Update and about to start Radiation

[Yzinger]

Hi all - just a summary so far. Have been doing the triplet and recently finished the 6 sessions of chemo. Had my CT and Bone scans and then follow up with MO on Friday.

All is as we expect - nothing shown in CT. Bone scan shows no new "uptake" in the mets places and nothing new.

PSA at .41. I am going to come off prednisone. I have been down to 1 pill daily (from 2 daily) for a couple weeks now and MO says to take 1 pill only every 2nd day for a week then stop.

He wants me to do a blood test every 12wks now so it seems we are now into a monitor situation and react to what those blood tests reveal.

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Also, I am starting radiation next week with the MO blessing. The first session in back to back days and then once a week for 5 weeks (so 6 weeks in total).

I am hoping the radiation helps with the frequent nighttime peeing and maybe I will get some sleep finally

Any thoughts, advice, comments, etc all welcome.

[RCR38]

Wow- you are young like I was when diagnosed. I too did all the treatments at one time then stayed on Lupron for 2 years before taking a drug holiday. My experience with radiation treatments was not a long term positive one. You may temporarily experience a slight worsening orf your urinary symptoms during treatment. My urinary leakage slowly got better over time about 3 months doing kagels, and adjusting my nightly liquid cutoff time. Now I still have some leakage here and there but don't wear anything extra so that's a win. Mentally some of these small things we experience seem rather large and maybe humiliating but they are more of an inconvenience compared to the beauty of life. Don't forget to stay healthy on the mental side my Brother as it is the hardest yet most important part of this journey!

[Yzinger in reply to RCR38]

Thanks for the note. Were you advanced PC? Meaning, did you have mets and are you still on holiday?

[RCR38 in reply to Yzinger]

At the time of my RP I had pelvic lymph node metastasis. Did all the triplet therapy and stayed on Lupron for two years with undetectable PSA. Took a holiday and during that time a scan found seven new metastasis throughout my body all in the lymph nodes. At this time I decided to seek out the best treatment avail to me. I live in the US- Utah. The best care is Mayo Clinic in Minnesota which is a five hour flight for us. I am going there on April 15th to begin the new part of my journey.

[Yzinger]

wow - thanks for the input. Alot of times I hope to be in a spot that a vacation might be ok but i feel like i hear more often than not that a vacation is NOT good.

Good luck brother.

[j-o-h-n]

That's why this site is wonderful............Two strangers being "brothers." God Bless you both...

Good Luck, Good Health and Good Humor.

j-o-h-n

[Yzinger]

Brother John - thanks for reply man