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Non-small-cell lung carcinoma
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Lung transplant
Hi everyone, My chest specialist recently told me that the next best course of treatment for me would be a lung transplant. Although it has so many positives the sheer size of that kind of operation is a huge negative in my head. Has anyone else had to go through this decision? Regards Joseph
Hi everyone, My chest specialist recently told me that the next best course of treatment for me would be a lung transplant. Although it has so many positives the sheer size of that kind of operation is a huge negative in my head. Has anyone else had to go through this decision? Regards Joseph
Joseph260268
in
Lung Conditions Community Forum
7 years ago
Essiac Tea and Tarceva
Does anyone use this tea and are on Tarceva? I hear its good for liver detox but I know Tarceva is a toxin that I need to keep my cancer at bay. I want to keep my body as healthy as possible but unsure about this tea. Any suggestions?
Does anyone use this tea and are on Tarceva? I hear its good for liver detox but I know Tarceva is a toxin that I need to keep my cancer at bay. I want to keep my body as healthy as possible but unsure about this tea. Any suggestions?
cammfam4
in
Lung Cancer Support
7 years ago
Small cell cancer with complications
I wish I knew what is wrong with me besides having small cell cancer. I developed a Neuro problem whereby my nerves are taking over my whole body and causing such terrible pain and unhappiness. I've had my lung surgery, my Chemo didn't go well and now I'm waiting to be seen at the City of Hope. I hope
I wish I knew what is wrong with me besides having small cell cancer. I developed a Neuro problem whereby my nerves are taking over my whole body and causing such terrible pain and unhappiness. I've had my lung surgery, my Chemo didn't go well and now I'm waiting to be seen at the City of Hope. I hope
Hidden
in
Lung Cancer Support
7 years ago
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#Sickle cell Strong
I have really amazing news which I want to share with everyone! I am one year hospital admissions free! #Sicklestrong As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of
I have really amazing news which I want to share with everyone! I am one year hospital admissions free! #Sicklestrong As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of
Anzy
in
Sickle Cell Society
7 years ago
Ipf......anyone out there ?? ππππππ
Ipf ..... Been diagnosed 3 yes now i am 48 female waiting for lung transplant hopefully this yr..... On a bit of a wobble at the mo health wise but hopefully it won't last much longer get v v v tired just standing up going to loo....... Getting dressed is really hard and takes me ages......my kids
Ipf ..... Been diagnosed 3 yes now i am 48 female waiting for lung transplant hopefully this yr..... On a bit of a wobble at the mo health wise but hopefully it won't last much longer get v v v tired just standing up going to loo....... Getting dressed is really hard and takes me ages......my kids
Moonboat
in
Lung Conditions Community Forum
7 years ago
olaparib and temozolomid
Hello- My dad had his appointment with his Doctor today to discuss the next steps with treatment as his cancer is in his liver. Apparently he can't do immunotherapy because a major side effect is inflammation. Since my dad is taking steroids for inflammation due to his radiation, he can't start the
Hello- My dad had his appointment with his Doctor today to discuss the next steps with treatment as his cancer is in his liver. Apparently he can't do immunotherapy because a major side effect is inflammation. Since my dad is taking steroids for inflammation due to his radiation, he can't start the
Lesleykay21
in
Lung Cancer Support
7 years ago
Tocilizumab
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Tonylynn
in
PMRGCAuk
7 years ago
Lung Cancer
Hello my name is Janie, I'm 53 was diagnosed with lung cancer January 17, 2017.I had surgery on February 28,2017.
Hello my name is Janie, I'm 53 was diagnosed with lung cancer January 17, 2017.I had surgery on February 28,2017.
Faith5050
in
Lung Cancer Support
7 years ago
multiple sclerosis and sickle cell trait
Very hard to get doctors to discuss sickle cell trait causing health problems. Have always had blood show up in my urine when examined even when I don't have an infection. I believe this is because of SCT.
Very hard to get doctors to discuss sickle cell trait causing health problems. Have always had blood show up in my urine when examined even when I don't have an infection. I believe this is because of SCT.
shestlouis
in
Sickle Cell Society
7 years ago
CLL / P17 with Mutation
My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation. She has BWC of 213,000 and swollen lymph nodes. She was put on Hydrea that brought it down to 177,000 then they added Imbruvica. Hopefully this will bring it down until she can have a complete stem cell transplant
My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation. She has BWC of 213,000 and swollen lymph nodes. She was put on Hydrea that brought it down to 177,000 then they added Imbruvica. Hopefully this will bring it down until she can have a complete stem cell transplant
evetom
in
CLL Support
7 years ago
Side affects
1 yr survivor of lung & uterean cancer.had surgery for one cancer biopsy on lung. Chemo treatment for both cancers then radiation for for the first cancer then surgery on the lung had a lportion of lung removed on right lung. Only thing I deal with is some unusual side affects after the lung surgery.
1 yr survivor of lung & uterean cancer.had surgery for one cancer biopsy on lung. Chemo treatment for both cancers then radiation for for the first cancer then surgery on the lung had a lportion of lung removed on right lung. Only thing I deal with is some unusual side affects after the lung surgery.
navy22navy
in
Lung Cancer Support
7 years ago
Tagrisso/Osimertinib side-effects?? Nails lifting???
