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Spinal injection
Hi everyone how are we all today ? Well I've now asked Painmanagement for a spinal injection physio just not helping and I cant cope with anymore piriformis and sciatica so speak to them in 2 weeks. I had one in 2014 but it wasnt very successful but that was then this is now. What is your thought on
Hi everyone how are we all today ? Well I've now asked Painmanagement for a spinal injection physio just not helping and I cant cope with anymore piriformis and sciatica so speak to them in 2 weeks. I had one in 2014 but it wasnt very successful but that was then this is now. What is your thought on
Betsy50
in
Pain Concern
6 months ago
neck tightness
hi all, I don’t know if this is an asthma symptom but the front of my neck feels really tight and like stretching pain. It just feels so tight it’s making me panic
hi all, I don’t know if this is an asthma symptom but the front of my neck feels really tight and like stretching pain. It just feels so tight it’s making me panic
Hiddenhidden224
in
Asthma Community Forum
6 months ago
Colomycin
Hello everyone. Is there anyone else on here that is taking Colomycin via a nebuliser? I have had it often but not for the last 6 months. I restarted it on Thursday 19th October and since have been suffering badly with asthma, congestion and crackling, particularly at night when I lay down. I've
Hello everyone. Is there anyone else on here that is taking Colomycin via a nebuliser? I have had it often but not for the last 6 months. I restarted it on Thursday 19th October and since have been suffering badly with asthma, congestion and crackling, particularly at night when I lay down. I've
PAP48
in
Lung Conditions Community Forum
6 months ago
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Aspirin Question
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on Pegasys? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Does anyone happen to know if it’s ok to take Excedrin, for a bad headache, when you have Essential Thrombocythemia & on Pegasys? Asking because I know there’s a fairly high dosage of aspirin in Excedrin. Thank you!
Golfersmom
in
MPN Voice
7 months ago
Gym Circuits - good idea?
I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do AquaFit. I have recently also tried to include pilates or yoga for stretching as well. However these classes have been cancelled and there is now a gym circuits class which I have done twice. It has caused me so much pain
I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do AquaFit. I have recently also tried to include pilates or yoga for stretching as well. However these classes have been cancelled and there is now a gym circuits class which I have done twice. It has caused me so much pain
Ninapod
in
Fibromyalgia Action UK
7 months ago
diffuse idiopathic pulmonary neuroendocrine cell hyperplasia. DIPNECH. I was diagnosed with this in Aug 2023 by Royal Brompton.
nobody outside of a small group of doctors at Rbht appear to know about this. It has no treatment. mic been asthmatic since 10months of age so I’m familiar with lung problems. But this is working in the dark.
nobody outside of a small group of doctors at Rbht appear to know about this. It has no treatment. mic been asthmatic since 10months of age so I’m familiar with lung problems. But this is working in the dark.
Bellaowl
in
Lung Conditions Community Forum
7 months ago
Do I declare Esophageal varices (no longer found) on travel insurance?
Hi All, I've booked a holiday for April next year and I'm looking for a bit of advice regarding my travel insurance. Due to having a blood clot in my portal vein because of my MPN I was diagnosed with having Esophageal varices (bloated blood vessels). However, I recently had an endoscopic examination
Hi All, I've booked a holiday for April next year and I'm looking for a bit of advice regarding my travel insurance. Due to having a blood clot in my portal vein because of my MPN I was diagnosed with having Esophageal varices (bloated blood vessels). However, I recently had an endoscopic examination
MarkD6701
in
MPN Voice
8 months ago
threadworm fibromyalgia link?
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Emmybird2
in
Fibromyalgia Action UK
8 months ago
Questionn
Can a Patent Ductus Aerteriosus be diagnosed with a posterlateral thoracotomy then be monitor to make sure it closes?
Can a Patent Ductus Aerteriosus be diagnosed with a posterlateral thoracotomy then be monitor to make sure it closes?
