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Learning from patients with facial paralysis
Your input is highly valuable and will help us better take care of patients with acoustic
neuroma
and facial paralysis. This quality of life survey is divided into 2 parts. See the link below. People report that it takes 15-20 minutes to complete both parts.
Your input is highly valuable and will help us better take care of patients with acoustic
neuroma
and facial paralysis. This quality of life survey is divided into 2 parts. See the link below. People report that it takes 15-20 minutes to complete both parts.
ohnsent
in
Facial Palsy UK
7 years ago
Acupuncture & Moxibustion
After surgery to remove an acoustic
neuroma
my initial challenge was to overcome my resultant loss of balance. Once home I also became aware of my appearance as I shaved every morning. Initially I even found that hard with a lack of sensation on one side.
After surgery to remove an acoustic
neuroma
my initial challenge was to overcome my resultant loss of balance. Once home I also became aware of my appearance as I shaved every morning. Initially I even found that hard with a lack of sensation on one side.
Seeujimmy
in
Facial Palsy UK
7 years ago
My continued battle
I was diagnosed with a acoustic
neuroma
about 3 years ago. I managed to delay my surgery due to a few major life issues. But thats another story. I eventually was forced to confront the beast in October 2016 the overall experience wasn't good.
I was diagnosed with a acoustic
neuroma
about 3 years ago. I managed to delay my surgery due to a few major life issues. But thats another story. I eventually was forced to confront the beast in October 2016 the overall experience wasn't good.
Wayne4211
in
Acoustic Neuroma Support
7 years ago
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Ultrasound guided intervention
On Friday 6th Jan I have a hospital appointment for the above on both hands and feet with a view to excludeing Morton's
Neuroma
. Has anyone had injections in these area's? If so what can I expect?
On Friday 6th Jan I have a hospital appointment for the above on both hands and feet with a view to excludeing Morton's
Neuroma
. Has anyone had injections in these area's? If so what can I expect?
mickey1
in
NRAS
7 years ago
What acoustic neuroma? 5 years after.....
Hello-My diagnosis was 5 years ago now - a 3-cm. AN against my brain stem (and I wondered why I had been feeling so dizzy and sick....!). Had surgery 2 weeks later, Gamma knife 3 months later, another surgery 2 months later...... And I am doing so well now I forget about it most of the time. At the time
Hello-My diagnosis was 5 years ago now - a 3-cm. AN against my brain stem (and I wondered why I had been feeling so dizzy and sick....!). Had surgery 2 weeks later, Gamma knife 3 months later, another surgery 2 months later...... And I am doing so well now I forget about it most of the time. At the time
anan88
in
Acoustic Neuroma Support
7 years ago
a very old BTA member!
ps You'll find a similar posting on the acoustic
neuroma
section which I wandered into by mistake!
ps You'll find a similar posting on the acoustic
neuroma
section which I wandered into by mistake!
Hidden
in
British Tinnitus Association
7 years ago
a very old member of BTA!
I think I was keithmac there and have been unclemac here for some time in the acoustic
neuroma
section - my tinnitus is caused by my unwelcome lodger. Although I have T I'm blessed that it's not a major issue for me. I know that for some it's a potentially life-wrecking condition.
I think I was keithmac there and have been unclemac here for some time in the acoustic
neuroma
section - my tinnitus is caused by my unwelcome lodger. Although I have T I'm blessed that it's not a major issue for me. I know that for some it's a potentially life-wrecking condition.
Hidden
in
Acoustic Neuroma Support
7 years ago
AN with Trigeminal Nueralgia
Hello I have just been diagnosed with at AN and also have Trigeminal Nueralgia as the Tumor is pressing on a facial nerve I also have a sensation on unsteadiness. I usually have a very busy lifestyle. Has anyone else experienced Trigeminal Nueralgia with an AN I am in lot of facial pain eletric shock
Hello I have just been diagnosed with at AN and also have Trigeminal Nueralgia as the Tumor is pressing on a facial nerve I also have a sensation on unsteadiness. I usually have a very busy lifestyle. Has anyone else experienced Trigeminal Nueralgia with an AN I am in lot of facial pain eletric shock
Den1970
in
Acoustic Neuroma Support
7 years ago
Anaesthetic after an aneurysm
I am 74 yrs old. 2 years ago I was diagnosed with an acoustic
neuroma
, non malignant, and an aneurysm, which was too small to burst, of course it did. I had successful coiling.
I am 74 yrs old. 2 years ago I was diagnosed with an acoustic
neuroma
, non malignant, and an aneurysm, which was too small to burst, of course it did. I had successful coiling.
1oldwoman
in
Headway
7 years ago
Unsure as yet!
I may have A.N. and i'm waiting for an MRI. I have a lot of balance issues but otherwise feel OK, I have suffered with headaches for years but not so much over the last couple of years. I've just turned 50 but when I was 20 I was diagnosed with Pulmonary Sarcroidosis and had to have a lung removed, after
I may have A.N. and i'm waiting for an MRI. I have a lot of balance issues but otherwise feel OK, I have suffered with headaches for years but not so much over the last couple of years. I've just turned 50 but when I was 20 I was diagnosed with Pulmonary Sarcroidosis and had to have a lung removed, after
mick65wolf
in
Acoustic Neuroma Support
7 years ago
Sleepwalking as a side effect?
