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Neomycin / Prednisolone
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Has 3 years on Prednisolone caused all these problems?
Hi All,I haven't posted for a while but regularly read the daily highlights and continue to learn about our condition and take comfort that there are others who understand the difficulties we face living with PMR. The last few weeks, have been challenging for a few reasons. I'm currently 3 weeks into
Hi All,I haven't posted for a while but regularly read the daily highlights and continue to learn about our condition and take comfort that there are others who understand the difficulties we face living with PMR. The last few weeks, have been challenging for a few reasons. I'm currently 3 weeks into
CarolF1312
in
PMRGCAuk
10 months ago
Head Pains
Hi, today am experiencing intermittent dull head pain on right hand side at top of head and down towards behind of ear. Not excruciating by any means and (touch wood) no jaw pain etc but it's new and obviously worried re GCA! Any ideas/advice/similar experiences please. I've just (last Weds) reduced
Hi, today am experiencing intermittent dull head pain on right hand side at top of head and down towards behind of ear. Not excruciating by any means and (touch wood) no jaw pain etc but it's new and obviously worried re GCA! Any ideas/advice/similar experiences please. I've just (last Weds) reduced
Pusph
in
PMRGCAuk
10 months ago
My pred experience scares me.
I really need some help understanding what's going on in my body. In late April I had been at 25 mg for a while with mild PMR-like symptoms. Then, one day all my symptoms went away after I made a big positive life change. I then tapered down to 6 mg over a three month period without any problems.
I really need some help understanding what's going on in my body. In late April I had been at 25 mg for a while with mild PMR-like symptoms. Then, one day all my symptoms went away after I made a big positive life change. I then tapered down to 6 mg over a three month period without any problems.
sferios
in
PMRGCAuk
7 months ago
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Taking ibuprofen while on a low dose of prednisolone
Hi I’ve already had one hip replaced 13 years ago (before my PMR diagnosis) and I’ve been lucky to get away with not having any trouble with the other - until recently. It’s deteriorating rapidly, and I’m on first steps of the “pathway” to have surgery, which I know will likely take years. The best
Hi I’ve already had one hip replaced 13 years ago (before my PMR diagnosis) and I’ve been lucky to get away with not having any trouble with the other - until recently. It’s deteriorating rapidly, and I’m on first steps of the “pathway” to have surgery, which I know will likely take years. The best
calibriel
in
PMRGCAuk
10 months ago
Abiraterone side effect
After 12 doses of abirateron/prednisone I developed a rather severe cough. Even though this is one of the listed side effects of abiraterone my oncologist says that she has never heard of it happening before. Has anyone here ever had this experience and, if so, was there a remedy for the cough or an
After 12 doses of abirateron/prednisone I developed a rather severe cough. Even though this is one of the listed side effects of abiraterone my oncologist says that she has never heard of it happening before. Has anyone here ever had this experience and, if so, was there a remedy for the cough or an
GrantB47
in
Advanced Prostate Cancer
8 months ago
Possible GCA?
Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic headache, severe neck ache and significant fatigue. In addition, my left temporal artery is puffy and tender. No scalp tenderness. No fever, though I may have had a slight one last night. I woke up with a random sore throat
Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic headache, severe neck ache and significant fatigue. In addition, my left temporal artery is puffy and tender. No scalp tenderness. No fever, though I may have had a slight one last night. I woke up with a random sore throat
Lenore58
in
PMRGCAuk
8 months ago
Real Nervous about Genomic Resuits, What type of Physician do I go to in NY who Specializes in Mutations w/ Advanced Prostate Cancer?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 8/9 Stage 4 Grade 5 : 4+5=9 ypT3a Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones,
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 8/9 Stage 4 Grade 5 : 4+5=9 ypT3a Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones,
Shorehousejam
in
Fight Prostate Cancer
8 months ago
Does Prednisolone cause anxiety, panic and depression?
I’ve been diagnosed with lupus end of Jan 2023. Since then I have been on prednisone for 8 months, high dose 25 mg to start with now reduced considerably to 5mg. I also take a range of other medications like Hydroxychloroquine, Myfenax, Lansoproazole and Losartan potassium. I have been really struggling
I’ve been diagnosed with lupus end of Jan 2023. Since then I have been on prednisone for 8 months, high dose 25 mg to start with now reduced considerably to 5mg. I also take a range of other medications like Hydroxychloroquine, Myfenax, Lansoproazole and Losartan potassium. I have been really struggling
TomatoEater
in
LUPUS UK
8 months ago
Bunion operation
Hi, I am having a bunion operation and hammer toe correction next week (minimal invasive surgery). I'm currently on 3.75mg prednisone. Should I follow sick day rules, maybe increase to 5mg, or first discuss with surgeon and anaesthetist? Thank for this very helpful forum.
Hi, I am having a bunion operation and hammer toe correction next week (minimal invasive surgery). I'm currently on 3.75mg prednisone. Should I follow sick day rules, maybe increase to 5mg, or first discuss with surgeon and anaesthetist? Thank for this very helpful forum.
