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Experiences with
Mycophenolate
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Booster injections
Hi I am currently taking
mycophenolate
but have been advised to stop it for at least 2 weeks as i am going abroad in 3 weeks and having booster injections next Tues. Had anyone else been advised to do this when going abroad and having vacinations?
Hi I am currently taking
mycophenolate
but have been advised to stop it for at least 2 weeks as i am going abroad in 3 weeks and having booster injections next Tues. Had anyone else been advised to do this when going abroad and having vacinations?
NSV69
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Finally starting treatment mycophenolate mofetil
They are starting me on the immunosuppressant
mycophenolate
mofetil and putting me back on steroids and monitoring for 4 months. I'm very happy I'm finally moving forward with treatment.
They are starting me on the immunosuppressant
mycophenolate
mofetil and putting me back on steroids and monitoring for 4 months. I'm very happy I'm finally moving forward with treatment.
ange726
in
LUPUS UK
6 years ago
Filling in PIP form
Hi Everyone New here just received forms for pip, totally lost on how to fill it in, my condition is NSIP a lung disease, just completed chemo to suppress this condition and going onto
Mycophenolate
, which acts the same as chemo to stop this disease progression?
Hi Everyone New here just received forms for pip, totally lost on how to fill it in, my condition is NSIP a lung disease, just completed chemo to suppress this condition and going onto
Mycophenolate
, which acts the same as chemo to stop this disease progression?
TBush
in
Fibromyalgia Action UK
6 years ago
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Diarrhea and mycophenolate
Hi, my son has Mpa from March 2017 and he takes prednisone,
mycophenolate
(myfortic) and ramipril. He's doing well apart from diarrhea caused by
mycophenolate
. He had to stop mmf for a week and he became almost costipated.
Hi, my son has Mpa from March 2017 and he takes prednisone,
mycophenolate
(myfortic) and ramipril. He's doing well apart from diarrhea caused by
mycophenolate
. He had to stop mmf for a week and he became almost costipated.
Wizzi
in
Vasculitis UK
6 years ago
Has my daughter got cerebral vasculitis? Google 'Girl with mystery illness' photos & illness description were in newspapers Nov 2016
Vicky's had antibiotics, steroids, immunoglobulin, plasmatherasis, rituximab and been on
Mycophenolate
Mofetil since Oct 17, with methlprednisolo intravenous steroids last week, the rash is not disappearing, however, speech has improved, consultants are not sure what to do next.
Vicky's had antibiotics, steroids, immunoglobulin, plasmatherasis, rituximab and been on
Mycophenolate
Mofetil since Oct 17, with methlprednisolo intravenous steroids last week, the rash is not disappearing, however, speech has improved, consultants are not sure what to do next.
Vickysmum
in
Vasculitis UK
6 years ago
Mycophenolate
My Rheumatologist has suggested that I start taking
Mycophenolate
and I have an appointment to see a nurse specialist to explain how to take it. My question is has anyone out there taken this and how did they get on? I would really welcome your experience! Many thanks Viv
My Rheumatologist has suggested that I start taking
Mycophenolate
and I have an appointment to see a nurse specialist to explain how to take it. My question is has anyone out there taken this and how did they get on? I would really welcome your experience! Many thanks Viv
Misty2552017
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
DMARDS and flu
I start Chemo in February and really don't want to delay this.I believe the
Mycophenolate
is stopped before you start Chemo.
I start Chemo in February and really don't want to delay this.I believe the
Mycophenolate
is stopped before you start Chemo.
bones-bones
in
LUPUS UK
6 years ago
Pregnant whilst taking mycophenolate
I recently found out that I'm pregnant and whilst this should be a joyous occasion I'm sad because I was still on
mycophenolate
when I found out albeit a very low dosage , which I have now stopped.
I recently found out that I'm pregnant and whilst this should be a joyous occasion I'm sad because I was still on
mycophenolate
when I found out albeit a very low dosage , which I have now stopped.
Precious_G
in
LUPUS UK
6 years ago
Starting cyclosporine on top of mycophenolate
Consultant is thinking of adding on cyclosporine on top of
mycophenolate
as having difficulties weaning off prednisolone. Everytime the dose reduces, sle flares up. Not too keen due to the side effects. Anyone has any experience with cyclosporine? Thanks so much.
Consultant is thinking of adding on cyclosporine on top of
mycophenolate
as having difficulties weaning off prednisolone. Everytime the dose reduces, sle flares up. Not too keen due to the side effects. Anyone has any experience with cyclosporine? Thanks so much.
ksying66
in
LUPUS UK
6 years ago
Glomerular Filtration Result
Hello all, I been on
mycophenolate
1gr/day for 15weeks now. My recent blood test results show that my glomerular filtration is 88 ml/min/1.73m2, while the normal range should start from 90. Apparently this result shows my kidney function is not good.
