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Dealing with minor Speech issues.
🙂 Many of us have noticed changes in our Speech…it can be embarrassing and frustrating. If this becomes a real problem we’re generally referred to a Speech Therapist..and there is also the option of joining AtaxiaUKs link to Speech Therapy. Something else I’ve seen recommended..is learning another
🙂 Many of us have noticed changes in our Speech…it can be embarrassing and frustrating. If this becomes a real problem we’re generally referred to a Speech Therapist..and there is also the option of joining AtaxiaUKs link to Speech Therapy. Something else I’ve seen recommended..is learning another
wobblybee
in
Ataxia UK
18 days ago
imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
NormaB
in
PMRGCAuk
8 months ago
Tagrisso users
Hi everyone. I do hope today is a 'good' day for you. I was wondering if there is anyone on here that, like myself, is receiving targeted therapy with a drug called Tagrisso? Despite my oncologist helping with additional side effects advice and treatment, I'm finding it very hard going and would like
Hi everyone. I do hope today is a 'good' day for you. I was wondering if there is anyone on here that, like myself, is receiving targeted therapy with a drug called Tagrisso? Despite my oncologist helping with additional side effects advice and treatment, I'm finding it very hard going and would like
Mrsmilo
in
The Roy Castle Lung Cancer Foundation
18 days ago
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Adjusting Timing of T3 Before Testing
Many of us adjust the timing of what we take for testing. My question concerns combination therapy with T3 taken in two doses. Let's say the day before testing is Monday and assume the blood draw takes place Tuesday at 8 am. Easy enough to take Levo at 8 am Monday. Suppose one usually takes T3 in
Many of us adjust the timing of what we take for testing. My question concerns combination therapy with T3 taken in two doses. Let's say the day before testing is Monday and assume the blood draw takes place Tuesday at 8 am. Easy enough to take Levo at 8 am Monday. Suppose one usually takes T3 in
wellness1
in
Thyroid UK
18 days ago
Natural remedies to assist with sickness
Hello everyone. I just wanted to ask how many people have used ginger tea, ginger travel sickness tablets and acupressure wrist bands for their sickness? I'm having targeted therapy for lung cancer and have found it virtually impossible to go anywhere in the car without horrible nausea and vomiting.
Hello everyone. I just wanted to ask how many people have used ginger tea, ginger travel sickness tablets and acupressure wrist bands for their sickness? I'm having targeted therapy for lung cancer and have found it virtually impossible to go anywhere in the car without horrible nausea and vomiting.
Mrsmilo
in
The Roy Castle Lung Cancer Foundation
21 days ago
Still struggling...how can it be getting worse?
It has only been a month since I'd been diagnosed with CLL. I shouldn't be feeling this crappy this fast? My GP admitted that I've most likely had this cancer for much longer than we known since this year (the testing and eventual hospitalization in late April to early May) was the first time I'd gone
It has only been a month since I'd been diagnosed with CLL. I shouldn't be feeling this crappy this fast? My GP admitted that I've most likely had this cancer for much longer than we known since this year (the testing and eventual hospitalization in late April to early May) was the first time I'd gone
MamaToFive1971
in
CLL Support
23 days ago
PROTON THERAPY
Who is eligible to use proton therapy as a treatment for prostate cancer. In a recent meeting with my oncologist and specialists I was told ONLY prostate cancer patients can do it and not those who have metastasize of the bone or other areas.
Who is eligible to use proton therapy as a treatment for prostate cancer. In a recent meeting with my oncologist and specialists I was told ONLY prostate cancer patients can do it and not those who have metastasize of the bone or other areas.
PARKER3237
in
Advanced Prostate Cancer
24 days ago
Starting treatments
Had a setback due to being hospitalized in the ICU for a month and a half. Went to the Oncologist last week and about to start some aggressive treatment as I have a very aggressive prostate cancer. The oncologist on duty at the hospital had an MRI done to show where the metastasized bone cancer is located
Had a setback due to being hospitalized in the ICU for a month and a half. Went to the Oncologist last week and about to start some aggressive treatment as I have a very aggressive prostate cancer. The oncologist on duty at the hospital had an MRI done to show where the metastasized bone cancer is located
PARKER3237
in
Advanced Prostate Cancer
28 days ago
Do you have the symptoms of Dry Eye Syndrome? Is your doctor helping you manage it?
This set of links popped up today and I thought it was worth posting about. Many of us DO have dry eyes and it is clear from these articles that it isn't taken seriously enough by either doctors or patients. Treatment is crucial to prevent longterm damage to the cornea and improve quality of life - and
This set of links popped up today and I thought it was worth posting about. Many of us DO have dry eyes and it is clear from these articles that it isn't taken seriously enough by either doctors or patients. Treatment is crucial to prevent longterm damage to the cornea and improve quality of life - and
PMRpro
Ambassador
in
PMRGCAuk
1 month ago
Planet Fitness Whole Body Enhancement machine
I've recently read about Total Body Enhancement at Planet Fitness. It's a 12 minute routine with red light therapy and a vibration plate. Supposed to help with osteoporosis. Wondering if anyone has used this machine?
