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benfotiamine vs thiamine hcl
My initial symptoms improvement (before switching to thiamin HCL) is credited to 500mg/day of benfotiamine. I must now reconsider choices. HCL is reported to be effective in one to two months from starting. I will continue with thiamin HCL for the remaining 5 weeks and after two months total if I do
My initial symptoms improvement (before switching to thiamin HCL) is credited to 500mg/day of benfotiamine. I must now reconsider choices. HCL is reported to be effective in one to two months from starting. I will continue with thiamin HCL for the remaining 5 weeks and after two months total if I do
Hidden
in
Cure Parkinson's
7 years ago
peripheral neuropathy and ataxia
Hi everyone - I am just wondering if anyone with ataxia has been diagnosed with peripheral neuropathy. Thanks
Hi everyone - I am just wondering if anyone with ataxia has been diagnosed with peripheral neuropathy. Thanks
Amynah
in
Ataxia UK
7 years ago
The murky waters of thiamine.
I see there is growing interest on high dose thiamine on this forum. Sadly, the topic is being driven with lots of information that is either old or from a single source. I want to offer some additional information that people can use to make their own decisions, and I will update the studies I find
I see there is growing interest on high dose thiamine on this forum. Sadly, the topic is being driven with lots of information that is either old or from a single source. I want to offer some additional information that people can use to make their own decisions, and I will update the studies I find
sunvox
in
Cure Parkinson's
7 years ago
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Electric toothbrushes
Ok so been a while but I was wondering what you fellow Raynauds folks use when it comes to electric toothbrushes? I’ve tried using electric shaver when I first started shaving and Raynauds soon kicked in. Any suggestions?
Ok so been a while but I was wondering what you fellow Raynauds folks use when it comes to electric toothbrushes? I’ve tried using electric shaver when I first started shaving and Raynauds soon kicked in. Any suggestions?
james87
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
GP with a gap in her knowledge.
Hi I'm new here. My B12 serum was 499 when tested in October and my GP said this was normal. I have almost every symptom on the PAS checklist and have numbness and tingling in both feet which has now started in my hands. I went to my GP last week to request an active B12 test and was amazed when she
Hi I'm new here. My B12 serum was 499 when tested in October and my GP said this was normal. I have almost every symptom on the PAS checklist and have numbness and tingling in both feet which has now started in my hands. I went to my GP last week to request an active B12 test and was amazed when she
Nettyanne
in
Pernicious Anaemia Society
7 years ago
Update from Locum app and urgent advice on R-lipoid Acid
Hello, I wrote a few months ago was feeling very unwell with my neuro symptoms, Had an app with new locum. Turned out she was lovely. Listened to me, didn't type during consultation and without me having to ask suggested further bloods for thyroid and antibodies. If needed she would start medication.
Hello, I wrote a few months ago was feeling very unwell with my neuro symptoms, Had an app with new locum. Turned out she was lovely. Listened to me, didn't type during consultation and without me having to ask suggested further bloods for thyroid and antibodies. If needed she would start medication.
potter5
in
Pernicious Anaemia Society
7 years ago
How long does it usually take for neurologists to write to gp's after consultation to commence treatment?
Hi guys, so I had my neurologist appointment last Thursday and he came to the conclusion that I should be receiving treatment, I know a week isn't that long but my GPs not had my blood results which were taken on same day or a letter from neurologist. I had to wait 9 months for my neurology appointment
Hi guys, so I had my neurologist appointment last Thursday and he came to the conclusion that I should be receiving treatment, I know a week isn't that long but my GPs not had my blood results which were taken on same day or a letter from neurologist. I had to wait 9 months for my neurology appointment
lc24
in
Pernicious Anaemia Society
7 years ago
Pressure in ractum to anus and base of penis, scrotum and burning in urethra 24 hours.
