Experiences with

Muscular dystrophy

I’m stuck and have muscular dystrophy and bad anxiety. I’m feeling like not being here anymore and can’t handle life’s challenges. I’m fatigued all over and overly scared.

I have APS, hemophilia B, and limb girdle muscular dystrophy. I walk daily and eat very clean. No grains. Very low carbs. No sugar. Organic. Just curious if anyone here was diagnosed later with lupus. Rash I am hoping just goes away!! Soon! I don’t have time for this.

These, combined with a contribution from my late-diagnosis of Muscular Dystrophy, lead to chronic constipation and I've been told that an elective ileostomy may be the only permanent solution to the painful bloating and excrutiating pain of defecation, when it does happen.

dystrophy Spina bifida Osteogenesis imperfecta (brittle bones)

But that was only about the Muscular Dystrophy. Does anyone else have this collection of conditions? Has anyone else declared peripheral neuropathy to DVLA and if so, what was the outcome? Thanks.

But that was only about the Muscular Dystrophy. Does anyone else have this collection of conditions? Has anyone else declared peripheral neuropathy to DVLA and if so, what was the outcome? Thanks.

But that was only about the Muscular Dystrophy. Does anyone else have this collection of conditions? Has anyone else declared peripheral neuropathy to DVLA and if so, what was the outcome? Thanks.

Hi there I was diagnosed with ibs my live has been hard everything triggers anxiety on me been taking mebeverine it helps relief abdmoninal and back pains helping get more relax .my gp gave me fit sample test for poo test waiting for results.

Hi, I ma not sure if this is the correct group to post but cannot find an alternative one. I am a 48 year old male, vegetarian and healthy diet. I exercise regularly and drink lots of water. I have recently started to take fibre supplements as I dont think I get enough. For the last two months, I

hi just had a lung scan and told I have one small module and fibrosis no symptoms was just wondering if anyone else on here has same problems and what medication do they take got to go for a lung function test Another scan in February to see if the module has grown any information would be appreciated

So yesterday got home to a letter from Neurovascular who had seen my scans for GCA and apparently now I have a small aneurysm in one of the arteries in my head but they are leaving it alone since the risk of intervention is higher than the risk of a bleed - anyone else have one ? I have a chest X-ray

Hi, in persistent AF (cardioversion in 2 weeks) on meds for HF and suffer from Raynaud's.So cold presently and find it really difficult to keep warm, hands and feet suffer mainly and are cold as ice but feel it throughout my body, think the meds are making things worse (bisoprolol, dapagaflozin, ramipril

Has anyone got any experience of managing fatigue during palliative care? My mum is struggling so much with fatigue and we are getting conflicting advice. She is on a blood thinner (Apixaban) after a blood clot which has now cleared. Her oncologist wants her to have a steroid (Dexamethasone) and has

Most mornings I experience anxiety upon waking up. Quite often I experience anxiety in my dreams. however, this clears within about an hour as I take 1mg Lorazepam first thing. I feel okay, anxiety-wise, for the rest of the day. Would switching my Lorazepam to bed time prevent my anxiety problem? (

I've been taking Rivaroxaban for over 5 years and continue to notice some bleeding of the gums when brushing my teeth and when blowing my nose 3-4 hours after taking it. I have spoken to my GP who seemed generally unconcerned and mentioned the option of changing to Apixaban. I've also noticed that I'm

Good morning everyone. I recently posted another post. And was telling you guys in that post that I was going to go get checked out. A quick little reminder I was diagnosed in November of 2018 with a dvt and pe. I've been taking warfarin since then. I started having some knee pain around June and didn't

Hello everyone. I am new here, but I am not new to living with aps. I've had it now for almost 6yrs and I continue to read about it and try to learn. I was diagnosed with a dvt in my leg and after be admitted into the hospital they found i had a pulmonary embolism as well. Very scary stuff. I read that

Hello, My father is scheduled for Lu177 for mcrpc ( see profile for more details) . Unfortunately, he has been incontinent for past 3 months and wears depends regularly and at night . We will disposing the diapers as per the guidelines given by the doctor. but wondering how we can limit radiation

Hi all, I am just putting this out there to see what people’s opinions are of a recent request I made for a GP to visit. My husband is end stage CBD and familial FTD. I choose to care for him at home, he needs all care but is still aware of me and still watches TV. Last week he was very drowsy and we

Hi, Looking for some advice please if you've been in a similar situation. I've been struggling more with my gut lately (pain, bloating, nausea, constipation & diarrhoea, sometimes passing blood, no hunger/ desire to eat). My GP has done some tests, my calprotectin came back a bit high and has referred