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What a long strange road it's been.
Nov 2007 I had DaVinci surgery Gleason 7. I got the surgeon's notes and he said margins were clear, took s bunch of lymph glands, all clear. Held my dick in his hand and said it would come back. It did, but never quite lost the "happy bladder" and I shot pee about 50% of the time. PSA never went
Nov 2007 I had DaVinci surgery Gleason 7. I got the surgeon's notes and he said margins were clear, took s bunch of lymph glands, all clear. Held my dick in his hand and said it would come back. It did, but never quite lost the "happy bladder" and I shot pee about 50% of the time. PSA never went
bcskibdy
in
Prostate Cancer And Gay Men
9 months ago
Side effects experienced once you add Zytiga to Orgovyx
My husband, age 73, is diagnosed with very high risk prostate cancer, Gleason 9, PSA 46.6 and being treated ay Mayo, Phoenix. He is almost done with 28 Proton Radiation treatments, was on Casodex a few weeks then started Orgovyx.( at least two years recommended) He is considering adding Zytiga. He
My husband, age 73, is diagnosed with very high risk prostate cancer, Gleason 9, PSA 46.6 and being treated ay Mayo, Phoenix. He is almost done with 28 Proton Radiation treatments, was on Casodex a few weeks then started Orgovyx.( at least two years recommended) He is considering adding Zytiga. He
CancerConcierge
in
Advanced Prostate Cancer
9 months ago
Update: PSA after IMRT
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
Smarks42
in
Prostate Cancer Network
9 months ago
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Medical Oncologists recommendations at Mayo Phoenix
My husband is being treated for high risk prostate cancer at Mayo, Phoenix.. GL 9, PSA 46.6 ( almost finished with Proton radiation treatments, on Orgovyx and will be starting on Zytiga. He has had one consult with a Mayo MO , but it wasn’t a good fit. Would be grateful if anyone who was treated at
My husband is being treated for high risk prostate cancer at Mayo, Phoenix.. GL 9, PSA 46.6 ( almost finished with Proton radiation treatments, on Orgovyx and will be starting on Zytiga. He has had one consult with a Mayo MO , but it wasn’t a good fit. Would be grateful if anyone who was treated at
CancerConcierge
in
Advanced Prostate Cancer
9 months ago
PSA At Very Low Levels But Starting to Rise
My PSA started to rise from undetectable up to about .36 in July 2021 after 9 years of treatment. My MO reviewed a PSMA and decided to have my largest tumor radiated. My PSA went below .05 once again shortly thereafter. My most recent PSA labs were : .05, .06, .06, and .09 last week. I am conferring
My PSA started to rise from undetectable up to about .36 in July 2021 after 9 years of treatment. My MO reviewed a PSMA and decided to have my largest tumor radiated. My PSA went below .05 once again shortly thereafter. My most recent PSA labs were : .05, .06, .06, and .09 last week. I am conferring
jfoesq
in
Advanced Prostate Cancer
9 months ago
Radiation Question
PSA test sent me into this journey about 8 mos ago, Gleason 6-7-8s, good PSMA PET/CT did not show uptake outside of the prostate, 6 mos now on Abiraterone and Zytiga brought PSA to .31, now suggesting radiation, went to see RO and they want to start right away, 8 weeks x-ray type to include abdomen in
PSA test sent me into this journey about 8 mos ago, Gleason 6-7-8s, good PSMA PET/CT did not show uptake outside of the prostate, 6 mos now on Abiraterone and Zytiga brought PSA to .31, now suggesting radiation, went to see RO and they want to start right away, 8 weeks x-ray type to include abdomen in
jgsdone
in
Advanced Prostate Cancer
9 months ago
Post RP/SRT Pelvic Mass?
RRP 2/02, SRT 7/16, BCR 9/23 Latest PSA .17 I recently retired and have been spending more time sitting on my ass in front of the computer [like right now] than I should. Over the last couple of months I have begun to feel/sense that I am sitting on something, very similar to what I felt pre-RP. At
RRP 2/02, SRT 7/16, BCR 9/23 Latest PSA .17 I recently retired and have been spending more time sitting on my ass in front of the computer [like right now] than I should. Over the last couple of months I have begun to feel/sense that I am sitting on something, very similar to what I felt pre-RP. At
bldn10
in
Advanced Prostate Cancer
9 months ago
Elevated D-Dimmer
Dear all, I would like to ask a question about elevated D-Dimmer. My father is waiting for the Cabazitaxel treatment. Due to some difficulties in getting the therapy he is with no therapy since April. His last round of Docetaxel ( 8 in total). However, his d-dimmer is started to get elevated. He has
Dear all, I would like to ask a question about elevated D-Dimmer. My father is waiting for the Cabazitaxel treatment. Due to some difficulties in getting the therapy he is with no therapy since April. His last round of Docetaxel ( 8 in total). However, his d-dimmer is started to get elevated. He has
pozitronij
in
Advanced Prostate Cancer
9 months ago
Next steps after cabazitaxel
Hello again - I've completed six chemo treatments with cabazitaxel alone. PSA has fallen from 83 in early July at the start to 5.1 a couple of weeks ago (after five treatments). I live in Nicosia, Cyprus, and am being treated here but I'm also a Mayo patient of Drs. Kwon and Orme. They have identified
Hello again - I've completed six chemo treatments with cabazitaxel alone. PSA has fallen from 83 in early July at the start to 5.1 a couple of weeks ago (after five treatments). I live in Nicosia, Cyprus, and am being treated here but I'm also a Mayo patient of Drs. Kwon and Orme. They have identified
