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Personal insights into late stage PD thoughts
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
beehive23
in
Cure Parkinson's
10 months ago
The RLS nightmare
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
Miloboy23
in
Restless Legs Syndrome
7 months ago
covid and pred
good morning Angels, It seems I have covid!! It’s my first time, what do I do re pred? More?
good morning Angels, It seems I have covid!! It’s my first time, what do I do re pred? More?
Alazarin
in
PMRGCAuk
8 months ago
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Glandular Fever virus and PMR?
Hello everyone, Does anyone know if the Glandular Fever virus could be linked with PMR? I contracted GF and Hepatitis B of the Liver in 2005, it took me 3 years to get over it and live my life normally, I took no drugs, it really was a case of rest and gentle exercise, the Drs warned me if I didn't
Hello everyone, Does anyone know if the Glandular Fever virus could be linked with PMR? I contracted GF and Hepatitis B of the Liver in 2005, it took me 3 years to get over it and live my life normally, I took no drugs, it really was a case of rest and gentle exercise, the Drs warned me if I didn't
MalloryMoss
in
PMRGCAuk
9 months ago
Shingles vaccine
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
Gilliancheche
in
NRAS
1 year ago
Tired Tavern - Discord server for people with CFS/ME and Long Covid
Hi guys, Just wanted to say that our CFS/ME and Long Covid Discord server has been up and running for two weeks now and we're close to 150 members. We're a very welcoming community that helps one another by sharing experiences, comfort and understanding. We also have server and community events coming
Hi guys, Just wanted to say that our CFS/ME and Long Covid Discord server has been up and running for two weeks now and we're close to 150 members. We're a very welcoming community that helps one another by sharing experiences, comfort and understanding. We also have server and community events coming
TiredTavern
in
Myalgic Encephalomyelitis Community
8 months ago
Hope at last
Hi well after five years of suffering with the most intense burning, agitation, painful genitalia, lack of sleep I finally have a diagnosis of neuropathy. I was referred to a Gynaecologist and after a month received a letter saying there would be a two year wait just to be seen. We decided that I should
Hi well after five years of suffering with the most intense burning, agitation, painful genitalia, lack of sleep I finally have a diagnosis of neuropathy. I was referred to a Gynaecologist and after a month received a letter saying there would be a two year wait just to be seen. We decided that I should
CecilyParsley
in
Pelvic Pain Support Network
1 year ago
Pneumonia vaccination
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Elispeth
in
PMRGCAuk
9 months ago
RA complicated by arthritis in knees
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Mama-K
in
NRAS
8 months ago
Shingles
I have CFS/ME, Fibromyalgia etcMy previous doctor from when I moved new what I had etc. I have had shingles maybe three times. But I can't understand why they have message my husband, who is younger then me and as diabetes for the first time for a shingles injections and he as never had shingles? Any
I have CFS/ME, Fibromyalgia etcMy previous doctor from when I moved new what I had etc. I have had shingles maybe three times. But I can't understand why they have message my husband, who is younger then me and as diabetes for the first time for a shingles injections and he as never had shingles? Any
sharron1
in
Fibromyalgia Action UK
10 months ago
first time covid - symptoms expectation
Hello fellow RA warriors, I have been very careful since the start of the covid era - very limited outings/socializing, always mask up when out, no more gym exercise classes. I decided to enjoy the holiday a little bit more this year - dined out with a few family members in a crowded and popular restaurant
Hello fellow RA warriors, I have been very careful since the start of the covid era - very limited outings/socializing, always mask up when out, no more gym exercise classes. I decided to enjoy the holiday a little bit more this year - dined out with a few family members in a crowded and popular restaurant
Mymymy
in
NRAS
8 months ago
Ultralow biomass biome - EMMA result pre-FET
Hi friends, Thanks to everyone who posts in this forum. I've found it so helpful. I've just received my EMMA test result, which has come back as "ULTRALOW BIOMASS BIOME". I previously had 63% lactobacillus and 29% gardnerella. I did the antibiotic followed by two rounds of probiotics. My doctor
Hi friends, Thanks to everyone who posts in this forum. I've found it so helpful. I've just received my EMMA test result, which has come back as "ULTRALOW BIOMASS BIOME". I previously had 63% lactobacillus and 29% gardnerella. I did the antibiotic followed by two rounds of probiotics. My doctor
LondonSarah
in
Fertility Network UK
7 months ago
Therapulse - Do I really need to scale up slowly the way the maker says to?
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
UsableThought
in
Restless Legs Syndrome
8 months ago
Covid testing
Does anybody know if home carers are still expected to do Covid tests? I have a new carer and when she came today she was coughing a lot. I asked her when she had last tested and she said she hasn’t tested since January of this year.
Does anybody know if home carers are still expected to do Covid tests? I have a new carer and when she came today she was coughing a lot. I asked her when she had last tested and she said she hasn’t tested since January of this year.
thelmar
in
NRAS
8 months ago
adrenals
please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,upset stomach,lost weight ,waking up after 4 hours sleep ,anxiety of the scale.from July till October tapered down from 6mg to 4.5 finished 28 October,stayed there to see how I was , I wasn’t feeling brilliant but I know I
please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,upset stomach,lost weight ,waking up after 4 hours sleep ,anxiety of the scale.from July till October tapered down from 6mg to 4.5 finished 28 October,stayed there to see how I was , I wasn’t feeling brilliant but I know I
Amilee
in
PMRGCAuk
10 months ago
Chillblains
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
GerryPL
in
CLL Support
10 months ago
Review of medication at GP.
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
jhorsf
in
Lung Conditions Community Forum
4 months ago
Constant lower Back/Left Bum cheek pain
Hi All,I have adenomyosis and I have been having constant and chronic lower back pain and pain on my left bum cheek for 9 months. Does anyone else with adenomyosis have this problem? I've had a laparoscopy and endo wasn't found but I wouldn't be surprised if I have it too. It's tormenting me and hugely
Hi All,I have adenomyosis and I have been having constant and chronic lower back pain and pain on my left bum cheek for 9 months. Does anyone else with adenomyosis have this problem? I've had a laparoscopy and endo wasn't found but I wouldn't be surprised if I have it too. It's tormenting me and hugely
ABFr23
in
Endometriosis UK
8 months ago
Disability Allowance - Any Advice Please
Hi everybody. At a recent trip to hospital for my usual check ups a question was posed by one of the medical staff. “Are you getting Disability Allowance”? No I answered! “Well you should have a look at that” they replied “especially if you have had to stop work” So that got me thinking. I am 62, I
Hi everybody. At a recent trip to hospital for my usual check ups a question was posed by one of the medical staff. “Are you getting Disability Allowance”? No I answered! “Well you should have a look at that” they replied “especially if you have had to stop work” So that got me thinking. I am 62, I
Investigator1
in
Vasculitis UK
8 months ago
B1 Therapy #Case 1 * Manuela Correia
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
Markbit
in
Cure Parkinson's
10 months ago
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