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Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic
neuroma
surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience.
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic
neuroma
surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience.
domforr
in
Acoustic Neuroma Support
5 months ago
recently diagnosed with 3.5cm acoustic neuroma
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic
Neuroma
after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now.
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic
Neuroma
after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now.
Longtallsally22
in
Acoustic Neuroma Support
2 months ago
Cyst growing on what's left of the acoustic neuroma
My husband was diagnosed with an acoustic
neuroma
8 years ago, he had surgery 6 years ago, life has been living hell since. I didn't dream it would affect us so much long term.
My husband was diagnosed with an acoustic
neuroma
8 years ago, he had surgery 6 years ago, life has been living hell since. I didn't dream it would affect us so much long term.
StrugglingSpouse
in
Acoustic Neuroma Support
16 days ago
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How often do you have MRI scans?
I was diagnosed with a 5mm acoustic
neuroma
a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I had another MRI to check if the tumour has grown. It hasn't, it's the same size.
I was diagnosed with a 5mm acoustic
neuroma
a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I had another MRI to check if the tumour has grown. It hasn't, it's the same size.
Lemon00
in
Acoustic Neuroma Support
4 months ago
2 acoustic neuromas
Apparently the brain can compensation for a
neuroma
on one side but not if you have one on both sides. The deafness also becoming a real issue as hearing now almost gone on the right, still have some hearing in the left but not much. I won’t mention the tinnitus!!!! Many thanks
Apparently the brain can compensation for a
neuroma
on one side but not if you have one on both sides. The deafness also becoming a real issue as hearing now almost gone on the right, still have some hearing in the left but not much. I won’t mention the tinnitus!!!! Many thanks
Operalovers
in
Acoustic Neuroma Support
6 months ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic
Neuroma
in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc).
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic
Neuroma
in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc).
domforr
in
Acoustic Neuroma Support
6 months ago
Diagnosed today with an acoustic Neuroma.
I have just been told this morning that my MRI confirmed an acoustic
neuroma
. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
I have just been told this morning that my MRI confirmed an acoustic
neuroma
. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Reddington__
in
Acoustic Neuroma Support
9 months ago
Surgery or radiotheraphy?
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic
neuroma
in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment.
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic
neuroma
in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment.
Zhad
in
Acoustic Neuroma Support
5 months ago
Driving
How long does it take to return to driving after acoustic
neuroma
surgery? Any personal experiences?
How long does it take to return to driving after acoustic
neuroma
surgery? Any personal experiences?
Ursus_thibetanus
in
Acoustic Neuroma Support
4 days ago
Not sure what to do next
I rang the GP and spoke to yet another one who revealed the GP's think I might have an acoustic
neuroma
. She got me an urgent brain CT scan (not MRI) with and without contrast to check for lesions, stroke etc on account of the blackouts. It wasn't specifically looking for an acoustic
neuroma
.
I rang the GP and spoke to yet another one who revealed the GP's think I might have an acoustic
neuroma
. She got me an urgent brain CT scan (not MRI) with and without contrast to check for lesions, stroke etc on account of the blackouts. It wasn't specifically looking for an acoustic
neuroma
.
Sootymouse
in
Acoustic Neuroma Support
10 months ago
Severe lack of motivation
having developed Trigeminal Neuralgia in 2023 from the impact of my Acoustic
Neuroma
, I started Carbamazepine in Dec 2023. Although this has reduced headaches considerably I’m now left (6months on) with severe motivation issues. I just struggle to do anything other than respond.
having developed Trigeminal Neuralgia in 2023 from the impact of my Acoustic
Neuroma
, I started Carbamazepine in Dec 2023. Although this has reduced headaches considerably I’m now left (6months on) with severe motivation issues. I just struggle to do anything other than respond.
GGourmet
in
Epilepsy Action
3 months ago
Dull pain back of head and neck.
