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Black History Month and Lupus Awareness Month event this Saturday 7th October - some tickets still remaining!
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
michaellasmith
Administrator
in
LUPUS UK
7 months ago
taxotere and PSA
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
CWT53
in
Advanced Prostate Cancer
9 months ago
LINQ ECG implant - what follow up have people had.
Hi everyone with or similar LINQ ECG implant fitted. My LINQ device was fitted in February of this year. In May I received a telephone call from the cardiology team, who I have not met, that an Afib event was detected and a medication change to EDOXABAN was prescribed. I have not had any further
Hi everyone with or similar LINQ ECG implant fitted. My LINQ device was fitted in February of this year. In May I received a telephone call from the cardiology team, who I have not met, that an Afib event was detected and a medication change to EDOXABAN was prescribed. I have not had any further
Chinkoflight
in
Atrial Fibrillation Support
6 months ago
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COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
Cerelle desogestrel
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
Surfingblue
in
Endometriosis UK
9 months ago
Narirutin found in lemons, oranges, passion fruit, bergamot and grapefruit may be chemopreventive agent for hormone-resistant PC
Narirutin. A flavonoid found in citrus fruits modulates cell cycle phases and inhibits the proliferation of hormone-refractory prostate cancer cells by targeting hyaluronidase Author links open overlay panelShilpi Singh a b, Akhilesh Kumar Maurya c, Abha Meena a b, Nidhi Mishra c, Suaib Luqman a b
Narirutin. A flavonoid found in citrus fruits modulates cell cycle phases and inhibits the proliferation of hormone-refractory prostate cancer cells by targeting hyaluronidase Author links open overlay panelShilpi Singh a b, Akhilesh Kumar Maurya c, Abha Meena a b, Nidhi Mishra c, Suaib Luqman a b
Graham49
in
Advanced Prostate Cancer
9 months ago
Wrist and hand operation.
Hi again lovely helpful people. I am due to have a wrist and knuckle replacements (MCPJ silastic replacement) and intrinsic releases (tendons I think). It’s a big deal and not without risks I’m very worried. I was wondering if anyone else had a similar operation? Thank you 🙏
Hi again lovely helpful people. I am due to have a wrist and knuckle replacements (MCPJ silastic replacement) and intrinsic releases (tendons I think). It’s a big deal and not without risks I’m very worried. I was wondering if anyone else had a similar operation? Thank you 🙏
debjw
in
NRAS
7 months ago
Poem on MS (from artificial intelligence)
I asked ChatGPT to write a poem about MS: Multiple sclerosis, a disease unknown A monster that lurks and leaves people alone It attacks the body and the mind Leaves its victims feeling confined It strikes without warning, no time to prepare Leaves us stranded and without a care It takes away
I asked ChatGPT to write a poem about MS: Multiple sclerosis, a disease unknown A monster that lurks and leaves people alone It attacks the body and the mind Leaves its victims feeling confined It strikes without warning, no time to prepare Leaves us stranded and without a care It takes away
anaishunter
in
My MSAA Community
7 months ago
Edema
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
gsun
in
Advanced Prostate Cancer
9 months ago
Roadmap needed for thiamine mononitrate & PD, just like Dr Costantini provided for thiamine HCL & PD
Appreciate it if anyone could direct me to more info, I have Daphine's book, tried the HU search engine many times, & googled, but no luck. I am one of th e lucky people who responded well to thiamine HCL,,,It enabled me to effortlesly get up from a sit position, easily, walk using a normal
Appreciate it if anyone could direct me to more info, I have Daphine's book, tried the HU search engine many times, & googled, but no luck. I am one of th e lucky people who responded well to thiamine HCL,,,It enabled me to effortlesly get up from a sit position, easily, walk using a normal
KERRINGTON
in
Cure Parkinson's
9 months ago
Black History Month and Lupus Awareness Month Event - This Saturday 7th October - Tickets still available!
There is still time to get your free ticket and join us this Saturday to celebrate Black History Month & Lupus Awareness Month combined! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday
There is still time to get your free ticket and join us this Saturday to celebrate Black History Month & Lupus Awareness Month combined! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday
michaellasmith
Administrator
in
LUPUS UK
7 months ago
Long term Steroids.
Many thanks for all your replies to my post.As I stated before, I am due to see my new Rheumatoid Consultant next week, so I'm very hopeful that she will help me on my journey and give me a suitable Rheumy drug that will suit me. I can then hopefully, slowly come off the Predisolone.
Many thanks for all your replies to my post.As I stated before, I am due to see my new Rheumatoid Consultant next week, so I'm very hopeful that she will help me on my journey and give me a suitable Rheumy drug that will suit me. I can then hopefully, slowly come off the Predisolone.