Hi there, I am 34 and have a medium sized acoustic
neuroma
scheduled for surgery. Only had issues for the last 8 months (reduced hearing, tinnitus etc) but suffered from very bad sleepwalking since I was ~9 years old.
Hi there, I am 34 and have a medium sized acoustic
neuroma
scheduled for surgery. Only had issues for the last 8 months (reduced hearing, tinnitus etc) but suffered from very bad sleepwalking since I was ~9 years old.
Wildcard15
in
Acoustic Neuroma Support
8 years ago
Little scared đ
Yesterday I met the surgeon who is to perform my operation, I'm on the waiting list to have my 3cm AN removed. I was diagnosed late Sept and thought I was coping quite well, little shocked but hey, it is what it is, just got to get on with it. I'm trying to remain positive as mental approach is half
Yesterday I met the surgeon who is to perform my operation, I'm on the waiting list to have my 3cm AN removed. I was diagnosed late Sept and thought I was coping quite well, little shocked but hey, it is what it is, just got to get on with it. I'm trying to remain positive as mental approach is half
Flossie47
in
Acoustic Neuroma Support
7 years ago
29 years and counting
Hi everybody. As the title says I had 3 neuromas removed 29 years ago. Initially the after effects were severe but year by year they diminished. The last couple of years I can hear my pulse in my one good ear but over the last month it turned into a loud tick and then two days ago it stopped. I pestered
Hi everybody. As the title says I had 3 neuromas removed 29 years ago. Initially the after effects were severe but year by year they diminished. The last couple of years I can hear my pulse in my one good ear but over the last month it turned into a loud tick and then two days ago it stopped. I pestered
keithzx12r
in
Acoustic Neuroma Support
8 years ago
NF2 and Kidney?
Could it be some sort of
neuroma
that is affecting the right kidney?
Could it be some sort of
neuroma
that is affecting the right kidney?
Adlon57
in
Healthy Evidence
8 years ago
Kidney trouble?
I have NF2 could it be something to do with that,
neuroma
, or am I being a bit of a hypochondriac or a sign of age? Not much is known about the effects of NF2 on internal organs?
I have NF2 could it be something to do with that,
neuroma
, or am I being a bit of a hypochondriac or a sign of age? Not much is known about the effects of NF2 on internal organs?
Adlon57
in
MPN Voice
8 years ago
Help!
I have painful joints, metatarsalgia,mortons
neuroma
,asthma and thats just for starters.
I have painful joints, metatarsalgia,mortons
neuroma
,asthma and thats just for starters.
Poledra13
in
Weight Loss Support
8 years ago
Lupus and the dwp
Hi , I have had lupus SLE for 14 years I am now 56 .I have arthritis, rash and lupus nephritis level 3 .since my diagnosis I have had an acoustic
neuroma
and after surgery lost the hearing in my right ear , after a leak of CSF fluid a few years later I had my ear drum removed , 3 months after the surgery
Hi , I have had lupus SLE for 14 years I am now 56 .I have arthritis, rash and lupus nephritis level 3 .since my diagnosis I have had an acoustic
neuroma
and after surgery lost the hearing in my right ear , after a leak of CSF fluid a few years later I had my ear drum removed , 3 months after the surgery
Buffy14
in
LUPUS UK
8 years ago
Hot problem
In 1997 I had a
neuroma
partly removed from my spine NF2 but one of the side effects was loss of my sweat glands. I have to be very careful with my clothing and bedding, the amount of sweat and 'smells' is quite dramatic, and quite SMELLY!!.
In 1997 I had a
neuroma
partly removed from my spine NF2 but one of the side effects was loss of my sweat glands. I have to be very careful with my clothing and bedding, the amount of sweat and 'smells' is quite dramatic, and quite SMELLY!!.
Adlon57
in
Healthy Evidence
8 years ago
I'm New Here Too
I do have self-diagnosed Mortonâs
neuroma
in both feet though. My rheumatologist says the RA needs to be treated aggressively. Six months on HCQ has done nothing (other than reducing my RF and anti-CCP). I had to reduce my dose two months in as I was losing a lot of weight.
I do have self-diagnosed Mortonâs
neuroma
in both feet though. My rheumatologist says the RA needs to be treated aggressively. Six months on HCQ has done nothing (other than reducing my RF and anti-CCP). I had to reduce my dose two months in as I was losing a lot of weight.
Em13
in
NRAS
8 years ago
A bit of help?
A few weeks ago the Mortons
Neuroma
in foot was making life tricky. Now I too feel like I've been hit by a bus. Thxs for reading. Any wisdom gratefully received. J.
A few weeks ago the Mortons
Neuroma
in foot was making life tricky. Now I too feel like I've been hit by a bus. Thxs for reading. Any wisdom gratefully received. J.
Judigardener
in
PMRGCAuk
8 years ago
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