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Diagnosed today with an acoustic Neuroma.
I have just been told this morning that my MRI confirmed an acoustic
neuroma
. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
I have just been told this morning that my MRI confirmed an acoustic
neuroma
. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Reddington__
in
Acoustic Neuroma Support
4 months ago
2 acoustic neuromas
Apparently the brain can compensation for a
neuroma
on one side but not if you have one on both sides. The deafness also becoming a real issue as hearing now almost gone on the right, still have some hearing in the left but not much. I won’t mention the tinnitus!!!! Many thanks
Apparently the brain can compensation for a
neuroma
on one side but not if you have one on both sides. The deafness also becoming a real issue as hearing now almost gone on the right, still have some hearing in the left but not much. I won’t mention the tinnitus!!!! Many thanks
Operalovers
in
Acoustic Neuroma Support
1 month ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic
Neuroma
in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc).
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic
Neuroma
in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc).
domforr
in
Acoustic Neuroma Support
1 month ago
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Not sure what to do next
I rang the GP and spoke to yet another one who revealed the GP's think I might have an acoustic
neuroma
. She got me an urgent brain CT scan (not MRI) with and without contrast to check for lesions, stroke etc on account of the blackouts. It wasn't specifically looking for an acoustic
neuroma
.
I rang the GP and spoke to yet another one who revealed the GP's think I might have an acoustic
neuroma
. She got me an urgent brain CT scan (not MRI) with and without contrast to check for lesions, stroke etc on account of the blackouts. It wasn't specifically looking for an acoustic
neuroma
.
Sootymouse
in
Acoustic Neuroma Support
4 months ago
Dull pain back of head and neck.
Doctor referred him on the 2 week urgent referral for suspected acoustic
neuroma
. Been to ENT this week, now waiting for MRI and hearing test. Does anyone else suffer from the fullness feeling and tiredness all the time?
Doctor referred him on the 2 week urgent referral for suspected acoustic
neuroma
. Been to ENT this week, now waiting for MRI and hearing test. Does anyone else suffer from the fullness feeling and tiredness all the time?
Donners2
in
Acoustic Neuroma Support
6 months ago
Acoustic neuroma
I developed acoustic aroma about a year and a half ago. All of a sudden, my right ear felt clogged and I started to develop tinnitus. I am really upset because I don’t know what I’m in for. The worst part of this is the tinnitus. I wish that it would just go away and it would be cure for it. It’s loud
I developed acoustic aroma about a year and a half ago. All of a sudden, my right ear felt clogged and I started to develop tinnitus. I am really upset because I don’t know what I’m in for. The worst part of this is the tinnitus. I wish that it would just go away and it would be cure for it. It’s loud
Jrnyfn
in
Acoustic Neuroma Support
10 months ago
Hearing Aids?
Hi, My mum had brain surgery back in 1991 for a schwannoma/acoustic
neuroma
. Her hearing was affected but as she's got older her hearing in that ear has significantly deteriorated.
Hi, My mum had brain surgery back in 1991 for a schwannoma/acoustic
neuroma
. Her hearing was affected but as she's got older her hearing in that ear has significantly deteriorated.
Cocacolla
in
Acoustic Neuroma Support
9 months ago
Dentistry.
I have PMR and have also been treated for Acoustic
Neuroma
by Gamma Knife surgery.The Acoustic
Neuroma
is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw).
I have PMR and have also been treated for Acoustic
Neuroma
by Gamma Knife surgery.The Acoustic
Neuroma
is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw).
Busyrobyn
in
PMRGCAuk
3 months ago
Acoustic Neuroma - MRI Report After 1.5y of Surgery
Could you please share your experience about acoustic
, anyone had this kind of MRI result after surgery ?
Could you please share your experience about acoustic
, anyone had this kind of MRI result after surgery ?
siva_s
in
Acoustic Neuroma Support
9 months ago
acoustic neuroma
I was diagnosed 18 months ago and the size was 0.07 cm. Stayed that size but last mri it’s grown to 1.2 cm. Have another appointment at Mayo tomorrow
I was diagnosed 18 months ago and the size was 0.07 cm. Stayed that size but last mri it’s grown to 1.2 cm. Have another appointment at Mayo tomorrow
Poncegirl
in
Acoustic Neuroma Support
11 months ago
Susan
My husband has been diagnosed with an acoustic
neuroma
, he has to have surgery because it’s too big for radio therapy .I’m so worried about how he’ll be after the operation and whether he’ll return to full health?