Guys I have pressure in my ractum to anus area, feel like I have to push like poo. I have constantly burning sensation in my urethra,fell something giving pressure in my base of penis and urethra. Sometimes I have penis burning sensation. No doctor help me. Our Bangladeshi doctor have no idea what kind
Guys I have pressure in my ractum to anus area, feel like I have to push like poo. I have constantly burning sensation in my urethra,fell something giving pressure in my base of penis and urethra. Sometimes I have penis burning sensation. No doctor help me. Our Bangladeshi doctor have no idea what kind
Anik420
in
Pelvic Pain Support Network
7 years ago
Please help me girls to get out of this gloom
Hello sisters. I think most of you know how happy I usually am but before Christmas I went to a very dark place. I feel well and my hair is growing. I had my PET scan yesterday and blood test this morning. My CA125 result just came through. Last one was 22nd December at 125 and now a month later
Hello sisters. I think most of you know how happy I usually am but before Christmas I went to a very dark place. I feel well and my hair is growing. I had my PET scan yesterday and blood test this morning. My CA125 result just came through. Last one was 22nd December at 125 and now a month later
Kryssy
in
My Ovacome
7 years ago
Cautious Good News
My CT scan results are good and there has been a tiny bit of shrinkage. However there has been some tethering of the bowel and some thickening in something called the jejunum. I have been told I must keep on top of my bowels to prevent any blockages. My heart EF has continued to drop and it’s now borderline
My CT scan results are good and there has been a tiny bit of shrinkage. However there has been some tethering of the bowel and some thickening in something called the jejunum. I have been told I must keep on top of my bowels to prevent any blockages. My heart EF has continued to drop and it’s now borderline
ScardyCat40
in
My Ovacome
7 years ago
Pepper Spay in eyes-help needed
I'll try to make this as short as I Can. So recently went to visit cousins. We regularly go on walks-I use a walker. We made it around the block and a guy with a balaclava assaulted us and sprayed a chemical in our eyes, I put my hand up to stop the spray getting in my eyes but i could.feel a lot inside
I'll try to make this as short as I Can. So recently went to visit cousins. We regularly go on walks-I use a walker. We made it around the block and a guy with a balaclava assaulted us and sprayed a chemical in our eyes, I put my hand up to stop the spray getting in my eyes but i could.feel a lot inside
illerpath
in
Ataxia UK
7 years ago
Dr Theresa Ramsey has practiced allopathic and naturopathic medicine for 22 years, but has only known about and utilized LDN for one year.
Dr Theresa Ramsey has practiced allopathic and naturopathic medicine for 22 years, but has only known about and utilized LDN for one year. Since learning how effectively Low Dose Naltrexone is for all autoimmune diseases, she has applied it in her clinic and is teaching her fellow doctors about dosing
Dr Theresa Ramsey has practiced allopathic and naturopathic medicine for 22 years, but has only known about and utilized LDN for one year. Since learning how effectively Low Dose Naltrexone is for all autoimmune diseases, she has applied it in her clinic and is teaching her fellow doctors about dosing
liveurlife
Volunteer
in
LDN Research Trust
7 years ago
Fibro foot pain - shoes, meds, and swimming
Foot pain has been with for the last 4 years of fibro. I went to a podiatrist and she thought the bottem of my feet were just one of my pain spots. Not helpful. For me if i do not take care of my feet my fibro pain increases in my legs knees and hips. I have gradually fazed out unsupportive shoes and
Foot pain has been with for the last 4 years of fibro. I went to a podiatrist and she thought the bottem of my feet were just one of my pain spots. Not helpful. For me if i do not take care of my feet my fibro pain increases in my legs knees and hips. I have gradually fazed out unsupportive shoes and
Laurel-martin42
in
Fibromyalgia Action UK
7 years ago
Creatine episode
suramo I request for your reaction on the following experience,so that I can improve my understanding regarding creatine: My creatine reading as per lab report (Lab accredited by CMC,Vellore) was 1.19{o4/03/13) ,1.13(22/12/15),1.29(19/3/16),1.3(08/11/16-diff. lab)1.51(05/04/17),1.47(15/01/17),1.45,1.42
suramo I request for your reaction on the following experience,so that I can improve my understanding regarding creatine: My creatine reading as per lab report (Lab accredited by CMC,Vellore) was 1.19{o4/03/13) ,1.13(22/12/15),1.29(19/3/16),1.3(08/11/16-diff. lab)1.51(05/04/17),1.47(15/01/17),1.45,1.42
ramana42
Volunteer
in
Diabetes India
7 years ago
Jaw & tongue numbness update
Since my last post my daughter is experiencing numbness on her chin, temple, forehead and her neck. I can’t remember what I said in my last post but 2 trips to A & E with nothing found & a panoramic dental X-ray revealed a dark shadow on her left jaw. Dentist agreed to contact GP to agree who would
Since my last post my daughter is experiencing numbness on her chin, temple, forehead and her neck. I can’t remember what I said in my last post but 2 trips to A & E with nothing found & a panoramic dental X-ray revealed a dark shadow on her left jaw. Dentist agreed to contact GP to agree who would
t3rcam
in
Thyroid UK
7 years ago
Methotrexate good or bad ?
