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Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
3 months ago
2 long weeks!
Hi All, I posted few weeks ago re my daughters visit to a new Endo, He was awful, condescending, rude, vague with a , Im the Dr attitude, I know it all" I myself have had my thyroid condition for 30 years, I know a thing or two . Well he was awful and other than offering my daughter Ozempic and ordering
Hi All, I posted few weeks ago re my daughters visit to a new Endo, He was awful, condescending, rude, vague with a , Im the Dr attitude, I know it all" I myself have had my thyroid condition for 30 years, I know a thing or two . Well he was awful and other than offering my daughter Ozempic and ordering
Merema
in
Thyroid UK
1 month ago
Radio Frequency oral therapy for liver cancer
New FDA approved home therapy for liver growths; small antenna that is kept in the mouth for 1 hour daily. The science is radio frequencies that interact with cancer cells and keep them controlled.
New FDA approved home therapy for liver growths; small antenna that is kept in the mouth for 1 hour daily. The science is radio frequencies that interact with cancer cells and keep them controlled.
Preetham
in
Blue Faery Liver Cancer
1 month ago
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Terbium-161 - As a follow-up to Alicia Morgan's comments in the PeterMac GUcast interview posted earlier by marnie46.
I meant to include this article, a 24 Nov 2023 news release on Terbium-161, in a followup reply to Marnie's post of the Dr. Morgan interview by the excellent PeterMac team several days back. [i]
Three big challenges in metastatic prostate cancer | Dr Alicia Morgans
[/i] [i]
https://healthunlocked.com
I meant to include this article, a 24 Nov 2023 news release on Terbium-161, in a followup reply to Marnie's post of the Dr. Morgan interview by the excellent PeterMac team several days back. [i]
Three big challenges in metastatic prostate cancer | Dr Alicia Morgans
[/i] [i]
https://healthunlocked.com
cujoe
in
Fight Prostate Cancer
1 month ago
Very fast onset of Pneumonia! It’s a long story; are you comfortable…
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
Tpdnotts
in
CLL Support
7 months ago
Shingles vaccine
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
allanah
in
NRAS
3 months ago
Advancing Prostate Cancer Care: Treatment Approaches to Precision Medicine, Biomarker Innovations, and Equitable Access -ASCO - May 23, 2024
While not a lot of specific focus on PCa (Like at the GU ASCO Meeting earlier this year), this full-access section from their Educational Book released at this week's ASCO Annual Meeting in Chicago may be of interest to those here who want to understand the oncology community's current view on precision
While not a lot of specific focus on PCa (Like at the GU ASCO Meeting earlier this year), this full-access section from their Educational Book released at this week's ASCO Annual Meeting in Chicago may be of interest to those here who want to understand the oncology community's current view on precision
cujoe
in
Fight Prostate Cancer
1 month ago
Human Rights Day - 75th Anniversary
Today marks the 75th Anniversary of Human Rights Day. This year’s theme is
Freedom, Equality and Justice for All
. Please remember this. In 2010, Dr Matt Jameson Evans (Chief Medical Officer) and an entrepreneur, Jorge Armanet founded HealthUnlocked. They wished to reshape how data and information
Today marks the 75th Anniversary of Human Rights Day. This year’s theme is
Freedom, Equality and Justice for All
. Please remember this. In 2010, Dr Matt Jameson Evans (Chief Medical Officer) and an entrepreneur, Jorge Armanet founded HealthUnlocked. They wished to reshape how data and information
Narwhal10
in
Pernicious Anaemia Society
7 months ago
Hot stone massage
Hi everyone, I'm still on a watch and wait basis regarding my lung cancer, and at the moment they have all grown 1mm and am mostly feeling ok. It's my 60th birthday next Friday and my daughters have booked us in for a Spa day, included in this is a hot stone back massage, but I've read it's not suitable
Hi everyone, I'm still on a watch and wait basis regarding my lung cancer, and at the moment they have all grown 1mm and am mostly feeling ok. It's my 60th birthday next Friday and my daughters have booked us in for a Spa day, included in this is a hot stone back massage, but I've read it's not suitable
Mindini1964
in
The Roy Castle Lung Cancer Foundation
1 month ago
Sorted -,covid anti viral treatment
I managed to get covid a month after Rituxumab infusions, got free lateral flow test from independent pharmacy (boots and Tesco were hopeless and not signed up to the scheme) all the pharmacist needed was sight of a clinical letter confirming diagnosis. After testing positive I called 111 and an anti
I managed to get covid a month after Rituxumab infusions, got free lateral flow test from independent pharmacy (boots and Tesco were hopeless and not signed up to the scheme) all the pharmacist needed was sight of a clinical letter confirming diagnosis. After testing positive I called 111 and an anti
Pompey3
in
Vasculitis UK
7 months ago
CTC circulating tumor cell count
I haven’t seen too much mention of CTC tests when PSA rises. Some rises at very low levels are not clearly correlated or confirmed by PET scans. So why isn’t CTC used, too expensive, inaccurate, most men lack a baseline test? Just curious if anyone tests this and what their experience has been
I haven’t seen too much mention of CTC tests when PSA rises. Some rises at very low levels are not clearly correlated or confirmed by PET scans. So why isn’t CTC used, too expensive, inaccurate, most men lack a baseline test? Just curious if anyone tests this and what their experience has been
Steel67
in
Advanced Prostate Cancer
1 month ago
Is this lupus?
