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Confused
Hi . I wonder if anyone can help me. I was diagnosed with lung cancer a couple of weeks ago the mutation was PDL1. I received my first immunotherapy treatment yesterday. So far so good. I got a letter today from the consultant it states the cancer then EGFR/Alk/Ros 1 negative. Does anyone know what
Hi . I wonder if anyone can help me. I was diagnosed with lung cancer a couple of weeks ago the mutation was PDL1. I received my first immunotherapy treatment yesterday. So far so good. I got a letter today from the consultant it states the cancer then EGFR/Alk/Ros 1 negative. Does anyone know what
Crafty57
in
The Roy Castle Lung Cancer Foundation
4 years ago
Broken my shielding
Well I haven’t seen family since lockdown and haven’t been out of the house since January but the last two days everyone has been. My husband collapsed and there was no way I can manage him on my own so my family as well as sorting out the medical side of it came and did all the practical things.
Well I haven’t seen family since lockdown and haven’t been out of the house since January but the last two days everyone has been. My husband collapsed and there was no way I can manage him on my own so my family as well as sorting out the medical side of it came and did all the practical things.
Grandmatojack
in
Lung Conditions Community Forum
4 years ago
Stem Cell Transplant
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
lebowski42
in
MPN Voice
4 years ago
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Study finds drug beneficial for shrinking mesothelioma tumors.
A drug that is designed to boost the immune system against mesothelioma, when combined with immunotherapy, was found to be beneficial in a small study involving ten patients. The results, which appeared July 1, 2020, in Science Translational Medicine, suggest that the drug LMB-100 could prolong the life
A drug that is designed to boost the immune system against mesothelioma, when combined with immunotherapy, was found to be beneficial in a small study involving ten patients. The results, which appeared July 1, 2020, in Science Translational Medicine, suggest that the drug LMB-100 could prolong the life
2greys
in
Lung Conditions Community Forum
4 years ago
The combination of four drugs at low doses is more effective and less toxic in the treatment of a lung cancer type
Inhibit the specific activity of a protein affected by a mutation using high doses of a drug is the usual treatment for many cancers. Despite in the first instance this strategy is effective, leads to treatment resistance development by tumor cells through the appearance of secondary mutations, which
Inhibit the specific activity of a protein affected by a mutation using high doses of a drug is the usual treatment for many cancers. Despite in the first instance this strategy is effective, leads to treatment resistance development by tumor cells through the appearance of secondary mutations, which
2greys
in
Lung Conditions Community Forum
4 years ago
Lung surgery Bi-lobectomy
Hi everyone just to give you an update I went to see my consultant today who advised from the biopsy I had I have a benign tumour in my bronchial tube. As the blockage is now causing me to have infections. I was advised surgery is my best option. I was able to see the surgeon why I was at the hospital
Hi everyone just to give you an update I went to see my consultant today who advised from the biopsy I had I have a benign tumour in my bronchial tube. As the blockage is now causing me to have infections. I was advised surgery is my best option. I was able to see the surgeon why I was at the hospital
Becky130777
in
The Roy Castle Lung Cancer Foundation
4 years ago
New on here
Hi there, in February of this year my mum was diagnosed with stage 3B squamous cell non-small cell lung cancer. It's been an emotional roller coaster. The doctors have been very positive about my mum. She was given aggressive chemo and radiation which she completed 2 months ago and recently started on
Hi there, in February of this year my mum was diagnosed with stage 3B squamous cell non-small cell lung cancer. It's been an emotional roller coaster. The doctors have been very positive about my mum. She was given aggressive chemo and radiation which she completed 2 months ago and recently started on
monica91
in
The Roy Castle Lung Cancer Foundation
4 years ago
An update on my tocilizumab experience.
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
LemonZest11
in
PMRGCAuk
4 years ago
Staging lung cancer
Hi all, so I had my biopsy last week today they had an MDT meeting. My cancer nurse phoned and said I have T2B N3MO MUTATION PDL1 expression. Does anyone know what this means, please be gentle with me as I’m so scared. I have a phone call tomorrow from the oncologist. I have told them I don’t want
Hi all, so I had my biopsy last week today they had an MDT meeting. My cancer nurse phoned and said I have T2B N3MO MUTATION PDL1 expression. Does anyone know what this means, please be gentle with me as I’m so scared. I have a phone call tomorrow from the oncologist. I have told them I don’t want
Crafty57
in
The Roy Castle Lung Cancer Foundation
4 years ago
Shining light on a malignant lung cancer.
Treating a rare type of malignant lung cancer could improve, thanks to near-infrared irradiation and a cancer-targeting compound. Nagoya University oncologist Kazuhide Sato and colleagues tested the treatment and published their findings in the journal Cells. Malignant pleural mesothelioma (MPM) is
Treating a rare type of malignant lung cancer could improve, thanks to near-infrared irradiation and a cancer-targeting compound. Nagoya University oncologist Kazuhide Sato and colleagues tested the treatment and published their findings in the journal Cells. Malignant pleural mesothelioma (MPM) is
2greys
in
Lung Conditions Community Forum
4 years ago
biopsy
I'm new to this site. Having a needle biopsy of right upper lung lobe in a few days. Is it painful and what is the recovery like?
I'm new to this site. Having a needle biopsy of right upper lung lobe in a few days. Is it painful and what is the recovery like?
dunnellon
in
Lung Conditions Community Forum
4 years ago
67 year old wimp!
