced Prostate Cancer
5 months ago
Parkinson's Nurse update
Hi all, thank you for all your previous posts, they were most helpful. Since then we have had a few medical professionals visit. The Parkinsons Nurse is coming to see my father-in-law tomorrow. Is there any questions we need to be asking? The OT and Physio visited yesterday and recommended a new commode
Hi all, thank you for all your previous posts, they were most helpful. Since then we have had a few medical professionals visit. The Parkinsons Nurse is coming to see my father-in-law tomorrow. Is there any questions we need to be asking? The OT and Physio visited yesterday and recommended a new commode
Loveispatient23
in
PSP Association
10 months ago
Surgery or radiation, looking for some advices
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Healing1826
in
Advanced Prostate Cancer
5 months ago
Estrogen for Bone Health in PCa patient.
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
binati
in
Advanced Prostate Cancer
4 months ago
zoladex and bloating
hi will try to keep this brief, I’m on zoladex injections and taking hrt, I’m on my 5th one now, side effects in beginning were really bad aching like having the flu, extreme tiredness where I have to take naps now! Its effecting my day to day life, last month I’ve been really bloated to the point I
hi will try to keep this brief, I’m on zoladex injections and taking hrt, I’m on my 5th one now, side effects in beginning were really bad aching like having the flu, extreme tiredness where I have to take naps now! Its effecting my day to day life, last month I’ve been really bloated to the point I
Welch16
in
Endometriosis UK
5 months ago
Tibilone experiences
Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery which will likely involve having a stoma. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing. Unfortunately there was been little improvement to my Endometriosis even
Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery which will likely involve having a stoma. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing. Unfortunately there was been little improvement to my Endometriosis even
Lily1986
in
Endometriosis UK
5 months ago
Brachytherapy boost HDR vs LDR +/- ADT
A bit of my background: 50 years old, Gleason score of 4+3, a PSA of 11, decipher is low, and possible extracapsular extension. 1) I know what LDR and HDR do, but what are the differences in terms of their long-term side effects? 2) Should I include ADT for a better outcome and what percentage improvement
A bit of my background: 50 years old, Gleason score of 4+3, a PSA of 11, decipher is low, and possible extracapsular extension. 1) I know what LDR and HDR do, but what are the differences in terms of their long-term side effects? 2) Should I include ADT for a better outcome and what percentage improvement
Infamous9597
in
Advanced Prostate Cancer
4 months ago
Newbie on PCa, coping on PCa
Hi, bump into this forum and in general trying to reach out to learn on any restriction on sugar, dairy . eggs and generally what sort of food should be taking. putting on weight - with ADT and how best to manage this...feeling so tired on ADT, even while typing this. must appreciated.
Hi, bump into this forum and in general trying to reach out to learn on any restriction on sugar, dairy . eggs and generally what sort of food should be taking. putting on weight - with ADT and how best to manage this...feeling so tired on ADT, even while typing this. must appreciated.
ahmadyusriyahaya
in
Advanced Prostate Cancer
5 months ago
Thyroid or menopause - which to sort first?
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
Heappestre
in
Thyroid UK
5 months ago
PC drug with least side effects
After 2 years on ADT I must go to a stronger medicine. I am castrate resistant with one small met by the pelvis. Doc suggests Xthandi but I would appreciate any suggestions on anything easier. The SE scare the hell out of me
After 2 years on ADT I must go to a stronger medicine. I am castrate resistant with one small met by the pelvis. Doc suggests Xthandi but I would appreciate any suggestions on anything easier. The SE scare the hell out of me
Stevegr
in
Advanced Prostate Cancer
5 months ago
Exercise on ADT? You’ll want to hear this.
skip to 2:16:00 https://youtu.be/AVOKWvYJM-c?si=BdUZ0Rc5yULvTfgX
skip to 2:16:00 https://youtu.be/AVOKWvYJM-c?si=BdUZ0Rc5yULvTfgX
No_stone_unturned
in
Advanced Prostate Cancer
5 months ago
Almost 3 years on ADT + Erleada
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
mynacho
in
Advanced Prostate Cancer
5 months ago
Brachyboost and PSA progression free survival question
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
EvFC
in
Advanced Prostate Cancer
5 months ago
ADT and bone loss lost opportunity !?
there is /was so much to think about when I got the Gleason 9 diagnosis after 18 months of being told don’t worry it not high risk and so had failed HIFU. Stupid of me ! I got, with great difficulty a DEXA scan one month after starting LHRH agonist goserelin. No one told me I needed it, and given
there is /was so much to think about when I got the Gleason 9 diagnosis after 18 months of being told don’t worry it not high risk and so had failed HIFU. Stupid of me ! I got, with great difficulty a DEXA scan one month after starting LHRH agonist goserelin. No one told me I needed it, and given
SimMartin
in
Advanced Prostate Cancer
5 months ago
1
...
49
50
51
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4621 results
Thyroid UK
2476 results
Endometriosis UK
1916 results
View top 10 communities
Sort by
Most Relevant
Newest