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normal blood results
Hi, this is my first post so hope you all bear with me! To go back to the beginning, in late 2021 I was eventually given a diagnosis of “it’s probably polymyalgia.” This was after my gp getting in touch with a rheumatologist to get some advice as my blood results all came back normal. My symptoms were
Hi, this is my first post so hope you all bear with me! To go back to the beginning, in late 2021 I was eventually given a diagnosis of “it’s probably polymyalgia.” This was after my gp getting in touch with a rheumatologist to get some advice as my blood results all came back normal. My symptoms were
Kitforcats
in
PMRGCAuk
2 months ago
DSBY,
Pmr,gca, now 5 yrs on prednisone & weight an issue ,now deemed pe- diabetic . Hght 5ft. Weigh 11.5.stone .age78, any tips on helping weight loss please .
Pmr,gca, now 5 yrs on prednisone & weight an issue ,now deemed pe- diabetic . Hght 5ft. Weigh 11.5.stone .age78, any tips on helping weight loss please .
Dsby
in
Weight Loss Support
2 months ago
What exclusionary tests should I ask my doctor for? IL-6 inflammation tests? + other random PMR questions
I'm a 44-year old woman fairly confident I have PMR due to the symptoms I've experienced & the dramatic success of prednisone in treating them. (I put a longer backstory in my profile - which I'm assuming you can access.) I worry somewhat about GCA involvement because when my symptoms have been strong
I'm a 44-year old woman fairly confident I have PMR due to the symptoms I've experienced & the dramatic success of prednisone in treating them. (I put a longer backstory in my profile - which I'm assuming you can access.) I worry somewhat about GCA involvement because when my symptoms have been strong
MizDiana
in
PMRGCAuk
2 months ago
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Xtandi side effect full body rash
Has anyone had a side effect when taking Xtandi. An allergic reaction of full body itchy burning unbearable rash after taking it a week. Took Abiraterone for 4 years with no side effects. PSA started to rise so was switched to Xtandi. They took me off the drug but the rash is horrible. taking prednisone
Has anyone had a side effect when taking Xtandi. An allergic reaction of full body itchy burning unbearable rash after taking it a week. Took Abiraterone for 4 years with no side effects. PSA started to rise so was switched to Xtandi. They took me off the drug but the rash is horrible. taking prednisone
Gern
in
Advanced Prostate Cancer
2 months ago
5mg reduction in prednisone a day!
Recently I had another GCA scare and the doctor raised my pred from 5mg a day to 30mg. - however, when the scare was over I was told to come down 5mg a day. 30 - 25 - 20 - 15 etc. I felt dreadful. Has anyone else come down so sharply - my entire system is still going through it - even though I’
Recently I had another GCA scare and the doctor raised my pred from 5mg a day to 30mg. - however, when the scare was over I was told to come down 5mg a day. 30 - 25 - 20 - 15 etc. I felt dreadful. Has anyone else come down so sharply - my entire system is still going through it - even though I’
Saintmalo
in
PMRGCAuk
2 months ago
Tooth pulled, then dizzy
After a molar tooth was pulled I started getting headaches and two weeks plus I still have them. And now I am dizzy. I am six years into PMR on 6 mg per day of prednisone and doing fine until the tooth was pulled. Question: has anyone else had an episode like this? Thank you for your thoughts.
After a molar tooth was pulled I started getting headaches and two weeks plus I still have them. And now I am dizzy. I am six years into PMR on 6 mg per day of prednisone and doing fine until the tooth was pulled. Question: has anyone else had an episode like this? Thank you for your thoughts.