Nolsie
in
PMRGCAuk
8 months ago
Breast pain on prednisolone
This might be a bit of a strange one, but have you experienced twinges in the breast on pred? I get these quite sharp twinges every now and again and I wondered if it might be the pred? A very quick google suggests it might be. I mentioned it to the radiographer last week when I had a routine mammogram
This might be a bit of a strange one, but have you experienced twinges in the breast on pred? I get these quite sharp twinges every now and again and I wondered if it might be the pred? A very quick google suggests it might be. I mentioned it to the radiographer last week when I had a routine mammogram
Gimme
in
PMRGCAuk
10 months ago
I’m nervous about my Genomic Results plus anyone want to share their experience?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
one step forward……..
just to complete the replacement of my right side joints I’m down for a reverse shoulder replacement in 6 months - strikes permitting! New shoulder will complement replaced knee and hip. But the irony for me was when she asked how many mgs of prednisone. I am currently on and I expected at least a tuttut
just to complete the replacement of my right side joints I’m down for a reverse shoulder replacement in 6 months - strikes permitting! New shoulder will complement replaced knee and hip. But the irony for me was when she asked how many mgs of prednisone. I am currently on and I expected at least a tuttut
AnniesRyder5
in
PMRGCAuk
8 months ago
Prednisone Tapering
I have been tapering using the DS method for 6 months. I am now tapering from 2mg to 1 1/2. In two days I will be @ 1 1/2 for seven days, then 1, back to 1 1/2 for 6 days and so on. While I am not in any muscle pain I am extremely fatigued. Does being extremely fatigued means I am having a flare
I have been tapering using the DS method for 6 months. I am now tapering from 2mg to 1 1/2. In two days I will be @ 1 1/2 for seven days, then 1, back to 1 1/2 for 6 days and so on. While I am not in any muscle pain I am extremely fatigued. Does being extremely fatigued means I am having a flare
RaisinBran
in
PMRGCAuk
8 months ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
8 months ago
Just don't know what to do with myself
Was supposed to see the rheumatologist a month after first appointment but now it will be 14 weeks and a rheumatology nurse cannot phone me back for 6 weeks so have no choice but to see the GP on Monday. Been following tapering instructions to take me down to 20mg only but unsure how to proceed now.
Was supposed to see the rheumatologist a month after first appointment but now it will be 14 weeks and a rheumatology nurse cannot phone me back for 6 weeks so have no choice but to see the GP on Monday. Been following tapering instructions to take me down to 20mg only but unsure how to proceed now.
Body_bonkers
in
PMRGCAuk
10 months ago
Been at 1 mg prednisone for a week
Since going on meth and hydroxy, been able to steadily drop prednisone. Everything feels reasonably ok except for occasional morning stiffness which is odd as I dont feel stiff when I get up during the night like around 3 or 4 am. I still have awful and annoying middle fnger issues, the right one can
Since going on meth and hydroxy, been able to steadily drop prednisone. Everything feels reasonably ok except for occasional morning stiffness which is odd as I dont feel stiff when I get up during the night like around 3 or 4 am. I still have awful and annoying middle fnger issues, the right one can
sdowney717
in
PMRGCAuk
8 months ago
Painkillers with Prednisolone
I have some slight hip and shoulder pains that may or may not be caused by PMR, I am not sure how I can tell? I have just got back down to 8mg of Prednisolne for the second time and intend to stay at 8mg until I return from holiday. My question is;- I am off on holiday next week and think I need
I have some slight hip and shoulder pains that may or may not be caused by PMR, I am not sure how I can tell? I have just got back down to 8mg of Prednisolne for the second time and intend to stay at 8mg until I return from holiday. My question is;- I am off on holiday next week and think I need
Golf-1
in
PMRGCAuk
10 months ago
miscarriage 11-12 weeks
Hi on here for advice moving forward and reassurance. Been feeling very low after my missed miscarriage at 11-12 weeks. Was having weekly scan at my hospital. It was an IVF pregnancy (2 untested embryos) of which one took. Had clexane, Prednisolone, lubion (after transfer as level was low at 20
Hi on here for advice moving forward and reassurance. Been feeling very low after my missed miscarriage at 11-12 weeks. Was having weekly scan at my hospital. It was an IVF pregnancy (2 untested embryos) of which one took. Had clexane, Prednisolone, lubion (after transfer as level was low at 20
Hidden
in
Fertility Network UK
10 months ago
Prednisolone and Omeprazole
I have had PMR and GCA for 7 Years and was told I had to take 10 mg daily of Omeprazole which I have been on for the 7 Years. I am now on 3mg steroids but have been getting a lot of tummy upsets and wondered if the long term use of Omeprazole is causing it. I have gone Lactose and Gluten free as well
I have had PMR and GCA for 7 Years and was told I had to take 10 mg daily of Omeprazole which I have been on for the 7 Years. I am now on 3mg steroids but have been getting a lot of tummy upsets and wondered if the long term use of Omeprazole is causing it. I have gone Lactose and Gluten free as well
Sorop
in
PMRGCAuk
10 months ago
Tips or advice to help calm autoimmune flare ups at home??
I have had a few flare ups with this new medicine which is not unexpected but as much as I like Prednisone my doctor does not. Prednisone is the current treatment for flare ups but she does not do a standing order just case by case and her appointments book week to months in advance so hard to always
I have had a few flare ups with this new medicine which is not unexpected but as much as I like Prednisone my doctor does not. Prednisone is the current treatment for flare ups but she does not do a standing order just case by case and her appointments book week to months in advance so hard to always
Jj01994
in
NRAS
8 months ago
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