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Getting 2024 off to the right start
Hello everyone, Some of the activity on our NRAS HealthUnlocked platform has recently caused us distress at NRAS and as we are still at the start of a new year, I thought I would write a post to remind us all of the purpose of this forum and press re-set. I recall clearly the first time the original
Hello everyone, Some of the activity on our NRAS HealthUnlocked platform has recently caused us distress at NRAS and as we are still at the start of a new year, I thought I would write a post to remind us all of the purpose of this forum and press re-set. I recall clearly the first time the original
Ailsa-NRAS
NRAS
in
NRAS
7 months ago
deranged LFT and Gallbladder perforation
hi, hoping someone may have experience like mine. I had a perforated gallbladder whilst in hospital with Sepsis back in November. Because of my weight and existing issue the team didn’t want to operate as keyhole wasn’t an option so would have involved open surgery. So I was put on antibiotics for 6
hi, hoping someone may have experience like mine. I had a perforated gallbladder whilst in hospital with Sepsis back in November. Because of my weight and existing issue the team didn’t want to operate as keyhole wasn’t an option so would have involved open surgery. So I was put on antibiotics for 6
Stonyd
in
British Liver Trust
7 months ago
Pulsing in my head
Hello I went to see my doctor a year ago about this pulsing in my head. I was told I had wax in my ears so I went through the routine with the olive oil but that didn't work. And now I'm trying to cope I'm frustrated as it effects me when I'm trying to sleep also I can't hear in social situations. I
Hello I went to see my doctor a year ago about this pulsing in my head. I was told I had wax in my ears so I went through the routine with the olive oil but that didn't work. And now I'm trying to cope I'm frustrated as it effects me when I'm trying to sleep also I can't hear in social situations. I
Sweett67
in
Tinnitus UK
7 months ago
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Eye injections and blood thinners
I've been getting injections for 5 years now. Now I am faced with eliquis. I had a pulmonary embolism and now have to take blood thinners. I don't know what to do.
I've been getting injections for 5 years now. Now I am faced with eliquis. I had a pulmonary embolism and now have to take blood thinners. I don't know what to do.
Linduh
in
Macular Society
7 months ago
Vestibular migraine
Hi, I am at my wits end, i have had migraine variant balance disorder for 6 years now i have been on propanolol, pizotifen, nortriptyline and now been advised to start candesarten which i am a little reluctant to try. I constantly for the past 6 years have battled vertigo every single day and im exhausted
Hi, I am at my wits end, i have had migraine variant balance disorder for 6 years now i have been on propanolol, pizotifen, nortriptyline and now been advised to start candesarten which i am a little reluctant to try. I constantly for the past 6 years have battled vertigo every single day and im exhausted
1567
in
National Migraine Centre
7 months ago
Riboflavin (b2) supplementation is a no-brainer for Parkinsons
Riboflavin (b2) is a complete no-brainer. 0 side effects and dirt cheap. Especially if your second and third toes any toenails are full of fungus/athletes foot. The Chinese believe that your second and third toe is a place where toxins leave the body. The Chinese believe PD is “stuck” in fight or
Riboflavin (b2) is a complete no-brainer. 0 side effects and dirt cheap. Especially if your second and third toes any toenails are full of fungus/athletes foot. The Chinese believe that your second and third toe is a place where toxins leave the body. The Chinese believe PD is “stuck” in fight or
38yroldmale
in
Cure Parkinson's
7 months ago
Are we eating enough protein?
Protein Most people do not consume enough protein. As I discussed in episode #202, protein consumption is a variable I’ve become increasingly attuned to with my patients. The more I research this topic, the more I find that the RDA (recommended daily allowance) of 0.8 grams per kilogram of body weight
Protein Most people do not consume enough protein. As I discussed in episode #202, protein consumption is a variable I’ve become increasingly attuned to with my patients. The more I research this topic, the more I find that the RDA (recommended daily allowance) of 0.8 grams per kilogram of body weight
No_stone_unturned
in
Advanced Prostate Cancer
7 months ago
DVLA: taking the doubt out of notifying them?
Having read countless posts from individuals receiving a glaucoma diagnosis and not knowing whether they need to inform DVLA, I have wondered why Consultants aren’t required to shove a DVLA notification form firmly into your hand if you have a diagnosis of glaucoma in both eyes. It would take the confusion
Having read countless posts from individuals receiving a glaucoma diagnosis and not knowing whether they need to inform DVLA, I have wondered why Consultants aren’t required to shove a DVLA notification form firmly into your hand if you have a diagnosis of glaucoma in both eyes. It would take the confusion
Beecalmed
in
Glaucoma UK
7 months ago
I make trying to suppress EBV a leg of my supplement strategy.