Neck680
in
PMRGCAuk
2 months ago
Migraine and prednisolone
Does anyone else suffer with migraines while taking prednisolone which I take for PMR (7.5 mg at present)? I started having migraine with aura several months ago and they seem to be getting more frequent. There's no pain, just this unpleasant visual disturbance. I've had my eyes tested and they're fine
Does anyone else suffer with migraines while taking prednisolone which I take for PMR (7.5 mg at present)? I started having migraine with aura several months ago and they seem to be getting more frequent. There's no pain, just this unpleasant visual disturbance. I've had my eyes tested and they're fine
Smithie49
in
PMRGCAuk
7 months ago
Concern about having more radiation to prostate after 43 external beam treatments 15 years ago
15 years ago my husband had 43 radiation treatments after PSA reached 50 & his 3rd biopsy showed 1 core to have cancer., Gleason was 3-3. He has had Lupron injections since then. He was on 250mg of Zytiga with food and 5 mg Prednisone for 3 years until a year ago because PSA was creeping up & he was
15 years ago my husband had 43 radiation treatments after PSA reached 50 & his 3rd biopsy showed 1 core to have cancer., Gleason was 3-3. He has had Lupron injections since then. He was on 250mg of Zytiga with food and 5 mg Prednisone for 3 years until a year ago because PSA was creeping up & he was
Pickleball38
in
Advanced Prostate Cancer
2 months ago
It'll be fine
I had my six month checkups and sometimes had to be numbed for a crown repair etc. There was never a problem. An extraction goes pretty quickly. It'll be over in minutes. You'll be fine. I assume your dentist knows you are taking prednisone so don't give it a thought.Good luck.
I had my six month checkups and sometimes had to be numbed for a crown repair etc. There was never a problem. An extraction goes pretty quickly. It'll be over in minutes. You'll be fine. I assume your dentist knows you are taking prednisone so don't give it a thought.Good luck.
Logic
in
PMRGCAuk
2 months ago
Post PMR treatment
Even though I completed prednisone for PMR in June 2022 & my blood work has been good. I am still on an anti inflammatory diet (basically a gluten & dairy free mediterranean diet). I find that I tire more easily & for longer periods. Sometimes I feel a stiffness as if a flare up is returning but
Even though I completed prednisone for PMR in June 2022 & my blood work has been good. I am still on an anti inflammatory diet (basically a gluten & dairy free mediterranean diet). I find that I tire more easily & for longer periods. Sometimes I feel a stiffness as if a flare up is returning but
smoothiemaker
in
PMRGCAuk
2 months ago
Anyone have success after several donor egg FET transfers?
Hi everyone I'm 45 years old and have done 5 FET transfers with only one positive (a chemical pregnancy that was an early loss.) I told myself I was done with IVF, but part of me wants to try one more time. I have done all the testing imaginable- karyotype, genetic, immune, ERA, emdomitritis etc- all
Hi everyone I'm 45 years old and have done 5 FET transfers with only one positive (a chemical pregnancy that was an early loss.) I told myself I was done with IVF, but part of me wants to try one more time. I have done all the testing imaginable- karyotype, genetic, immune, ERA, emdomitritis etc- all
Mellia
in
Fertility Network UK
2 months ago
Meeting with our oncologist for castrate resistance metastatic prostate cancer
We met with my Dad's MO yesterday. (Diagnosed 10/22 with advanced metastatic cancer, became castrate resistant about a year ago.) He shared that the Xtandi is still blocking some cancer growth, but not all of it. His PSA is 2.8 (currently doubling every four weeks.) His PetScan shows some growth (
We met with my Dad's MO yesterday. (Diagnosed 10/22 with advanced metastatic cancer, became castrate resistant about a year ago.) He shared that the Xtandi is still blocking some cancer growth, but not all of it. His PSA is 2.8 (currently doubling every four weeks.) His PetScan shows some growth (
lgutman
in
Advanced Prostate Cancer
2 months ago
cortisone shot while on prednisone
Now slow tapering from 3.5 to 3 of prednisone and my left hip is starting to have discomfort. (Actually a noted issue for me over the last 5years) X-rays show some minor arthritis and orthopedic doctor suggests guided cortisone shot. He said it shouldn’t impact my prednisone tapering since it’s very
Now slow tapering from 3.5 to 3 of prednisone and my left hip is starting to have discomfort. (Actually a noted issue for me over the last 5years) X-rays show some minor arthritis and orthopedic doctor suggests guided cortisone shot. He said it shouldn’t impact my prednisone tapering since it’s very
Spartans1
in
PMRGCAuk
2 months ago
PSA increasing
My Dad’s PSA started increasing 2.5 years after diagnosis. It was 0.008 in December, 0.024 at the beginning of March and 0.029 on yesterday. Please advise. Any suggestions are greatly appreciated. He is still taking Lupron, Abiraterone and Prednisone 10 mg that were started back in September of 2021.