Hi all - I have been fortunate to have been given Iressa/Gefitinib as first line treatment for stage 4 lung cancer. I had been on that almost 3 years when the cancer started to grow again. Found to have T790M mutation and put on Tagrisso three months ago - good shrinkage of all tumours from latest scan
Hi all - I have been fortunate to have been given Iressa/Gefitinib as first line treatment for stage 4 lung cancer. I had been on that almost 3 years when the cancer started to grow again. Found to have T790M mutation and put on Tagrisso three months ago - good shrinkage of all tumours from latest scan
dizzie-wh
in
The Roy Castle Lung Cancer Foundation
7 years ago
Stage IV Gene mutation lung cancer- using Iressa
Friend was just diagnosed with stage IV lung cancer. She falls in the 10% of population who have a gene mutation. Started on gene therapy with Iressa, taking 250 mg per day. It's been 60 days. Sid effects are diarrhea, nausea. Has anyone had an experience taking Iressa For gene mutation stage IV
Friend was just diagnosed with stage IV lung cancer. She falls in the 10% of population who have a gene mutation. Started on gene therapy with Iressa, taking 250 mg per day. It's been 60 days. Sid effects are diarrhea, nausea. Has anyone had an experience taking Iressa For gene mutation stage IV
Ldk1
in
Lung Cancer Support
7 years ago
CBD oil and lung cancer
Hello, Considering using a high dose of pure CBD oil concentrate ( no THC as I cant do the high) to see if that will help me with getting my cancer into remission. I have heard great things about it, but it is expensive especially if you do the recommended 400 to 600 MG day they say is needed for stage
Hello, Considering using a high dose of pure CBD oil concentrate ( no THC as I cant do the high) to see if that will help me with getting my cancer into remission. I have heard great things about it, but it is expensive especially if you do the recommended 400 to 600 MG day they say is needed for stage
cammfam4
in
Lung Cancer Support
7 years ago
Stage 3b
I was diagnosed with squamous cell cancer in January I had my left lung removed in February. The pathology report stated that not all the cancer was removed some still left on the pulmonary artery where she cut it off going into the heart. The surgeon couldn't take anymore so now I will be doing radiation
I was diagnosed with squamous cell cancer in January I had my left lung removed in February. The pathology report stated that not all the cancer was removed some still left on the pulmonary artery where she cut it off going into the heart. The surgeon couldn't take anymore so now I will be doing radiation
Jewilliams
in
Lung Cancer Support
7 years ago
Some Social Security Disability Tips for Patients with Lung Cancer
If you are diagnosed with lung cancer and you are still working, one of your first questions will be βAre my working days over?β Everyone with advanced disease must face this, and even people with early stage disease can find themselves contending with permanent debilitating side effects from treatment
If you are diagnosed with lung cancer and you are still working, one of your first questions will be βAre my working days over?β Everyone with advanced disease must face this, and even people with early stage disease can find themselves contending with permanent debilitating side effects from treatment
scifiknitter
Blogger
in
Lung Cancer Support
7 years ago
Hello new to this site
I have tcbc mets to lung. Just had right lobe removed 3 weeks ago. 2011 diagnoised stage 2 invasive ductal on right. Left stage 0 . Bilateral masectomy and 6 rounds of taxol. Mets in 2014 to lung surgery. 2016 scan showed tumor grew back same place. When to clinicin in mexico for treatments. Tumor
I have tcbc mets to lung. Just had right lobe removed 3 weeks ago. 2011 diagnoised stage 2 invasive ductal on right. Left stage 0 . Bilateral masectomy and 6 rounds of taxol. Mets in 2014 to lung surgery. 2016 scan showed tumor grew back same place. When to clinicin in mexico for treatments. Tumor
Pattytx50
in
SHARE Metastatic Breast Cancer
7 years ago
PMR - Would appreciate feedback.
Hi All, If we wait for science to find a cause and cure for PMR I think we will be waiting a long time! I believe the answer will come from people like you and me, the ones with a vested interested and a motivation to make a break-through for the benefit of all. I should add I have achieved this on
Hi All, If we wait for science to find a cause and cure for PMR I think we will be waiting a long time! I believe the answer will come from people like you and me, the ones with a vested interested and a motivation to make a break-through for the benefit of all. I should add I have achieved this on
hiandri
in
PMRGCAuk
7 years ago
Blood biopsy
My doctor ordered a blood biopsy and PET scan as last CT scan showed a slight change. The blood biopsy came back with the Exon 19 deletion mutation. Has anyone else had experience with this?
My doctor ordered a blood biopsy and PET scan as last CT scan showed a slight change. The blood biopsy came back with the Exon 19 deletion mutation. Has anyone else had experience with this?
dreich58
in
Lung Cancer Support
7 years ago
The drugs
For some time my COPD had been getting much worse. I had sudden episodes where I was totally helpless and was gasping desperately for a breath of air. This could happen up to 5 or 6 times a day. Eventually, after an emergency call for an ambulance, I was admitted to hospital and spent a week there during
For some time my COPD had been getting much worse. I had sudden episodes where I was totally helpless and was gasping desperately for a breath of air. This could happen up to 5 or 6 times a day. Eventually, after an emergency call for an ambulance, I was admitted to hospital and spent a week there during
Treecutter
in
Lung Conditions Community Forum
7 years ago
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