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imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
NormaB
in
PMRGCAuk
7 months ago
Total knee replacement
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasn’t great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR it’s possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasn’t great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR it’s possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
Toffeeboyblue
in
PMRGCAuk
8 months ago
Easy squeeze eye drops
Happy and healthy new year to you lovely people. I have recently had a hand op and my other hand is giving up the ghost. I have Sjögren’s syndrome as well as ra and have to put eye drops in regularly. I was wondering if any of you use eye drops that are easy to squeeze or if any of you use a bottle applicator
Happy and healthy new year to you lovely people. I have recently had a hand op and my other hand is giving up the ghost. I have Sjögren’s syndrome as well as ra and have to put eye drops in regularly. I was wondering if any of you use eye drops that are easy to squeeze or if any of you use a bottle applicator
debjw
in
NRAS
8 months ago
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ct abdominal scan with contrast
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
Pycat123
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
8 months ago
OxyContin and low dose suboxone.
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
shaughnna
in
National Migraine Centre
9 months ago
Gentamicin Nebulised
HiI have bronchiectasis and pseudomonas colonisation. I have been on Colomycin for 10 years but have now seeked a second opinion for my condition (maybe a bit late but I took Littlepom's advice). They are looking to change me to Gentamicin instead. At present I am on IV antibiotics for 14 days. Fifth
HiI have bronchiectasis and pseudomonas colonisation. I have been on Colomycin for 10 years but have now seeked a second opinion for my condition (maybe a bit late but I took Littlepom's advice). They are looking to change me to Gentamicin instead. At present I am on IV antibiotics for 14 days. Fifth
LMEI
in
Lung Conditions Community Forum
9 months ago
Ah...I am breathing easier
This is for everyone (though it is old news for most) but I haven't ordered Pan Pharma hydroxy for a year...in fact I believe I got the end of the lot and when it finally came it had a very short expiration. It also took 6 nail-biting weeks to get here. I was worried but have noticed the trend of it
This is for everyone (though it is old news for most) but I haven't ordered Pan Pharma hydroxy for a year...in fact I believe I got the end of the lot and when it finally came it had a very short expiration. It also took 6 nail-biting weeks to get here. I was worried but have noticed the trend of it
EiCa
in
Pernicious Anaemia Society
10 months ago
Has anyone been changed to Luforbec as a preventer inhaler
I have just been swapped from Clenil Modulite to Luforbec, I 'm a bit worried as I have moderate Aortic stenosis, Instructions say to take extra care with this medicine .
I have just been swapped from Clenil Modulite to Luforbec, I 'm a bit worried as I have moderate Aortic stenosis, Instructions say to take extra care with this medicine .
1browneyes1
in
Lung Conditions Community Forum
10 months ago
Ringing in Ear
Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram
Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram
Dottie44
in
Thyroid UK
22 days ago
Spinal injection
Hi everyone how are we all today ? Well I've now asked Painmanagement for a spinal injection physio just not helping and I cant cope with anymore piriformis and sciatica so speak to them in 2 weeks. I had one in 2014 but it wasnt very successful but that was then this is now. What is your thought on
Hi everyone how are we all today ? Well I've now asked Painmanagement for a spinal injection physio just not helping and I cant cope with anymore piriformis and sciatica so speak to them in 2 weeks. I had one in 2014 but it wasnt very successful but that was then this is now. What is your thought on
Betsy50
in
Pain Concern
10 months ago
Mortar and Pestle time - Ginkgo dose regime
Taking Ginkgo daily has proved to be a disappointment. No benefit achieved. I'm going back to my tried and tested dosing with Ginkgo. How: crushed tablet, for absorbing via the mouth How much: Day 1 - 3 x 30mg Ginkgo spread over (with crushed tablets that is 62mg in weight. 30mg Ginkgo and 32mg binding
Taking Ginkgo daily has proved to be a disappointment. No benefit achieved. I'm going back to my tried and tested dosing with Ginkgo. How: crushed tablet, for absorbing via the mouth How much: Day 1 - 3 x 30mg Ginkgo spread over (with crushed tablets that is 62mg in weight. 30mg Ginkgo and 32mg binding
