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Donating bone marrow to cure sickle cell anaemia
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
anjana_indheal
in
Living with Sickle Cell Disease
5 years ago
Tarceva scalp
I am a near 10 year lung cancer survivor. The last 4 1/2 with stage 4 NSCLC, currently in remission. Have taken Tarceva since Sept of 2014 and had never connected the scabbing on the top of my head as being Tarceva side effect. The responses here are quite interesting. I’ve always thought it was from
I am a near 10 year lung cancer survivor. The last 4 1/2 with stage 4 NSCLC, currently in remission. Have taken Tarceva since Sept of 2014 and had never connected the scabbing on the top of my head as being Tarceva side effect. The responses here are quite interesting. I’ve always thought it was from
RickNH
in
Lung Cancer Support
6 years ago
SICKLE CELL NEWSWEEK
FATIMAH had a stroke at the age of 7. She recovered 100% and graduates May 2019 with a degree in Public Finance http://bit.ly/2FAO2KD Zandra Chidinma Nwogu’s first pain crises in eight years - ‘Water Marathon Therapy’ to the rescueh ttp://bit.ly/2HvAi5k Folks with SCD can only TAKE but not GIVE blood
FATIMAH had a stroke at the age of 7. She recovered 100% and graduates May 2019 with a degree in Public Finance http://bit.ly/2FAO2KD Zandra Chidinma Nwogu’s first pain crises in eight years - ‘Water Marathon Therapy’ to the rescueh ttp://bit.ly/2HvAi5k Folks with SCD can only TAKE but not GIVE blood
sicklecellnews
in
Sickle Cell Society
6 years ago
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Love is : Valentines Day Together in Clinic. . 💘
It's been some time since I posted but I keep in touch with the posts. It's part of me moving on in my lengthy recovery. I know from what I see that there are many new Forum members since I was active and that's great because we know it's one of the best sources of information , support and help for
It's been some time since I posted but I keep in touch with the posts. It's part of me moving on in my lengthy recovery. I know from what I see that there are many new Forum members since I was active and that's great because we know it's one of the best sources of information , support and help for
JediReject
in
MPN Voice
6 years ago
Hey There
Hi everyone this is just a post of me introducing myself, I'm not sure how close of a community you guys are but it's nice to be a part of something where people can really relate. My name is Kelsey I was born and diagnosed with Sickle Cell Anemia and I'm just trying to keep my shit together lol.
Hi everyone this is just a post of me introducing myself, I'm not sure how close of a community you guys are but it's nice to be a part of something where people can really relate. My name is Kelsey I was born and diagnosed with Sickle Cell Anemia and I'm just trying to keep my shit together lol.
sunshinee
in
Sickle Cell Society
6 years ago
Dad in ICU fighting pneumonia and is slow to wake up from induced coma
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
WhitneyS18
in
ICUsteps
6 years ago
5mm met found in my nrain
I was diagnosed stage 3a lung cancer, lobrcyomy December 7 2017 removed right upper and middle lung and 2 lymph nodes in my chest and 6 months chemo and 30 treatments radiation and the 3 months later a Timor 3 cm in brain, removed with surgery and 5 days of radiation... now last week 3 months later
I was diagnosed stage 3a lung cancer, lobrcyomy December 7 2017 removed right upper and middle lung and 2 lymph nodes in my chest and 6 months chemo and 30 treatments radiation and the 3 months later a Timor 3 cm in brain, removed with surgery and 5 days of radiation... now last week 3 months later
Lovey1000
in
Lung Cancer Support
6 years ago
Seeking people with experience of Stem Cell Transplant for Richter's - I have a decision to make!
Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - what a great community, which I have found really helpful. I was diagnosed with Non-Hodgkins DLBCL which is a Richter's transformation from previously undiagnosed CLL. I am a healthy 50 year old female, with no symptoms
Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - what a great community, which I have found really helpful. I was diagnosed with Non-Hodgkins DLBCL which is a Richter's transformation from previously undiagnosed CLL. I am a healthy 50 year old female, with no symptoms
Buddhababy
in
CLL Support
6 years ago
Has anyone tried Trimbow
Hi I'm new on here so bear with me 1st off U have COPD 2nd I have lung cancer I am on maintenance for cancer pemetrexed every 3 weeks and scans every 3 months but the COPD I have seebri breeze inhaler my red pump and I see a nurse every 6 months to do a blow test end off COPD treatment this past month
Hi I'm new on here so bear with me 1st off U have COPD 2nd I have lung cancer I am on maintenance for cancer pemetrexed every 3 weeks and scans every 3 months but the COPD I have seebri breeze inhaler my red pump and I see a nurse every 6 months to do a blow test end off COPD treatment this past month
nancysayde
in
Lung Conditions Community Forum
6 years ago
Potential Bechet's?
I am plagued by a plethora of various health issues and have had several diagnoses over the years but recently out of curiosity i had my DNA sequenced, this seemed to confirm several of my issues (Autism, ADD) however as well as my mental health issues i have several physical issues including recurrent
I am plagued by a plethora of various health issues and have had several diagnoses over the years but recently out of curiosity i had my DNA sequenced, this seemed to confirm several of my issues (Autism, ADD) however as well as my mental health issues i have several physical issues including recurrent
MegaNeko
in
Behçet's UK
6 years ago
Lung Transplant assessment / LVRS
If you have LVRS can it make or cause problems if you have a Lung Transplant later ? I’m about to see my surgeon later this month ( I think about LVRS ) but have just received a letter today from my consultant saying I may be better off having a Lung Transplant assessment so feeling a little confused
If you have LVRS can it make or cause problems if you have a Lung Transplant later ? I’m about to see my surgeon later this month ( I think about LVRS ) but have just received a letter today from my consultant saying I may be better off having a Lung Transplant assessment so feeling a little confused
Rich1957
in
Lung Conditions Community Forum
6 years ago
Private B12 injections in London please?
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
GastritisB12
in
Pernicious Anaemia Society
6 years ago
Cutaneous Vasculitis
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
lou1972
in
Vasculitis UK
6 years ago
Dyskeratosis Congentia
Hi Everyone, I am so pleased there is a link to connect all families who are suffering with this sad and devastating condition. My son was diagnosed back in 2011 just by having a routine blood test. Our world fell apart when we finally got the diagnosis that my son along with my daughter have such
Hi Everyone, I am so pleased there is a link to connect all families who are suffering with this sad and devastating condition. My son was diagnosed back in 2011 just by having a routine blood test. Our world fell apart when we finally got the diagnosis that my son along with my daughter have such
Hidden
in
DC Action
6 years ago
Job interview - dealing with embarrassing sweats
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
EscapedtoWales
in
PMRGCAuk
6 years ago
Lung cancer stage 111b
Well after my #3 of keytruda I've just had a Ct scan. I'm very scared but trying to be optimistic get the results on the 9th and if the immunotherapy is working will get #4 treatment on the 10th. The waiting is terrible praying each day it's working. How do others cope advice would be very gratefully
Well after my #3 of keytruda I've just had a Ct scan. I'm very scared but trying to be optimistic get the results on the 9th and if the immunotherapy is working will get #4 treatment on the 10th. The waiting is terrible praying each day it's working. How do others cope advice would be very gratefully
Ollie13
in
The Roy Castle Lung Cancer Foundation
6 years ago
O-CHOP
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
kstan8
in
Non Hodgkin's Lymphoma Friends
6 years ago
To All The Forum Family For 2019
After a few weeks of Discussion with My Hubby, Family & my Consultant Amy, I have Decided to Come off the Transplant List. I am having an Emotional Time at the moment,, it is a case of carry on waiting, getting older, I am now 67. As most of you know from my Posts, I have maintained my Body capability
After a few weeks of Discussion with My Hubby, Family & my Consultant Amy, I have Decided to Come off the Transplant List. I am having an Emotional Time at the moment,, it is a case of carry on waiting, getting older, I am now 67. As most of you know from my Posts, I have maintained my Body capability
Hacienda
in
Lung Conditions Community Forum
6 years ago
Fear for my brother
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
Nibblet
in
Lung Conditions Community Forum
6 years ago
Single lung transplant
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
bigjo
in
Lung Conditions Community Forum
6 years ago
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