Experiences with

Nasu-Hakola disease

She is in the digestive disease unit now, and has got aspiration pneumonia, I think from the endoscopy. She has a decompensated liver and ascetites. She has been quite confused but seemed clearer in her thinking yesterday. She has sworn off alcohol, this has all been such a shock.

I just had my first adrenal test by an Endochronologist. I was on the equivalent of 2.5 mg Prednisone for PMR and now on 15mg/day of Hydrocortisone for the past 2 weeks. The cortisol test showed 22.6 mcg/dL (normal range is 4.0 - 22.0). Doctor has not commented yet. It appears normal so I am thinking

Treatment designed to boost mitochondrial function-- New Zealand https://parkinsonsnewstoday.com/news/pretzel-advances-mitochondrial-therapy-px578-phase-1-trial/?utm_source=PAR&utm_campaign=530d83d996-Email_ENL_US_PAR&utm_medium=email&utm_term=0_62dd4fb5e3-530d83d996-74556474 Pretzel Therapeutics has

Professor Thomas Foltynie, the lead author of the study, acknowledged the disappointment that these findings would bring to patients and the broader research community focused on Parkinson's disease.

Have been diagnosed with Graves disease about 18 years ago, went into remission A few times. This time they want to remove my thyroid.

I was just reading today about the recent UCLA study (published 12/13/24) that found that omega-3‘s and fish oil slow the proliferation of prostate cancer. The study only applied to men on active surveillance. Does anyone have any information about its benefit for men with advanced PCa? I have also

Was in hospital may 24 with stomach pain and slight jaundice had to have ascetic drain it turned out I have decompensated liver cirhosis with moderate ascites, on discharge they have given me around 2 years to live no hope of liver transplant i am a year into that body aches all the time get tired easily

i have friends who are asking my husband if he has tried Ivermectin for his PD. His symptoms have escalated in last 2 years . We have used C/L for years add Rytary , Azilect, Amantidine etc now Crexont and not sure he isnt allergic! We dont qualify for Vyaleve pump because of a stupid look hole so here

Preeclampsia during pregnancy can accelerate CKD Patients with chronic kidney disease who have preeclampsia during pregnancy may face higher risk for long-term kidney function decline or end-stage kidney disease.

Evidence of Disease Progression Progression is confirmed by either biochemical (PSA) or radiographic criteria: Biochemical Progression Radiographic Progression All of these: • Three consecutive PSA rises (≥1 week apart). • Each PSA value ≥50% above the nadir (lowest PSA on ADT).

Enter the survey here: https://malecare.org/april-survey/ Friend of Malecare Richard Wassersug, PhD has an interesting survey. He writes: We are interested in understanding the beliefs and opinions of men who have been diagnosed with Prostate Cancer (PCa) about Alternative Forms of Androgen Deprivation

This appeared in my inbox recently and I thought those facing hip or knee replacement might find it interesting. It is from the USA, it is quite likely the UK may be rather later adopting some of the approaches but it makes very interesting reading if you are worried about the possibility in the future

I am 75 years old and retired.I underwent scans for a kidney stone in my bladder, when my doctor rang and said that he had reviewed the scans and he thought that he could see evidence of a fatty liver. I then had lots of scans mriscan fibrosis scan etc , at first I was told it's a fatty liver,a few weeks

So as previously mentioned i had the routine screen done for bbv's whilst in A&E, hepatitis b showed as "reactive" i have since been to see a hepatologist and had further testing done i haven't got the full results back however they're slowly starting to come through but i'm still unsure on how to read

“The trial data demonstrated a clear clinical benefit in delaying disease progression in eligible patients, offering an additional therapeutic approach in this setting.”

I feel sure it's probably the natural progression of this disease! Any ideas or suggestions are appreciated! To add I've gained 30/lbs making me feel horrible!

Had a Liver Biopsy yesterday and an MRI Scan on my brain as I am still experiencing severe mental confusion. Been told i am going to have to wait 8 to 10 days for results. Suffice to say still not feeling great. Worse in fact. Just don't know what to do?

Hi Everyone, I have been a follower of the Kidney Project out of UCSF for the last 5-6 years. Dr Shuvo and his team are doing a fantastic job to bring this innovation to life. But as a non-profit they have only access to funds through fundraisers and donations. It pains me to say that this project

Hi y’all. Been a while since I posted. Been feeling pretty good while on “wait & watch” since December of ‘22. My WBC was 21.8 then and my Abs Lymphocytes was 18. Now after more than 2 years, my WBC is 29 and my Abs Lymphocytes are 24.7. Again…..I feel good with no symptoms. However, my RDW

Hello All, After 6 moths on Medrol (48mg - 3.5mg I had symptoms of adrenal crisis) my rhuemy passed me on to my endocrinologist (had no more PMR pain). The endo started me on 50mg Hydrocortisone. He has not been sure if adrenal insufficiency or steroid withdrawal syndrome as same symptoms. I have