Hi, I'm just into my sixties and have developed symptoms that are tempting to pigeonhole "getting older" or menopause, but I don't think that they are. I do know though that the flare ups became much worse following a viral infection Feb 2020 (maybe covid?). I also reacted dramatically to the astra
Hi, I'm just into my sixties and have developed symptoms that are tempting to pigeonhole "getting older" or menopause, but I don't think that they are. I do know though that the flare ups became much worse following a viral infection Feb 2020 (maybe covid?). I also reacted dramatically to the astra
Foodwithfriends83
in
LUPUS UK
7 months ago
3 months since ovarian mass was an incidental find on CT scan and still waiting for my MRI.
I've posted on here before about this but I'm getting antsy. A fibroid and possible ovarian mass were found on a CT when I went in for stomach pains (which turned out to be diverticulitis). On the CT scan they noticed a a complex cyst on my left ovary, however they couldn't be sure if it was just a
I've posted on here before about this but I'm getting antsy. A fibroid and possible ovarian mass were found on a CT when I went in for stomach pains (which turned out to be diverticulitis). On the CT scan they noticed a a complex cyst on my left ovary, however they couldn't be sure if it was just a
starrynight5626
in
My Ovacome
1 month ago
Need advice for a friend
A friend has been diagnosed with late stage cervical cancer and needs a 2nd opinion, i know our group is for ovarian but thought maybe someone would know a could UK based gynae oncologist for this? Thanks X
A friend has been diagnosed with late stage cervical cancer and needs a 2nd opinion, i know our group is for ovarian but thought maybe someone would know a could UK based gynae oncologist for this? Thanks X
Newbery3
in
My Ovacome
1 month ago
Some good news…
I’ve been trying to figure out some extreme lower back pain, and had another PSMA/PET scan today. I had visions of cancerous spread to my spine, and wanted to check things. Well, while it didn’t solve my back pain questions, it
did
gave me some
good news.
“There is no abnormal radiotracer
I’ve been trying to figure out some extreme lower back pain, and had another PSMA/PET scan today. I had visions of cancerous spread to my spine, and wanted to check things. Well, while it didn’t solve my back pain questions, it
did
gave me some
good news.
“There is no abnormal radiotracer
Jpburns
in
Advanced Prostate Cancer
1 month ago
finally.....
I just got a phone call from Rochester cancer that my oncologist referred me to them. They are supposed to be the best in the state. it is way over on the other side of the state, a 3-hour drive and with an 80-year-old husband I am wondering how I will get there. I still get no serious response or
I just got a phone call from Rochester cancer that my oncologist referred me to them. They are supposed to be the best in the state. it is way over on the other side of the state, a 3-hour drive and with an 80-year-old husband I am wondering how I will get there. I still get no serious response or
DianeSH
in
CLL Support
1 month ago
Nivolumab and Ipilimumab for Metastatic Prostate Cancer with an Immunogenic Signature: Phase 2 Trial
(UroToday.com) The 2024 American Society of Clinical Oncology (ASCO) annual meeting held in Chicago, IL between May 31 and June 4 was host to the Rapid Oral Abstract Session: Genitourinary Cancer - Prostate, Testicular, and Penile. Dr. Mark Linch presented results from the NEPTUNES (NCT03061539), a multi-centre
(UroToday.com) The 2024 American Society of Clinical Oncology (ASCO) annual meeting held in Chicago, IL between May 31 and June 4 was host to the Rapid Oral Abstract Session: Genitourinary Cancer - Prostate, Testicular, and Penile. Dr. Mark Linch presented results from the NEPTUNES (NCT03061539), a multi-centre
God_Loves_Me
in
Advanced Prostate Cancer
1 month ago
Recent diagnosis questions & concerns, please respond to any that you can
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
G6AS
in
Prostate Cancer Network
1 month ago
Tibetan Therapy for prostate cancer
Hii , If anyone from India can tell his/her experience regarding Tibetan medicine for prostate cancer . There was one doctor Yeshi Dhodhen who is having good reputation for treating cancer . He also got Padamshree award from Govt. of India for his contribution in medical field . Unfortunately he passed
Hii , If anyone from India can tell his/her experience regarding Tibetan medicine for prostate cancer . There was one doctor Yeshi Dhodhen who is having good reputation for treating cancer . He also got Padamshree award from Govt. of India for his contribution in medical field . Unfortunately he passed
jeetu_g27
in
Advanced Prostate Cancer
1 month ago
Understanding the Threat of Micrometastases (also known as Minimal Residual Disease) in Prostate Cancer or Don't sweat the small stuff
Greetings followers of FPC; It is time to set things straight in regards to the oligometastatic state in prostate caner. Posters will tell you that it does not exist because of micrometastases. So let's take a look at micrometastases first. The dreaded micrometastases.....the ultimate death sentence
Greetings followers of FPC; It is time to set things straight in regards to the oligometastatic state in prostate caner. Posters will tell you that it does not exist because of micrometastases. So let's take a look at micrometastases first. The dreaded micrometastases.....the ultimate death sentence
NPfisherman
in
Fight Prostate Cancer
2 months ago
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