My Dad’s PSA started increasing 2.5 years after diagnosis. It was 0.008 in December, 0.024 at the beginning of March and 0.029 on yesterday. Please advise. Any suggestions are greatly appreciated. He is still taking Lupron, Abiraterone and Prednisone 10 mg that were started back in September of 2021.
Simonapo
in
Advanced Prostate Cancer
2 months ago
To take or not to take daily dose of Prednisone before or after blood work (ESR and CRP), that is the question!
I'm going for blood work tomorrow morning, to check inflammatory markers, though not blood sugars as they have always been normal, so I can have breakfast beforehand. I usually take my Pred with breakfast (3.5 mg). Should I take my Pred as usual with breakfast before the tests or wait until afterwards
I'm going for blood work tomorrow morning, to check inflammatory markers, though not blood sugars as they have always been normal, so I can have breakfast beforehand. I usually take my Pred with breakfast (3.5 mg). Should I take my Pred as usual with breakfast before the tests or wait until afterwards
Dochaz
in
PMRGCAuk
2 months ago
Was there ever really a chance for a cure?
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
duxlubber
in
Advanced Prostate Cancer
2 months ago
Baker’s Cyst, Medial Meniscus tears
Quick recap - was diagnosed with PMR in May 2021 after 5 months of symptoms. Was put on 40 mg of Prednisone daily to start because of the GP’s worry it could be GCA. I’m currently on 4.25 mg and starting to slowly reduce to 4 mg. The summer of 2022, I noticed that I had a lump behind my knee. I showed
Quick recap - was diagnosed with PMR in May 2021 after 5 months of symptoms. Was put on 40 mg of Prednisone daily to start because of the GP’s worry it could be GCA. I’m currently on 4.25 mg and starting to slowly reduce to 4 mg. The summer of 2022, I noticed that I had a lump behind my knee. I showed
LucilleG
in
PMRGCAuk
2 months ago
Dental work- loosing a tooth
Hello! What a wonderful forum. I thank everyone for their knowledge & experience & I’m so appreciative! I wanted to check on having a tooth pulled and being on 8mg prednisone. I’ll be numbed ofcourse and the deed will be done. Don’t know if I need to worry… but probably will do so anyway. Thank
Hello! What a wonderful forum. I thank everyone for their knowledge & experience & I’m so appreciative! I wanted to check on having a tooth pulled and being on 8mg prednisone. I’ll be numbed ofcourse and the deed will be done. Don’t know if I need to worry… but probably will do so anyway. Thank
Snowyplover
in
PMRGCAuk
2 months ago
Update and about to start Radiation
Hi all - just a summary so far. Have been doing the triplet and recently finished the 6 sessions of chemo. Had my CT and Bone scans and then follow up with MO on Friday. All is as we expect - nothing shown in CT. Bone scan shows no new "uptake" in the mets places and nothing new. PSA at .41. I am
Hi all - just a summary so far. Have been doing the triplet and recently finished the 6 sessions of chemo. Had my CT and Bone scans and then follow up with MO on Friday. All is as we expect - nothing shown in CT. Bone scan shows no new "uptake" in the mets places and nothing new. PSA at .41. I am
Yzinger
in
Advanced Prostate Cancer
2 months ago
Further update on Trimbow
Saw the Dr this morning about the cough and wheezing since starting Trimbow he says you have a chest infection despite telling him the mucus I am coughing up is clear and the wheezing and coughing started a few days after starting the Trimbow. Dr wanted to give me Doxycycline and prednisone I told
Saw the Dr this morning about the cough and wheezing since starting Trimbow he says you have a chest infection despite telling him the mucus I am coughing up is clear and the wheezing and coughing started a few days after starting the Trimbow. Dr wanted to give me Doxycycline and prednisone I told
MrsP70
in
Lung Conditions Community Forum
2 months ago
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