Doctor referred him on the 2 week urgent referral for suspected acoustic
neuroma
. Been to ENT this week, now waiting for MRI and hearing test. Does anyone else suffer from the fullness feeling and tiredness all the time?
Doctor referred him on the 2 week urgent referral for suspected acoustic
neuroma
. Been to ENT this week, now waiting for MRI and hearing test. Does anyone else suffer from the fullness feeling and tiredness all the time?
Donners2
in
Acoustic Neuroma Support
11 months ago
Dentistry.
I have PMR and have also been treated for Acoustic
Neuroma
by Gamma Knife surgery.The Acoustic
Neuroma
is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw).
I have PMR and have also been treated for Acoustic
Neuroma
by Gamma Knife surgery.The Acoustic
Neuroma
is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw).
Busyrobyn
in
PMRGCAuk
8 months ago
Anesthesia and PD
I’m planning on having Morton’s
neuroma
surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility.
I’m planning on having Morton’s
neuroma
surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility.
Ob6842
in
Cure Parkinson's
6 months ago
Diagnosed with a Large AN (4.6 cm)
I have been diagnosed with a large acoustic
neuroma
(4.6 cm), and unfortunately, surgery is the only option for a tumor of this size. Although I don’t experience balance issues, vertigo, or tinnitus, I struggle with brain fog and feel extremely depressed.
I have been diagnosed with a large acoustic
neuroma
(4.6 cm), and unfortunately, surgery is the only option for a tumor of this size. Although I don’t experience balance issues, vertigo, or tinnitus, I struggle with brain fog and feel extremely depressed.
Ursus_thibetanus
in
Acoustic Neuroma Support
15 days ago
Hearing loss
My upcoming AN surgery will result in permanent hearing loss in my left ear. What is the experience of living with hearing in only one ear, and has anyone had cochlear implants? How effective are they?
My upcoming AN surgery will result in permanent hearing loss in my left ear. What is the experience of living with hearing in only one ear, and has anyone had cochlear implants? How effective are they?
Ursus_thibetanus
in
Acoustic Neuroma Support
15 days ago
waiting
I was referred 2 weeks ago by A&E who picked up my
Neuroma
on a scan. The waiting is awful😞
I was referred 2 weeks ago by A&E who picked up my
Neuroma
on a scan. The waiting is awful😞
JoanneSP
in
Acoustic Neuroma Support
8 months ago
Cutie Face Number Two
MistyXx P.s, good news at last, after 17 months of waiting i've got a date for my foot op, morton's
neuroma
removal!!. 4/6 , not long at all. Its a months recovery on an improving scale.
MistyXx P.s, good news at last, after 17 months of waiting i've got a date for my foot op, morton's
neuroma
removal!!. 4/6 , not long at all. Its a months recovery on an improving scale.
misty14
in
LUPUS UK
4 months ago
I have sleeping 14 hours per day. After one hour awake, pressure pains in head and fall asleep sitting up. What is wrong?
I had cyber knife radiation to reduce acoustic
neuroma
in head inside lining of nerve leading to hearing, eyesite and and voice.
I had cyber knife radiation to reduce acoustic
neuroma
in head inside lining of nerve leading to hearing, eyesite and and voice.
Rhm09181980
in
Acoustic Neuroma Support
10 months ago
Help please in results interpretation of advanced function thyroid test
0-115 TPO Ab. 10. 0-34 T3. 2.59. 2.02-4.43 T4. 0.99. 0.93-1.71 TSH. 0.825. 0.27-4.2 Ferritin. 27.2. 11-306 B12. 1000. 196-771 (I self inject- peripheral
neuroma
0-115 TPO Ab. 10. 0-34 T3. 2.59. 2.02-4.43 T4. 0.99. 0.93-1.71 TSH. 0.825. 0.27-4.2 Ferritin. 27.2. 11-306 B12. 1000. 196-771 (I self inject- peripheral
neuroma
Libuse
in
Thyroid UK
5 months ago
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