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Mycophenolate
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Mycophenolateand flu like symptoms
I was building up to a full dose of
mycophenolate
. As the dose was increasing I started getting pain like I have the flu. This is then making me not sleep. My nurse has had me stop my medication to see if pain stops. Any one else experienced this?
I was building up to a full dose of
mycophenolate
. As the dose was increasing I started getting pain like I have the flu. This is then making me not sleep. My nurse has had me stop my medication to see if pain stops. Any one else experienced this?
adrienneioannou
in
LUPUS UK
9 years ago
Thank you xx
I am now on
mycophenolate
prednisolone hydroxchloaquin and have to see a renal and lupus specialist after every two weeks A new problem is sleep. Last week in total i had around 20 hours of sleep and felt wide awake all week.
I am now on
mycophenolate
prednisolone hydroxchloaquin and have to see a renal and lupus specialist after every two weeks A new problem is sleep. Last week in total i had around 20 hours of sleep and felt wide awake all week.
pearl123
in
LUPUS UK
9 years ago
Mycophenolate and decreased appetite
I have started week three of
mycophenolate
. I have found I have had a decreased appetite since starting on it. Has anybody experienced this?
I have started week three of
mycophenolate
. I have found I have had a decreased appetite since starting on it. Has anybody experienced this?
adrienneioannou
in
LUPUS UK
9 years ago
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Chesty cough/cold for 5 days. When to seek medical advice?
I have sle. ( On
mycophenolate
and hydroxychloroquine. Had steroid injection 2 weeks ago.) Started a cough and cold on boxing day. Cough really productive and feeling exhausted. No temperature though. I think its probably just a viral thing but, when to see a doctor??
I have sle. ( On
mycophenolate
and hydroxychloroquine. Had steroid injection 2 weeks ago.) Started a cough and cold on boxing day. Cough really productive and feeling exhausted. No temperature though. I think its probably just a viral thing but, when to see a doctor??
jo100
in
LUPUS UK
9 years ago
Salty tasting saliva
I have ITP and have been on
mycophenolate
for two and a half years and also take penicillin twice a day, a result of my splenectomy, but recently my saliva has started tasting very salty I have had this for over two months and is is very unpleasant. My diet has not changed, nor my medication.
I have ITP and have been on
mycophenolate
for two and a half years and also take penicillin twice a day, a result of my splenectomy, but recently my saliva has started tasting very salty I have had this for over two months and is is very unpleasant. My diet has not changed, nor my medication.
NickyD
in
ITP Support Association
10 years ago
Sleep apnoea/laryngospasm
I take
Mycophenolate
& low dose prednisolone for lupus and have weak resp muscles (?cause) so can find it hard to breathe well when lying down. My Consultant uses the terms Sleep apnoea and laryngospasm interchangeably but is not investigating/treating for either. I am 47, female & slim.
I take
Mycophenolate
& low dose prednisolone for lupus and have weak resp muscles (?cause) so can find it hard to breathe well when lying down. My Consultant uses the terms Sleep apnoea and laryngospasm interchangeably but is not investigating/treating for either. I am 47, female & slim.
Fennella02
in
Lung Conditions Community Forum
10 years ago
Ciclosporin and neuro-toxicity
I've recently changed drugs - from
mycophenolate
to Ciclosporin - because
mycophenolate
wasn't effective in controlling my lupus anymore (after only 18 months of taking it).
I've recently changed drugs - from
mycophenolate
to Ciclosporin - because
mycophenolate
wasn't effective in controlling my lupus anymore (after only 18 months of taking it).
Purpletop
in
LUPUS UK
10 years ago
Medication change
I've been on Azathioprine &
Mycophenolate
Mofetil both with no success. These have come up so I was wondering what they were like? Fighting on in hope something will work. :-)
I've been on Azathioprine &
Mycophenolate
Mofetil both with no success. These have come up so I was wondering what they were like? Fighting on in hope something will work. :-)
Snow-Drop
in
Behçet's UK
10 years ago
Mycophenolate and low blood pressure
Does anyone get they have low blood pressure as a side effect of
mycophenolate
? I have been getting unexplained dizziness for a long time which no one can explain and now it has been noted how low my blood pressure can drop which I have been told can be a side effect of the medication.
Does anyone get they have low blood pressure as a side effect of
mycophenolate
? I have been getting unexplained dizziness for a long time which no one can explain and now it has been noted how low my blood pressure can drop which I have been told can be a side effect of the medication.
Galaxy2
in
Vasculitis UK
10 years ago
New plan of action
Have decided I will start
mycophenolate
in December and get another steroid injection to get me through the holidays. Lets hope this works.
Have decided I will start
mycophenolate
in December and get another steroid injection to get me through the holidays. Lets hope this works.
adrienneioannou
in
LUPUS UK
10 years ago
Lichen planus overlap SLE
I added
mycophenolate
to my daily meds last January, and since then I've had less of these recurring oral mucosa manifestations, which I've been managing & minimising via prescription topical steroids & meticulous oral hygiene routines + dental clinic monitoring etc.
