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Personal Sleep PR
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
WideBody
in
Restless Legs Syndrome
10 months ago
Scared my AFib will come back due to very nasty cough.
i had an Ablation in September and have developed this horrendous cough, that’s causing me to nearly throw up. My AFib started in 2014, when I had a nasty coughing virus, so I’m scared this coughing virus will bring it back. This one seems much worse. Has anyone else had this horrible cough. ? Any tips
i had an Ablation in September and have developed this horrendous cough, that’s causing me to nearly throw up. My AFib started in 2014, when I had a nasty coughing virus, so I’m scared this coughing virus will bring it back. This one seems much worse. Has anyone else had this horrible cough. ? Any tips
Sixtychick
in
AF Association
6 months ago
Hepatitis B
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
HepBHelp
in
British Liver Trust
10 months ago
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Restarting RA meds after having Covid
Hi allI had Covid and took antivirals. I tested positive on the 12th October and first tested negative on the 17th October. The nurse said I can have my Tocilizimab injection now. I am just questioning if it's too soon. I have a lot of catarrh it is clear, no infection. I am also extremely tired, getting
Hi allI had Covid and took antivirals. I tested positive on the 12th October and first tested negative on the 17th October. The nurse said I can have my Tocilizimab injection now. I am just questioning if it's too soon. I have a lot of catarrh it is clear, no infection. I am also extremely tired, getting
Mouseling
in
NRAS
9 months ago
Hanging on
Remarkably mum is still hanging on through sheer grit we think.She's very weak and frail, had another couple of falls. Been in hospital with pneumonia before xmas and had pneumonia again 2 weeks ago. The care home are great but the frustration is the loss of speech for over 2 years now, no way to communicate
Remarkably mum is still hanging on through sheer grit we think.She's very weak and frail, had another couple of falls. Been in hospital with pneumonia before xmas and had pneumonia again 2 weeks ago. The care home are great but the frustration is the loss of speech for over 2 years now, no way to communicate
MRSYafffle
in
PSP Association
6 months ago
Covid - Beware Getting Treatment - Don’t Test Positive on a Friday - Some Answers
Well I said I would update you all regarding the ordeal I had had regarding my previous posts on this subject. Don’t want to bore you all but some may be interested in what I have managed to find out. I laid out to the NHS what I needed answers to and what they were doing about it to prevent it happening
Well I said I would update you all regarding the ordeal I had had regarding my previous posts on this subject. Don’t want to bore you all but some may be interested in what I have managed to find out. I laid out to the NHS what I needed answers to and what they were doing about it to prevent it happening
Investigator1
in
Vasculitis UK
9 months ago
DBS scars after one week
Hi everyone. Here’s how it looks after a week. I look a bit startled in this don’t I ? Probably astonished that the sun is shining in the U.K.
Hi everyone. Here’s how it looks after a week. I look a bit startled in this don’t I ? Probably astonished that the sun is shining in the U.K.
jeeves19
in
Cure Parkinson's
11 months ago
Effect of Covid on Platelets
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
AnneMargaretMary
in
MPN Voice
9 months ago
Heart pacemaker and DBS
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments.
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments.
surdug1
in
Cure Parkinson's
11 months ago
Thoughts on Lignosus
Hello, I have just been in hospital for a week with a bad case of pneumonia, which came out of nowhere. I am only 44 and have no history of respiratory problems. The CT scan also showed mild bronchiectasis, which I am now finding out lots more about thanks to forums like this.I am now being bombarded
Hello, I have just been in hospital for a week with a bad case of pneumonia, which came out of nowhere. I am only 44 and have no history of respiratory problems. The CT scan also showed mild bronchiectasis, which I am now finding out lots more about thanks to forums like this.I am now being bombarded
PuzzlePuff
in
Lung Conditions Community Forum
6 months ago
Home now
Hi I would like to share what I've encountered the last 6 months and would love some feedback from anyone I fell ill back in late June 23 It seemed like a cold or flu coming on which turned into pneumonia in both lungs followed by a anti resistant bacterial infection baumanni that led to ards sepsis
Hi I would like to share what I've encountered the last 6 months and would love some feedback from anyone I fell ill back in late June 23 It seemed like a cold or flu coming on which turned into pneumonia in both lungs followed by a anti resistant bacterial infection baumanni that led to ards sepsis
Gl76
in
ICUsteps
6 months ago
mixing meds
if my husband and i have a cold--virus temperature we take lemsips xxx
if my husband and i have a cold--virus temperature we take lemsips xxx
Tut7iFru7i
in
AF Association
6 months ago
Online Ordering of COVID LFTs to Stop in November
COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if the pharmacy chooses to sign up for the service from November 6th. From this date LFTs will no longer be available to order online or through the NHS 119 service.
COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if the pharmacy chooses to sign up for the service from November 6th. From this date LFTs will no longer be available to order online or through the NHS 119 service.
MickUK
in
CLL Support
9 months ago
PMR & COVID Vaccine Link?
In another thread which I began on a different subject, the possibility of a link between PMR and COVID vaccine came up. In that thread, for the first time I saw something other than idle speculation that the vaccine and PMR might be l inked: [i]A study published[/i][u][i] in the journal Rheumatology
In another thread which I began on a different subject, the possibility of a link between PMR and COVID vaccine came up. In that thread, for the first time I saw something other than idle speculation that the vaccine and PMR might be l inked: [i]A study published[/i][u][i] in the journal Rheumatology
Mansplainer101
in
PMRGCAuk
9 months ago
blood test whilst with a cold?
due for a blood test later today, which I would normally have before my Rheumy visit (scheduled for next week) Come down with a blooming cold, started a few days ago - I’ve been reasonably lucky to have by passed most doing the rounds of our office 😬 - just done a COVID test to make sure and it’s come
due for a blood test later today, which I would normally have before my Rheumy visit (scheduled for next week) Come down with a blooming cold, started a few days ago - I’ve been reasonably lucky to have by passed most doing the rounds of our office 😬 - just done a COVID test to make sure and it’s come
Cfmad298601
in
PMRGCAuk
9 months ago
Sharing my experience of having the flu with Parkinson's...
Hi everyone. I just wanted to share my experience of combining a severe flu with my Parkinson's symptoms. I've had Parkinson's for six years and I'm generally doing relatively well. But recently, I caught a severe flu while traveling in Italy with my wife and it made my symptoms much worse, with massive
Hi everyone. I just wanted to share my experience of combining a severe flu with my Parkinson's symptoms. I've had Parkinson's for six years and I'm generally doing relatively well. But recently, I caught a severe flu while traveling in Italy with my wife and it made my symptoms much worse, with massive
Michel0220
in
Cure Parkinson's
6 months ago
chest infections ATM
Hope all my lung buddies are well atm. There are a-lot of respiratory bugs around at the moment. The hospitals are struggling. Please take extra care not to get near anyone with cold or flu symptoms.
Hope all my lung buddies are well atm. There are a-lot of respiratory bugs around at the moment. The hospitals are struggling. Please take extra care not to get near anyone with cold or flu symptoms.
Kristicats
in
Lung Conditions Community Forum
6 months ago
My GCA Update
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
Lenore58
in
PMRGCAuk
9 months ago
Garlic and Autoimmune
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
Thick_Blood
in
Hughes Syndrome APS Forum
10 months ago
Pending Hysterectomy Advice
Hi everyone, I’m feeling anxious to write here, it’s only tonight I thought maybe something like this might help, alongside those who know and are experiencing the same as me. I’m due to undergo surgery for a hysterectomy in December, and am now starting to feel incredibly anxious. Sorry for the essay
Hi everyone, I’m feeling anxious to write here, it’s only tonight I thought maybe something like this might help, alongside those who know and are experiencing the same as me. I’m due to undergo surgery for a hysterectomy in December, and am now starting to feel incredibly anxious. Sorry for the essay
BD2RE
in
Endometriosis UK
9 months ago
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