Arcticfox44
in
Advanced Prostate Cancer
9 months ago
Asking for advice
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
ventusbella
in
Advanced Prostate Cancer
9 months ago
My son’s Testosterone results:
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Cactus297
in
Advanced Prostate Cancer
9 months ago
Alternate prostate treatment
I saw a brief article in the current AARP magazine. Wondering if this is accurate: “In a recent study of 115 midlife and older men with low- to intermediate-risk prostate cancer who had their prostate gland completely treated via TULSA-Pro (ultrasound heat), 96 percent of participants saw their PSA
I saw a brief article in the current AARP magazine. Wondering if this is accurate: “In a recent study of 115 midlife and older men with low- to intermediate-risk prostate cancer who had their prostate gland completely treated via TULSA-Pro (ultrasound heat), 96 percent of participants saw their PSA
GregHay
in
Prostate Cancer Network
9 months ago
Estrodiol and PC
My husband has been rediagnosed with NMPC he is on ADT which is holding the Testosterone very low but psa shot upto 82. New MO is starting Enzalutimide plus continuing ADT. Not looking forward to the side effects, but will perservere until psa drops. We have been discussing using Estradiol to help
My husband has been rediagnosed with NMPC he is on ADT which is holding the Testosterone very low but psa shot upto 82. New MO is starting Enzalutimide plus continuing ADT. Not looking forward to the side effects, but will perservere until psa drops. We have been discussing using Estradiol to help
Knittingque
in
Advanced Prostate Cancer
9 months ago
Medical OR chemical castration
Hi All, Ok I am 79 and still in great physical condition. PR and ADT for 2 years. To date no unusual physical side effects other than zero sex drive. It looks as thought I will be on ADT until I die. PSA increasing monthly so I will try other chemicals. I want to remain in good shape until my number
Hi All, Ok I am 79 and still in great physical condition. PR and ADT for 2 years. To date no unusual physical side effects other than zero sex drive. It looks as thought I will be on ADT until I die. PSA increasing monthly so I will try other chemicals. I want to remain in good shape until my number
Stevegr
in
Advanced Prostate Cancer
9 months ago
PSA post RP - interpretation please
My husband just got this as part of his lab report almost 7 weeks post RP. Hasn't heard from doc yet. Can someone explain what F/T PSA >0.00 means? And 55% probability of prostate cancer?? Specimen ID: 1 Collection Start Date: 10/25/2023 3:43 P FREE PSA [FREEPSA] 0.00 ng/mL Free/Total P S A [F/
My husband just got this as part of his lab report almost 7 weeks post RP. Hasn't heard from doc yet. Can someone explain what F/T PSA >0.00 means? And 55% probability of prostate cancer?? Specimen ID: 1 Collection Start Date: 10/25/2023 3:43 P FREE PSA [FREEPSA] 0.00 ng/mL Free/Total P S A [F/
studioj
in
Prostate Cancer Network
9 months ago
Masofaniten +Enzalutamide This could be a game changer...Science is coming to our aid
This is a company that I was turned on to by Nalkrantz before he was removed from this board. He told me that he was in touch with a doctor that was involved with this drug. Reportedly the early testing on a single patient had been phenomenal. These are pretty amazing #s NEWS PROVIDED BY ESSA
This is a company that I was turned on to by Nalkrantz before he was removed from this board. He told me that he was in touch with a doctor that was involved with this drug. Reportedly the early testing on a single patient had been phenomenal. These are pretty amazing #s NEWS PROVIDED BY ESSA
Scout4answers
in
Advanced Prostate Cancer
9 months ago
side of hip to the knee ,have no feeling when touched
hi just wondering if anyone else has the same issue. I have no sensation to touch from the top of my left outer thigh down to my knee. I have an awful burning sensation at times in this area and it’s very painful to lean on that side. I have spoken about it to my GP and he says it’s bursitis but my
hi just wondering if anyone else has the same issue. I have no sensation to touch from the top of my left outer thigh down to my knee. I have an awful burning sensation at times in this area and it’s very painful to lean on that side. I have spoken about it to my GP and he says it’s bursitis but my
Shaza123
in
PMRGCAuk
1 year ago
PSA Follow up
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Jmr11820
in
Advanced Prostate Cancer
9 months ago
PSA raise
Hello once again. My father completed 6 courses of docetaxel chemotherapy (last one on 23/05/2023) and he is getting Zoladex injections every 3 months. Last PSA result was 0.89 (14/07/2023). But as he was getting better and the effects of chemotherapy (mainly neuropathy) were subsiding, the PSA test
Hello once again. My father completed 6 courses of docetaxel chemotherapy (last one on 23/05/2023) and he is getting Zoladex injections every 3 months. Last PSA result was 0.89 (14/07/2023). But as he was getting better and the effects of chemotherapy (mainly neuropathy) were subsiding, the PSA test
gio2x
in
Advanced Prostate Cancer
9 months ago
weather
hi I have Reumatoid Arthritis and Fibromyalgia. Is this weather effecting others? I ached all over and terrible headaches 😎😡
hi I have Reumatoid Arthritis and Fibromyalgia. Is this weather effecting others? I ached all over and terrible headaches 😎😡
Divorced
in
Fibromyalgia Action UK
1 year ago
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