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Off on all meds
ITS GOING TI BE 2 YEARS I AM OFF ALL TYPE OF MEDS FOR MY RA.DUE TO ALL KIND OF INFECTIONS.I MUST SAY I HAVE BEING COPING VERY WELL ONCE IN A WILE MY LEFT KNEE GETS SWOLLEN BUT U PUT ICE PADS AND OFF AGAIN.I AM 69 YEARS OLD AND HAVE RA AND SJOGRENS SINCE 40.I HAVE HAD BREAST CANCER LUNG FIBROSIS I SUFFER
ITS GOING TI BE 2 YEARS I AM OFF ALL TYPE OF MEDS FOR MY RA.DUE TO ALL KIND OF INFECTIONS.I MUST SAY I HAVE BEING COPING VERY WELL ONCE IN A WILE MY LEFT KNEE GETS SWOLLEN BUT U PUT ICE PADS AND OFF AGAIN.I AM 69 YEARS OLD AND HAVE RA AND SJOGRENS SINCE 40.I HAVE HAD BREAST CANCER LUNG FIBROSIS I SUFFER
Al1954
in
NRAS
7 months ago
Always cold.
Hi suffer from OB since 14 have stayed stable for couple years but just wondered if its normal to be so cold all the time and my skin is so transparent and pale always has a blueish tint to it .
Hi suffer from OB since 14 have stayed stable for couple years but just wondered if its normal to be so cold all the time and my skin is so transparent and pale always has a blueish tint to it .
Cornflake123
in
Lung Conditions Community Forum
2 months ago
Orphenadrine
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
My hwp had been using ophenadrine some time ago and stopped because of fears around using anticholinergics. However, his unrelenting battle with sciatica has me wondering if it might not be worth taking the risk. He is a well person in every other way, but the pain has him battling to do exercise. He
ghoegap
in
Cure Parkinson's
7 months ago
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RA and (periodontitis)gum disease 😱
morning all! So yesterday I went to the dentist because a large filling on a back tooth that I’ve had for many years fell out!when I got there the dentist popped a temporary one in and he did some X-rays he then said I have periodontitis gum disease 😱with bone loss he said to start with I need to have
morning all! So yesterday I went to the dentist because a large filling on a back tooth that I’ve had for many years fell out!when I got there the dentist popped a temporary one in and he did some X-rays he then said I have periodontitis gum disease 😱with bone loss he said to start with I need to have
Mybirthday1975
in
NRAS
6 months ago
Ultralow biomass biome - EMMA result pre-FET
Hi friends, Thanks to everyone who posts in this forum. I've found it so helpful. I've just received my EMMA test result, which has come back as "ULTRALOW BIOMASS BIOME". I previously had 63% lactobacillus and 29% gardnerella. I did the antibiotic followed by two rounds of probiotics. My doctor
Hi friends, Thanks to everyone who posts in this forum. I've found it so helpful. I've just received my EMMA test result, which has come back as "ULTRALOW BIOMASS BIOME". I previously had 63% lactobacillus and 29% gardnerella. I did the antibiotic followed by two rounds of probiotics. My doctor
LondonSarah
in
Fertility Network UK
6 months ago
Cough
So, since having a virus causing a sinus cold at the start of Easter holidays, I have had a flare up which has gradually gotten worse since. I think, symptoms-wise I might have stabilized. Anyhow, I have realized that since about halfway through April I started with a light cough and it has increased
So, since having a virus causing a sinus cold at the start of Easter holidays, I have had a flare up which has gradually gotten worse since. I think, symptoms-wise I might have stabilized. Anyhow, I have realized that since about halfway through April I started with a light cough and it has increased
Obsdian
in
Thyroid UK
2 months ago
Cough, chest pressure, GCA
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
Moaningxcat
in
PMRGCAuk
3 months ago
Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
3 months ago
Methotrexate and a head cold
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
pattypatchwork
in
LUPUS UK
3 months ago
atrial fibrillation and Covid vaccination
since lockdown and having the regular booster Covid vaccinations my atrial fibrillation has increased dramatically over the last 6 months since the two boosters one in April this year and further one in October this year since then I’ve been getting them at least 2 to 3 times a week prior to that, it
since lockdown and having the regular booster Covid vaccinations my atrial fibrillation has increased dramatically over the last 6 months since the two boosters one in April this year and further one in October this year since then I’ve been getting them at least 2 to 3 times a week prior to that, it
colingee
in
Atrial Fibrillation Support
7 months ago
Very fast onset of Pneumonia! It’s a long story; are you comfortable…
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
Tpdnotts
in
CLL Support
7 months ago
Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
3 months ago
Sorted -,covid anti viral treatment
I managed to get covid a month after Rituxumab infusions, got free lateral flow test from independent pharmacy (boots and Tesco were hopeless and not signed up to the scheme) all the pharmacist needed was sight of a clinical letter confirming diagnosis. After testing positive I called 111 and an anti
I managed to get covid a month after Rituxumab infusions, got free lateral flow test from independent pharmacy (boots and Tesco were hopeless and not signed up to the scheme) all the pharmacist needed was sight of a clinical letter confirming diagnosis. After testing positive I called 111 and an anti
Pompey3
in
Vasculitis UK
7 months ago
Is this lupus?
