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Non-small-cell lung carcinoma
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I have SVT and i have anxiety/ptsd
So i use to come on here alot. 2016 was my "dark year" on here. 2016 febuary my heart went into an arrythmia and at the time i wasnt even sure what it was. I didnt want to leave my bed or do anything at all. I was so scared to even walk around and do anything. Took over a year for them to catch
So i use to come on here alot. 2016 was my "dark year" on here. 2016 febuary my heart went into an arrythmia and at the time i wasnt even sure what it was. I didnt want to leave my bed or do anything at all. I was so scared to even walk around and do anything. Took over a year for them to catch
Armyguy
in
Anxiety Support
6 years ago
When to stop the chemo?
Hi everyone. I have good news on my Dad. He just did a PET/CT and the doctor told that the tumor has diminished and two cycles of chemo reacted very well. She decided to add immunotherapy Keytruda now and continue with the same chemo for additional 4 cycles. I wanted to find out is there an end for
Hi everyone. I have good news on my Dad. He just did a PET/CT and the doctor told that the tumor has diminished and two cycles of chemo reacted very well. She decided to add immunotherapy Keytruda now and continue with the same chemo for additional 4 cycles. I wanted to find out is there an end for
Ina3
in
Lung Cancer Support
6 years ago
Bone Marrow Transplant Failed
In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical trial. Initially, I didn't qualify, but they agreed to modify the trial to make me eligible. That process took a while, so we didn't get started until late 2017
In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical trial. Initially, I didn't qualify, but they agreed to modify the trial to make me eligible. That process took a while, so we didn't get started until late 2017
Beauxman
in
Advanced Prostate Cancer
6 years ago
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Dr Manos Nikolousis discusses new drugs now available to treat Acute Myeloid Leukaemia (AML)
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Standards of Care as defined by UMN doctors
Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if need be. The first MRI should be done between 12 and 18 months to get a baseline reading and then repeated at age 3. From then on it too needs
Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if need be. The first MRI should be done between 12 and 18 months to get a baseline reading and then repeated at age 3. From then on it too needs
fightald
Administrator
in
Parents of ALD Newborns
6 years ago
Mail on Sunday Article. Pioneering Lung Cancer Treatment.
This is a pioneering two-in-one Lung Cancer treatment is being used to both diagnose and destroy hard-to-reach tumours in just half an hour allowing thousands of NHS patients to avoid the need for invasive, life-changing surgery. It has been pioneered by a Dr. Sam Hare of the Royal Free. The two-in-one
This is a pioneering two-in-one Lung Cancer treatment is being used to both diagnose and destroy hard-to-reach tumours in just half an hour allowing thousands of NHS patients to avoid the need for invasive, life-changing surgery. It has been pioneered by a Dr. Sam Hare of the Royal Free. The two-in-one
proffishopper
in
Lung Conditions Community Forum
6 years ago
Has anyone had a bone marrow transplant who has PV?
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
tracey13
in
MPN Voice
6 years ago
two kids diagnosed with ALD
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
aadilmadarveet
in
Leukodystrophy Support
6 years ago
Identify the carrier.
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
aadilmadarveet
in
Parents of ALD Newborns
6 years ago
Lukiemia and High white blood count
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
ConcernedSpouse2012
in
CLL Support
6 years ago
Stage IV Lung Cancer Diagnosed/ Life Expectancy
My dad was told he had 6 months to 1 year of life left with treatment when he was diagnosed with Stage IV Lung Cancer. Our Doctor was very straight forward on saying there was no cure for my dads cancer and only with treatment (chemo & radiation) it will only help him with his quality of life. We had
My dad was told he had 6 months to 1 year of life left with treatment when he was diagnosed with Stage IV Lung Cancer. Our Doctor was very straight forward on saying there was no cure for my dads cancer and only with treatment (chemo & radiation) it will only help him with his quality of life. We had
verolove
in
Lung Cancer Support
6 years ago
Trying to be hopeful
I’m 45 years old and was diagnosed with stage 3 lung cancer 19 months ago. I had a lobectomy and 12 weeks of hellish chemo which I would never put myself through again. Everything seemed fine for awhile but sadly yesterday my consultant informed me that the cancer has now spread to my other lung also
I’m 45 years old and was diagnosed with stage 3 lung cancer 19 months ago. I had a lobectomy and 12 weeks of hellish chemo which I would never put myself through again. Everything seemed fine for awhile but sadly yesterday my consultant informed me that the cancer has now spread to my other lung also
BellaBe
in
The Roy Castle Lung Cancer Foundation
6 years ago
Post op double lung
Hi I'm a post op double lung transplant patient. I had my op in March of this year and am still feeling pretty useless. Recovery has been a long process. I'm suffering depression and anxiety. Had kidney problems. Weight loss and sickness. Stopped eating for 6 months. Very tired. Was in hospital most
Hi I'm a post op double lung transplant patient. I had my op in March of this year and am still feeling pretty useless. Recovery has been a long process. I'm suffering depression and anxiety. Had kidney problems. Weight loss and sickness. Stopped eating for 6 months. Very tired. Was in hospital most
Deanh
in
Lung Conditions Community Forum
6 years ago
Self-confidence..