Chanelady
in
NRAS
7 months ago
Pernicious Anaemia
Hi all, following conversation on here I asked my doctor for a blood test to check for Pernicious Anaemia. These are the results. They all look good. Could someone please point out which ones the pernicious anaemia tests are? TIA 😊. Results in comments as I can’t figure out how to attach multiple
Hi all, following conversation on here I asked my doctor for a blood test to check for Pernicious Anaemia. These are the results. They all look good. Could someone please point out which ones the pernicious anaemia tests are? TIA 😊. Results in comments as I can’t figure out how to attach multiple
EllsBells591
in
Thyroid UK
7 months ago
Simple Prostatectomy
Hello everyone , My father was diagnosed with locally advanced prostate cancer in March of 2021, PSA 6900 … After 3 months on Eligard his PSA dropped to 0.6 and it has been so for more than 2 years now. He has been on foley catheter since March of 2021 because of a very enlarged prostate and has refused
Hello everyone , My father was diagnosed with locally advanced prostate cancer in March of 2021, PSA 6900 … After 3 months on Eligard his PSA dropped to 0.6 and it has been so for more than 2 years now. He has been on foley catheter since March of 2021 because of a very enlarged prostate and has refused
naples2021
in
Advanced Prostate Cancer
9 months ago
Afib Stroke Risk Lower in those that take Statins
Statin use is usually associated with a reduction of cholesterol and heart attacks, but a new study also shows an important additional benefit -- a significant reduction in strokes and TIA's in the Afib population. Something to discuss with your doctor if you're not already on statins, especially
Statin use is usually associated with a reduction of cholesterol and heart attacks, but a new study also shows an important additional benefit -- a significant reduction in strokes and TIA's in the Afib population. Something to discuss with your doctor if you're not already on statins, especially
mjames1
in
AF Association
7 months ago
ecg on Apple Watch different to the red heart section
Hi myself and my husband are a bit confused as his Apple Watch on the ecg says average 110/120 beats a minute but the average heart rate on the red heart says average between sixties to nineties . We were thinking maybe the ecg is picking up Jist the fast beats as he has persistent AF we are waiting
Hi myself and my husband are a bit confused as his Apple Watch on the ecg says average 110/120 beats a minute but the average heart rate on the red heart says average between sixties to nineties . We were thinking maybe the ecg is picking up Jist the fast beats as he has persistent AF we are waiting
Jackiesmith7777
in
AF Association
7 months ago
Nailfold infection
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
janetfmauk
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Update
Hi, so after a shock fibroscan result of 9.7 kpa, I went back to see hepatologist, who did another shearwave scan.My timelines of results is as follows (this is for info only, so people can see what I mean): Oct 21 Fibroscan 4.7 kpa Jan 22 Shearwave 1.57 m/s = approx 7.5 kpa Mar 22 Fibroscan 5.9 kpa
Hi, so after a shock fibroscan result of 9.7 kpa, I went back to see hepatologist, who did another shearwave scan.My timelines of results is as follows (this is for info only, so people can see what I mean): Oct 21 Fibroscan 4.7 kpa Jan 22 Shearwave 1.57 m/s = approx 7.5 kpa Mar 22 Fibroscan 5.9 kpa
nerd1
in
British Liver Trust
9 months ago
beta blockers and anticoagulants
Medscape posted a long article about a research on beta blockers and how few RCTs have been done on their efficacy for AF. It was hard to interpret but seems that for some folk they make AF worse and for many the side effects are too negative. There’s also an article on over prescribing of anticoagulants
Medscape posted a long article about a research on beta blockers and how few RCTs have been done on their efficacy for AF. It was hard to interpret but seems that for some folk they make AF worse and for many the side effects are too negative. There’s also an article on over prescribing of anticoagulants
OldJane
in
Atrial Fibrillation Support
7 months ago
Ranges
Sorry did not put ranges for results: T3 4.6 (3.1 - 6.8) Anti thyroid peroxidase ab <9 iu/mL (<34) Plasma ACTH 16 ng/L (no range given) Renin 11.12 uIU/mL (no range given) Synacthen Basal Level after 30 mins 483 nmol/L (> 450)
Sorry did not put ranges for results: T3 4.6 (3.1 - 6.8) Anti thyroid peroxidase ab <9 iu/mL (<34) Plasma ACTH 16 ng/L (no range given) Renin 11.12 uIU/mL (no range given) Synacthen Basal Level after 30 mins 483 nmol/L (> 450)
jenny876
in
Thyroid UK
9 months ago
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