Experiences with

Muscular dystrophy

I’m stuck and have muscular dystrophy and bad anxiety. I’m feeling like not being here anymore and can’t handle life’s challenges. I’m fatigued all over and overly scared.

Muscular dystrophy. Stroke. Chest pain? Heart failure. Heart disease. SOB? Lung disease. It doesn’t make sense. I want to feel normal, I want to feel like I belong in this world. I want to live a normal life. I want to be able to live the rest of my life without so much worry.

My cholesterol is ok Triglycerides 1.0 normal between 0.5 and 1.70 I have been asked to do a prevention of Diabetes programme, I am within the recommended BMI and walk average of 12k steps daily don’t drink alcohol, I think my diet is pretty good, also have have FSH muscular dystrophy, so don’t want

I also have muscular dystrophy that makes me more nervous to walk even though I’ve been fine for 17 years before. Dizziness happens a lot more too also.

I have APS, hemophilia B, and limb girdle muscular dystrophy. I walk daily and eat very clean. No grains. Very low carbs. No sugar. Organic. Just curious if anyone here was diagnosed later with lupus. Rash I am hoping just goes away!! Soon! I don’t have time for this.

So, I have cardiomyopathy and muscular dystrophy! I had been on atenolol for 10 years and was switched to bisoprolol back in July. I’ve definitely had some issues with it, low blood pressure, coldness etc but I have also been having this insane hunger.

I made a post yesterday morning and since then I ended up in A&E - I have muscular dystrophy and dilated cardiomyopathy. I was on atenolol for 10 years and felt good on it!

I have muscular dystrophy and the past 3 months have been hell with severe depression and anxiety, where I keep going only because what else do I do. I want to see the world so I’ll just suffer through it. The only reason I could have this is because my condition gets worse with regression.

These, combined with a contribution from my late-diagnosis of Muscular Dystrophy, lead to chronic constipation and I've been told that an elective ileostomy may be the only permanent solution to the painful bloating and excrutiating pain of defecation, when it does happen.

dystrophy Spina bifida Osteogenesis imperfecta (brittle bones)

But that was only about the Muscular Dystrophy. Does anyone else have this collection of conditions? Has anyone else declared peripheral neuropathy to DVLA and if so, what was the outcome? Thanks.

But that was only about the Muscular Dystrophy. Does anyone else have this collection of conditions? Has anyone else declared peripheral neuropathy to DVLA and if so, what was the outcome? Thanks.

But that was only about the Muscular Dystrophy. Does anyone else have this collection of conditions? Has anyone else declared peripheral neuropathy to DVLA and if so, what was the outcome? Thanks.

Got to have Vascular surgery in the next few weeks. Bloods showed up that T3 and T4 were out of kilter. I don't think I have been taking enough (Thyroid - S) I have now increased the dose - Do we think that will do the job or do I need something else to boost things along?

Today I saw the nurse and I was given a FeNO test , the result was 43 which she said was slightly elevated particularly as I take daily prednisolone. We were discussing the reason for all my infections and the pseudomonas infection I had. I will have a spirometry test in a few weeks also and then probably

I posted a few months back about my cardiologist finding 2 aneurysms on my yearly CT scan. He sent me to a Cardio/Thoracic surgeon for a second opinion and more testing. At my preop appointment today for my open heart surgery scheduled at the end of this month, they found that neither aneurysms had

Hi Does anyone know if you are taking Hydroxycarbamide it is advisable not to take Ibuprofen or anti inflammatory I am thinking I have read this somewhere. I have ET +Jak2 take 500 Hydroxycarbamide daily plus aspirin .I have Facet joint degeneration so am being cautious before taking anything to

Has anyone on here come off Amlodipine and got the side effects I’m feeling this morning, of panicky feelings and shakiness.

14 years and oh dear, the journey is not over yet! After 7 months off all meds, had a PET scan Xmas eve which showed GCA in my aorta from heart to abdomen. Back on Pred and Actemra. At least we know where it is now, as I’ve mostly had constitutional symptoms. I have 2 questions: what us the usual monitoring

Message from my doctor: Hi Mr. Alexander, Thank you for giving gabapentin a try. Please let me know if you develop sleepwalking again with this medication so we can stop it. Hopefully, the lower dose will prevent this from happening. In regards to the pain medication they gave you in the ER, hydrocodone