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Living with Long Covid but now Tinnitus too!
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
santosha72
in
Tinnitus UK
7 months ago
unwanted coughing
I have Bronchiectasis and of course cough, sometimes a little, sometimes a lot. One of my "types" of cough starts with a sharp tickle in my throat and I know I am in for a long bout of coughing when I feel it. I have tried everything, water, cough drops, honey, lemon, ginger, every herb under the
I have Bronchiectasis and of course cough, sometimes a little, sometimes a lot. One of my "types" of cough starts with a sharp tickle in my throat and I know I am in for a long bout of coughing when I feel it. I have tried everything, water, cough drops, honey, lemon, ginger, every herb under the
organiclady
in
Lung Conditions Community Forum
2 months ago
GP/Specialist appointments
I am 70 years old and have had asthma for most of my life. I moved from Lancaster in 2010, where I had a fantastic Dr and fully qualified asthma nurse. I now live in the far west of Cornwall and for several reasons need to see a GP. And that is where the problem lies. In February I had a bad fall and
I am 70 years old and have had asthma for most of my life. I moved from Lancaster in 2010, where I had a fantastic Dr and fully qualified asthma nurse. I now live in the far west of Cornwall and for several reasons need to see a GP. And that is where the problem lies. In February I had a bad fall and
Anniecath
in
Asthma Community Forum
2 months ago
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DBS on the leg trial
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
MARC1
in
Cure Parkinson's
9 months ago
Pneumonia
It turns out that I thought my extreme fatigue was due to having tapered to 4 mg, that I have pneumonia. So I have been on an antibiotic for two days and am much better. I had a cough but no fever but it was not improving so finally my dr did a chest xray. He told me to stay at 4 mg for the rest of
It turns out that I thought my extreme fatigue was due to having tapered to 4 mg, that I have pneumonia. So I have been on an antibiotic for two days and am much better. I had a cough but no fever but it was not improving so finally my dr did a chest xray. He told me to stay at 4 mg for the rest of
Paulagcl
in
PMRGCAuk
7 months ago
Covid and prednisone
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
perceptual63
in
PMRGCAuk
7 months ago
Carbocisteine - possible side effect for CBD
My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen level is acceptable and his chest is much improved. However he is still being treated with Carbocisteine ( which helps to loosen and bring up
My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen level is acceptable and his chest is much improved. However he is still being treated with Carbocisteine ( which helps to loosen and bring up
SunriseLegend
in
PSP Association
2 months ago
Most know the story. Something I can't figure out.
Most people here know my wife's story and went to the hospital with Eshauphageal erosion, but a typo on her Chart (Fibrosis vs Cirrhosis) had a dramatic impact. Doctors thought they were dealing with Cirrhosis vs NASH with Fibrosis. That was tracked down to a dictaphone error. In reality, two weeks
Most people here know my wife's story and went to the hospital with Eshauphageal erosion, but a typo on her Chart (Fibrosis vs Cirrhosis) had a dramatic impact. Doctors thought they were dealing with Cirrhosis vs NASH with Fibrosis. That was tracked down to a dictaphone error. In reality, two weeks
ceward204
in
British Liver Trust
7 months ago
A new year, a new (re)start, and another memento from covid.
A lovely vrb asked after me the other day, and I realised I haven't posted since I got my ear infection, so here's what's been happening - or not! So, the ear infection back in November caused vertigo, which stopped me from running because it just felt too weird. I was just getting back from that when
A lovely vrb asked after me the other day, and I realised I haven't posted since I got my ear infection, so here's what's been happening - or not! So, the ear infection back in November caused vertigo, which stopped me from running because it just felt too weird. I was just getting back from that when
grumpyoldgirl
Graduate
in
Couch to 5K
7 months ago
Ibs worse since Covid
Just wondering has anyone else's symptoms worsened since Covid ? mine certainly have and I have noticed that a lot of people on here are saying that they are feeling worse in the last one to two years, I am just reeling from my latest bout and it's been gradually worsening over the last 18 months or
Just wondering has anyone else's symptoms worsened since Covid ? mine certainly have and I have noticed that a lot of people on here are saying that they are feeling worse in the last one to two years, I am just reeling from my latest bout and it's been gradually worsening over the last 18 months or
buggins55
in
IBS Network
7 months ago
iga vasculitis
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
Frosty_nights89
in
Vasculitis UK
7 months ago
immunosuppressed, covid positive - anyone have an experience with antivirals?
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
ruablue
in
Myositis UK
7 months ago
Covid positive with ILD - antiviral experience ?
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with ILD. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it for last 4 years). I wonder if anyone could share their Covid experiences and
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with ILD. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it for last 4 years). I wonder if anyone could share their Covid experiences and
ruablue
in
Living with Interstitial Lung Disease (ILD)
7 months ago
Covid positive - anyone with antiviral experience
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
More to deal with. Early birthday gift I guess.
I get all my shots as soon as they are available. Besides, Lupron had current flu, covid and RVS. Thought I must have caught flu and but feeling different about it. Worst sore throat every and continually spit phlegm and spittle. Went to our local ER and came up with the winner, COVID! Caught it
I get all my shots as soon as they are available. Besides, Lupron had current flu, covid and RVS. Thought I must have caught flu and but feeling different about it. Worst sore throat every and continually spit phlegm and spittle. Went to our local ER and came up with the winner, COVID! Caught it
SpencerBoy11
in
Advanced Prostate Cancer
7 months ago
Father has had PBC for 16 years - Odd complications since COVID?
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Kylewillmott
in
PBC Foundation
7 months ago
Should I go ahead with Covid Jab?
I am aged 80 and have my 5th Covid jab booked for Thursday I am steady on 5mg pred with no PRM symptoms. Should I go ahead with the jab and if so, what might I look out for?
I am aged 80 and have my 5th Covid jab booked for Thursday I am steady on 5mg pred with no PRM symptoms. Should I go ahead with the jab and if so, what might I look out for?
kangaroojohn
in
PMRGCAuk
7 months ago
Dad in hospital
My dad has sp and is I'm hospital with pneumonia which they are treating. He has to be on level 4 for food yet the hospital offerhom food he can't eat , biscuits, fortunately he turned them downHe is in a room on his own and needs help to wash but they say they are short staffed and can't help. They
My dad has sp and is I'm hospital with pneumonia which they are treating. He has to be on level 4 for food yet the hospital offerhom food he can't eat , biscuits, fortunately he turned them downHe is in a room on his own and needs help to wash but they say they are short staffed and can't help. They
MyDad1
in
PSP Association
2 months ago
I thought it was just a cold!
Not on ocrevus anymore, but I had the 1st of my monthly tysabri on the 20th, and I've since got a chest infection 😞 a couple of nights of not being able to sleep properly had really affected me, to the point where on Monday just gone I was wanting to get in to see a GP! But, when I called them up, they
Not on ocrevus anymore, but I had the 1st of my monthly tysabri on the 20th, and I've since got a chest infection 😞 a couple of nights of not being able to sleep properly had really affected me, to the point where on Monday just gone I was wanting to get in to see a GP! But, when I called them up, they
Cwright170994
in
My MSAA Community
9 months ago
Covid and testing
Good morning all, My daughter, diagnosed last summer, has thyroid blood tests scheduled for Monday morning (GP). However, she actively has Covid at the moment. Should we reschedule? Thanks
Good morning all, My daughter, diagnosed last summer, has thyroid blood tests scheduled for Monday morning (GP). However, she actively has Covid at the moment. Should we reschedule? Thanks
J972
in
Thyroid UK
7 months ago
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