Hi, I'm just into my sixties and have developed symptoms that are tempting to pigeonhole "getting older" or menopause, but I don't think that they are. I do know though that the flare ups became much worse following a viral infection Feb 2020 (maybe covid?). I also reacted dramatically to the astra
Hi, I'm just into my sixties and have developed symptoms that are tempting to pigeonhole "getting older" or menopause, but I don't think that they are. I do know though that the flare ups became much worse following a viral infection Feb 2020 (maybe covid?). I also reacted dramatically to the astra
Foodwithfriends83
in
LUPUS UK
7 months ago
Thrush?
Hi has anyone had thrush so bad that your swollen, got sores around the entrance to your vagina, been itchy and when you pee it hurts so bad you wanna cry? I'm using caneston external cream and the applied the internal one yesterday but it doesn't seem to be getting any better. Doctors are all closed
Hi has anyone had thrush so bad that your swollen, got sores around the entrance to your vagina, been itchy and when you pee it hurts so bad you wanna cry? I'm using caneston external cream and the applied the internal one yesterday but it doesn't seem to be getting any better. Doctors are all closed
Kayloufell
in
BASHH
6 months ago
Pain in lower left abdomen for 5 years and now a very little bright red blood in stool once in a while
Hi All,When I was 24 (10 years ago)years old I consulted a gastroenterologist with stomach discomfort and bloating. He did an colonoscopy and an endoscopy..One polyp was found and was benign on biopsy.I was diagnosed with IBS..Time passed stomach problems were a daily concern for me.5 years ago suddenly
Hi All,When I was 24 (10 years ago)years old I consulted a gastroenterologist with stomach discomfort and bloating. He did an colonoscopy and an endoscopy..One polyp was found and was benign on biopsy.I was diagnosed with IBS..Time passed stomach problems were a daily concern for me.5 years ago suddenly
S_searching
in
Colon Cancer Connected
7 months ago
Advice after possible Covid
Hi all, I've been horribly ill with what is probably Covid (no positive LFT test but typical weird breathlessness, fluid lungs, fatigue, dizziness and all the rest). However, three weeks later and a course of antibiotics, and I'm still feeling rotten - massive fatigue, pains everywhere, dizziness
Hi all, I've been horribly ill with what is probably Covid (no positive LFT test but typical weird breathlessness, fluid lungs, fatigue, dizziness and all the rest). However, three weeks later and a course of antibiotics, and I'm still feeling rotten - massive fatigue, pains everywhere, dizziness
Treetop33
in
LUPUS UK
7 months ago
overlapping symptoms
hi all I’ve finally seen a rheumatologist and he wasn’t able to give me a diagnosis as he says I don’t present the classic symptoms for any one particular autoimmune disease but I have overlapping symptoms of more than one condition. The hair loss and rash seem to be puzzling them too. I’ve been prescribed
hi all I’ve finally seen a rheumatologist and he wasn’t able to give me a diagnosis as he says I don’t present the classic symptoms for any one particular autoimmune disease but I have overlapping symptoms of more than one condition. The hair loss and rash seem to be puzzling them too. I’ve been prescribed
TheRedOnes
in
LUPUS UK
8 months ago
advice
Hello! I havnt posted before but was looking on the lupus Uk website and wanted some advice if possible. I have been struggling with weird symptoms for a while since my son was born 4 years ago- ( then cot covid and was really unwell so was all put down to long covid) I have positive APS antibodies
Hello! I havnt posted before but was looking on the lupus Uk website and wanted some advice if possible. I have been struggling with weird symptoms for a while since my son was born 4 years ago- ( then cot covid and was really unwell so was all put down to long covid) I have positive APS antibodies
Ell5
in
LUPUS UK
7 months ago
Advice needed please
I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue,
I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue,
Fleen
in
Vasculitis UK
7 months ago
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