Hello all, I been on
mycophenolate
1gr/day for 15weeks now. My recent blood test results show that my glomerular filtration is 88 ml/min/1.73m2, while the normal range should start from 90. Apparently this result shows my kidney function is not good.
Maharlika
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Mycophenolate
Has anyone been prescribed
mycophenolate
to treat the symptoms of their ataxia? I go to see Professor Hadjivassiliou in Sheffield and he suggests I take this medication, but it's an immunosuppressant and has side effects, so I am unsure. Any feedback would be much appreciated.
Has anyone been prescribed
mycophenolate
to treat the symptoms of their ataxia? I go to see Professor Hadjivassiliou in Sheffield and he suggests I take this medication, but it's an immunosuppressant and has side effects, so I am unsure. Any feedback would be much appreciated.
2rayvon4
in
Ataxia UK
6 years ago
Vertical splitting nail problem.
I have Systemic Sclerosis and am on lots of medications ..
mycophenolate
, clopidogrel etc. so wonder if it is the meds I have to take or if it is the scleroderma to blame.
I have Systemic Sclerosis and am on lots of medications ..
mycophenolate
, clopidogrel etc. so wonder if it is the meds I have to take or if it is the scleroderma to blame.
marilynmcl
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Mycophenolate and Chemo.
Has anyone been in the situation of taking
Mycophenolate
..or any other immunosuppressant......while having Chemo ? Do you have to stop taking it ? It won't happen for a few weeks after Christmas.
Has anyone been in the situation of taking
Mycophenolate
..or any other immunosuppressant......while having Chemo ? Do you have to stop taking it ? It won't happen for a few weeks after Christmas.
bones-bones
in
LUPUS UK
7 years ago
Update
Mycophenolate
takes 8-12 weeks to work, so haven’t noticed any improvement yet. Seeing Prof Cruz in February. Xx
Mycophenolate
takes 8-12 weeks to work, so haven’t noticed any improvement yet. Seeing Prof Cruz in February. Xx
Wolf1
in
LUPUS UK
7 years ago
Breast surgery.
I take Hydroxychloroquine and
Mycophenolate
. Has anyone done this and do you have any tips ? All ideas welcome !
I take Hydroxychloroquine and
Mycophenolate
. Has anyone done this and do you have any tips ? All ideas welcome !
bones-bones
in
LUPUS UK
7 years ago
Misdiagnosis, can I claim?
The problem is due to the diagnosis I was put on a high dose of
mycophenolate
(1000mg) and prednisolone (30mg) which I took for 18 months.
The problem is due to the diagnosis I was put on a high dose of
mycophenolate
(1000mg) and prednisolone (30mg) which I took for 18 months.
BilboBagshot
in
Vasculitis UK
7 years ago
Breast cancer
Following my last post about surgery and
Mycophenolate
I have been diagnosed with breast cancer. I still don't know whether I can continue taking the
Mycophenolate
as I am in between Rheumatologists. Any how I've told the surgeon and the nurses so I expect they will sort it.
Following my last post about surgery and
Mycophenolate
I have been diagnosed with breast cancer. I still don't know whether I can continue taking the
Mycophenolate
as I am in between Rheumatologists. Any how I've told the surgeon and the nurses so I expect they will sort it.
bones-bones
in
The Australian Sjögren's Syndrome Association
7 years ago
Just started Azathioprine and struggling!
I didn’t tolerate
mycophenolate
very well so trying Azathioprine. I’ve been told that I am very sensitive to drugs and changes in dosage etc.
I didn’t tolerate
mycophenolate
very well so trying Azathioprine. I’ve been told that I am very sensitive to drugs and changes in dosage etc.
MissFG
in
LUPUS UK
7 years ago
St Thomas update
Going to start
Mycophenolate
( MMF) to start. Seeing Prof in 2 months can’t wait to go home xxx thank you for all your interest and support xx
Going to start
Mycophenolate
( MMF) to start. Seeing Prof in 2 months can’t wait to go home xxx thank you for all your interest and support xx
Wolf1
in
LUPUS UK
7 years ago
Increasing Urine Protein Crea Ratio - Anyone has been through this?
The doctor has increased the dosage as follows: 11 Dec 2017 - Increased prednisone from 5mg to 20mg daily 18 Dec 2017 - Increased prednisone from 20mg to 40mg, then tapered down to 15mg daily 8 Jan 2018 - Increased Cellcept (
mycophenolate
mofetil) from 1000mg to 1500mg daily The doctor said it
The doctor has increased the dosage as follows: 11 Dec 2017 - Increased prednisone from 5mg to 20mg daily 18 Dec 2017 - Increased prednisone from 20mg to 40mg, then tapered down to 15mg daily 8 Jan 2018 - Increased Cellcept (
mycophenolate
mofetil) from 1000mg to 1500mg daily The doctor said it
LLLin
in
LUPUS UK
6 years ago
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