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Nasu-Hakola disease
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Is it common to get laryngitis with aps?
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
Charts
in
Hughes Syndrome APS Forum
6 months ago
Weak positive
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Demilouise
in
LUPUS UK
6 months ago
OK bloods...Still plateauing??
Hi again 👋About 7 weeks ago I increased my levo from 50mcg to 75mcg after discussing here. Initially, revved up again. Happy days- more energy, lost a small bit of weight, mood improved etc. I have started slipping back again and thought I'd get my bloods done again before I do anymore 'tinkering'.
Hi again 👋About 7 weeks ago I increased my levo from 50mcg to 75mcg after discussing here. Initially, revved up again. Happy days- more energy, lost a small bit of weight, mood improved etc. I have started slipping back again and thought I'd get my bloods done again before I do anymore 'tinkering'.
Caffeinefreezone
in
Thyroid UK
8 months ago
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8 hour flight
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
Footballwidow66
in
MPN Voice
6 months ago
Dr. Bianco: video from Thyroid Foundation of Canada
from 9 months ago. Somehow it ended up in my youtube feed this morning. He makes the point that L-thyroxine doesn't always manage to result in good fT3 levels and patients need Liothyronine. https://www.youtube.com/watch?v=PGlYO_H4Gdc&t=2682s
from 9 months ago. Somehow it ended up in my youtube feed this morning. He makes the point that L-thyroxine doesn't always manage to result in good fT3 levels and patients need Liothyronine. https://www.youtube.com/watch?v=PGlYO_H4Gdc&t=2682s
gabkad
in
Thyroid UK
6 months ago
Low hemoglobin
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
horsie63
in
Kidney Dialysis
8 months ago
24hr Holter
Hi, Recently started back on Bisoprolol for palpitations/PVCs after 7yrs off. I'm on low dose, 1.25mg but they've really calmed down what were pretty uncomfortable symptoms (3 A&E visits in one weekend!) Anyhow, have a holter monitor booked for next week and not sure whether to stop the Bisoprolol or
Hi, Recently started back on Bisoprolol for palpitations/PVCs after 7yrs off. I'm on low dose, 1.25mg but they've really calmed down what were pretty uncomfortable symptoms (3 A&E visits in one weekend!) Anyhow, have a holter monitor booked for next week and not sure whether to stop the Bisoprolol or
BillyBBalls
in
AF Association
6 months ago
Previous Heart attack/stent
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
Frazzelena
in
Sudden Cardiac Arrest & Heart Attack
6 months ago
serum lipids
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Lottyplum
in
Thyroid UK
6 months ago
Good morning. Could anyone help? Thank you
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Helen-NRAS
Moderator
in
NRAS
6 months ago
Reducing cholesterol
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
Tellingfibs
in
Atrial Fibrillation Support
6 months ago
Switching from Disopyramide to Bisoprolol - any advice?
Hi, I have been taking Disopyramide (Rhythmodan Retard 250mg) for AF, but have been unable to find any pharmacists with stock for a while now. So the Cardiac Nurse at my Doctor's Surgery has switched me to Bisoprolol. I am about to switch over from the last of my Disopyramide, and start with the Bisoprolol
Hi, I have been taking Disopyramide (Rhythmodan Retard 250mg) for AF, but have been unable to find any pharmacists with stock for a while now. So the Cardiac Nurse at my Doctor's Surgery has switched me to Bisoprolol. I am about to switch over from the last of my Disopyramide, and start with the Bisoprolol
DE-AF
in
AF Association
6 months ago
Bisoprolol
The only problem I ve encountered is with the specific AF tablet dihydrochloride etc. I have never encountered a problem with 10mg Bisoprolol. I m on Entresto Digoxin spironolactone apixaban and a number of others.
The only problem I ve encountered is with the specific AF tablet dihydrochloride etc. I have never encountered a problem with 10mg Bisoprolol. I m on Entresto Digoxin spironolactone apixaban and a number of others.
NAC1
in
AF Association
6 months ago
Cramps
I have been having a few problems with my hands lately, stiffness etc which my GP originally put down to old age and arthritis, but just lately I have been getting cramp in my left hand which can be painful, do you think this could be due to arthritis or possibly something else?
I have been having a few problems with my hands lately, stiffness etc which my GP originally put down to old age and arthritis, but just lately I have been getting cramp in my left hand which can be painful, do you think this could be due to arthritis or possibly something else?
Doggie123-UK
in
Arthritis Action
6 months ago
Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
8 months ago
PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Cascade35
in
PBC Foundation
8 months ago
Elevated LDH
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
leahleah
in
CLL Support
8 months ago
Treatment Update IMRT with ADT 18 months later
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Mischa1111111
in
Advanced Prostate Cancer
8 months ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
8 months ago
Kellgren Centre in Manchester retains LUPUS UK Centre of Excellence award
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
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