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Help for my Dad
Hi my Dad who is 89 yrs was diagnosed with autoimmune Encephalitis approx 6mths ago. He was prescribed Prednisone and is on a 60mg daily dose. His behaviour has become increasingly erratic. He is showing hyper fidgity repetitive behaviour. He keeps wanting to tidy things away all the time, and today
Hi my Dad who is 89 yrs was diagnosed with autoimmune Encephalitis approx 6mths ago. He was prescribed Prednisone and is on a 60mg daily dose. His behaviour has become increasingly erratic. He is showing hyper fidgity repetitive behaviour. He keeps wanting to tidy things away all the time, and today
Mouseling
in
Encephalitis International
9 months ago
kali9
Hello everyone, I was diagnosed with lupus in March this year. My blood test show that I am positive for SLE and Mixed Connective Tissue Disorder. I am not sure if I have more than one autoimmune disorder. Symptoms I experience daily: livedo reticularis, pain in my shoulders, ribcage, back muscles
Hello everyone, I was diagnosed with lupus in March this year. My blood test show that I am positive for SLE and Mixed Connective Tissue Disorder. I am not sure if I have more than one autoimmune disorder. Symptoms I experience daily: livedo reticularis, pain in my shoulders, ribcage, back muscles
kali9
in
LUPUS UK
9 months ago
Abiraterone Caused High Blood Pressure
I started Lupron 3 month +Abiraterone + Prednisone almost 4 weeks ago. In 4 weeks, my Blood Counts went down (see indicators below). My Blood Pressure is higher than before (90 - 148). Medical Oncologist says that it's common for blood pressure to go up and that I should monitor it and start taking
I started Lupron 3 month +Abiraterone + Prednisone almost 4 weeks ago. In 4 weeks, my Blood Counts went down (see indicators below). My Blood Pressure is higher than before (90 - 148). Medical Oncologist says that it's common for blood pressure to go up and that I should monitor it and start taking
FightCancer101
in
Advanced Prostate Cancer
9 months ago
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Sisters Sciatica Pain and Prednisone
My 89 year old sister had her second appt with a chiropractor and appears to feel better after her session with him. When I reached out to her this am, she was really hurting and didn't sleep well. But, after her session with the Chiro at 2, she was able to walk on her own for a bit around the grocery
My 89 year old sister had her second appt with a chiropractor and appears to feel better after her session with him. When I reached out to her this am, she was really hurting and didn't sleep well. But, after her session with the Chiro at 2, she was able to walk on her own for a bit around the grocery
RaisinBran
in
PMRGCAuk
9 months ago
An update
it’s been a while since I posted but I read the questions, comments and answers every day. I am in awe of the patience, knowledge and understanding of the main contributors. Many many thanks. An update from me. last October my husband and I with two friends went on one of the Santiago de Compostela
it’s been a while since I posted but I read the questions, comments and answers every day. I am in awe of the patience, knowledge and understanding of the main contributors. Many many thanks. An update from me. last October my husband and I with two friends went on one of the Santiago de Compostela
Ana-16
in
PMRGCAuk
9 months ago
biliary atresia post kasai at 102 days after born
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
Babyjunten
in
Children's Liver Disease Foundation
11 months ago
Battling Outbreaks
Hi everyone, I suffer from outbreaks every once in awhile especially if I get sick. I only take valtrex as needed for the 3 days to suppress . Am currently in an asthma flare and already dealing with an outbreak and I need to take prednisone which usually gives me an outbreak. Not sure weather I should
Hi everyone, I suffer from outbreaks every once in awhile especially if I get sick. I only take valtrex as needed for the 3 days to suppress . Am currently in an asthma flare and already dealing with an outbreak and I need to take prednisone which usually gives me an outbreak. Not sure weather I should
Jances13
in
BASHH
9 months ago
Steroid Taper
I want a schedule to taper my prednisone 5 mg use. I believe it is called Steroid taper application
I want a schedule to taper my prednisone 5 mg use. I believe it is called Steroid taper application
Hidden
in
PMRGCAuk
9 months ago
Let’s see? Bowel perforation and GCA Flare ?
I’ve been absent for a while…Reader’s Digest Version to follow. Though I haven’t been posting, I’ve been reading for a bit, and as usual….” You raise me up,” and I’m grateful. You may recall I had shoulder replacement surgery in July, and my arm is in amazing condition considering the interruptions
I’ve been absent for a while…Reader’s Digest Version to follow. Though I haven’t been posting, I’ve been reading for a bit, and as usual….” You raise me up,” and I’m grateful. You may recall I had shoulder replacement surgery in July, and my arm is in amazing condition considering the interruptions
Grammy80
in
PMRGCAuk
9 months ago
Off topic... holiday
Morning everyone. ☺️ just thought I'd post to say after I had to stop taking Hydroxy and now only on sulfasalazine which doesn't help the RA much, I've been on Prednisolone again since 23nd august. I feel better than I have done since my last full on batch of it a few months ago. It's amazing to feel
Morning everyone. ☺️ just thought I'd post to say after I had to stop taking Hydroxy and now only on sulfasalazine which doesn't help the RA much, I've been on Prednisolone again since 23nd august. I feel better than I have done since my last full on batch of it a few months ago. It's amazing to feel
Haz58
in
NRAS
11 months ago
Bummed, PSA went up 0.08 in a Week! Am I failing ADT?