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
Bolt_Upright
in
Cure Parkinson's
7 months ago
asking for advice
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
Imakelace
in
Pelvic Pain Support Network
7 months ago
mri without contrast
Hi everyone I was wondering if anyone could advise me about what to do going forward. In February 2023 I woke up one morning and I felt like the whole room was spinning and I was struggling to hear out of my left ear. This happened for over a week. I went to the doctors and they prescribed some antihistamine
Hi everyone I was wondering if anyone could advise me about what to do going forward. In February 2023 I woke up one morning and I felt like the whole room was spinning and I was struggling to hear out of my left ear. This happened for over a week. I went to the doctors and they prescribed some antihistamine
Hidden
in
Acoustic Neuroma Support
7 months ago
Triggers for AF
I have been getting AFIB 30% of the time when i was wearing a 14 day heart monitor.I was already taking Apixaban 5mg and Soltalol 40mg twice a day. I had Pulmonary embolisms in March 2023 from a DVT in my lungs. I am 52 years old and had good fitness until the DVT struck. I had been drinking red wine
I have been getting AFIB 30% of the time when i was wearing a 14 day heart monitor.I was already taking Apixaban 5mg and Soltalol 40mg twice a day. I had Pulmonary embolisms in March 2023 from a DVT in my lungs. I am 52 years old and had good fitness until the DVT struck. I had been drinking red wine
RagdollRagdoll
in
Atrial Fibrillation Support
7 months ago
Egg Donor Transfer
Hi We have selected our egg donor!! We are using frozen eggs currently in the bank at our clinic. Well, they are in their UK branch and we are using a clinic in Dublin, so the the eggs need to be transported over. Prior to transferring, our clinic has recommended me having an Endo Trio test, which
Hi We have selected our egg donor!! We are using frozen eggs currently in the bank at our clinic. Well, they are in their UK branch and we are using a clinic in Dublin, so the the eggs need to be transported over. Prior to transferring, our clinic has recommended me having an Endo Trio test, which
Mrsjaytee
in
Fertility Network UK
7 months ago
wheat in cosmetics
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
Veggie2
in
Gluten Free Guerrillas
7 months ago
High LFT results
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
Dexter786
in
British Liver Trust
7 months ago
Pip help
Hi lovely people I have a question i am waiting on a decision for pip and have just found out my Dr has diagnosed me with fibromyalgia amongst other ting do I need to tell pip now This is me not my husband 🫣 Thanks in advance ☺️
Hi lovely people I have a question i am waiting on a decision for pip and have just found out my Dr has diagnosed me with fibromyalgia amongst other ting do I need to tell pip now This is me not my husband 🫣 Thanks in advance ☺️
Suzeinwoody
in
Fibromyalgia Action UK
3 months ago
INR control
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
mully
in
Hughes Syndrome APS Forum
7 months ago
Dosage for gabapentin enacarbil ( also known as horizant).
I have been on gabapentin neurontin for several months but I read that on the Mayo website that the time release version (horizant) is better suited for treating RLS. I currently take 1200 mg of gabapentin neurontin in two doses at 7 and bedtime. I have now convinced my doctor to prescribe the horizant
I have been on gabapentin neurontin for several months but I read that on the Mayo website that the time release version (horizant) is better suited for treating RLS. I currently take 1200 mg of gabapentin neurontin in two doses at 7 and bedtime. I have now convinced my doctor to prescribe the horizant
jinolke
in
Restless Legs Syndrome
7 months ago
unknown
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
Mystery20
in
MY SKIN
7 months ago
Rituximab experience?
Hi all. I have had large vessel vasculitis for over three years which, despite several different treatments, is proving difficult to control. An FDG PET CT scan last November showed some inflammation in all areas of my aorta still. I have just started Rituximab infusions. This has made me feel even more
Hi all. I have had large vessel vasculitis for over three years which, despite several different treatments, is proving difficult to control. An FDG PET CT scan last November showed some inflammation in all areas of my aorta still. I have just started Rituximab infusions. This has made me feel even more
Kafkaontheshore
in
PMRGCAuk
7 months ago
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