My husband has been diagnosed with an acoustic
neuroma
, he has to have surgery because it’s too big for radio therapy .I’m so worried about how he’ll be after the operation and whether he’ll return to full health?
Healthcare23
in
Acoustic Neuroma Support
10 months ago
I have sleeping 14 hours per day. After one hour awake, pressure pains in head and fall asleep sitting up. What is wrong?
I had cyber knife radiation to reduce acoustic
neuroma
in head inside lining of nerve leading to hearing, eyesite and and voice.
I had cyber knife radiation to reduce acoustic
neuroma
in head inside lining of nerve leading to hearing, eyesite and and voice.
Rhm09181980
in
Acoustic Neuroma Support
5 months ago
waiting
I was referred 2 weeks ago by A&E who picked up my
Neuroma
on a scan. The waiting is awful😞
I was referred 2 weeks ago by A&E who picked up my
Neuroma
on a scan. The waiting is awful😞
JoanneSP
in
Acoustic Neuroma Support
3 months ago
Anesthesia and PD
I’m planning on having Morton’s
neuroma
surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility.
I’m planning on having Morton’s
neuroma
surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility.
Ob6842
in
Cure Parkinson's
14 days ago
Fined for my Accoustic Neuroma
Hi, Following a recent MRI during which my AN was shown to have increased in size, I have also noticed a change in my symptoms. Although unilateral hearing loss and tinnitus have stayed the same (at least as far as I can notice), I do notice an increased unsteadiness when walking around for some time
Hi, Following a recent MRI during which my AN was shown to have increased in size, I have also noticed a change in my symptoms. Although unilateral hearing loss and tinnitus have stayed the same (at least as far as I can notice), I do notice an increased unsteadiness when walking around for some time
roland0302
in
Acoustic Neuroma Support
3 months ago
confused
I have this loud noise in my head from my acoustic
neuroma
and sometimes, s as Jen people are talking , I can’t hear them, especially if there’s background noise and I get confused and agitated . I can’t say anything, because they are strangers and can’t see that I’m struggling.
I have this loud noise in my head from my acoustic
neuroma
and sometimes, s as Jen people are talking , I can’t hear them, especially if there’s background noise and I get confused and agitated . I can’t say anything, because they are strangers and can’t see that I’m struggling.
Zombi4real
in
The Brain Tumour Charity
6 months ago
Strange sounds 10 years post-op
Ive had vestibular schwannoma /acoustic
neuroma
removed in January 2013. Until now tinnitus has always been there but suddenly more persists and occasionally the whooshing sounds.
Ive had vestibular schwannoma /acoustic
neuroma
removed in January 2013. Until now tinnitus has always been there but suddenly more persists and occasionally the whooshing sounds.
Wounded101
in
Acoustic Neuroma Support
1 year ago
PD and orthopedic surgeries
I’m debating having a partial knee replacement (for patella femoral arthritis) AND/OR Morton’s
neuroma
surgery. I really need both, but am very concerned about not being able to exercise, the way I usually do, for at least a few months.
I’m debating having a partial knee replacement (for patella femoral arthritis) AND/OR Morton’s
neuroma
surgery. I really need both, but am very concerned about not being able to exercise, the way I usually do, for at least a few months.
Ob6842
in
Cure Parkinson's
5 months ago
Hello< I have just been diagnosed with a AN measuring 14mm, I am seeing the consultant on 8th Feb but it seems I am on the watch and wait!
The whole story, the truth and nothing but the truth! I developed Tinnitus mildly I'd say about six months ago but I have always had neck issues, been having massage to relieve aches but now joining up the dots, this seems to be linked to the AN. Back in November 2022 I took part in a day of scanning
The whole story, the truth and nothing but the truth! I developed Tinnitus mildly I'd say about six months ago but I have always had neck issues, been having massage to relieve aches but now joining up the dots, this seems to be linked to the AN. Back in November 2022 I took part in a day of scanning
Joker2768
in
Acoustic Neuroma Support
3 months ago
Acoustic Neuroma
Can you please share your experience with small acoustic
neuroma
? Also, What treatment you went with? I am really afraid that doctor will choose radiation.
Can you please share your experience with small acoustic
neuroma
? Also, What treatment you went with? I am really afraid that doctor will choose radiation.
Jowita1991
in
Acoustic Neuroma Support
10 months ago
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