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Non-small-cell lung carcinoma
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Refusing Lung Transplant
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
hillclimber1
in
Lung Conditions Community Forum
2 years ago
Hello all
Hi everyone. I am new to this group only having been diagnosed last November with stage 4 lung cancer. I have a secondary in my brain but am lucky to have the EGFR Exon 19 mutation so now on targeted table therapy Osimertinib. Slowly working through the shock and trying to find informed and positive
Hi everyone. I am new to this group only having been diagnosed last November with stage 4 lung cancer. I have a secondary in my brain but am lucky to have the EGFR Exon 19 mutation so now on targeted table therapy Osimertinib. Slowly working through the shock and trying to find informed and positive
Musicgirl71
in
The Roy Castle Lung Cancer Foundation
2 years ago
Encouraging Progress
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
redhawk1
in
Cure Parkinson's
2 years ago
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Lung Cancer
Was diagnosed with Lung cancer Feb 2021 small stem approx. 4cm Tumour in lower right Lobe and had imbedded itself in the lining and on main archery and other blood vessels and therefore inoperable. Had 3 sessions of chemo and 6. 1/2 weeks of radiotherapy treatment finishing on 9/5/21. Then 3 monthly
Was diagnosed with Lung cancer Feb 2021 small stem approx. 4cm Tumour in lower right Lobe and had imbedded itself in the lining and on main archery and other blood vessels and therefore inoperable. Had 3 sessions of chemo and 6. 1/2 weeks of radiotherapy treatment finishing on 9/5/21. Then 3 monthly
Lainey100
in
The Roy Castle Lung Cancer Foundation
2 years ago
Disassociated feeling
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
redhouts
in
PMRGCAuk
2 years ago
Lung cancer
Hi, I was wondering if ya'll know how long it takes to start seeing results from being on Keytruda. My husband, who was diagnosed with lung cancer last year just recently started Keytruda and has had two treatments, but he doesn't feel any better. He's tired, has pain and nausea. Thank ya'll
Hi, I was wondering if ya'll know how long it takes to start seeing results from being on Keytruda. My husband, who was diagnosed with lung cancer last year just recently started Keytruda and has had two treatments, but he doesn't feel any better. He's tired, has pain and nausea. Thank ya'll
Orchid2583
in
Lung Cancer Support
2 years ago
Trikafta drug US Name - Kaftrio drug UK Name
Trikafta drug US Name - Kaftrio drug UK Name Can someone please tell me if the above drug is only offered to people who have Cystic Fibrosis in the UK? i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe
Trikafta drug US Name - Kaftrio drug UK Name Can someone please tell me if the above drug is only offered to people who have Cystic Fibrosis in the UK? i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe
Joseph260268
in
Lung Conditions Community Forum
2 years ago
World Blood Cancer Day May 28th
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Dovme
in
MPN Voice
2 years ago
Gathering HOPE- new Wellness focus social event!
Hello HealthUnlocked Community, We want your input! I am excited to invite you to a very special Gathering HOPE social hour on Tuesday, March 8th at 5pm PT/8pm ET to explore and discuss the needs of the lung cancer community beyond your diagnosis, and the way that wellness-specific activities can support
Hello HealthUnlocked Community, We want your input! I am excited to invite you to a very special Gathering HOPE social hour on Tuesday, March 8th at 5pm PT/8pm ET to explore and discuss the needs of the lung cancer community beyond your diagnosis, and the way that wellness-specific activities can support
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Lower Abdominal pain and Tocilizumab
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
SheffieldJane
in
PMRGCAuk
2 years ago
What are the Significant Tests to Determine Pernicious Anemia
Hello Everyone...I'd like to start by saying how much I appreciate each of you. I have learned an enormous amount of information since joining this group and it has helped me in so many ways; one of which is how to form questions to ask my doctors (I go in prepared with written questions as my brain
Hello Everyone...I'd like to start by saying how much I appreciate each of you. I have learned an enormous amount of information since joining this group and it has helped me in so many ways; one of which is how to form questions to ask my doctors (I go in prepared with written questions as my brain
Hidden
in
Pernicious Anaemia Society
2 years ago
My brother has lung cancer
Few weeks ago my brother received information that he has lung cancer (no talks on staging yet). The information we received is that he has a small tumor on his right lung. Currently we are waiting for the result of the tumor sample they took and we should receive it this week. While waiting for the
Few weeks ago my brother received information that he has lung cancer (no talks on staging yet). The information we received is that he has a small tumor on his right lung. Currently we are waiting for the result of the tumor sample they took and we should receive it this week. While waiting for the
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
Removed from Transplant
Sadly I have been removed from the lung transplant list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect. My respiratory
Sadly I have been removed from the lung transplant list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect. My respiratory
mary1956
in
Lung Conditions Community Forum
2 years ago
Pulmonary Hypertension
I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it. However today I needed a wheel chair
I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it. However today I needed a wheel chair
mary1956
in
Lung Conditions Community Forum
2 years ago
DO YOU HAVE THE MET EXON14 MUTATION, NSCLC? DRUG SUBMISSION TIME.
