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Neomycin / Prednisolone
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REFERRAL TO THE FORUM
"Long time member of PMRUK. What I thought was r/o, new physical evidence has brought me here. The PMR community has been great for the past 2 years, but they believe I may receive better guidance here in the Myositis forum. Honestly, as you read my latest post in the PMR forum I may not belong here
"Long time member of PMRUK. What I thought was r/o, new physical evidence has brought me here. The PMR community has been great for the past 2 years, but they believe I may receive better guidance here in the Myositis forum. Honestly, as you read my latest post in the PMR forum I may not belong here
SMH4CRNA
in
Myositis UK
3 months ago
Update day 6 - Treatment fir Richter’s Transformation
Finally had my stat MRI 24 hours after the reaction. In this hospital stat is anytime within 24 hours of order written. MRI did not show tissue swelling or changes in neck and throat and the nodes have shrunk a little. Chest x-ray was normal, but did show another enlarging node on the right close to
Finally had my stat MRI 24 hours after the reaction. In this hospital stat is anytime within 24 hours of order written. MRI did not show tissue swelling or changes in neck and throat and the nodes have shrunk a little. Chest x-ray was normal, but did show another enlarging node on the right close to
ReneeSusan
in
CLL Support
3 months ago
Rheumatology working up new disorder.
Despite my desire to accept my condition as is and without prednisone the Rheumatologist has decided to work me up for a rare autoimmune disorder called Antisynthetase Syndrome. Althernative working diagnose is myositis r/t long term use of statins. Antisynthetase Syndrome falls under the myositis
Despite my desire to accept my condition as is and without prednisone the Rheumatologist has decided to work me up for a rare autoimmune disorder called Antisynthetase Syndrome. Althernative working diagnose is myositis r/t long term use of statins. Antisynthetase Syndrome falls under the myositis
SMH4CRNA
in
PMRGCAuk
3 months ago
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GCA (2018)to FMD(2024) Yikes!
Hello good people. I was diagnosed in Feb, 2018 with GCA and am happy to report that I'm in remission. Last month I had arterial scans done and they came back-much to my delight- with no signs on active inflammation or aneurisms. There was, however, what they term an incidental finding by the name FMD
Hello good people. I was diagnosed in Feb, 2018 with GCA and am happy to report that I'm in remission. Last month I had arterial scans done and they came back-much to my delight- with no signs on active inflammation or aneurisms. There was, however, what they term an incidental finding by the name FMD
Blurry62
in
PMRGCAuk
3 months ago
Phasing down prednisone
Finishing my 2 years on Abiraterone (yay!) in mid-July. My doc said to phase down my prednisone, but wasn't very specific, just not to stop all at once. I'll have a week's worth of 5mg prednisone tablets left when the abi runs out, so I could just do half-doses for two weeks, but wondering what y'all
Finishing my 2 years on Abiraterone (yay!) in mid-July. My doc said to phase down my prednisone, but wasn't very specific, just not to stop all at once. I'll have a week's worth of 5mg prednisone tablets left when the abi runs out, so I could just do half-doses for two weeks, but wondering what y'all
Atdabeach
in
Advanced Prostate Cancer
3 months ago
Loss of appetite?