Hi, I am new here and I am having a lobectomy of my top right lung on Monday, having it done at London Bridge Hospital as covid is causing problems at the other hospitals. The cancer was luckily found in a CT that was looking for something else. After a PET scan and needle biopsy it was found to be
Hi, I am new here and I am having a lobectomy of my top right lung on Monday, having it done at London Bridge Hospital as covid is causing problems at the other hospitals. The cancer was luckily found in a CT that was looking for something else. After a PET scan and needle biopsy it was found to be
Hidden
in
Lung Conditions Community Forum
4 years ago
Newbie bowel / lung cancer
Hi all I’m a newbie ,..I’m 51 years old and got diagnosed with stage 4 blwel / lung cancer ...I have 5 kids ,4 my youngest are all autistic and my husband passed away very suddenly 3 years ago so I’m all they have ( both sets of grandparents passed ) my fear is who’s going to take care of them when I
Hi all I’m a newbie ,..I’m 51 years old and got diagnosed with stage 4 blwel / lung cancer ...I have 5 kids ,4 my youngest are all autistic and my husband passed away very suddenly 3 years ago so I’m all they have ( both sets of grandparents passed ) my fear is who’s going to take care of them when I
Sannyboop
in
The Roy Castle Lung Cancer Foundation
4 years ago
FDA approves Zepzelca (lurbinectedin) for treatment of advanced SCLC that has progressed after platinum chemotherapy
On June 15, 2020, the Food and Drug Administration (FDA) approved Zepzelca (lurbinectedin) for treatment of advanced small cell lung cancer (SCLC) whose cancer has progressed after platinum chemotherapy. The FDA based their approval on the results of a clinical trial which showed that a high percentage
On June 15, 2020, the Food and Drug Administration (FDA) approved Zepzelca (lurbinectedin) for treatment of advanced small cell lung cancer (SCLC) whose cancer has progressed after platinum chemotherapy. The FDA based their approval on the results of a clinical trial which showed that a high percentage
Miranda_GO2
Partner
in
Lung Cancer Support
4 years ago
Lightning strikes twice!!
In July 2012 my dad was diagnosed with Stage 4 adenocarcinoma he died 6 weeks later. On Wednesday my mum was diagnosed with squamous cell carcinoma and is currently in hospital for a mediastinoscopy as they suspect the clear biopsy result of her lymphnodes was inaccurate. Over the last 8 years my sister
In July 2012 my dad was diagnosed with Stage 4 adenocarcinoma he died 6 weeks later. On Wednesday my mum was diagnosed with squamous cell carcinoma and is currently in hospital for a mediastinoscopy as they suspect the clear biopsy result of her lymphnodes was inaccurate. Over the last 8 years my sister
Jinty100
in
The Roy Castle Lung Cancer Foundation
4 years ago
Living with Chronic Neuropathic Pain
There is much money in the pain and drug industry. Ethics and the recipients of these drugs do not factor into the bottom line. Profit and Loss Statements mean percentage increases at any cost. It is sad that chronic pain patients are made to feel like drug addicts and treated in a most callous way.
There is much money in the pain and drug industry. Ethics and the recipients of these drugs do not factor into the bottom line. Profit and Loss Statements mean percentage increases at any cost. It is sad that chronic pain patients are made to feel like drug addicts and treated in a most callous way.
Hidden
in
Pain Concern
4 years ago
Can lung cancer be diagnosed by a CT scan?
Hi everyone, About four weeks ago, my partner started coughing up blood..went to A and E, diagnosed with pneumonia and given antibiotics. This week he coughed up blood again. GP told him it wasn't pneumonia ( no indication in bloods) and he shouldn't have been diagnosed with that. He was sent straight
Hi everyone, About four weeks ago, my partner started coughing up blood..went to A and E, diagnosed with pneumonia and given antibiotics. This week he coughed up blood again. GP told him it wasn't pneumonia ( no indication in bloods) and he shouldn't have been diagnosed with that. He was sent straight
Eorwyn
in
The Roy Castle Lung Cancer Foundation
4 years ago
Treatment plan
After the agony, anxiety and terrible fears whilst going through scans and biopsies, my partner finally met with the oncologist today. The oncologist was marvelous and explained everything to us and how the MDT have come to the recommended treatment plan of immunotherapy for his lung cancer with mets
After the agony, anxiety and terrible fears whilst going through scans and biopsies, my partner finally met with the oncologist today. The oncologist was marvelous and explained everything to us and how the MDT have come to the recommended treatment plan of immunotherapy for his lung cancer with mets
Kayben21
in
The Roy Castle Lung Cancer Foundation
4 years ago
Chemotherapy/immunotherapy combo shows promise for first-line treatment of Mesothelioma.
Inoperable malignant pleural mesothelioma, is a rare and aggressive cancer of the protective lining of the lungs, or pleura, often caused by exposure to asbestos. At the annual meeting of the American Society of Clinical Oncology (ASCO), held virtually from May 29-31, 2020, a researcher from the Johns
Inoperable malignant pleural mesothelioma, is a rare and aggressive cancer of the protective lining of the lungs, or pleura, often caused by exposure to asbestos. At the annual meeting of the American Society of Clinical Oncology (ASCO), held virtually from May 29-31, 2020, a researcher from the Johns
2greys
in
Lung Conditions Community Forum
4 years ago
OVERCOMING GVHD AFTER ASCT
Post by MPN-MATE Admin » Thu Jul 16, 2020 9:56 am Morning all... :D For some of us here, (but hopefully not all...?), some may eventually have to travel down the path of having an Allogenic Stem Cell Transplant (ASCT), when and if it becomes necessary... ... If, and when that occurs, one of the known
Post by MPN-MATE Admin » Thu Jul 16, 2020 9:56 am Morning all... :D For some of us here, (but hopefully not all...?), some may eventually have to travel down the path of having an Allogenic Stem Cell Transplant (ASCT), when and if it becomes necessary... ... If, and when that occurs, one of the known
socrates_8
in
MPN Voice
4 years ago
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