I added
mycophenolate
to my daily meds last January, and since then I've had less of these recurring oral mucosa manifestations, which I've been managing & minimising via prescription topical steroids & meticulous oral hygiene routines + dental clinic monitoring etc.
Barnclown
in
LUPUS UK
10 years ago
Rituximab
Found releif from symptoms for about 8 months taking
mycophenolate
. Reduced steroids down to 5mg and was feeling pretty good.
Found releif from symptoms for about 8 months taking
mycophenolate
. Reduced steroids down to 5mg and was feeling pretty good.
joannebond360
in
LUPUS UK
10 years ago
Update and Further Vasculitis (WG) advice would be welcome
I have a CT scan on my lungs next week and the Rheumatologist has said that once the results of that are known and matched with the lung function checks, she will make the final decision as to whether I am treated with Cyclophosphamide or
Mycophenolate
.
I have a CT scan on my lungs next week and the Rheumatologist has said that once the results of that are known and matched with the lung function checks, she will make the final decision as to whether I am treated with Cyclophosphamide or
Mycophenolate
.
chsskg
in
Vasculitis UK
10 years ago
Change of meds
Also anyone used rituximab or
mycophenolate
?
Also anyone used rituximab or
mycophenolate
?
adrienneioannou
in
LUPUS UK
10 years ago
Hello all
I have had chemo therapy but had a reaction to cyclophosphomide so went onto
mycophenolate
. The vasculitis has damaged my kidneys and the nervous system in my right foot and neck. Fortunately no other organs were affected. I have to wear a splint to walk distance and for driving.
I have had chemo therapy but had a reaction to cyclophosphomide so went onto
mycophenolate
. The vasculitis has damaged my kidneys and the nervous system in my right foot and neck. Fortunately no other organs were affected. I have to wear a splint to walk distance and for driving.
Hidden
in
Vasculitis UK
10 years ago
Dermatomyositis anyone?
I've recently changed my immunosuppressant because the previous one (
mycophenolate
) wasn't controlling joint and muscle pain. I'm now on ciclosporine, already in the 4th week but at quite low dose. The face swelling hasn't gone away, actually it has been increasing in the past few days.
I've recently changed my immunosuppressant because the previous one (
mycophenolate
) wasn't controlling joint and muscle pain. I'm now on ciclosporine, already in the 4th week but at quite low dose. The face swelling hasn't gone away, actually it has been increasing in the past few days.
Purpletop
in
LUPUS UK
10 years ago
Cyclosporine
Hi, I'm diagnosed with lupus and have been on
mycophenolate
and hydroxycloroquine for the past 18 months. Most of my lupus symptoms have been resolved but now new ones have started, the most noticeable being joint and muscle pain.
Hi, I'm diagnosed with lupus and have been on
mycophenolate
and hydroxycloroquine for the past 18 months. Most of my lupus symptoms have been resolved but now new ones have started, the most noticeable being joint and muscle pain.
Purpletop
in
NRAS
10 years ago
Cyclosporine - which brand?
Hi all, I've just come back from my rheumatologist and he's changing my immunosuppressant from
mycophenolate
to cyclosporine (because the disease has changed path and is now attacking my joints). Are you taking/have you taken this? If so, how were the side effects for you?
Hi all, I've just come back from my rheumatologist and he's changing my immunosuppressant from
mycophenolate
to cyclosporine (because the disease has changed path and is now attacking my joints). Are you taking/have you taken this? If so, how were the side effects for you?
Purpletop
in
LUPUS UK
10 years ago
throat pain?
SSc with Hydroxychloroquine and
Mycophenolate
. Bits along with it/at the same time (might not be related) : very tired, inflamed stomach, hands feel like someone has stomped on my fingers and have some tightness. Does this sound like SSc or is it possible I have a virus?
SSc with Hydroxychloroquine and
Mycophenolate
. Bits along with it/at the same time (might not be related) : very tired, inflamed stomach, hands feel like someone has stomped on my fingers and have some tightness. Does this sound like SSc or is it possible I have a virus?
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Mycophenolate
Happy Friday to you all! Quick question: I have been taking MMF for 18 weeks now at 750mg. I've not noticed a difference with it. Except I've lost 1 St 5lb in weight. I've been slowly reducing steroids from 20 to 12.5 but I have been flaring the past few days and don't know whether to increase the steroids
Happy Friday to you all! Quick question: I have been taking MMF for 18 weeks now at 750mg. I've not noticed a difference with it. Except I've lost 1 St 5lb in weight. I've been slowly reducing steroids from 20 to 12.5 but I have been flaring the past few days and don't know whether to increase the steroids
tinkey
in
LUPUS UK
10 years ago
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