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Join our Speech Therapy Session
Come and join us this
Friday, the 21st of July at 11 am - 12 pm
for a session of
Speech Therapy combined with a holistic approach
hosted by our speech therapist, Mandy Ngo. This will incorporate:
-
Exercises to strengthen the head and neck control to aid with swallowing difficulties
Come and join us this
Friday, the 21st of July at 11 am - 12 pm
for a session of
Speech Therapy combined with a holistic approach
hosted by our speech therapist, Mandy Ngo. This will incorporate:
-
Exercises to strengthen the head and neck control to aid with swallowing difficulties
Irmmy
in
Ataxia UK
1 year ago
HRT for menopausal symptoms but I have endometriosis
Currently I have quite bad menopausal symptoms. Does anyone take HRT and has it worsened endometriosis?
Currently I have quite bad menopausal symptoms. Does anyone take HRT and has it worsened endometriosis?
Rosemia
in
Endometriosis UK
11 months ago
Urinary bother; is Flomax a solution?
SBRT plus ADT for 12 months after clean PSMA and 3+4, 4+3, and 4+4. Still up peeing 3 times a night after 4.5 months post radiation. (Down from 8 times). Does anyone know if Flomax will help? Or are there other solutions? I don’t want to take flomax if i don’t have yo as it screws with BP, but i will
SBRT plus ADT for 12 months after clean PSMA and 3+4, 4+3, and 4+4. Still up peeing 3 times a night after 4.5 months post radiation. (Down from 8 times). Does anyone know if Flomax will help? Or are there other solutions? I don’t want to take flomax if i don’t have yo as it screws with BP, but i will
Photographerhere
in
Prostate Cancer Network
11 months ago
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Result, jabs.menopause
Hi all Had my next appointment my platelet count 758 going stay On aspirin 2 day for now next appointment 6 weeks , had my flu/covid jab 2 weeks ago , at moment flu of cold ,cough but it is this time of year , more of a women question not had period 4 months now doctors did me blood test got appointment
Hi all Had my next appointment my platelet count 758 going stay On aspirin 2 day for now next appointment 6 weeks , had my flu/covid jab 2 weeks ago , at moment flu of cold ,cough but it is this time of year , more of a women question not had period 4 months now doctors did me blood test got appointment
Jody00
in
MPN Voice
11 months ago
1st PSA Post SBRT + ADT: A Bounce?
I had a diagnosis of Gleason 3+4, probable ECE; Decipher .63. Received 5 Fraction SBRT at MSKCC (Dr. Zelefsky) in early January of this year. 6 months of ADT (Orgovyx) ended May 23, 2023. At the end of ADT, my PSA was <0.05 and Testosterone was 4. My first PSA Test was last Wednesday at Penn Medicine
I had a diagnosis of Gleason 3+4, probable ECE; Decipher .63. Received 5 Fraction SBRT at MSKCC (Dr. Zelefsky) in early January of this year. 6 months of ADT (Orgovyx) ended May 23, 2023. At the end of ADT, my PSA was <0.05 and Testosterone was 4. My first PSA Test was last Wednesday at Penn Medicine
Longrunner
in
Prostate Cancer Network
11 months ago
INCA033989 phase 1 clinical trial is recruiting patients
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
flamboyant_hawking
in
MPN Voice
1 year ago
My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
11 months ago
Florinef Dosage
For those that require adrenal hormone replacement such as Hydrocortisone, Florinef and DHEA (I know most Endocrinologist do not even mention DHEA to their patients and say it unnecessary, as one does not need it to 'live', even though it is the most most abundant hormone in the human body, and studies
For those that require adrenal hormone replacement such as Hydrocortisone, Florinef and DHEA (I know most Endocrinologist do not even mention DHEA to their patients and say it unnecessary, as one does not need it to 'live', even though it is the most most abundant hormone in the human body, and studies
bluejadedwho
in
AMN EASIER
11 months ago
HRT and thyroxine
Morning all, I have been stable on 175ugs of levo for about two years now and I also take HRT. In a couple of months I will be having a THR and have to stop HRT for four weeks. Does anyone know if this will affect how much levo I may need. I know you aren't medical but it would give me an idea as to
Morning all, I have been stable on 175ugs of levo for about two years now and I also take HRT. In a couple of months I will be having a THR and have to stop HRT for four weeks. Does anyone know if this will affect how much levo I may need. I know you aren't medical but it would give me an idea as to
Sherlock11
in
Thyroid UK
11 months ago
Options?
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Cats1311
in
Endometriosis UK
11 months ago
ADT (Lupron) and creatine?
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
Gs-rider
in
Advanced Prostate Cancer
11 months ago
New treatment for Parkinson
Has anybody tried LENs Biofeedback?, it is a relatively new and non invasive therapy to Parkinson to improve parkinson's symptoms like tremors and bradykinesia.
Has anybody tried LENs Biofeedback?, it is a relatively new and non invasive therapy to Parkinson to improve parkinson's symptoms like tremors and bradykinesia.
UncleCharlieyoyo
in
Cure Parkinson's
1 year ago
Treatment - radiation vs. surgery
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
TonyTx
in
Prostate Cancer Network
10 months ago
Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
11 months ago
Trying to get to retirement before HT
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
CJ1958
in
Prostate Cancer Network
11 months ago
ADT for how long..
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Justt
in
Advanced Prostate Cancer
11 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
11 months ago
HRT and waiting for scans
Earlier this year in March, I saw my GP to ask about HRT, so blood works were done and anomalies found so went for an ultrasound and found to have Fatty liver and hepatic hemangioma. I'm now waiting for a fibroscsn in December and I'm worried and scared. To help myself I've stopped alcohol completely
Earlier this year in March, I saw my GP to ask about HRT, so blood works were done and anomalies found so went for an ultrasound and found to have Fatty liver and hepatic hemangioma. I'm now waiting for a fibroscsn in December and I'm worried and scared. To help myself I've stopped alcohol completely
Hidden
in
British Liver Trust
11 months ago
Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
11 months ago
Brother's numbers since ADT plus Orchiectomey since diagnosed in February
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Sparlingo
in
Advanced Prostate Cancer
11 months ago
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