Hi. After 7 years of low dose prednisone, I am finally off it! Hooray! BUT....I seem to have lost my appetite. I finished prednisone about 3 weeks now and now I really have no appetite. I feel hunger and I can eat, but hardly anything appeals to me so I am relying on easy, comfort food. Carbs,
Hi. After 7 years of low dose prednisone, I am finally off it! Hooray! BUT....I seem to have lost my appetite. I finished prednisone about 3 weeks now and now I really have no appetite. I feel hunger and I can eat, but hardly anything appeals to me so I am relying on easy, comfort food. Carbs,
jackswife
in
PMRGCAuk
3 months ago
PMR or PsA or both
I'm on prednisone since last April and have managed to get down from 35 to 10 mg with a few minor flares. My Rheumatologist thinks it could be PMR or PsA or both. Can't get a definite answer. It started overnight after a fall I had. Now I wake up really achy all over and after about an hour feel fine
I'm on prednisone since last April and have managed to get down from 35 to 10 mg with a few minor flares. My Rheumatologist thinks it could be PMR or PsA or both. Can't get a definite answer. It started overnight after a fall I had. Now I wake up really achy all over and after about an hour feel fine
Seal49
in
PMRGCAuk
3 months ago
Patient refuses abiraterone
From a very concerned daughter: My father was prescribed ADT, abiraterone, and prednisone. He started ADT earlier before the other two were added to the regimen, about one month ago. Since then, he has been experiencing a lot of side effects, including serious hot flashes, elevated blood pressure,
From a very concerned daughter: My father was prescribed ADT, abiraterone, and prednisone. He started ADT earlier before the other two were added to the regimen, about one month ago. Since then, he has been experiencing a lot of side effects, including serious hot flashes, elevated blood pressure,
Healing1826
in
Advanced Prostate Cancer
3 months ago
Driving agony
Hi, I have just been diagnosed with PMR and have started on Prednisolone. Whilst I have some symptoms of PMR (sore shoulders/hips I feel there is more going on. I can’t sit down or drive for more that 5mins before searing pain (which I think is sciatica) sets in down the back and sides of my thighs
Hi, I have just been diagnosed with PMR and have started on Prednisolone. Whilst I have some symptoms of PMR (sore shoulders/hips I feel there is more going on. I can’t sit down or drive for more that 5mins before searing pain (which I think is sciatica) sets in down the back and sides of my thighs
Bad-back
in
PMRGCAuk
7 months ago
Advice
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Kma123
in
Pernicious Anaemia Society
7 months ago
Pregnancy and steriods
Hi everyone. Looking for some reassurance please. I am 19 weeks pregnant. I get awful hayfever every year which causes seasonal asthma. I have mentioned this to midwives and doctors - both NHS and private and all said no to antihistamines and didn’t provide any other options. 3 weeks later, I
Hi everyone. Looking for some reassurance please. I am 19 weeks pregnant. I get awful hayfever every year which causes seasonal asthma. I have mentioned this to midwives and doctors - both NHS and private and all said no to antihistamines and didn’t provide any other options. 3 weeks later, I
leo1980
in
Fertility Network UK - Pregnancy Support
3 months ago
Update on Prednisolone Journey
So....here I am again.....I'm Paul, 49, and I've been on Pred for PMR since Dec '23....so here is my update with a few questions in case anyone finds it useful.... In my last update I stated that I'd been really well after two weeks on 12.5mg....I mean really well with virtually all symptoms gone....
So....here I am again.....I'm Paul, 49, and I've been on Pred for PMR since Dec '23....so here is my update with a few questions in case anyone finds it useful.... In my last update I stated that I'd been really well after two weeks on 12.5mg....I mean really well with virtually all symptoms gone....