I've recently read about Total Body Enhancement at Planet Fitness. It's a 12 minute routine with red light therapy and a vibration plate. Supposed to help with osteoporosis. Wondering if anyone has used this machine?
wasenior
in
Osteoporosis Support
1 month ago
Don't wake the monsters - risks of therapy and meditation
At a recent group therapy session, the experienced therapist responded to me as if I was completely unhinged by suggesting that doing therapy had risks. Most therapists, like most people, need to sell their services to support themselves. I have strongly mixed feelings about Eminem and Rhianna, but I
At a recent group therapy session, the experienced therapist responded to me as if I was completely unhinged by suggesting that doing therapy had risks. Most therapists, like most people, need to sell their services to support themselves. I have strongly mixed feelings about Eminem and Rhianna, but I
Sunrisetabby
in
Anxiety and Depression Support
1 month ago
a new platform for ADC development….no sorry, it’s DAC this time! not PCa related but hopefully soon
”Orum has granted Vertex rights to conduct research using its TPD² approach to developing degrader-antibody conjugates (DACs), next-generation versions of antibody-drug conjugates (ADCs) which use antibodies to precisely deliver small molecule targeted protein degrader payloads to cancer cells and other
”Orum has granted Vertex rights to conduct research using its TPD² approach to developing degrader-antibody conjugates (DACs), next-generation versions of antibody-drug conjugates (ADCs) which use antibodies to precisely deliver small molecule targeted protein degrader payloads to cancer cells and other
Maxone73
in
Advanced Prostate Cancer
1 month ago
What is gene therapy and can it help people with Parkinson’s?
https://www.apdaparkinson.org/article/gene-therapy-for-parkinsons-disease-3/
https://www.apdaparkinson.org/article/gene-therapy-for-parkinsons-disease-3/
Farooqji
in
Cure Parkinson's
1 month ago
Biological Therapy - too soon?
Hey All I hope everyone is well. This is my first time posting and I’m really hopeful someone will be able to advise me. I was diagnosed with lupus in Feb after just over 2 years of struggling with symptoms. Initially I was put on prednisolone and hydroxychloroquine until my bloods came back. My bloods
Hey All I hope everyone is well. This is my first time posting and I’m really hopeful someone will be able to advise me. I was diagnosed with lupus in Feb after just over 2 years of struggling with symptoms. Initially I was put on prednisolone and hydroxychloroquine until my bloods came back. My bloods
EeBeee
in
LUPUS UK
1 month ago
Colomycin nebulising
I’m wondering if there is anyone on the above drug. I have been on it now for 10 days and will stay on it for 12 weeks. I have been pretty unwell since March with re occurring psuedamonas. I am on oxygen therapy, I also have bronciectasis and past T.B. also chicken pox pneumonia, I am on steroid therapy
I’m wondering if there is anyone on the above drug. I have been on it now for 10 days and will stay on it for 12 weeks. I have been pretty unwell since March with re occurring psuedamonas. I am on oxygen therapy, I also have bronciectasis and past T.B. also chicken pox pneumonia, I am on steroid therapy
breslin
in
Lung Conditions Community Forum
1 month ago
Klotho gene therapy
https://parkinsonsnewstoday.com/news/anew-medical-advance-development-klotho-gene-therapy/?utm_source=PAR&utm_campaign=c732d6332f-Email_ENL_US_PAR&utm_medium=email&utm_term=0_62dd4fb5e3-c732d6332f-74556474 I have been trying to find out what is used to prepare Klotho gene therapy a therapy that supposedly
https://parkinsonsnewstoday.com/news/anew-medical-advance-development-klotho-gene-therapy/?utm_source=PAR&utm_campaign=c732d6332f-Email_ENL_US_PAR&utm_medium=email&utm_term=0_62dd4fb5e3-c732d6332f-74556474 I have been trying to find out what is used to prepare Klotho gene therapy a therapy that supposedly
Boscoejean
in
Cure Parkinson's
1 month ago
Not dying was a good plan, but how to navigate the future is the next challenge
I appreciate that I have achieved remission with my cancer and I was thinking about the fact that my liver, even though I have cirrhosis, managed all of the chemo drugs I've had pretty successfully. In our patient groups we often see people who die quickly when a second problem appears. As a vote
I appreciate that I have achieved remission with my cancer and I was thinking about the fact that my liver, even though I have cirrhosis, managed all of the chemo drugs I've had pretty successfully. In our patient groups we often see people who die quickly when a second problem appears. As a vote
nash2
Partner
in
Living with Fatty Liver and NASH
1 month ago
Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
2 months ago
Anybody outside the range part 2.
Hello again, the original post from yesterday and some more information and questions underneath. Thanks again for all the help. Part 1 Good afternoon everybody hope this makes sense Is there anybody out there that needs to run outside the ranges in order to feel good? At
Hello again, the original post from yesterday and some more information and questions underneath. Thanks again for all the help. Part 1 Good afternoon everybody hope this makes sense Is there anybody out there that needs to run outside the ranges in order to feel good? At
Jimjamio
in
Thyroid UK
2 months ago
ICU Stay Neuro Challenges
Seeing if anyone has any insight. On May 16th my mom (62 years old) went to her cardiologist with chest pain. She did have afib for the last three year but she had that under control. When she went to her cardiologist on the 16th he sent her to the ER just because he was concerned with chest pains
Seeing if anyone has any insight. On May 16th my mom (62 years old) went to her cardiologist with chest pain. She did have afib for the last three year but she had that under control. When she went to her cardiologist on the 16th he sent her to the ER just because he was concerned with chest pains
Doglover276
in
ICUsteps
2 months ago
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