Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE.
need my life back...oncologist says most likely t will not get much higher than the 79 on labs two weeks ago suggest TRT asap..
urologist says don't start trt "it may trigger reoccurrence" what the hell is that ..old science ..hasn't that been discredited by mega analysts and trials and most oncologists?
they say if your feeling miserable ,take the gel right away don't wait for your .2 psa to reach nadir in the next 6mos -1 year just for the record books..QOL should begin now...start trt..
Summary : miserable from Low t symptoms and worried the longer I wait hoping for my own t to come back the more at risk I become for cvd, osteoparosis , diabetes , etc. (low t symptoms),
i know my own t is better than trt but only had 4 months on orgovyx and i am seeing no relief of symptoms 6 months off and might never come back..
still worried that the saturation theory re: trt and psa is still not discredited and many docs still think TESTOSTERONE still can trigger a RECURRENCE??
All responses welcome..
68, psa .2, psma pet -no mets, ece, 20 imrt, 4 mos orgovyx finished 5/28/23 ,
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JWS13
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Have you had your Estradiol levels checked? If low, E2 add-back might help with some of those symptoms until your T comes back. Albeit, wont help Little Johnny. Im thinking thats a major concern of yours?
I would go ahead with the TRT. As I said, urologist is of no use anymore-for anything related to your disease anyway. You did say the oncologist is on board correct?
However, it's best not to depend on T recovery (or replacement) and cycling alone. You need weights or some form of resistance training. If you add that now, your fatigue will be lessened greatly because you won't be losing muscle mass in the rest of your body. The spinning isn't doing anything for that.
Given that you were on Orgovyx, it's clear that your testicles are not recovering and that TRT is in order.
The modern thinking is that TRT is no more dangerous than letting one's T recover naturally; it's the same chemical. I would simply find another urologist who understands this.
My T recovered (from 12 months of Eligard) in about 5 months.
I was miserable beyond words; I would have done TRT in a heartbeat.
horse..if you "would have done trt in a heartbeat" because you were miserable...why did you wait 5 months after finishing Eligard for your own natural T to come back? why didn't you start TRT as soon as u finished eligard? were you afraid of reoccurrence or?
For men with prostate cancer who have had their prostates surgically removed, those that took testosterone had less chance of experiencing biochemical recurrence, and for those who did experience biochemical recurrence it took longer on average than those men not taking testosterone. See:
Also, there is evidence to support that the most dangerous levels of testosterone to have with regards to prostate cancer is above castrate level and below 350 ng/dL. See:
A little confused... if your PSA is 8, why are you not continuing ADT? I would think that you are CRCP or BCR based on that PSA. Your complete PSA history would give us more info to help you make a good decision.
I do think that you should be consulting with a Medical Oncologist if you are not already.
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Update after 6 months on SARMS Osterine and Carderine along with ADT
To ARi or not to ARi, that is the question
Testosterone Recovery During Intermittent ADT
seeking feedback on my case
