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Just been diagnosed.
Eventually I was referred to an ENT specialist and fillowing a hearing test then an MIR scan I was finally diagnosed with an acoustic
neuroma
. The idea now to to wait and see how it developes before taking any action.
Eventually I was referred to an ENT specialist and fillowing a hearing test then an MIR scan I was finally diagnosed with an acoustic
neuroma
. The idea now to to wait and see how it developes before taking any action.
robert77
in
Acoustic Neuroma Support
11 years ago
How did people cope when they were first told they have an Acoustic Neuroma?
2 weeks ago I was told that my loss of hearing was caused by an AN. I am waiting to find out how large it is and therefore what the solution may be. I know I need to know this before I can work out what to do next but at the moment my head is just not in a good place. It doesn't help that mum is going
2 weeks ago I was told that my loss of hearing was caused by an AN. I am waiting to find out how large it is and therefore what the solution may be. I know I need to know this before I can work out what to do next but at the moment my head is just not in a good place. It doesn't help that mum is going
purpleflamegirl
in
Acoustic Neuroma Support
11 years ago
shin splint, mortons neuroma, achilles and orthotics...
I have an old achilles tendon (tear) injury and a mortons
neuroma
(feels like a marble in the ball of your foot) and now a shin splint. I completed the week 4 runs and as luck would have it I got my specially made orthotics. However I did develop a shin splint in w4.
I have an old achilles tendon (tear) injury and a mortons
neuroma
(feels like a marble in the ball of your foot) and now a shin splint. I completed the week 4 runs and as luck would have it I got my specially made orthotics. However I did develop a shin splint in w4.
Oscarsno1
in
Couch to 5K
11 years ago
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Of all those with a returning Acoustic Neuroma, did anyone have symptoms or were they found on an MRI?
helgo4
in
Acoustic Neuroma Support
11 years ago
Has Anyone ever had an Acoustic Neuroma return.
Had surgery 16 yrs. ago by recently have had pain on that side of my head, especially behind my left ear and along the scar where they removed it. Just wondering as the Dr. told me that they removed it entirely and I would make medical history if it grew back. Thanks for your feed back.
Had surgery 16 yrs. ago by recently have had pain on that side of my head, especially behind my left ear and along the scar where they removed it. Just wondering as the Dr. told me that they removed it entirely and I would make medical history if it grew back. Thanks for your feed back.
helgo4
in
Acoustic Neuroma Support
11 years ago
Sad Face
Now im getting knee and lower back pain , plus a scan revieled i have a "morton
neuroma
" on left foot and have to have an operation sometime in next three months . I have forgotton what normal living is theses days. Sorry for whinge Angie xx xx xx
Now im getting knee and lower back pain , plus a scan revieled i have a "morton
neuroma
" on left foot and have to have an operation sometime in next three months . I have forgotton what normal living is theses days. Sorry for whinge Angie xx xx xx
minxy1960
in
NRAS
11 years ago
My Silver Anniversary
Hi everybody. I've just had my silver (25 years) anniversary of my surgery to remove three neuromas from the left side of my head. My op was carried out by Chris Adams at The Radcliffe Infirmary in 1987. I was in a pretty poor state for quite a while with head pain, loss of balance, total deafness
Hi everybody. I've just had my silver (25 years) anniversary of my surgery to remove three neuromas from the left side of my head. My op was carried out by Chris Adams at The Radcliffe Infirmary in 1987. I was in a pretty poor state for quite a while with head pain, loss of balance, total deafness
keithzx12r
in
Acoustic Neuroma Support
11 years ago
Hi has anyone found an alternative solution to hearing loss other than using a hearing aid?
I realise this is a completely different scenario but just wondered if anyone has had anything similar post acoustic
neuroma
surgery?
I realise this is a completely different scenario but just wondered if anyone has had anything similar post acoustic
neuroma
surgery?
Linzipops
in
Acoustic Neuroma Support
11 years ago
After surgery for an Acoustic Neuroma in June 2011, I was told that I had got a Facial Nerve Neuroma. Has anyone else had this experience?
