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Neomycin / Prednisolone
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biceps pain
Hi, I am currently at 4.75 mg of prednisone and I am pain free in shoulder , neck , thighs but have developed severe pain in bicep area. I thought it might be PMR returning so upped my dosage by 5 mg for a week which didn’t seem to change anything. Wondering if anyone has any experience or insights
Hi, I am currently at 4.75 mg of prednisone and I am pain free in shoulder , neck , thighs but have developed severe pain in bicep area. I thought it might be PMR returning so upped my dosage by 5 mg for a week which didn’t seem to change anything. Wondering if anyone has any experience or insights
Fishtacoqueen
in
PMRGCAuk
3 months ago
Polymyalgia and Rheumatoid arthritis
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
Deemar
in
PMRGCAuk
6 months ago
Another update on potential meds intolerance
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Incoguto
in
Thyroid UK
3 months ago
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IBS amd painful spasms in colon daily especially mornings, 76 yrs old, many other health issues, on prednisone for 7 yrs re PMR,
painful spasms daily especially mornings 76 yr s old, IBS since in my early 30 s , spasms on colon diagnosed few yrs ago, many back issues, cant take anti inflammatory meds, on pred for 7 yrs re PMR , tapering currently to 5 mgs pred, but thesemorning spasms and every few days constipation getting me
painful spasms daily especially mornings 76 yr s old, IBS since in my early 30 s , spasms on colon diagnosed few yrs ago, many back issues, cant take anti inflammatory meds, on pred for 7 yrs re PMR , tapering currently to 5 mgs pred, but thesemorning spasms and every few days constipation getting me
arvine
in
IBS Network
3 months ago
prednisone and side effects/ dosage related
hi I am presently on 8 mg for PMR. I’ve been on 8 mg for a couple of weeks. I’m wondering do people have food cravings and weight gain issues on 8 mg. I find I have to completely watch every morsel of food I put in my mouth and I must stay low-carb just to maintain, I lose very very very slowly but
hi I am presently on 8 mg for PMR. I’ve been on 8 mg for a couple of weeks. I’m wondering do people have food cravings and weight gain issues on 8 mg. I find I have to completely watch every morsel of food I put in my mouth and I must stay low-carb just to maintain, I lose very very very slowly but
Bikergirl68
in
PMRGCAuk
3 months ago
Irritable bowel and painful colon spasms
along with several other issues, limiting my mobility for long time now, at 76 , been diagnosed yr or so ago with spastic colon, so every morning for 2-3,hrs am in pain because of spasms, until able to go to bathroom 3-4 times, it s realy getting me down, recently muscle tears in gluteus and hamstring
along with several other issues, limiting my mobility for long time now, at 76 , been diagnosed yr or so ago with spastic colon, so every morning for 2-3,hrs am in pain because of spasms, until able to go to bathroom 3-4 times, it s realy getting me down, recently muscle tears in gluteus and hamstring
arvine
in
NRAS
3 months ago
GCA Ear pressure and stiff neck
I have GCA/PMR for the second time. For the past 6 weeks I’ve been taking 3mg prednisone and Actemra injections every other week. Since then, I have had ear pressure, and a throat that feels swollen. I’ve read that GCA can cause ear problems. Has anyone else experienced this? There are no visual
I have GCA/PMR for the second time. For the past 6 weeks I’ve been taking 3mg prednisone and Actemra injections every other week. Since then, I have had ear pressure, and a throat that feels swollen. I’ve read that GCA can cause ear problems. Has anyone else experienced this? There are no visual
Pamk1949
in
PMRGCAuk
3 months ago
Hypertension and prednisolone
Hi I have just had another hypertensive episode.Settled down now.I am reducing off prednisolone for temporal arteritis.I am having an operation for prednisolone induced cataracts and glaucoma in 3 weeks.My vision is dreadful.I am on 4.5mg .I fluctuate between 5 and 4.I am concerned because my blood pressure
Hi I have just had another hypertensive episode.Settled down now.I am reducing off prednisolone for temporal arteritis.I am having an operation for prednisolone induced cataracts and glaucoma in 3 weeks.My vision is dreadful.I am on 4.5mg .I fluctuate between 5 and 4.I am concerned because my blood pressure
Raewynne
in
PMRGCAuk
7 months ago
Enhertu side effect: pneumonitis (lung inflammation)
Hi all, After 3 years on oral meds I had to switch to IV chemo in December and started with Enhertu. After my 2nd infusion I developed pneumonitis (lung inflammation), which is a known risk with Enhertu and can be dangerous if left untreated. The main intial symptom is a persistent dry cough, indicating
Hi all, After 3 years on oral meds I had to switch to IV chemo in December and started with Enhertu. After my 2nd infusion I developed pneumonitis (lung inflammation), which is a known risk with Enhertu and can be dangerous if left untreated. The main intial symptom is a persistent dry cough, indicating
LDR1
in
SHARE Metastatic Breast Cancer
3 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
3 months ago
Leflunomide
I was diagnosed with PMR in 2019 …started on 15 mgs of prednisone with great effect . I have been tapering down since .. getting down to 3/4 mgs over the years but still in pain . I saw my rheumatologist today and he has prescribed me Leflunomide to take with prednisone. I have been on a really slow
I was diagnosed with PMR in 2019 …started on 15 mgs of prednisone with great effect . I have been tapering down since .. getting down to 3/4 mgs over the years but still in pain . I saw my rheumatologist today and he has prescribed me Leflunomide to take with prednisone. I have been on a really slow
Magictherabbit
in
PMRGCAuk
3 months ago
Do I have PMR?