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Surgery and PMR dose
Hello. I’m due to have surgery in 10 days time for a couple of hernia repairs. I am currently in the second week of reducing Prednisolone from 2mg to 1.5mg, over a five week period. At the time of starting the taper, I didn’t know of the confirmed operation date. So, should I continue the reduction
Hello. I’m due to have surgery in 10 days time for a couple of hernia repairs. I am currently in the second week of reducing Prednisolone from 2mg to 1.5mg, over a five week period. At the time of starting the taper, I didn’t know of the confirmed operation date. So, should I continue the reduction
Songbird69
in
PMRGCAuk
11 months ago
Now on the LVV journey too
I posted recently about being sent for a PET CT scan as I have leg claudication in addition to my usual PMR and GCA. Got my results and plan today. Scan positive in head, most of aorta, both legs and left arm. I expect my right arm feels left out 😀. Anyway, back to 60mg prednisone and consultant is
I posted recently about being sent for a PET CT scan as I have leg claudication in addition to my usual PMR and GCA. Got my results and plan today. Scan positive in head, most of aorta, both legs and left arm. I expect my right arm feels left out 😀. Anyway, back to 60mg prednisone and consultant is
Smellydog9
in
PMRGCAuk
9 months ago
New to PMR
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Charlotteab
in
PMRGCAuk
9 months ago
Avacopan (Tavneos®) is accepted for use within NHSScotland.
The Scottish Medicines Consortium (SMC) has completed its assessment of Avacopan and, following review by the SMC executive, advises NHS Boards and Area Drug and Therapeutics Committees (ADTCs) on its use in NHSScotland. Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct
The Scottish Medicines Consortium (SMC) has completed its assessment of Avacopan and, following review by the SMC executive, advises NHS Boards and Area Drug and Therapeutics Committees (ADTCs) on its use in NHSScotland. Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct
JaneLE
Administrator
in
Vasculitis UK
9 months ago
Flare, increased prednisolone: progress to date
As there is so much learning for me I thought maybe it might also be helpful to others to give update on my temporary increase by 5 mgs. I think I may have reached a turning point. It has been several days now since I increased the prednisolone and each day I seemed to have got worse, with more and
As there is so much learning for me I thought maybe it might also be helpful to others to give update on my temporary increase by 5 mgs. I think I may have reached a turning point. It has been several days now since I increased the prednisolone and each day I seemed to have got worse, with more and
allofaquandry
in
PMRGCAuk
11 months ago
Another Quandary
I am going a bit off piste but hopefully someone on this forum might be able to help. I have had GCA for around about 7 years which is under control with 2mg a day of coated prednisolone. Recently I have had a flare of arthritis in my knees. Phoned GP he prescribed Naproxen 50mg along with Pantaprazole
I am going a bit off piste but hopefully someone on this forum might be able to help. I have had GCA for around about 7 years which is under control with 2mg a day of coated prednisolone. Recently I have had a flare of arthritis in my knees. Phoned GP he prescribed Naproxen 50mg along with Pantaprazole
ipsidipsy
in
PMRGCAuk
11 months ago
Boron
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
CaraDee
in
PMRGCAuk
11 months ago
Does Timing of Prednisone Matter?
I started taking 15mg of Prednisone for PMR over 14 months ago. My tapering had been fairly successful until I reached 4.5mg. This coincided with a 2 week period of increased (mostly good) stress after which I slowly started having significant pain in my neck and shoulders and very minor pain in my thighs
I started taking 15mg of Prednisone for PMR over 14 months ago. My tapering had been fairly successful until I reached 4.5mg. This coincided with a 2 week period of increased (mostly good) stress after which I slowly started having significant pain in my neck and shoulders and very minor pain in my thighs
Donna5658
in
PMRGCAuk
9 months ago
Cold for 3 weeks question
Hello I am just curious about an infection that i am having. I have had a cold for 3 weeks now. I was tested for covid, strep throat and RSV. All were negative. Doctors say it is just a virus and will take its course. I just want an antibiotic to clear it up. They say it wont work. Why can't i
Hello I am just curious about an infection that i am having. I have had a cold for 3 weeks now. I was tested for covid, strep throat and RSV. All were negative. Doctors say it is just a virus and will take its course. I just want an antibiotic to clear it up. They say it wont work. Why can't i
jkdavid99
in
My MSAA Community
9 months ago
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