Apparently 1:100 patients having this surgery are found to have Facial Nerve Neuromas. Sometimes it is not clear at MRI scan if the tumour derives from the Acoustic Nerve or the Facial Nerve as both may be involved. To preserve my face, the wonderful surgeon left some of the tumour, which seems to
Apparently 1:100 patients having this surgery are found to have Facial Nerve Neuromas. Sometimes it is not clear at MRI scan if the tumour derives from the Acoustic Nerve or the Facial Nerve as both may be involved. To preserve my face, the wonderful surgeon left some of the tumour, which seems to
AmSally
in
Acoustic Neuroma Support
12 years ago
The learning curve of a patient's mum
There followed an MRI scan and, a week later, the fateful words, ‘You’ve got a brain tumour called an acoustic
neuroma
. It’s benign but big and it needs removing immediately’.
There followed an MRI scan and, a week later, the fateful words, ‘You’ve got a brain tumour called an acoustic
neuroma
. It’s benign but big and it needs removing immediately’.
backstagemum
in
Acoustic Neuroma Support
12 years ago
Who or what is BANA?
BANA - The British Acoustic
Neuroma
Association was formed in April 1992 when a group of patients and carers were introduced to each other in a Nottingham Hotel conference room.
BANA - The British Acoustic
Neuroma
Association was formed in April 1992 when a group of patients and carers were introduced to each other in a Nottingham Hotel conference room.
Hidden
Administrator
in
Acoustic Neuroma Support
12 years ago
How do I learn to cope with the fatigue caused by my Acoustic Neuroma?
Hidden
Administrator
in
Acoustic Neuroma Support
12 years ago
A Blog on Blogs
Well, really, anything that relates to how Acoustic
Neuroma
affects your life. So, you can write about anything from how Acoustic
Neuroma
impacts your family life to the side-effects of certain drugs to how it makes you feel (whether emotionally or physically).
Well, really, anything that relates to how Acoustic
Neuroma
affects your life. So, you can write about anything from how Acoustic
Neuroma
impacts your family life to the side-effects of certain drugs to how it makes you feel (whether emotionally or physically).
Hidden
Administrator
in
Acoustic Neuroma Support
12 years ago
Information and Support
Basic information about Acoustic
Neuroma
can be found on the NHS Choices website (http://www.nhs.uk/Conditions/Acoustic-
neuroma
/Pages/Introduction.aspx) Information can also be found on the British Acoustic
Neuroma
Association (BANA) website (www.bana-uk.com) Becoming a member of BANA (£18
Basic information about Acoustic
Neuroma
can be found on the NHS Choices website (http://www.nhs.uk/Conditions/Acoustic-
neuroma
/Pages/Introduction.aspx) Information can also be found on the British Acoustic
Neuroma
Association (BANA) website (www.bana-uk.com) Becoming a member of BANA (£18
Hidden
Administrator
in
Acoustic Neuroma Support
12 years ago
Welcome Blog
The point of this community is to provide a space where you can share your experience, support one another, and become better informed about Acoustic
Neuroma
and other similar conditions.
The point of this community is to provide a space where you can share your experience, support one another, and become better informed about Acoustic
Neuroma
and other similar conditions.
Hidden
Administrator
in
Acoustic Neuroma Support
12 years ago
Hospital Today for CBT
Oh yeah I've just had a foot operation for Morton's
Neuroma
- 9 days in now, go to hospital to have bandages removed next Thursday. Tut Ta for now. Love and hugs, Kimbell
Oh yeah I've just had a foot operation for Morton's
Neuroma
- 9 days in now, go to hospital to have bandages removed next Thursday. Tut Ta for now. Love and hugs, Kimbell
kimbell
in
Fibromyalgia Action UK
12 years ago
Thank you
I recently had a scan on my toes as they were numb this result came back , I have a Mortons
Neuroma
. The doctor said the specialist will sort it out . So roll on the 17th . Thank you all for listening . All the best x
I recently had a scan on my toes as they were numb this result came back , I have a Mortons
Neuroma
. The doctor said the specialist will sort it out . So roll on the 17th . Thank you all for listening . All the best x
bradford
in
NRAS
12 years ago
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