Hi I’ve had lupus diagnosis for nearly 3 years now I’m on 400mg hydroxy, sr tramadol full does and amytriptline. Currently trying etodolac, tried various NSAIDs, diclofinic, naproxen, ibrofen, etoricoxib, celecoxib also gabapentin, pregagablin (these are ones I remember!) either with no help or reactions
Hi I’ve had lupus diagnosis for nearly 3 years now I’m on 400mg hydroxy, sr tramadol full does and amytriptline. Currently trying etodolac, tried various NSAIDs, diclofinic, naproxen, ibrofen, etoricoxib, celecoxib also gabapentin, pregagablin (these are ones I remember!) either with no help or reactions
Gizmok9
in
LUPUS UK
7 years ago
Small Fiber Neuropathy Support Group
Hello. I have diabetes and small fiber/peripheral neuropathy in my stomach and all 4 limbs including feet, legs, hips, lower back/lumbar, hands, arms, shoulders and neck. I’m looking for a support group either online that services the Somersworth, nh or surrounding areas. Please help.
Hello. I have diabetes and small fiber/peripheral neuropathy in my stomach and all 4 limbs including feet, legs, hips, lower back/lumbar, hands, arms, shoulders and neck. I’m looking for a support group either online that services the Somersworth, nh or surrounding areas. Please help.
Joannemlf
in
Foggy's "Invisible Illness" Support
7 years ago
Hello all! I am wondering if anyone is having severe foot pain? If so do u know what is causing it?
I have been waking up at night with sever pain on the bottom of my feet especially the heal. I have no idea why I do not spend a lot of time on my feet and there is nothing that I have been able to figure out that’s causing it or why it’s happening. Every time there is something wrong and I have testing
I have been waking up at night with sever pain on the bottom of my feet especially the heal. I have no idea why I do not spend a lot of time on my feet and there is nothing that I have been able to figure out that’s causing it or why it’s happening. Every time there is something wrong and I have testing
SoulRebel-APS
in
Hughes Syndrome APS Forum
7 years ago
Starting Chemo suggestions?
My father will begin his Chemo next week at the City of Hope under the care of Dr. Dorff. I was looking for possible suggestions for the cooling caps and mittens as well as icing feet. I’m not sure what they offer but I am assuming I should have these ready. Also i wanted to do something creative, maybe
My father will begin his Chemo next week at the City of Hope under the care of Dr. Dorff. I was looking for possible suggestions for the cooling caps and mittens as well as icing feet. I’m not sure what they offer but I am assuming I should have these ready. Also i wanted to do something creative, maybe
Daddysdaughter
in
Advanced Prostate Cancer
7 years ago
Pregabalin (Lyrica) causing restlessness?
I have gradually increased my dose of pregabalin and have been on 150mg for about a week. It seems to be working - I have had very little nocturnal urge to move in my legs where my Rls usually presents. However I am experiencing a powerful restlessness across my chest and torso which is horrible and
I have gradually increased my dose of pregabalin and have been on 150mg for about a week. It seems to be working - I have had very little nocturnal urge to move in my legs where my Rls usually presents. However I am experiencing a powerful restlessness across my chest and torso which is horrible and
involuntarydancer
in
Restless Legs Syndrome
7 years ago
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