Tepotinib (Tetmeko) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland, and we are invited to provide a Patient Group Submission for the medicine. The indication this new medicine will be assessed under is 'For use in adults to treat a type of lung cancer, called
Tepotinib (Tetmeko) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland, and we are invited to provide a Patient Group Submission for the medicine. The indication this new medicine will be assessed under is 'For use in adults to treat a type of lung cancer, called
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
2 years ago
My husband has been recently diagnosed with small cell lung cancer
We live in Spain. My husband (74 years old) was diagnosed with small cell lung cancer in January 2022 - 7cm tumour in the right lung, and in the hilar lymph nodes plus bronchelei. He started chemotherapy on 31 Jan, then another on 1st and 2nd Feb. His next appointment is 23/24/25 Feb. At the moment,
We live in Spain. My husband (74 years old) was diagnosed with small cell lung cancer in January 2022 - 7cm tumour in the right lung, and in the hilar lymph nodes plus bronchelei. He started chemotherapy on 31 Jan, then another on 1st and 2nd Feb. His next appointment is 23/24/25 Feb. At the moment,
Texas22
in
The Roy Castle Lung Cancer Foundation
2 years ago
Massive setback…😡😢😡😢😡😢
Just got word from the transplant team that they now consider me too high a risk for a double lung transplant. As some of you may remember the assessment work up flagged up a calcification build up in a heart vessel ( LAD) which needed sorting. I subsequently went to the Harefield for angioplasty and
Just got word from the transplant team that they now consider me too high a risk for a double lung transplant. As some of you may remember the assessment work up flagged up a calcification build up in a heart vessel ( LAD) which needed sorting. I subsequently went to the Harefield for angioplasty and
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Transplant Assessment over and out (almost)
After having to postpone my previous appointment due to a dubious positive PCR test, I finally had my lung transplant assessment on Monday and Tuesday this week. Having read the booklet that they sent in advance, I had a fair idea of what was involved but still don't think I was fully prepared for the
After having to postpone my previous appointment due to a dubious positive PCR test, I finally had my lung transplant assessment on Monday and Tuesday this week. Having read the booklet that they sent in advance, I had a fair idea of what was involved but still don't think I was fully prepared for the
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
HenryW
in
AMN EASIER
2 years ago
Spring, and unusual weather
Think here in Midlands have early spring, my prunus cherry tree is in full bloom, pigeons eating flowers, hardy fuchsias in leaf, whilst snowdrops crocus etc still flowering beautifully. Lucky not to have had flooding where I live. Blue tits have been going into their box since before Christmas, can
Think here in Midlands have early spring, my prunus cherry tree is in full bloom, pigeons eating flowers, hardy fuchsias in leaf, whilst snowdrops crocus etc still flowering beautifully. Lucky not to have had flooding where I live. Blue tits have been going into their box since before Christmas, can
Morrison10
in
Lung Conditions Community Forum
2 years ago
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