I did some research on my own after having these pains in my shoulders, upper arms, hips and lower back. Getting out of bed, turning over in bed, getting up from a chair, or reaching for something was very painful. I’ve been having back issues with a slipped vertebrae for about 2 years. I’ve had 3 epidural
I did some research on my own after having these pains in my shoulders, upper arms, hips and lower back. Getting out of bed, turning over in bed, getting up from a chair, or reaching for something was very painful. I’ve been having back issues with a slipped vertebrae for about 2 years. I’ve had 3 epidural
Aqua47
in
PMRGCAuk
3 months ago
From RA to Lupus. High dose pred questions.
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Chickenkeeper2015
in
LUPUS UK
7 months ago
Asthma without infection
Brief history. Moved north to West Yorkshire in 1974 (aged 29). Started with beathing difficulties. Had allergy tests and a course of desensitisation injections, which worked, but whenever I caught a cold, it morphed into a sore throat and chest infection leading to gasping for breath. Major attack
Brief history. Moved north to West Yorkshire in 1974 (aged 29). Started with beathing difficulties. Had allergy tests and a course of desensitisation injections, which worked, but whenever I caught a cold, it morphed into a sore throat and chest infection leading to gasping for breath. Major attack
Thomas45
in
Asthma Community Forum
7 months ago
8 months on pred - Update from recent bloods
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
Gimme
in
PMRGCAuk
7 months ago
Progression of SCLE to SLE
Hello, I've had SCLE for many years now and I have several over autoimmune issues. But, more recently I had been feeling really odd (more than usual), very difficult to describe, but I felt like my inner core was shaking, lightheadedness and nausea. I was sort of just putting up with it until about a
Hello, I've had SCLE for many years now and I have several over autoimmune issues. But, more recently I had been feeling really odd (more than usual), very difficult to describe, but I felt like my inner core was shaking, lightheadedness and nausea. I was sort of just putting up with it until about a
Purple-hedgehog
in
LUPUS UK
8 months ago
Coming Off Calquence (
I was put on Calquence (acalabrutinibam) 2 years ago due to Hemolytic Anemia. We tried prednisone for 3 years but every time they took me off my hemoglobin would drop and eventually it was determined I needed treatment. As of now my numbers are looking really good and I'm considering going off of it
I was put on Calquence (acalabrutinibam) 2 years ago due to Hemolytic Anemia. We tried prednisone for 3 years but every time they took me off my hemoglobin would drop and eventually it was determined I needed treatment. As of now my numbers are looking really good and I'm considering going off of it
susq9948
in
CLL Support
3 months ago
Is it Asthma COPD or Anxiety?
Hi first time posting and I apologise for the length of my question/information. In May hubby and me both came down with Covid, both had cold like symptoms cough, no smell or taste etc hubby slept a lot I didn’t. After 10 days hubby ok I wasn’t, breathing was difficult and cough horrendous Dr gave
Hi first time posting and I apologise for the length of my question/information. In May hubby and me both came down with Covid, both had cold like symptoms cough, no smell or taste etc hubby slept a lot I didn’t. After 10 days hubby ok I wasn’t, breathing was difficult and cough horrendous Dr gave
Grandmatoboys
in
Asthma Community Forum
8 months ago
Increase dosage and taper
I have been managing my PMR for seven years, and on prednisone for five of those years after thinking I could manage it withou meds. Dumb idea. I can taper down to 4mg or 5mg, but have to then increase to a higher dosage to address a reoccurring pain and numbness in arms. Is there a magical formula
I have been managing my PMR for seven years, and on prednisone for five of those years after thinking I could manage it withou meds. Dumb idea. I can taper down to 4mg or 5mg, but have to then increase to a higher dosage to address a reoccurring pain and numbness in arms. Is there a magical formula
outdoornut
in
PMRGCAuk
3 months ago
"Castration resistant"
What is the relevance of this term and how does one know if it applies to them? I am stage 4, three mets in the back for which I have already received radiation treatment along with same on prostate. I have had 2 Eligard shots and been on 500 mgs of Abiraterone plus 5mgs of prednisone daily. Can I
What is the relevance of this term and how does one know if it applies to them? I am stage 4, three mets in the back for which I have already received radiation treatment along with same on prostate. I have had 2 Eligard shots and been on 500 mgs of Abiraterone plus 5mgs of prednisone daily. Can I
GrantB47
in
Advanced Prostate Cancer
3 months ago
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