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EBRT - Is it the right thing and what to expect?
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
JazzMan42
in
Advanced Prostate Cancer
4 months ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
5 months ago
6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
5 months ago
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A Clinical Trial saved my Life ..12 years a Survivor of Advanced Metastatic Prostate Cancer, Stage 4.
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
alsam
in
Understanding Clinical Trials
5 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
5 months ago
Medically induced menopause at 24
So I had surgery in July my pain ramped up post surgery and I'm not in excruciating pain daily some days bed bound I work and had 37 days of since km worried about my job they seem OK but its a worry still. I've exhausted alot of options eg. Pain relief and dienogest, doubling my pill for hormones ect
So I had surgery in July my pain ramped up post surgery and I'm not in excruciating pain daily some days bed bound I work and had 37 days of since km worried about my job they seem OK but its a worry still. I've exhausted alot of options eg. Pain relief and dienogest, doubling my pill for hormones ect
En89
in
Endometriosis UK
8 months ago
Pelvic floor exercise video removed.
I had a RP 5 years ago with recurrence - then had 72Gy of IMRT. After the RP with pelvic floor exercises, I had incontinence under control - just wearing 1 shield per day. But then after radiation I completely lost control. I go thru periods of intensely training and I still have hope. My problem is
I had a RP 5 years ago with recurrence - then had 72Gy of IMRT. After the RP with pelvic floor exercises, I had incontinence under control - just wearing 1 shield per day. But then after radiation I completely lost control. I go thru periods of intensely training and I still have hope. My problem is
lynntg044
in
Prostate Cancer And Gay Men
10 days ago
Having trouble with right med combo for 11 year old son.
Our son was diagnosed with ADHD in December 2022. We started behavioral therapy (DBT training) in January 2022 and also recently started ADHD meds in April 2022. He is currently on Focalin XR (15 mg) right before school and short acting Focalin after school (7.5 mg), We have found that the long acting
Our son was diagnosed with ADHD in December 2022. We started behavioral therapy (DBT training) in January 2022 and also recently started ADHD meds in April 2022. He is currently on Focalin XR (15 mg) right before school and short acting Focalin after school (7.5 mg), We have found that the long acting
Kristin_B
in
CHADD's ADHD Parents Together
10 months ago
Role of Occupational Therapy
Interesting paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4606403/
Interesting paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4606403/
pdpatient
in
Cure Parkinson's
10 months ago
how often should you have a Dexa scan ?
I had one when I was first diagnosed with PMR about 6 years ago. Since then I have tapered down the pred but couldn’t get below 2 mgs until … I restarted HRT. I have now managed to taper to zero for the last 2 weeks and fingers crossed, I’m hoping that’s it ! Mindful it could always creep back of course
I had one when I was first diagnosed with PMR about 6 years ago. Since then I have tapered down the pred but couldn’t get below 2 mgs until … I restarted HRT. I have now managed to taper to zero for the last 2 weeks and fingers crossed, I’m hoping that’s it ! Mindful it could always creep back of course
Seekingasolution
in
PMRGCAuk
5 months ago
Targeting Mets w SBRT- what’s your experience?
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
SeattleDan
in
Advanced Prostate Cancer
5 months ago
Zoladex & Tibolone
Hi, I have just started a 3month trial of Zoladex implant / injection and daily Tiblone. I was wondering if anyone else has tried this? I have been given a clearance of stage 3 and 4 endo but they are not sure if I have stage 1 or 2. Ive always struggled with IBS and painful periods which I went
Hi, I have just started a 3month trial of Zoladex implant / injection and daily Tiblone. I was wondering if anyone else has tried this? I have been given a clearance of stage 3 and 4 endo but they are not sure if I have stage 1 or 2. Ive always struggled with IBS and painful periods which I went
Loulabelle1709
in
Women's Health
5 months ago
Benefits of split dosing T4
I hearken back to my post a few months ago https://healthunlocked.com/thyroiduk/posts/149418197/high-morning-cortisol-and-t3 where I was struggling (and still am) to find a solution to the severe waking anxiety I have had to tolerate for years now. As I feel my adrenals are still playing a big part
I hearken back to my post a few months ago https://healthunlocked.com/thyroiduk/posts/149418197/high-morning-cortisol-and-t3 where I was struggling (and still am) to find a solution to the severe waking anxiety I have had to tolerate for years now. As I feel my adrenals are still playing a big part
Jefner
in
Thyroid UK
5 months ago
Results
Hello everyone. Firstly I want to say a big thanks to everyone that helped me understand my mum's results and situation. I also got my wires crossed and gave some wrong info. My mum did have a test before they prescribed 25mg, TSH 8.58. They said as she was 'borderline' they would try levo before considering
Hello everyone. Firstly I want to say a big thanks to everyone that helped me understand my mum's results and situation. I also got my wires crossed and gave some wrong info. My mum did have a test before they prescribed 25mg, TSH 8.58. They said as she was 'borderline' they would try levo before considering
RedOne1
in
Thyroid UK
5 months ago
Getting to the root of my anxiety
I am 57 and I was considered in menopause at 52 years old, however I went through perimenopause for approximately 5-7 years prior. I am in therapy, but it does not seem to be helping. Unfortunately I cannot take any Hormone Replacement Therapy because I had one positive result for a gene that increases
I am 57 and I was considered in menopause at 52 years old, however I went through perimenopause for approximately 5-7 years prior. I am in therapy, but it does not seem to be helping. Unfortunately I cannot take any Hormone Replacement Therapy because I had one positive result for a gene that increases
Cardinals1
in
Anxiety and Depression Support
5 months ago
Progesterone post medicated FET
I'd like to ask all the ladies who conceived after a HRT/medicated FET, how much progesterone pessaries were you on? I'm on 4 x 200mg vaginal capsules so 800mg/day. Wonder if anyone is/was on a lower dosage. Just thinking about reducing to 3 x /day (600mg) having seen the patients' leaflet for Utrogestan
I'd like to ask all the ladies who conceived after a HRT/medicated FET, how much progesterone pessaries were you on? I'm on 4 x 200mg vaginal capsules so 800mg/day. Wonder if anyone is/was on a lower dosage. Just thinking about reducing to 3 x /day (600mg) having seen the patients' leaflet for Utrogestan
konyaga
in
Fertility Network UK - Pregnancy Support
5 months ago
T3 test times advice
Hi FT4: 12.22 pmol/l (Range 8 - 19.1) 38.02% FT3: 5.3 pmol/l (Range 2.4 - 6) 80.56% TSH <0.01 I take 100 t4 and 15 t3. I had the above done just before I started hrt. They are going to test again as I have felt a few of my symptoms returning. Slow bowel, sore feet etc. Nothing major but enough to
Hi FT4: 12.22 pmol/l (Range 8 - 19.1) 38.02% FT3: 5.3 pmol/l (Range 2.4 - 6) 80.56% TSH <0.01 I take 100 t4 and 15 t3. I had the above done just before I started hrt. They are going to test again as I have felt a few of my symptoms returning. Slow bowel, sore feet etc. Nothing major but enough to
BiscuitBaby
in
Thyroid UK
5 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
4 months ago
PROSTOX Tests
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Infamous9597
in
Advanced Prostate Cancer
28 days ago
MRI report shows enhancing bone lesion is noted involving the left sphenoid bone.
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
Gl448
in
Advanced Prostate Cancer
28 days ago
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