Paulx222
in
PMRGCAuk
7 months ago
Tapering of prednisolone
now down to 2 mg from starting on 50 Aug 22. Have followed Dr Muktyar . Is it normal to feel so lethargic now on such low dose. Barely have energy, strength to move, do anything. Pain in left leg still there mornings especially. I felt a lot brighter when I was taking higher doses but it caused
now down to 2 mg from starting on 50 Aug 22. Have followed Dr Muktyar . Is it normal to feel so lethargic now on such low dose. Barely have energy, strength to move, do anything. Pain in left leg still there mornings especially. I felt a lot brighter when I was taking higher doses but it caused
CavalierKC3
in
PMRGCAuk
7 months ago
Deathly Fatigue on 5mg Prednisolone
Hi all you knowledgeable people. I had managed to taper down to 5 mg but was extremely unwell in January with Covid & went up to 10 mg for 7 days then dropped down to 8mg for 7 days & then back to 5 mg. I now have pain in tops of both arms/shoulders & feel absolutely exhausted all the time & my question
Hi all you knowledgeable people. I had managed to taper down to 5 mg but was extremely unwell in January with Covid & went up to 10 mg for 7 days then dropped down to 8mg for 7 days & then back to 5 mg. I now have pain in tops of both arms/shoulders & feel absolutely exhausted all the time & my question
JEMOK
in
PMRGCAuk
7 months ago
Bloating and gas
I've currently tapered from 25 mg Pred down to 11 currently over 5 months. My biggest problem with this whole prednisone/PMR journey right now is extreme gas and bloating. I've read that prednisone can cause this for some people (I look at least 6 mos. pregnant!). And it's not fat. I've actually lost
I've currently tapered from 25 mg Pred down to 11 currently over 5 months. My biggest problem with this whole prednisone/PMR journey right now is extreme gas and bloating. I've read that prednisone can cause this for some people (I look at least 6 mos. pregnant!). And it's not fat. I've actually lost
lsplumb
in
PMRGCAuk
3 months ago
Facial Numbness
Having an odd symptom and wondering if you kind folks have any insights. About a week ago, I noticed numbness around my eyebrows and forehead. It was so subtle at first that I wondered if I was imagining it. But now if I touch my eyebrows I can barely feel them. I am wondering if this could be associated
Having an odd symptom and wondering if you kind folks have any insights. About a week ago, I noticed numbness around my eyebrows and forehead. It was so subtle at first that I wondered if I was imagining it. But now if I touch my eyebrows I can barely feel them. I am wondering if this could be associated
Lenore58
in
PMRGCAuk
3 months ago
How is PMR diagnosed?
At the end of January after starting on a weekly alendronate, I began having stiffness in legs and shoulder / arm pain. I couldn't get up from an arm chair and sleeping was disrupted by pain and trips to the bathroom because I was taking various pain meds. My doctor thought it was arthritis but did
At the end of January after starting on a weekly alendronate, I began having stiffness in legs and shoulder / arm pain. I couldn't get up from an arm chair and sleeping was disrupted by pain and trips to the bathroom because I was taking various pain meds. My doctor thought it was arthritis but did
JubileePenny
in
PMRGCAuk
3 months ago
Exhaustion
I'm off prednisone entirely now for about 10 days and am exhausted all the time. I guess this is "deathly fatigue?" I tapered super slowly, had been on just 1/2 mg for a few weeks.
I'm off prednisone entirely now for about 10 days and am exhausted all the time. I guess this is "deathly fatigue?" I tapered super slowly, had been on just 1/2 mg for a few weeks.
Paulagcl
in
PMRGCAuk
3 months ago
Going too slow reducing prednisone?
I began this PMR journey at the beginning of March 2023. Started on 15 mgs, then three weeks later 12.5, a month later 11 mgs then 3 weeks later 10 . A few hiccups ie aches, tiredness but now after a month on 10 moved down to 9.5 ( been on that for 10 days) I feel fine and seeing the GP soon. He was
I began this PMR journey at the beginning of March 2023. Started on 15 mgs, then three weeks later 12.5, a month later 11 mgs then 3 weeks later 10 . A few hiccups ie aches, tiredness but now after a month on 10 moved down to 9.5 ( been on that for 10 days) I feel fine and seeing the GP soon. He was
Kingcharlesdog
in
PMRGCAuk
3 months ago
Pred Withdrawal??
My question is simple...I have reduced my Pred down to 2mg ( down from 8 mg 12 months ago) I am now tapering further so have been taking 1 mg every 3 rd day, however I am now getting pain in my knees ( both cartilages removed years ago)..is this a flare or a symptom of pred withdrawal? I can put
My question is simple...I have reduced my Pred down to 2mg ( down from 8 mg 12 months ago) I am now tapering further so have been taking 1 mg every 3 rd day, however I am now getting pain in my knees ( both cartilages removed years ago)..is this a flare or a symptom of pred withdrawal? I can put
Matua
in
PMRGCAuk
3 months ago
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