LonerIQ
in
Lung Conditions Community Forum
9 months ago
Cerelle desogestrel
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
Surfingblue
in
Endometriosis UK
9 months ago
tramadol
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
I was on tramadol for at least 10 years----100 mg. then my doc took me off because a neurologist put me on Clonazepam for REM/SBD (rapid eye movement sleep behavior disorder.) But I was also getting cervical and lumbar rhizotomies...and still do every 12-14 months or so. I am now working with the VA
Shadowperson
in
Pain Concern
9 months ago
Low B6... taking a complex with pyridoxine which obviously doesn't suit
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
TiggerMe
in
Thyroid UK
9 months ago
LDH high
Looking back, my specialist tested my LDH at diagnosis and it was in fact elevated. He told me that it’s very common for MPN’s to cause elevated LDH levels and said with treatment we can correct them.. is that true? I was worried for a second about any organ or tissue damage, but he reassured and said
Looking back, my specialist tested my LDH at diagnosis and it was in fact elevated. He told me that it’s very common for MPN’s to cause elevated LDH levels and said with treatment we can correct them.. is that true? I was worried for a second about any organ or tissue damage, but he reassured and said
JAKboy
in
MPN Voice
9 months ago
Best natural anti anxiety remedy
Hi, I was wondering what natural treatments people are taking to help with the anxiety that a lot of us with T have to deal with every day ? Does 5-htp work ? How about St Johns wort and L Theanine ? Which seems to work best for you ?
Hi, I was wondering what natural treatments people are taking to help with the anxiety that a lot of us with T have to deal with every day ? Does 5-htp work ? How about St Johns wort and L Theanine ? Which seems to work best for you ?
woodman72
in
Tinnitus UK
9 months ago
The "other" symptoms of PMR?
I was diagnosed with PMR in July 2022 after 2 months of sudden onset of symptoms. I was very fit & healthy at time of first symptoms. I am using DSNS weaning regime & down to 7mg & had 2 flares during this time. Currently stuck on 7mg for a month due to slight hip discomfort. My question is less
I was diagnosed with PMR in July 2022 after 2 months of sudden onset of symptoms. I was very fit & healthy at time of first symptoms. I am using DSNS weaning regime & down to 7mg & had 2 flares during this time. Currently stuck on 7mg for a month due to slight hip discomfort. My question is less
Flinders61
in
PMRGCAuk
9 months ago
Inflammatory Pain and T
I have had T for over two years now following an attack of vertigo with varying diagnoses of labyrinthitis, bppv or vestibular neuritis, none of which have ever been confirmed.. and after all this time I feel stuck with no sign of reaching habituation.. I had months of complaining of a dullness in my
I have had T for over two years now following an attack of vertigo with varying diagnoses of labyrinthitis, bppv or vestibular neuritis, none of which have ever been confirmed.. and after all this time I feel stuck with no sign of reaching habituation.. I had months of complaining of a dullness in my
Shozza1
in
Tinnitus UK
9 months ago
Spontaneous remission of some blood counts after Dx
This just is a question of curiosity I've discussed briefly before. If any members have seen something like this it would be interesting to know. I've asked two MPN Drs about it and all I hear is "it's complicated" and/or "things fluctuate". -- These plots show some counts and when I started aspirin
This just is a question of curiosity I've discussed briefly before. If any members have seen something like this it would be interesting to know. I've asked two MPN Drs about it and all I hear is "it's complicated" and/or "things fluctuate". -- These plots show some counts and when I started aspirin
EPguy
in
MPN Voice
10 months ago
Side effects of nefopam sweats
Recently been put on nefopam due to night pains because of hip and back pain. Does anyone else suffer sweats from nefopam? I'm trying to rule them out as on other meds too.
Recently been put on nefopam due to night pains because of hip and back pain. Does anyone else suffer sweats from nefopam? I'm trying to rule them out as on other meds too.
Jackieginger44
in
Pain Concern
1 month ago
preservatives in B12
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
smg1950
in
Pernicious Anaemia Society
10 months ago
Reactive Tinnitus - anyone else experience this
My T is very reactive and I have hyperacusis I have to wear ear plugs and ear defenders out n about I walked into a shop a few days ago ( for a few mins) without ear protection and the music has made my T go ballistic and changed tone to a higher pitch and more solid tone as well as being louder and
My T is very reactive and I have hyperacusis I have to wear ear plugs and ear defenders out n about I walked into a shop a few days ago ( for a few mins) without ear protection and the music has made my T go ballistic and changed tone to a higher pitch and more solid tone as well as being louder and
surviveT
in
Tinnitus UK
11 months ago
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