Ray200
in
Tinnitus UK
25 days ago
neck tightness
hi all, I don’t know if this is an asthma symptom but the front of my neck feels really tight and like stretching pain. It just feels so tight it’s making me panic
hi all, I don’t know if this is an asthma symptom but the front of my neck feels really tight and like stretching pain. It just feels so tight it’s making me panic
Hiddenhidden224
in
Asthma Community Forum
10 months ago
Mortar and Pestle time - Ginkgo update
I was startled to wake up the other day and my mild tinnitus wasn't there. In the eleven months since I've had it, that hasn't happened before. I was left 'feeling alone' if you can imagine that. A brief recap. I've had limited success with Ginkgo and when the lower dose tablet became unavailable I
I was startled to wake up the other day and my mild tinnitus wasn't there. In the eleven months since I've had it, that hasn't happened before. I was left 'feeling alone' if you can imagine that. A brief recap. I've had limited success with Ginkgo and when the lower dose tablet became unavailable I
Ray200
in
Tinnitus UK
1 month ago
Colomycin
Hello everyone. Is there anyone else on here that is taking Colomycin via a nebuliser? I have had it often but not for the last 6 months. I restarted it on Thursday 19th October and since have been suffering badly with asthma, congestion and crackling, particularly at night when I lay down. I've
Hello everyone. Is there anyone else on here that is taking Colomycin via a nebuliser? I have had it often but not for the last 6 months. I restarted it on Thursday 19th October and since have been suffering badly with asthma, congestion and crackling, particularly at night when I lay down. I've
PAP48
in
Lung Conditions Community Forum
10 months ago
Mortar and Pestle time - An observation
In my kitchen yesterday. I measured out the crushed tablet. 62mg, which comprises 30mg Ginkgo and 32mg binding agent. I had been tipping the tiny bits into a glass of water and swallowing. 3 of this on dose day. Instead, I chewed those tiny bits. I am now accustomed to a slight rise in tinnitus intensity
In my kitchen yesterday. I measured out the crushed tablet. 62mg, which comprises 30mg Ginkgo and 32mg binding agent. I had been tipping the tiny bits into a glass of water and swallowing. 3 of this on dose day. Instead, I chewed those tiny bits. I am now accustomed to a slight rise in tinnitus intensity
Ray200
in
Tinnitus UK
2 months ago
Ginkgo - possible adverse side effect: Nervous anxiety
It's me again. On about Ginkgo as usual... Having taken Ginkgo for over 6 months, and having planned relief from Tinnitus by doing so, I may have experienced a side effect. Recent bouts of nervous anxiety. This is not the kind of anxiety you might experience in a dentist waiting room. No, this is
It's me again. On about Ginkgo as usual... Having taken Ginkgo for over 6 months, and having planned relief from Tinnitus by doing so, I may have experienced a side effect. Recent bouts of nervous anxiety. This is not the kind of anxiety you might experience in a dentist waiting room. No, this is
Ray200
in
Tinnitus UK
3 months ago
Aspirin Question
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on Pegasys? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on Pegasys? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Golfersmom
in
MPN Voice
10 months ago
Gym Circuits - good idea?
I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do AquaFit. I have recently also tried to include pilates or yoga for stretching as well. However these classes have been cancelled and there is now a gym circuits class which I have done twice. It has caused me so much pain
I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do AquaFit. I have recently also tried to include pilates or yoga for stretching as well. However these classes have been cancelled and there is now a gym circuits class which I have done twice. It has caused me so much pain
Ninapod
in
Fibromyalgia Action UK
11 months ago
diffuse idiopathic pulmonary neuroendocrine cell hyperplasia. DIPNECH. I was diagnosed with this in Aug 2023 by Royal Brompton.
nobody outside of a small group of doctors at Rbht appear to know about this. It has no treatment. mic been asthmatic since 10months of age so I’m familiar with lung problems. But this is working in the dark.
nobody outside of a small group of doctors at Rbht appear to know about this. It has no treatment. mic been asthmatic since 10months of age so I’m familiar with lung problems. But this is working in the dark.
Bellaowl
in
Lung Conditions Community Forum
11 months ago
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