I am lacking confidence in what I am trying to accomplish from my daily life to my medical journey.. It happens when I feel sick or tired.. Then I tend to procrastinate and postpone things to do... I tend to doubt.. It’s ok I know I must pull through, not let it slide.. I need reminding of the beauty
I am lacking confidence in what I am trying to accomplish from my daily life to my medical journey.. It happens when I feel sick or tired.. Then I tend to procrastinate and postpone things to do... I tend to doubt.. It’s ok I know I must pull through, not let it slide.. I need reminding of the beauty
Hidden
in
Lung Conditions Community Forum
6 years ago
Tagrisso
My brother (based in the USA) has been diagnosed with Lung cancer, which has also spread to the lymph nodes and 3 bones as well. He has been started on the drug Tagrisso in the past few days. The cost is $5000 per month over and above their medical insurance contribution, which is not sustainable for
My brother (based in the USA) has been diagnosed with Lung cancer, which has also spread to the lymph nodes and 3 bones as well. He has been started on the drug Tagrisso in the past few days. The cost is $5000 per month over and above their medical insurance contribution, which is not sustainable for
Mackj
in
Lung Cancer Support
6 years ago
Any help in Florida?
Hey y'all, seems like being here feels like I'm doomed😢 I really want A stem cell transplant. How would I get it? How do I sign up? I Really wish I lived in the U.K . I've read alot of stories here. Seens like they help you more. Someone plz help me.
Hey y'all, seems like being here feels like I'm doomed😢 I really want A stem cell transplant. How would I get it? How do I sign up? I Really wish I lived in the U.K . I've read alot of stories here. Seens like they help you more. Someone plz help me.
Susanissufferingtoo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
GCA and black outs?
Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolone. Worked well so slowly down to 7mg by beginning of November when all symptoms came back within days. then fell over but thought nothing of it. Following week started to feel really unwell. Husband found me unconscious
Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolone. Worked well so slowly down to 7mg by beginning of November when all symptoms came back within days. then fell over but thought nothing of it. Following week started to feel really unwell. Husband found me unconscious
Devonspinner
in
PMRGCAuk
6 years ago
What a year - and some good news to end it
Hi all, Thought I would share some positive news from me after a pretty crazy year - if nothing else to get my head around it. Back in January I was diagnosed with ET, then MF (despite having no fibrosis but I didn’t realise this made no sense at the time) and then imminent AML (despite having no
Hi all, Thought I would share some positive news from me after a pretty crazy year - if nothing else to get my head around it. Back in January I was diagnosed with ET, then MF (despite having no fibrosis but I didn’t realise this made no sense at the time) and then imminent AML (despite having no
Timjonze
in
MPN Voice
6 years ago
Is hair loss a given?
Hi all - I know that hair loss/thinning is listed as a possible side effect of taking hydroxyurea. I immediately latched on to the word “possible”, in the hope that it also means loads of us on the drug will not lose hair. My haemo has many young patients who have to take hydroxy forever for sickle cell
Hi all - I know that hair loss/thinning is listed as a possible side effect of taking hydroxyurea. I immediately latched on to the word “possible”, in the hope that it also means loads of us on the drug will not lose hair. My haemo has many young patients who have to take hydroxy forever for sickle cell
WileyFrench
in
MPN Voice
6 years ago
Jocelyn Blum's homegoing
For all of you on your MS journey, I have to let you know that Jocelyn Blum went to be with Jesus last Saturday. She had lung surgery for a malignant tumor and became septic after from infection and her lungs were injured as a result and couldn't overcome that with great breathing issues. She was on
For all of you on your MS journey, I have to let you know that Jocelyn Blum went to be with Jesus last Saturday. She had lung surgery for a malignant tumor and became septic after from infection and her lungs were injured as a result and couldn't overcome that with great breathing issues. She was on
Joc-42
in
My MSAA Community
6 years ago
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